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Antihemophilic factor
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Ra affecting the cervical spine
Hello all! This seems like such a nice, supportive community I've stumbled upon here in my search for answers. I'm really looking for anyone with experience dealing with cervical spine issues. I'm 4 months into the 6 month wait for my appt. with a rheumatologist. Been dealing primarily with constant
Hello all! This seems like such a nice, supportive community I've stumbled upon here in my search for answers. I'm really looking for anyone with experience dealing with cervical spine issues. I'm 4 months into the 6 month wait for my appt. with a rheumatologist. Been dealing primarily with constant
uponthesun
in
NRAS
5 years ago
False Positive PA Test
Hey guys, I took a PA test recently (Intrinsic Factor Antibody) and it came back positive. I'm always a little skeptical so I did some more research. I ended up finding the information below from Quest who is the lab that did my test. I had been getting 3 b12 injections per week when I got the tests
Hey guys, I took a PA test recently (Intrinsic Factor Antibody) and it came back positive. I'm always a little skeptical so I did some more research. I ended up finding the information below from Quest who is the lab that did my test. I had been getting 3 b12 injections per week when I got the tests
lownskater52
in
Pernicious Anaemia Society
5 years ago
Anyone had any joy reducing or eliminating presence of parietal cell antibodies?
Has anyone had any help from visiting a gastroenterologist? Interventions (surgical or drugs?) by, or Advice from, a gastroentereologist? Can dietary adjustments help? Or are there known or suspected triggers (foods, toxins, stress etc), for the antibodies, that I can look to remove? (Similar to
Has anyone had any help from visiting a gastroenterologist? Interventions (surgical or drugs?) by, or Advice from, a gastroentereologist? Can dietary adjustments help? Or are there known or suspected triggers (foods, toxins, stress etc), for the antibodies, that I can look to remove? (Similar to
HowCome
in
Pernicious Anaemia Society
5 years ago
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Does this sound right? Really confused
In May this year my routine B12 blood test was 240 (range 170 - 800) with the lab commenting that less than 250 can be considered a deficiency in a symptomatic patient, especially the elderly. Because I have been very fatigued for a very long time (the reason for my clinic visit), my GP started me on
In May this year my routine B12 blood test was 240 (range 170 - 800) with the lab commenting that less than 250 can be considered a deficiency in a symptomatic patient, especially the elderly. Because I have been very fatigued for a very long time (the reason for my clinic visit), my GP started me on
chicolini
in
Pernicious Anaemia Society
5 years ago
How to use castor oil packs
Hi Someone mentioned caster oil packs recently. I'd heard of using them before but I sort of forgot about them. Does anyone have experience of using them? (and just on abdomen or liver as well?) I understand how you use them just not sure when I should start and when to stop? I've just been given the
Hi Someone mentioned caster oil packs recently. I'd heard of using them before but I sort of forgot about them. Does anyone have experience of using them? (and just on abdomen or liver as well?) I understand how you use them just not sure when I should start and when to stop? I've just been given the
SharlyWarly
in
Fertility Network UK
5 years ago
Please advise on B12
Having had chronic fatigue and fibromyalgia as well as Hashimotos for several years. My symptoms have increased since being treated for h pylori. I am beginning to wonder if I am deficient in B12. My blood tests are always high in range or massively above. I am thinking of getting private blood test
Having had chronic fatigue and fibromyalgia as well as Hashimotos for several years. My symptoms have increased since being treated for h pylori. I am beginning to wonder if I am deficient in B12. My blood tests are always high in range or massively above. I am thinking of getting private blood test
Everdean
in
Andover Fibromyalgia & ME Community Group
5 years ago
Colonoscopy side effects
