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Experiences with
Androgen deprivation therapy (ADT)
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Levo Hell Now NDT - How Do I Instigate Tribunial?
Thank you for this forum - it has been a light in dark times. You are all fabulous and I thank you for sharing. I just had 8 months of our hell from day one on Levothyroxine. Felt sick, heart racing, couldn’t think straight, breathless heart wheezy, very dark suicidal thoughts, lost my whole life
Thank you for this forum - it has been a light in dark times. You are all fabulous and I thank you for sharing. I just had 8 months of our hell from day one on Levothyroxine. Felt sick, heart racing, couldn’t think straight, breathless heart wheezy, very dark suicidal thoughts, lost my whole life
SakaraHare
in
Thyroid UK
10 months ago
looking for a reliable source
I live in the US so any suggestions where I can order T3 /T4 from would be appreciated. I have a dr that I've been going to on and off for years and he's retiring soon and no one is taking over his practice. He's primarily a "diet" dr clinic which is cheaper than going the endo way and believes in NDT
I live in the US so any suggestions where I can order T3 /T4 from would be appreciated. I have a dr that I've been going to on and off for years and he's retiring soon and no one is taking over his practice. He's primarily a "diet" dr clinic which is cheaper than going the endo way and believes in NDT
Luna1111
in
Thyroid UK
10 months ago
Hashi's & Menopause/HRT - weight loss help!
Hi all, I have Hashimoto's and have been on levo 75mg with combined HRT (oestrogen patch and progesterone pill) for a few years. Had a total hysterectomy almost 2 years ago, but they left my ovaries, due to extensive endo, adenomyosis and fibroids. But I have literally been stuck in limbo since then
Hi all, I have Hashimoto's and have been on levo 75mg with combined HRT (oestrogen patch and progesterone pill) for a few years. Had a total hysterectomy almost 2 years ago, but they left my ovaries, due to extensive endo, adenomyosis and fibroids. But I have literally been stuck in limbo since then
Partiallythere
in
Thyroid UK
10 months ago
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Increase in Armour Thyroid
I need (agreed with Consultant) to increase my NDT by 1/4 grain in the afternoon. By day 3 I start to feel jumpy and revved up! Should I start increase more slowly say every 3rd day then every other day? TSH 0.01 (0.27-4.2) T3 4.0 (3.2. - 6.8) T4 13.0 (12.5 - 22.0) Has anyone else experienced
I need (agreed with Consultant) to increase my NDT by 1/4 grain in the afternoon. By day 3 I start to feel jumpy and revved up! Should I start increase more slowly say every 3rd day then every other day? TSH 0.01 (0.27-4.2) T3 4.0 (3.2. - 6.8) T4 13.0 (12.5 - 22.0) Has anyone else experienced
Karen-Eleanor
in
Thyroid UK
10 months ago
Best use of Psa to guide intermittent hormone therapy
presently on relugolix + Darolutamide for local reccurrence and will go off these drugs if Psa is less than .65 three months ago tested and go back on when Psa reaches 3-5.. Seems it will be about 6months and hopefully 6 months off, Tentative protocol so far. Input from all and for all welcomed. Thanks
presently on relugolix + Darolutamide for local reccurrence and will go off these drugs if Psa is less than .65 three months ago tested and go back on when Psa reaches 3-5.. Seems it will be about 6months and hopefully 6 months off, Tentative protocol so far. Input from all and for all welcomed. Thanks
rococo
in
Advanced Prostate Cancer
1 year ago
Metformin to Prevent Anthropometric and Metabolic Complications of ADT in Men With Prostate Cancer Receiving Radical Radiotherapy.
