Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,477 members • 38,437 posts

All posts for April 2017

Prednisolone - changed brand - huge problem

I've been on Pred (for GCA) since Nov 2016. Gradually reducing (with a few hiccups) - now on 15 - 15.5mg. Not rushing - using more or less the DSNS method....

I've been on Pred (for GCA) since Nov 2016. Gradually reducing (with a few hicc...

BonnyQuine

•7 years ago

14 Replies

Tapered to 1 MG. and counting...

I am a week or so away from reaching a taper to 1 mg. of Prednisone. I will have had PMR for 4 years by August. I have had to reduce by .25 for the past...

I am a week or so away from reaching a taper to 1 mg. of Prednisone. I will have...

prospecter7

•7 years ago

14 Replies

Advice please

Hi everyone I need a bit of advice once again ,as I have said recently after writing to doc and trying to explain myself about problems she was very helpful...

Hi everyone I need a bit of advice once again ,as I have said recently after wri...

Rusty8

•7 years ago

3 Replies

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Prednisolone and eye pressure

Can anyone point me in the right direction for information on what doses of Pred might increase eye pressures? I'm having a pretty bad time at the moment and...

Can anyone point me in the right direction for information on what doses of Pre...

Roltuba

•7 years ago

19 Replies

Stopping Prednisolone

Hi Looking for advice regarding my 91 year old mum, in brief she was diagnosed 3 years ago with GCA after losing most of her eyesight, she has been on a...

Hi Looking for advice regarding my 91 year old mum, in brief she was diagnosed 3...

4sibbs

•7 years ago

9 Replies

Pride before a fall update

I recently reduced to 22.5 whilst on holiday in sunny climes. Nine days later upon my return I flared. I have felt really rough with a return to the temporal...

I recently reduced to 22.5 whilst on holiday in sunny climes. Nine days later up...

Elaine-W

•7 years ago

3 Replies

Cataracts and Prednisone

I just saw my opthalmologist who said I had cataracts from aging, but was now developing another type of cataract caused by taking Prednisone. She said the...

I just saw my opthalmologist who said I had cataracts from aging, but was now de...

Joyful13

•7 years ago

8 Replies

Burn out

How will I know if my one has improved. I don't know when to reduce the steroids as I said before I am 20Mg for nearly 3 years. waiting for blood test....

How will I know if my one has improved. I don't know when to reduce the steroids...

georgemichael-

•7 years ago

10 Replies

Patches of bruising

Hi Not posted for awhile. Just returned from visit to Australia and long journey. Took extra pred on flight as my consultant suggested. I was on 8 mg and now a...

Hi Not posted for awhile. Just returned from visit to Australia and long journey...

Susanmod

•7 years ago

7 Replies

Symptoms tracker/pred dosage planner?

Hello Has anyone got a method of plotting symptoms against their pred dose they can share? I feel that I need to be more proactive in what I do. I'm currently...

Hello Has anyone got a method of plotting symptoms against their pred dose they ...

Peggles

•7 years ago

5 Replies

GCA some interesting info in large Swedish study

Hi all There are so many well-informed people on this forum and I appreciate all the info I find here. So apologies if has been aired before but there are...

Hi all There are so many well-informed people on this forum and I appreciate all...

Rimmy

•7 years ago

29 Replies

Taking predisilone and flu shots

My husband is on predisilone for copd at the moment can he have the flu needle and pheumonia needle while on predisilone we are in Australia. Thank you

My husband is on predisilone for copd at the moment can he have the flu needle a...

Collingwood1

•7 years ago

7 Replies

CRP AND ESR

I have my ESR and CRP checked every so often. In February my ESR was 58 and CRP 12. I have never actually got down to normal levels in all the time I have been...

I have my ESR and CRP checked every so often. In February my ESR was 58 and CRP ...

piglette

•7 years ago

58 Replies

Vasculitus

Hi would pro tell me if there is any connections to pmr and vasculitus are they one if the same thing Thank you

Hi would pro tell me if there is any connections to pmr and vasculitus are they ...

Rusty8

•7 years ago

5 Replies

Time gap

What should time gap between taking Afdura tablet & Ecosprin AV 75?

medicinegap

•7 years ago

2 Replies

Manuka Honey

Anybody on manuka honey and lemon. Any good results

Hidden

•7 years ago

12 Replies

Ever Experienced a Buying Fog?

Isn't it strange how PMR affects the purse/wallet? Looking for something in the cupboard I came across 2 big boxes filled with every conceivable diet book you...

Isn't it strange how PMR affects the purse/wallet? Looking for something in the ...

43tripandskip

•7 years ago

44 Replies

Just diagnosed with GCA and PMR. Just turned 54. Really appreciate your site

Hi, I was just diagnosed with GCA and PMR and was totally shocked as i never heard of this disease before. In early January I couldn't vacuum the floors,...