Hello, since I had digestive issuess, such as bloating, belly pain and sometimes diarrhea, my doctor suggested I should do a colonoscopy. The preparation was the worst part. I think that laxative totally irritated my bowels and there were loads of orange mucus coming out of my bowels. The doctor said
Hello, since I had digestive issuess, such as bloating, belly pain and sometimes diarrhea, my doctor suggested I should do a colonoscopy. The preparation was the worst part. I think that laxative totally irritated my bowels and there were loads of orange mucus coming out of my bowels. The doctor said
Seaa
in
IBS Network
5 years ago
Colonoscopy side effects
Hello, since I had digestive issuess, such as bloating, belly pain and sometimes diarrhea, my doctor suggested I should do a colonoscopy. The preparation was the worst part. I think that laxative totally irritated my bowels and there were loads of orange mucus coming out of my bowels. The doctor said
Hello, since I had digestive issuess, such as bloating, belly pain and sometimes diarrhea, my doctor suggested I should do a colonoscopy. The preparation was the worst part. I think that laxative totally irritated my bowels and there were loads of orange mucus coming out of my bowels. The doctor said
Seaa
in
Endometriosis UK
5 years ago
CLL, Spleen Recovery+recommendations
Hi All, I was hoping to draw on your knowledge, wisdom and experience in dealing with CLL. I was diagnosed in 7/2008 and for almost 11 years was doing quite well but 3 months ago my spleen started to get enlarged, wbc were 76K and swollen lymph nodes to say the least. I had my first dose of Gazyva or
Hi All, I was hoping to draw on your knowledge, wisdom and experience in dealing with CLL. I was diagnosed in 7/2008 and for almost 11 years was doing quite well but 3 months ago my spleen started to get enlarged, wbc were 76K and swollen lymph nodes to say the least. I had my first dose of Gazyva or
SCE2AUX
in
CLL Support
5 years ago
PBC and rheumatoid arthritis
Hi all, hope u are well . Today I got my second fibroscan with a CAP score of 212 and scan 28.1. This has went down from 39.5 a few months ago. Ultrasound, spleen and platelets are normal and LFTs now going in right direction thanks to responding to Urso however Iv now been referred to rheumatology due
Hi all, hope u are well . Today I got my second fibroscan with a CAP score of 212 and scan 28.1. This has went down from 39.5 a few months ago. Ultrasound, spleen and platelets are normal and LFTs now going in right direction thanks to responding to Urso however Iv now been referred to rheumatology due
Cody23
in
PBC Foundation
5 years ago
Feeling very lost and alone.
Hi, Diagnosed Lupus Jan 2018. Positive ANA, dsDNA, Rheumatoid Factor, Ro52, Mi2b, anti cardiolipin numerous tests over the past 20 months) I was given an urgent referral to neurology (6 weeks ago now - doesn't seem very urgent) after worsening muscle weakness. My physio did muscle strength test, wasn't
Hi, Diagnosed Lupus Jan 2018. Positive ANA, dsDNA, Rheumatoid Factor, Ro52, Mi2b, anti cardiolipin numerous tests over the past 20 months) I was given an urgent referral to neurology (6 weeks ago now - doesn't seem very urgent) after worsening muscle weakness. My physio did muscle strength test, wasn't
eescvc
in
LUPUS UK
5 years ago
Intrinsic Factor Antibodies Gone.
My doctor says I have no more intrinsic factor antibodies in my latest blood work. Initial levels were 1.2 (range 0-1.1) What does this mean? I don’t have a print out from my newer lab results or I’d supply updated numbers. Parietal cell antibodies were high (103; scale 0-20 range) on my initial results
My doctor says I have no more intrinsic factor antibodies in my latest blood work. Initial levels were 1.2 (range 0-1.1) What does this mean? I don’t have a print out from my newer lab results or I’d supply updated numbers. Parietal cell antibodies were high (103; scale 0-20 range) on my initial results
tradkita
in
Pernicious Anaemia Society
5 years ago
Please help: Gastrointestinal symptoms
27 year old female, diagnosed with anti-parietal cells 6 years ago.
I'll try to keep it as brief and succinct as possible ... I have severe gastrointestinal discomfort. Every single day of my life, without fail. Doesn't matter how well I eat. My diet is immaculate yet I get extremely bloated,
27 year old female, diagnosed with anti-parietal cells 6 years ago.