TAKE-HOME MESSAGE This phase II randomized controlled trial evaluated the preventive impact of the addition of metformin versus placebo to androgen deprivation therapy (
ADT
) on
ADT
-induced metabolic and anthropometric complications in 79 men with locally advanced prostate cancer who received radical
TAKE-HOME MESSAGE This phase II randomized controlled trial evaluated the preventive impact of the addition of metformin versus placebo to androgen deprivation therapy (
ADT
) on
ADT
-induced metabolic and anthropometric complications in 79 men with locally advanced prostate cancer who received radical
Balsam01
in
Advanced Prostate Cancer
2 years ago
UPDATE AFTER IMRT
PSA was 8.11 which led to my Urology Oncologist (UO) starting me on Casodex & Eligard, and ordering a GA-68 PSMA-PET scan which was done in mid June (2 weeks after starting
ADT
).
PSA was 8.11 which led to my Urology Oncologist (UO) starting me on Casodex & Eligard, and ordering a GA-68 PSMA-PET scan which was done in mid June (2 weeks after starting
ADT
).
GMan-62
in
Advanced Prostate Cancer
2 years ago
Wheelchair user and ADT
Has anyone had radiotherapy but then also managed
ADT
but as a disabled person and wheelchair user with a lifetime of low muscle strength from polio or similar?The recurring theme is that without
ADT
the risk of recurrence is very high if not certain.
Has anyone had radiotherapy but then also managed
ADT
but as a disabled person and wheelchair user with a lifetime of low muscle strength from polio or similar?The recurring theme is that without
ADT
the risk of recurrence is very high if not certain.
SimMartin
in
Prostate Cancer Network
2 years ago
Headache on Metavive - but improved blood results
I am on 1 gr of ndt and wanted to add a glandular that might improve my numbers, while keeping the cost down. I added one Metavive I and here are my recent labs. TSH 0.73 (0.27-4.2) (previously 1.59) FT3 5.5 (3.1-6.8) (previously 4.3) FT4 11.8 (12-22) (previously 10.4) However, I’ve been
I am on 1 gr of ndt and wanted to add a glandular that might improve my numbers, while keeping the cost down. I added one Metavive I and here are my recent labs. TSH 0.73 (0.27-4.2) (previously 1.59) FT3 5.5 (3.1-6.8) (previously 4.3) FT4 11.8 (12-22) (previously 10.4) However, I’ve been
Lynneypin
in
Thyroid UK
10 months ago
Xtandi
Pet scan Aug 8, 2022 showed 5 lymph nodes with CA. Urologist started me on Xtandi and referred me to an Oncologist who started Degarelix injections. Oct 25, 2022 stopped taking Xtandi due to intolerable side effects; started Bicalutamide. PSA was 0.47 in Oct with gradual increase to 4.8 in Apr. Oncologist
Pet scan Aug 8, 2022 showed 5 lymph nodes with CA. Urologist started me on Xtandi and referred me to an Oncologist who started Degarelix injections. Oct 25, 2022 stopped taking Xtandi due to intolerable side effects; started Bicalutamide. PSA was 0.47 in Oct with gradual increase to 4.8 in Apr. Oncologist
racoonwar
in
Advanced Prostate Cancer
1 year ago
PSMA PET agents
By genomics and at my age, I doubt I'd want to undergo
ADT
.
By genomics and at my age, I doubt I'd want to undergo
ADT
.
Thomkin
in
Prostate Cancer And Gay Men
2 years ago
Thyroid-S
Please private message me if you know how to purchase Thyroid-S from Thailand. Or if you know of any other NDT. I live in the US. Thank you
Please private message me if you know how to purchase Thyroid-S from Thailand. Or if you know of any other NDT. I live in the US. Thank you
Debber67
in
Thyroid UK
10 months ago
Zytiga Failed Me Bigtime
First went on
ADT
in Sept 2020 when my PSA hit 165, 14 weeks after surgery. After going on Lupron and Erleada my PSA dropped to .20 in 6 months. After that it did nothing but rise back up to 120 about 4 weeks ago.