Hi, I was just diagnosed with GCA and PMR and was totally shocked as i never hea...

Tj2017

•7 years ago

10 Replies

Advice required please re possible flare with thanks in advance

I haven’t posted here for a while but now find I need some advice please. I was diagnosed with PMR 2 years ago and I have recently begun reducing to 4mg from...

I haven’t posted here for a while but now find I need some advice please. I was ...

magmapearl3

•7 years ago

30 Replies

5 weeks in, bright flush

Hello I am slowly weaning now ,had to go back to 25 from 20, with plan to drop 2.5 mg Sunday. 60 40 30 25 20 right back to 25 Actually feeling ok,Have a few...

Hello I am slowly weaning now ,had to go back to 25 from 20, with plan to drop 2...

galp

•7 years ago

4 Replies

Looking for answers

I have filled you in with my recent bone surgery which no doubt you are bored with by now ! I have now had a letter from the surgeon ( not the one who did the...

I have filled you in with my recent bone surgery which no doubt you are bored wi...

Gillymar

•7 years ago

8 Replies

Prednisolone and type 2 diabetes

I have very recently been diagnosed with type 2 diabetes (2 days ago) I take my prednisolone at lunchtime as it suits me then. However when I test my blood...

I have very recently been diagnosed with type 2 diabetes (2 days ago) I take my ...

Koalajane

•7 years ago

18 Replies

GCA

This website has some very detailed information about GCA and possible vision loss. The arteritic form (GCA) of Anterior Ischemic Optic Neuropathy (AION)...

This website has some very detailed information about GCA and possible visi...

Akino

•7 years ago

15 Replies

Tapered too soon?

I was diagnosed with PMR on March 13, 2017. I did 2weeks at 20 mg prednisone, felt like a new person, but worried about side effects and what the prednisone is...

I was diagnosed with PMR on March 13, 2017. I did 2weeks at 20 mg prednisone, fe...

JoanJo

•7 years ago

25 Replies

Some advice please

Hi All I started in December 2016 on 15mg and began tapering on 10 March 2017 using the DSNS method (4 days). I am currently on 9/8 stage and due to reduce to...

Hi All I started in December 2016 on 15mg and began tapering on 10 March 2017 us...

Hidden

•7 years ago

13 Replies

Forwarding this on as requested

CAN YOU HELP? mrsmummymrsmummy 4 hours ago 6 Replies  Today, the mental health charity The Shaw Mind Foundation (SMF) and HealthUnlocked joined forces...

CAN YOU HELP? mrsmummymrsmummy 4 hours ago 6 Replies  Today, the mental ...

polkadotcom

•7 years ago

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Down to a low dose and having problems

Hi I am hoping for some advice. I have had PMR two years approx and on pred since Oct 2015. By January this year I was down to 4 mg and tapered to 3 slowly...

Hi I am hoping for some advice. I have had PMR two years approx and on pred sinc...

MayH

•7 years ago

18 Replies

Retraction about Fibromalgia/PMR, see last post

Sorry all, I can see why I hit a nerve. If you thought I was saying a few times round the block will cure all those with PMR, try reading it again. This time...

Sorry all, I can see why I hit a nerve. If you thought I was saying a few times ...

SnazzyD

•7 years ago

16 Replies

gca gone I hope!!!

Well the visit to the rheumy yesterday went well, after nearly three years on steroids I had a ultra sound and they found no trace of inflammation. Right from...

Well the visit to the rheumy yesterday went well, after nearly three years on st...

Howard523

•7 years ago

24 Replies

How can you tell if you have Fibromyalgia

Hi everyone, I have posted before because my rheumatologist believes I may have fibromyalgia rather than PMR. My symptoms began in Aug 2015 - headaches,...

Hi everyone, I have posted before because my rheumatologist believes I may have ...

Bramwater

•7 years ago

16 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2017

Prednisolone - changed brand - huge problem

Tapered to 1 MG. and counting...

Advice please

Prednisolone and eye pressure

Stopping Prednisolone

Pride before a fall update

Cataracts and Prednisone

Burn out

Patches of bruising

Symptoms tracker/pred dosage planner?

GCA some interesting info in large Swedish study

Taking predisilone and flu shots

CRP AND ESR

Vasculitus

Time gap

Manuka Honey

Ever Experienced a Buying Fog?

Just diagnosed with GCA and PMR. Just turned 54. Really appreciate your site

Advice required please re possible flare with thanks in advance

5 weeks in, bright flush

Looking for answers

Prednisolone and type 2 diabetes

GCA

Tapered too soon?

Some advice please

Forwarding this on as requested

Down to a low dose and having problems

Retraction about Fibromalgia/PMR, see last post

gca gone I hope!!!

How can you tell if you have Fibromyalgia

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