Posts - LUPUS UK | HealthUnlocked

LUPUS UK

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MTHFR and Lupus

I noticed that some members have both of these diagnosis as well as Sjogrens. No one ever checked my homocysteine level until after I had Complete Heart Block...

I noticed that some members have both of these diagnosis as well as Sjogrens. No...

DogHospiceMom

•46 minutes ago

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Teesside Lupus Group

Hello everyone Just to let you know that our Lupus group has started having morning and afternoon meetings in the area. Anyone interested in joining our...

Hello everyone Just to let you know that our Lupus group has started having mor...

Pipido36

•1 hour ago

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discharge summary

hi had biopsy today and recovered well from anaesthetic 👏 but somewhat miffed as just looked at discharge letter when got home and says escalation plans and...

hi had biopsy today and recovered well from anaesthetic 👏 but somewhat miffed a...

stiff19

•4 hours ago

10 Replies

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Dorset Lupus Group Events for 2024 - Next event this Sunday 19th May!

Come and join the Dorset lupus group for our upcoming events! Coffee and Chat sessions, from 11am at the Haskins Garden Centre, Ferndown BH22 9DG Followed...

Come and join the Dorset lupus group for our upcoming events! Coffee and Chat s...

michaellasmith

Administrator•6 hours ago

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The Immune Mind by Monty Lyman - Radio 4

Hello, I’ve just started listening to The Immune Mind by Monty Lyman, on Radio 4, certainly very interesting & I’m finding parts of it easy to relate to with...

Hello, I’ve just started listening to The Immune Mind by Monty Lyman, on Radio ...

Laurajoy

•2 days ago

5 Replies

Photosensitivity, eye pain and headache.

I have been photosensitive for about three years now but this year I seem to be struggling with quite intense eye pain and subsequent headache (around the...

I have been photosensitive for about three years now but this year I seem to be ...

RosieA

•2 days ago

9 Replies

Covid Vaccine help and advice please 😊

I have had a week of ill health (hellish) following every vaccine but my body seems to accept the Pfizer !! so this time round was hopeful. However there is...

I have had a week of ill health (hellish) following every vaccine but my body se...

Maddymay65

•2 days ago

22 Replies

Lupus Diagnosis Experience: Webinar Q&A with Beth, Khiry & Maryann - Tuesday 21st May

On World Lupus Day, we launched a brand new diagnosis awareness video featuring Beth, Khiry and Maryann who kindly shared their experiences receiving a...

On World Lupus Day, we launched a brand new diagnosis awareness video featuring ...

nakita_cambow

Moderator•2 days ago

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Arun Lupus Group - Coffee and Chat meeting - this Saturday 18th May from 10.30am!

Come and join the Arun Lupus Group for our next Coffee and Chat meeting on Saturday 18th May from 10.30am. We are meeting at the Establo Lounge, 1-5 Ash Lane,...

Come and join the Arun Lupus Group for our next Coffee and Chat meeting on Satur...

michaellasmith

Administrator•2 days ago

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How UV affects us

Looking west Isle of Wight, Taken on a local walk a few weeks ago. I found this an internet explanation. Thanks to Striated Cacara. UV rays damage the...

Looking west Isle of Wight, Taken on a local walk a few weeks ago. I found thi...

IsleofWight1

•4 days ago

4 Replies

DWP disability benefits consultation

The DWP are doing a consultation on the future of disabled benefits. I never would have known this had I not seen an article in the Guardian today and then...

The DWP are doing a consultation on the future of disabled benefits. I never wou...

LilyMistri2

•4 days ago

2 Replies

Happy Nurses Day

I just wanted to say good morning and post this photo of the Northern Lights on Friday night. I wanted to share something beautiful with everyone 😁

I just wanted to say good morning and post this photo of the Northern Lights on ...

Graystar

•4 days ago

11 Replies

Discoid lupus help please!

Hello, I've posted before whilst waiting for dermatology appointment this June for suspected discoid lupus. My initial "thing" was a small scaley patch on my...

Hello, I've posted before whilst waiting for dermatology appointment this June f...

Nome11

•5 days ago

16 Replies

New experiences of diagnosis video for World Lupus Day

This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann sharing their experiences of receiving a diagnosis of lupus. You can watch the...

This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann s...

Debbie_kinsey

Administrator•6 days ago

2 Replies

Allergic disorders in Systemic Lupus -this is an online publication hopefully all is able to read it

https://pubmed.ncbi.nlm.nih.gov/8369810/

KnitSewPurl

•7 days ago

30 Replies

Research on Hydroxycloriquine and Eyes

I saw this research and thought it was helpful so wanted to share: https://www.medpagetoday.com/rheumatology/generalrheumatology/110041

I saw this research and thought it was helpful so wanted to share: https://www...

ShannonB

•7 days ago

1 Reply

Article: Exciting time for biological use in Lupus

https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-moderate-to-severe-lupus-rose-45-since-2021?utm_source=selligent&utm_medium=emai

https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-...

VeeWat

•7 days ago

2 Replies

Atarax 25mg...has anyone used it?

It's an antihistamine with sedative effects. My pharmacy suggested it as I sleep very badly and I have hay fever. After checking with my Lupus Specialist it...

