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Feeling really lost
Hi guys, I'm really hoping someone may be able to offer a bit of guidance or advice as i really don't know which way to turn. Since i was a young teenager, i've always had really dry, brittle and frizzy hair, an inability to lose weight (despite excessive exercise and cutting calories) and an erratic
Hi guys, I'm really hoping someone may be able to offer a bit of guidance or advice as i really don't know which way to turn. Since i was a young teenager, i've always had really dry, brittle and frizzy hair, an inability to lose weight (despite excessive exercise and cutting calories) and an erratic
BeautyintheStruggle
in
Thyroid UK
27 days ago
Genetic Testing for cholesterol and insurance
Hi The only test I have outstanding is a genetic test for familial hypercholeserolmia (high cholesterol) . I was told that insurers shouldn’t ask for genetic testing but looking into it FH is considered to be an illness and diagnostic tests can be disclosed. I know travel insurance companies are funny
Hi The only test I have outstanding is a genetic test for familial hypercholeserolmia (high cholesterol) . I was told that insurers shouldn’t ask for genetic testing but looking into it FH is considered to be an illness and diagnostic tests can be disclosed. I know travel insurance companies are funny
Coffeelover2
in
British Heart Foundation
5 months ago
advice, thoughts please, feeling rather desperate?!
hi I only got one response to my recent post which was so kind but no feedback so am trying again as I’m a bit stumped. I’d hoped going on NDT would relieve fibro symptoms and generally help me feel better, and give me more energy, but despite latest test results I don’t feel that much different. Certainly
hi I only got one response to my recent post which was so kind but no feedback so am trying again as I’m a bit stumped. I’d hoped going on NDT would relieve fibro symptoms and generally help me feel better, and give me more energy, but despite latest test results I don’t feel that much different. Certainly
Starseed56
in
Thyroid UK
3 months ago
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GGT test
hi I’ve just got my GGT blood test results and it’s 215, I’m diabetic with high sugar levels hba1c of 71 should I be worried
hi I’ve just got my GGT blood test results and it’s 215, I’m diabetic with high sugar levels hba1c of 71 should I be worried
Footee
in
British Liver Trust
2 months ago
Help with adding levo to T3 only
Hi, I've been on T3 only for many years (62.5 mcg). I've switched from levo to T3 only in the time because I had an elevated rT3 and still hypo symptoms despite elevated dose. Every endo I've seen in the last years said I should go back levo because my T3 levels are through the roof. They don't seem
Hi, I've been on T3 only for many years (62.5 mcg). I've switched from levo to T3 only in the time because I had an elevated rT3 and still hypo symptoms despite elevated dose. Every endo I've seen in the last years said I should go back levo because my T3 levels are through the roof. They don't seem
Soloslim
in
Thyroid UK
28 days ago
Latest bloods Graves
I’ve had my latest bloods back & a follow up with my endocrine nurse on Friday. In brief I’m still losing weight, I’m now 46.6kg (no diarrhoea) sleep is still absolutely awful & I’m tired a lot of the time, mentally I’m still very up & down. My resting heart rate has improved a bit recently. I’ve just
I’ve had my latest bloods back & a follow up with my endocrine nurse on Friday. In brief I’m still losing weight, I’m now 46.6kg (no diarrhoea) sleep is still absolutely awful & I’m tired a lot of the time, mentally I’m still very up & down. My resting heart rate has improved a bit recently. I’ve just
Mah43
in
Thyroid UK
29 days ago
GAZYVA & VENCLEXTA…I thought it wasn’t working. Apparently it was, extremely well
Had PET scan yesterday, read the report today. I haven’t spoken to my Doc yet. But according to this report there are no signs of enlarged lymph nodes anywhere. Kind of blows my mind, the main reason I started treatment was because of my abdominal pain (which I still have). I am considered high risk
Had PET scan yesterday, read the report today. I haven’t spoken to my Doc yet. But according to this report there are no signs of enlarged lymph nodes anywhere. Kind of blows my mind, the main reason I started treatment was because of my abdominal pain (which I still have). I am considered high risk
Corgidad
in
CLL Support
5 months ago
High Urate Levels Symptoms?
I've just turned 50, and been having a few symptoms of generally unwellness. Pain in the back / Kidney area. GP thinks I may have pulled this, but I wasn't so sure. Also intense Brain Fog, confusion, memory lapse now and again, with fatigue and tiredness. It feels like my head is being squeezed and
I've just turned 50, and been having a few symptoms of generally unwellness. Pain in the back / Kidney area. GP thinks I may have pulled this, but I wasn't so sure. Also intense Brain Fog, confusion, memory lapse now and again, with fatigue and tiredness. It feels like my head is being squeezed and
Jack76
in
Early CKD Support
2 months ago
16 week mid wife appointments ( outpatient)
I went for my appointment today , I’m giving birth not at my local hospital due to me choosing a much better hospital and receiving misdiagnosis which has caused lots of issues Anyway this appointment today she was late , didn’t know what she was doing , couldn’t use the printer etc , told me not sure
I went for my appointment today , I’m giving birth not at my local hospital due to me choosing a much better hospital and receiving misdiagnosis which has caused lots of issues Anyway this appointment today she was late , didn’t know what she was doing , couldn’t use the printer etc , told me not sure
Jade2006
in
Pregnancy and Parenting Support
5 months ago
Vitamin/mineral deficiencies
Hi. I've had Pbc for 6 yrs now. Recently I've noticed that I am more fatigued than normal. I asked for my blood results over the last 10 yrs . I noticed a progressive decline in my ferritin levels over the last few yes. I had a vitamin b12 level done recently and it was just above the borderline/normal
Hi. I've had Pbc for 6 yrs now. Recently I've noticed that I am more fatigued than normal. I asked for my blood results over the last 10 yrs . I noticed a progressive decline in my ferritin levels over the last few yes. I had a vitamin b12 level done recently and it was just above the borderline/normal
Finn2021
in
PBC Foundation
5 months ago
Update on my journey of elimination
Hello everyone, I'm a 39 yrs old female. Some months ago I started my elimination process. I haven't been feeling well for the last 6.5 years, in and out of jobs and life in general. I was doing great on 3 gr of Armour for 2 years up until mid 2017 and then crashed. Trying to resolve the mystery of
Hello everyone, I'm a 39 yrs old female. Some months ago I started my elimination process. I haven't been feeling well for the last 6.5 years, in and out of jobs and life in general. I was doing great on 3 gr of Armour for 2 years up until mid 2017 and then crashed. Trying to resolve the mystery of
Incoguto
in
Thyroid UK
4 months ago
help - started oestrogel- 4th day - but does it lower thyroid ? My stomach motility stopped again
hi wonderful people I started HRT oestrogel and 4th day and 2 pumps - I have really bad bloating and zero stomach motility - Does it interfere with thyroid t4 or t3 ? I have read it can lower thyroid or block the cell ? When stomaxh motility is so bad I can’t eat properly and weight is low but can
hi wonderful people I started HRT oestrogel and 4th day and 2 pumps - I have really bad bloating and zero stomach motility - Does it interfere with thyroid t4 or t3 ? I have read it can lower thyroid or block the cell ? When stomaxh motility is so bad I can’t eat properly and weight is low but can
Chouchou1234
in
Thyroid UK
5 months ago
Metavive switch to Armour dosing
Hi all I am taking 6 Metavive (4 in the AM and 2 in the PM) capsules + 25mcg T3 (PM)and am thinking about switching to a prescribed NDT - any advice on what the NDT equivalent might be? TIA
Hi all I am taking 6 Metavive (4 in the AM and 2 in the PM) capsules + 25mcg T3 (PM)and am thinking about switching to a prescribed NDT - any advice on what the NDT equivalent might be? TIA
greenmug
in
Thyroid UK
5 months ago
Sunshine jane
HelloMy friend had her thyroid removed 30 years ago and is very poorly with fatigue and body pains. Her GP refuses to test for iron saying she is showing ok for iron in recent iron tests. She is coming to see me today for advice re what to do, may be blood test with Medichecks. Can anyone suggest the
HelloMy friend had her thyroid removed 30 years ago and is very poorly with fatigue and body pains. Her GP refuses to test for iron saying she is showing ok for iron in recent iron tests. She is coming to see me today for advice re what to do, may be blood test with Medichecks. Can anyone suggest the
smilingjane
in
Thyroid UK
2 months ago
Given up with GPs!
