Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,100 members • 23,253 posts

Sort posts by:

Dr agrees to test B12 but not blood test...

Hi All, on going (20 years) of discussion with GP about exhaustion. He agreed to injections for a while but that stopped during Covid. I've injected myself...

Hi All, on going (20 years) of discussion with GP about exhaustion. He agreed t...

auldreekie

•6 hours ago

2 Replies

Can anyone recommend an MD who understands PA?

I know most of my friends here are not in the US, but I'm hoping for a referral to a doctor (any specialty) in the US (particularly in the New York/Long...

I know most of my friends here are not in the US, but I'm hoping for a referral...

Greeneyecolor

•9 hours ago

1 Reply

temperature/anxiety and excess urination.

so I’ve just had a second lot of loading doses. All was going well however I got sick towards the end of these last week. Before I got sick all my B12 symptoms...

so I’ve just had a second lot of loading doses. All was going well however I got...

Gobbozoid

•11 hours ago

6 Replies

Want to take advantage of all our features? Just log in!

understanding test results

recently been told my b12 levels are on the low side and have had 4 out of my 5 loading doses. Just checked the rest of my blood test results and some of my...

recently been told my b12 levels are on the low side and have had 4 out of my 5 ...

Greydonkey

•14 hours ago

6 Replies

”Placebo effect”

my doctor just told me it’s placebo effect having tiredness, pins and needles, dizziness etc before having my injection at the 12 week point. I’ve never gotten...

my doctor just told me it’s placebo effect having tiredness, pins and needles, d...

Ellamae2

•1 day ago

14 Replies

please help with figuring out what is wrong

I posted recently that my Mom’s Hemoglobin is dropping, same as RBC and Hemocrit, while MCV and MCH are high. She was diagnosed with Macrocytic Anemia but...

I posted recently that my Mom’s Hemoglobin is dropping, same as RBC and Hemocrit...

Simonapo

•1 day ago

5 Replies

Current Trial

Current Trial 1.5 mg hydroxocobalamin/B12 SC injection at 3mg/ml concentration, 1.5mg injection methylcobalamin/B12 at 3mg/ml concentration, 1.5mg injection...

Current Trial 1.5 mg hydroxocobalamin/B12 SC injection at 3mg/ml concentration, ...

WIZARD6787

•1 day ago

Be the first to reply

B12 and anxiety

Just posted but forgot to add this.. Since loading doses still having headaches, the pins and needles have stopped but I feel weird I think it's anxiety my...

Just posted but forgot to add this.. Since loading doses still having headaches,...

gemmacampbell

•1 day ago

9 Replies

Folic acid and iron

Just finished loading doses for b12 still feel awful. My folate is low so does that mean I need to take folic acid tablets or iron tablets?

Just finished loading doses for b12 still feel awful. My folate is low so does t...

gemmacampbell

•1 day ago

9 Replies

Lyme disease

I found out recently I have Lyme disease, that’s why I’ve been deficient in vitamin B12, Vitamin D and Iron. As Lyme makes you deficient in all three! I’m...

I found out recently I have Lyme disease, that’s why I’ve been deficient in vita...

qwertystar

•1 day ago

14 Replies

Guidance Given For Metformin Users

https://www.gov.uk/drug-safety-update/metformin-and-reduced-vitamin-b12-levels-new-advice-for-monitoring-patients-at-risk

https://www.gov.uk/drug-safety-update/metformin-and-reduced-vitamin-b12-levels-n...

B12again

•1 day ago

2 Replies

1 1/2yrs of treatment and I’m getting worse again.

Need advice. I’m concerned. I was diagnosed with PA (lack IF via blood test) a year and a half ago. I have been on daily Hydroxo injections since. I...

Need advice. I’m concerned. I was diagnosed with PA (lack IF via blood test) ...

lb9999

•1 day ago

7 Replies

C-Reactive Protein Test

Good day everyone. Has anyone has their levels checked? Does high levels correlate with PA and Autoimmune Gastritis? Thank you

Good day everyone. Has anyone has their levels checked? Does high levels correl...

Canadian77

•2 days ago

3 Replies

extreme fatigue

After two years of treatments for Pernicious Anaemia I still struggle with fatigue. I've been working out and riding a bike as much as energy levels allow me....

After two years of treatments for Pernicious Anaemia I still struggle with fatig...

djrpdx

•2 days ago

19 Replies

B12 Deficiency, recently diagnosed, seeking advice.

Hi, I was initially diagnosed with carpal tunnel syndrome about 18 months ago, due to numbness, pins and needles and burning sensations in my left arm / hand...

Hi, I was initially diagnosed with carpal tunnel syndrome about 18 months ago, ...

Dfthbhjj

•2 days ago

18 Replies

Methylation to feel good

Hi Folks, Thank you for all the advice and words of encouragement. I’ve been reading a lot of papers on methylation and the effects on the body, below is an...

Hi Folks, Thank you for all the advice and words of encouragement. I’ve been re...

Karenedawson

•2 days ago

10 Replies

Is serum folate levels the level of b12?

I received this as a blood result 3 weeks after receiving my b12 injection but I am confused. Does this tell me the level of b12 in my blood or folate? There...

I received this as a blood result 3 weeks after receiving my b12 injection but I...