It's an antihistamine with sedative effects. My pharmacy suggested it as I sleep...

AnonLupi

•7 days ago

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New lifestyle. Use up all your energy having a great day, do nothing for a couple of days, then repeat

Does anyone choose to live like this instead of hiding away from the light and conserving energy?

Does anyone choose to live like this instead of hiding away from the light and c...

IsleofWight1

•7 days ago

36 Replies

Help - trouble with diagnosis

Hi there, Looking for some help/guidance here as im at a bit of a loss with what to do next. Sorry for the rambling but I feel so defeated Im34 YO Female,...

Hi there, Looking for some help/guidance here as im at a bit of a loss with wh...

Severusisismydog

•7 days ago

3 Replies

Living with lupus in 2024 survey - closing soon!

Lupus Europe is conducting a survey to gather insights into the experiences of individuals living with lupus across Europe. The survey is anonymous and should...

Lupus Europe is conducting a survey to gather insights into the experiences of i...

nakita_cambow

Moderator•8 days ago

2 Replies

Update

Update to previous post - https://healthunlocked.com/lupusuk/posts/150804233/notes-for-upcoming-gp-appointment Had my appointment this morning, I'd already...

Update to previous post - https://healthunlocked.com/lupusuk/posts/150804233/not...

Wispymisty

•8 days ago

4 Replies

Lupus Tumidus

Hi All - After months of burning and itching skin, intermittent exhaustion, irritability, on and off leg swelling and joint pain, I have been diagnosed with...

Hi All - After months of burning and itching skin, intermittent exhaustion, irri...

TumidusG

•8 days ago

3 Replies

Sympathy & cleaning tips required.....

On Friday 3rd May we said goodbye to Millie our 15 Yr old spaniel. She got me through so much over the years from the death of my OH in 2009 to becoming...

On Friday 3rd May we said goodbye to Millie our 15 Yr old spaniel. She got me th...

Spanielmadlady

•8 days ago

34 Replies

Feeling lonely and fobbed off! What are these symptoms??

Hello, this is my first time posting so please bear with me.I am a 40 year old female. I was diagnosed with discoid lupus in 2005. Then a few years later,...

Hello, this is my first time posting so please bear with me.I am a 40 year old f...

Starshine83

•8 days ago

18 Replies

Reassurance, please. Urgent.

Yesterday morning I was so happy. With a good friend I was going for a decent walk: great company, beautiful surroundings, some longed for warm, dry weather...

Yesterday morning I was so happy. With a good friend I was going for a decent ...

IsleofWight1

•8 days ago

36 Replies

Do you have lupus or another autoimmune condition?

There is still time to complete the survey conducted by RAIRDA (Rare Autoimmune Rheumatic Disease Alliance) on what patients think about the quality of their...

There is still time to complete the survey conducted by RAIRDA (Rare Autoimmune ...

nakita_cambow

Moderator•9 days ago

1 Reply

Is it discoid lupus?

Hi fellow lupus warriors I posted a few weeks ago about an ulcer on my leg that wouldn't heal. After oral antibiotics that had no effect, the Dr found a...

Hi fellow lupus warriors I posted a few weeks ago about an ulcer on my leg that...

lupus_paradise

•10 days ago

3 Replies

A small journey... and a tip to share

Hello, my first time to post here. I am a 55y old male, doing rounds with various consultants to see why I have random joint pains primarily. I also have...

Hello, my first time to post here. I am a 55y old male, doing rounds with vario...

ns01

•11 days ago

4 Replies

Never ending circle

Morning everyone, just looking for advice and to vent a little. I have posted a few times about my journey but finally thought I had got some answers. Quick...

Morning everyone, just looking for advice and to vent a little. I have posted a ...

Mctd

•12 days ago

17 Replies

Write a post or ask a question

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

MTHFR and Lupus

Teesside Lupus Group

discharge summary

Dorset Lupus Group Events for 2024 - Next event this Sunday 19th May!

The Immune Mind by Monty Lyman - Radio 4

Photosensitivity, eye pain and headache.

Covid Vaccine help and advice please 😊

Lupus Diagnosis Experience: Webinar Q&A with Beth, Khiry & Maryann - Tuesday 21st May

Arun Lupus Group - Coffee and Chat meeting - this Saturday 18th May from 10.30am!

How UV affects us

DWP disability benefits consultation

Happy Nurses Day

Discoid lupus help please!

New experiences of diagnosis video for World Lupus Day

Allergic disorders in Systemic Lupus -this is an online publication hopefully all is able to read it

Research on Hydroxycloriquine and Eyes

Article: Exciting time for biological use in Lupus

Atarax 25mg...has anyone used it?

New lifestyle. Use up all your energy having a great day, do nothing for a couple of days, then repeat

Help - trouble with diagnosis

Living with lupus in 2024 survey - closing soon!

Update

Lupus Tumidus

Sympathy & cleaning tips required.....

Feeling lonely and fobbed off! What are these symptoms??

Reassurance, please. Urgent.

Do you have lupus or another autoimmune condition?

Is it discoid lupus?

A small journey... and a tip to share

Never ending circle

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