Sue Johnson gave me lots of advice about ferritin levels. In July my level was 7 and I was prescribed Ferrous fumerate 2 x 210mg per day. This stopped my RLS and I was amazed. However after about a month I felt it creeping back. After 3 months I had a new test and it had gone up to 19. The GP said I
Sue Johnson gave me lots of advice about ferritin levels. In July my level was 7 and I was prescribed Ferrous fumerate 2 x 210mg per day. This stopped my RLS and I was amazed. However after about a month I felt it creeping back. After 3 months I had a new test and it had gone up to 19. The GP said I
Sunflower197
in
Restless Legs Syndrome
5 months ago
Nd Thyroid to thyroxine
Hi, I have Hashimoto's thyroid and Endoctrinologist has advised I move from NP thyroid to thyroxine. I was sent for Ultra sound by my doctor and had difficulty getting a follow up as he was on holidays for 2 months. I had to get online doc to refer me and only had report of ultrasound so not the scan
Hi, I have Hashimoto's thyroid and Endoctrinologist has advised I move from NP thyroid to thyroxine. I was sent for Ultra sound by my doctor and had difficulty getting a follow up as he was on holidays for 2 months. I had to get online doc to refer me and only had report of ultrasound so not the scan
Bridb
in
Thyroid UK
1 month ago
Brothers. Recent blood results
six weeks 100mcg Accord TSH. 2.9. (0.3-5.5) FT4. 14.7 ( 10-22) Peroxidase 275.49 No FT3 done B 12 295. (197-771) Folate. 3.4. (2.1-26.8) ( Dr said all normal 😂) Any advice would be helpful
six weeks 100mcg Accord TSH. 2.9. (0.3-5.5) FT4. 14.7 ( 10-22) Peroxidase 275.49 No FT3 done B 12 295. (197-771) Folate. 3.4. (2.1-26.8) ( Dr said all normal 😂) Any advice would be helpful
Bean101
in
Thyroid UK
1 month ago
A few Things ….
1. I had an ACTH test yesterday as my recent cortisol level was low. I was told my TSH would be tested but not T4 and T3. However when I got there, it was a full thyroid profile being done. I had breakfast in the morning but no caffeine. I had a small bowl of plain porridge and nothing else, except water
1. I had an ACTH test yesterday as my recent cortisol level was low. I was told my TSH would be tested but not T4 and T3. However when I got there, it was a full thyroid profile being done. I had breakfast in the morning but no caffeine. I had a small bowl of plain porridge and nothing else, except water
AppleOrchard
in
Thyroid UK
1 month ago
Update to last post: What does T4 do?
Hi Thanks for all the help when I asked the question about T4, while prepping for my appointment. The appointment went well, I got a GP with ears! GP wanted to discuss the last endo letter saying that I can't have T4 increase unless I agree to give up my "self medicating habit." I explained that I
Hi Thanks for all the help when I asked the question about T4, while prepping for my appointment. The appointment went well, I got a GP with ears! GP wanted to discuss the last endo letter saying that I can't have T4 increase unless I agree to give up my "self medicating habit." I explained that I
debra_bill
in
Thyroid UK
1 month ago
3 am protocol for T3, please tell me about it?
Please could you tell me what I need to know about the 3 am protocol for T3? Does there need to be a gradual transition from split dosing? Anything else I should know? I have been on T3 only for some years and recently have been very tired and depressed, for me the usual symptoms of being hypo. T3
Please could you tell me what I need to know about the 3 am protocol for T3? Does there need to be a gradual transition from split dosing? Anything else I should know? I have been on T3 only for some years and recently have been very tired and depressed, for me the usual symptoms of being hypo. T3
thyr01d
in
Thyroid UK
3 months ago
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