I'll try to keep it as brief and succinct as possible ... I have severe gastrointestinal discomfort. Every single day of my life, without fail. Doesn't matter how well I eat. My diet is immaculate yet I get extremely bloated,
FelineGhost
in
Pernicious Anaemia Society
5 years ago
Hoping for improvement - lining scan
Just awaiting my lining check this morning after a cancelled cycle and hysterscopy that showed thin pale unresponsive lining. I’ve literally done everything I possibly can to improve; acupuncture, fertility massage and yoga, castor oil packs, good diet, no drink, vitamin c, d, e and l’argine, co enzyme
Just awaiting my lining check this morning after a cancelled cycle and hysterscopy that showed thin pale unresponsive lining. I’ve literally done everything I possibly can to improve; acupuncture, fertility massage and yoga, castor oil packs, good diet, no drink, vitamin c, d, e and l’argine, co enzyme
Prayingforafamily
in
Fertility Network UK
5 years ago
Can PA just disappear, even though you still suffer?
So, my nurse practitioner tested my intrinsic factor. I no longer have records of when I was diagnosed with PA about 6 years ago. Apparently, she did not feel comfortable managing my symptoms and referred me to a Hematologist. I go see the Hematologist and he tells me I no longer have PA, but doc, I'm
So, my nurse practitioner tested my intrinsic factor. I no longer have records of when I was diagnosed with PA about 6 years ago. Apparently, she did not feel comfortable managing my symptoms and referred me to a Hematologist. I go see the Hematologist and he tells me I no longer have PA, but doc, I'm
PaintLadie
in
Pernicious Anaemia Society
5 years ago
GP still not getting it!
Had 6 loading doses in June, Doctor gave them reluctantly as levels had risen to 400 from 140 on oral supplements. I gave her lots of info re nhs guidelines and info from PA society which she promised to read. Was told to go back in August. Felt better at end of loading shots, but symptoms (exhaustion
Had 6 loading doses in June, Doctor gave them reluctantly as levels had risen to 400 from 140 on oral supplements. I gave her lots of info re nhs guidelines and info from PA society which she promised to read. Was told to go back in August. Felt better at end of loading shots, but symptoms (exhaustion
Lurcher-lady
in
Pernicious Anaemia Society
5 years ago
Intrinsic factor
Looking at recent blood results my intrinsic factor is 1, which doc says is fine, says it should be below 1.2 U/ml. I self Inject now as spray/tablets don’t help. Do I need to ask for the test to be done again? I don’t like to waste resources.
Looking at recent blood results my intrinsic factor is 1, which doc says is fine, says it should be below 1.2 U/ml. I self Inject now as spray/tablets don’t help. Do I need to ask for the test to be done again? I don’t like to waste resources.
Lurcher-lady
in
Pernicious Anaemia Society
5 years ago
I think I have PA but my test results say otherwise? (& rapid increase in symptoms?)
Hello! I have had anaemia for about a year and my GP has been trying to work out what is causing it. I initially had low-ish b12 so had the b12 injections and my anaemia improved somewhat; since then I have been on the b12 pills instead (as we wondered if i had a dietary deficiency). The anaemia has
Hello! I have had anaemia for about a year and my GP has been trying to work out what is causing it. I initially had low-ish b12 so had the b12 injections and my anaemia improved somewhat; since then I have been on the b12 pills instead (as we wondered if i had a dietary deficiency). The anaemia has
greatcrestedgrebe
in
Pernicious Anaemia Society
5 years ago
Advice requested
Hi 👋 Sorry for long post... I’ve had bilateral swelling and stiffness in feet, ankles, knees, shoulders, wrists and hands for a while now but seems to have worsened over past 12 months or so. GP has recently done bloods - Rheumatoid factor was 10 (range <15) so I’m guessing this rules out RA? My ESR
Hi 👋 Sorry for long post... I’ve had bilateral swelling and stiffness in feet, ankles, knees, shoulders, wrists and hands for a while now but seems to have worsened over past 12 months or so. GP has recently done bloods - Rheumatoid factor was 10 (range <15) so I’m guessing this rules out RA? My ESR
Lisa_middle_earth
in
NRAS
5 years ago
Castor oil packs
Has anyone tried hot Castor oil pack over the liver to stimulate blood flow?
Has anyone tried hot Castor oil pack over the liver to stimulate blood flow?
Hidden
in
British Liver Trust
5 years ago
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