First went on
ADT
in Sept 2020 when my PSA hit 165, 14 weeks after surgery. After going on Lupron and Erleada my PSA dropped to .20 in 6 months. After that it did nothing but rise back up to 120 about 4 weeks ago.
bglendi53
in
Advanced Prostate Cancer
2 years ago
Advice please on blood results
Thyroglobulin 86.3ng/ml High Ref. range 3.5-77 I have hypothyroidism and these are my recent results. Any suggestions please on how I can reduce my thyroid globulin antibodies and TSH? I take 1 NDT per day with a range of vitamins
Thyroglobulin 86.3ng/ml High Ref. range 3.5-77 I have hypothyroidism and these are my recent results. Any suggestions please on how I can reduce my thyroid globulin antibodies and TSH? I take 1 NDT per day with a range of vitamins
Peppermints123
in
Thyroid UK
10 months ago
NDT info request
Dear all, I would be extremely grateful for private messages with information about trustworthy sources of reliable-quality NDT in the UK (non-prescription). Many thanks in advance!
Dear all, I would be extremely grateful for private messages with information about trustworthy sources of reliable-quality NDT in the UK (non-prescription). Many thanks in advance!
lutepavan
in
Thyroid UK
10 months ago
How to add adrenal support (on NDT)
I think I need to add adrenal support to my NDT but looking for some help on the practicalities and open to ideas about whether this is my problem. Specifically, do I need to stop NDT first? If so, how slowly should I taper off? I'd really like to spend as little time as necessary feeling so hypo!
I think I need to add adrenal support to my NDT but looking for some help on the practicalities and open to ideas about whether this is my problem. Specifically, do I need to stop NDT first? If so, how slowly should I taper off? I'd really like to spend as little time as necessary feeling so hypo!
FoggyThinker
in
Thyroid UK
10 months ago
Triplet Regimen vs Clinical Trial (Pluvicto)
I was recently diagnosed with advanced prostate cancer with diffuse bone metastases (March 20th). I met with my oncologist at Sloan Kettering on March 23rd and received my first hormone treatment (Degarelix). My PSA has already dropped from 189 to 23.89, and I had my second hormone treatment, which was
I was recently diagnosed with advanced prostate cancer with diffuse bone metastases (March 20th). I met with my oncologist at Sloan Kettering on March 23rd and received my first hormone treatment (Degarelix). My PSA has already dropped from 189 to 23.89, and I had my second hormone treatment, which was
Bruce98
in
Advanced Prostate Cancer
1 year ago
Improvement then worsening thyroid
I'm on 3.5 Grain NDT. I get a improment in sleep and depression. In the 5 week my depression worsen and i got daily nightmares. Now I reached week 6 and the worsening is still there.What does this mean? On levo 162 i had the worsening also in week 5 and in week 8 the depression (nightmares and interupted
I'm on 3.5 Grain NDT. I get a improment in sleep and depression. In the 5 week my depression worsen and i got daily nightmares. Now I reached week 6 and the worsening is still there.What does this mean? On levo 162 i had the worsening also in week 5 and in week 8 the depression (nightmares and interupted
charley123
in
Thyroid UK
10 months ago
Is there hope? I’m dreading asking the question of “how long”…
My father was diagnosed in September ‘23 with a PSA in the 900s. It had already metastasized throughout his body in several parts of his bones (ribs, spine, hips, femur and a spot at the base of his skull) but no organs had been affected other than his prostate. We were hopeful when it began to climb
My father was diagnosed in September ‘23 with a PSA in the 900s. It had already metastasized throughout his body in several parts of his bones (ribs, spine, hips, femur and a spot at the base of his skull) but no organs had been affected other than his prostate. We were hopeful when it began to climb
cookingwithdad58
in
Advanced Prostate Cancer
1 year ago
Endocrinologists and NDT Lancashire
Good morning I wonder if anyone could message me please regarding any endocrinologists who deal with NDT in the Lancashire area and advise me of their experiences. Many thanks
Good morning I wonder if anyone could message me please regarding any endocrinologists who deal with NDT in the Lancashire area and advise me of their experiences. Many thanks
Joeybobs
in
Thyroid UK
10 months ago
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