Lynne81

•3 days ago

5 Replies

US Compounding Pharmacies Making Hydroxocobalamin That Take Insurance?

Hello, The latest update regarding the lack of availability of Actavis/Teva 30ml hydroxocobalamin vials in the US is forcing me to look for a long term...

Hello, The latest update regarding the lack of availability of Actavis/Teva 30m...

mcg-woo

•3 days ago

19 Replies

Methylcobalamin injection Supplies

I need to purchase methylcobalamin ampoules, does anyone have a good source for good quality stuff. I get adenosylcobalalimin from Arnika but not sure if...

I need to purchase methylcobalamin ampoules, does anyone have a good source for ...

jamaica105

•4 days ago

3 Replies

Neurology Doc advice

saw neurology consultant few days ago re the MRI scan I had after a stroke last year. And when I mentioned how my memory banks were badly affected and also...

saw neurology consultant few days ago re the MRI scan I had after a stroke last ...

Beadbuddy

•4 days ago

14 Replies

Symprove for digestive issues?

I have read that some people have had help with Symprove. What symptoms would you say it helps with most. I have some IBS like pains, some bloating and...

I have read that some people have had help with Symprove. What symptoms would yo...

Chickens44

•4 days ago

15 Replies

scared myself silly

hi, I’m in the midst of investigating why my B12 deficiency has occurred- whether it’s h.pylori, AIG, PA etc And I’ve managed to scare myself silly about AIG...

hi, I’m in the midst of investigating why my B12 deficiency has occurred- whethe...

PlatypusProfit8077

•4 days ago

31 Replies

still low energy & weak arm/leg

Hi, I’ve 24 loading doses of 1000mcg B12 through the GP, although many of my symptoms have gone (falling over, rapid heartbeat, breathlessness, double vision,...

Hi, I’ve 24 loading doses of 1000mcg B12 through the GP, although many of my sy...

Karenedawson

•4 days ago

14 Replies

How overcome a high B12 test from when I must supplement to function?

Both intrinsic factor and parietal antibody tests were positive ("abnormal") with B12 >2000. Methylmalonic Acid is normal at .28. I have Hashimoto's and other...

Both intrinsic factor and parietal antibody tests were positive ("abnormal") wit...

Pamelayne

•6 days ago

49 Replies

Wrong time to reduce SSRIs?

I was on 150mg of sertraline, I cut it down to 125mg earlier this year. A few days ago I cut the dose down to 100mg. I am having a few withdrawal symptoms,...

I was on 150mg of sertraline, I cut it down to 125mg earlier this year. A few da...

Chickens44

•6 days ago

8 Replies

Autoimmune Chronic Gastiritis

Hi Folks, Found this article on Autoimmune Chronic Gastiritis if anyone interested… https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10934127/

Hi Folks, Found this article on Autoimmune Chronic Gastiritis if anyone intere...

Karenedawson

•6 days ago

15 Replies

17 May Pernicious Anaemia blog

I've finally managed to read alot of this. Was pleased to see the society's statement about the new NICE guidelines . Highlighted incase anyone missed it .

I've finally managed to read alot of this. Was pleased to see the society's stat...

Nackapan

•7 days ago

11 Replies

Imbibe B12 Ampoules ?

hello, seems a strange question. I decided to try some Panpharma ampoules and the stinging is unbearable. Sane needles, tried different spots same awful...

hello, seems a strange question. I decided to try some Panpharma ampoules and t...

Wheat

•7 days ago

20 Replies

Has anyone tried Neovos for an MMA urine test please?

Hi...wondering if anyone has tried these for tests please? I've used St Thomas hosp in past but they stopped over covid and am awaiting to hear back from them...

Hi...wondering if anyone has tried these for tests please? I've used St Thomas h...

Jo5454

•7 days ago

13 Replies

Nerve Conduction Test

I have just been advised by GP to take a Nerve Conduction Test for peripheral neuropathy that I continue to experience despite self-injecting EOD for the last...

I have just been advised by GP to take a Nerve Conduction Test for peripheral ne...

Libuse

•7 days ago

21 Replies

Write a post or ask a question

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(77)

All things Pernicious Anaemia Society(77)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

Dr agrees to test B12 but not blood test...

Can anyone recommend an MD who understands PA?

temperature/anxiety and excess urination.

understanding test results

”Placebo effect”

please help with figuring out what is wrong

Current Trial

B12 and anxiety

Folic acid and iron

Lyme disease

Guidance Given For Metformin Users

1 1/2yrs of treatment and I’m getting worse again.

C-Reactive Protein Test

extreme fatigue

B12 Deficiency, recently diagnosed, seeking advice.

Methylation to feel good

Is serum folate levels the level of b12?

US Compounding Pharmacies Making Hydroxocobalamin That Take Insurance?

Methylcobalamin injection Supplies

Neurology Doc advice

Symprove for digestive issues?

scared myself silly

still low energy & weak arm/leg

How overcome a high B12 test from when I must supplement to function?

Wrong time to reduce SSRIs?

Autoimmune Chronic Gastiritis

17 May Pernicious Anaemia blog

Imbibe B12 Ampoules ?

Has anyone tried Neovos for an MMA urine test please?

Nerve Conduction Test

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive