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Please help!
Hello APS family. How is everyone doing? I am very happy to have found this forum, APS is so little recognize and so many people are not aware of it. I need some help and some advice from you guys! About two weeks ago I went to the ER, because of a scotoma on my left eye vision and some zig zag
Hello APS family. How is everyone doing? I am very happy to have found this forum, APS is so little recognize and so many people are not aware of it. I need some help and some advice from you guys! About two weeks ago I went to the ER, because of a scotoma on my left eye vision and some zig zag
Textra88
in
Hughes Syndrome APS Forum
7 years ago
Tingling Lips
Does anyone else have tingling or numb lips, fingers or toes? Or burning arms and legs as if the blood in your veins is red hot and enlarged? I've had a very awkward doctor who for the last 4 years has hinted that all my symptoms, crippling fatigue and brain fog being the most debilitating, are in my
Does anyone else have tingling or numb lips, fingers or toes? Or burning arms and legs as if the blood in your veins is red hot and enlarged? I've had a very awkward doctor who for the last 4 years has hinted that all my symptoms, crippling fatigue and brain fog being the most debilitating, are in my
HRW2017
in
LUPUS UK
7 years ago
Looking for KIND Rheumatologist in Essex
So my journey has been a long painful one, I am not yet officially diagnosed but have positive ANA, Anti DNA and am totally disabled by what I and a few other docs think is Lupus or a connective Tissue Disease, I also have Hashimotos and lots of other high Autoimmune Antibodies. My positive tests go
So my journey has been a long painful one, I am not yet officially diagnosed but have positive ANA, Anti DNA and am totally disabled by what I and a few other docs think is Lupus or a connective Tissue Disease, I also have Hashimotos and lots of other high Autoimmune Antibodies. My positive tests go
riannabri
in
LUPUS UK
7 years ago
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I am curious, how many of you have a diagnosis of SLE but have never had organ involvement? And how many of you have been diagnosed with ..
I am curious, how many of you have a diagnosis of SLE but have never had organ involvement? And how many of you have been diagnosed with SCLE but this has ended up as SLE? I was diagnosed with SCLE in October/November 2013. Here are some of my blood test results: ANA positive (but crucially no level
I am curious, how many of you have a diagnosis of SLE but have never had organ involvement? And how many of you have been diagnosed with SCLE but this has ended up as SLE? I was diagnosed with SCLE in October/November 2013. Here are some of my blood test results: ANA positive (but crucially no level
Wendy39
in
LUPUS UK
7 years ago
Tests
Hi, Last year I started feeling poorly, red rash, joint pain and feeling extremely tired. At first I thought it was just a reaction to something until I started to feel very poorly, Like having the flu. I went to see several doctors who were not sure what was wrong so they sent me to a rheumatologist
Hi, Last year I started feeling poorly, red rash, joint pain and feeling extremely tired. At first I thought it was just a reaction to something until I started to feel very poorly, Like having the flu. I went to see several doctors who were not sure what was wrong so they sent me to a rheumatologist
Larny
in
LUPUS UK
7 years ago
Night sweats- any advice please
I have been diagnosed with undifferentiated connective tissue disease. Blood tests have shown weakly positive ANA with cytoplasmic speckles and mildly positive anticardiolipin antibodies IGM at 36 (Iโm not sure what that really means). I have been taking Hydroxychloroquine 200mg for a year now. I suffer
I have been diagnosed with undifferentiated connective tissue disease. Blood tests have shown weakly positive ANA with cytoplasmic speckles and mildly positive anticardiolipin antibodies IGM at 36 (Iโm not sure what that really means). I have been taking Hydroxychloroquine 200mg for a year now. I suffer
paula-moo
in
LUPUS UK
7 years ago
Increased positive ANA
Hi, I am very confused. I had an ANA test 3 months ago and results were positive 1:80, the doctor asked for lupus and raumathoid tests and it came negative. I repeated the ANA test after 3 months and the results were 1:160. I went to the rheumatologist with slight joints pain at few hands fingers but
Hi, I am very confused. I had an ANA test 3 months ago and results were positive 1:80, the doctor asked for lupus and raumathoid tests and it came negative. I repeated the ANA test after 3 months and the results were 1:160. I went to the rheumatologist with slight joints pain at few hands fingers but
Dinasamir
in
LUPUS UK
7 years ago
ANA positive years ago
I think I might have asked this somewhere b4 but I can't remember where or what answer I got and I haven't the strength to search back through... When I was first diagnosed with ITP 12 years ago, long b4 any of my symptoms started, the doctors tested my ANA the old way. The result was 15 iu/ml. I know
I think I might have asked this somewhere b4 but I can't remember where or what answer I got and I haven't the strength to search back through... When I was first diagnosed with ITP 12 years ago, long b4 any of my symptoms started, the doctors tested my ANA the old way. The result was 15 iu/ml. I know
1985mum
in
LUPUS UK
7 years ago
Got a diagnosis now stumped?
Thanks to all who replied to my question about getting diagnosed it's been a great help! As I have now been to see rheumy I am now more confused, after chatting to her about all my symptoms etc. she has said I have fibromyalgia and discharged me. I'm not sure to be relieved to get a diagnosis or not
Thanks to all who replied to my question about getting diagnosed it's been a great help! As I have now been to see rheumy I am now more confused, after chatting to her about all my symptoms etc. she has said I have fibromyalgia and discharged me. I'm not sure to be relieved to get a diagnosis or not
hunnybuns79
in
LUPUS UK
7 years ago
Hashimoto's in the USA
So I am not from that side of the pond as most of you are. I happened upon this site by happenstance & have found it very, very informative. So thank all of you up front for sharing your stories, experiences, ups & downs. It has made me feel normal in a very not normal world. I have been considered
So I am not from that side of the pond as most of you are. I happened upon this site by happenstance & have found it very, very informative. So thank all of you up front for sharing your stories, experiences, ups & downs. It has made me feel normal in a very not normal world. I have been considered
gzc721
in
Thyroid UK
7 years ago
Gluton free
Hi don't remember if I posted or no ,๐ But would like to share gluton free diet. Didn't have hashi diagnosed, had TT for cancer. However, as an experiment I tried gluton free and lost a uncomfortable feeling I used to get after eating ๐๐ every day, had in the past positive ANA blood test but got nowhere
Hi don't remember if I posted or no ,๐ But would like to share gluton free diet. Didn't have hashi diagnosed, had TT for cancer. However, as an experiment I tried gluton free and lost a uncomfortable feeling I used to get after eating ๐๐ every day, had in the past positive ANA blood test but got nowhere
Gcart
in
Thyroid UK
7 years ago
Lupus diagnosis help...
So I've been unwell for 3 years and I'm still not fully diagnosed, originally diagnosed with fibromyalgia but specialist say I have something else. Have had positive ANA result but not during recent testing. Smooth muscle test positive to. GP is certain I have lupus but can't do anything until rhuemo
So I've been unwell for 3 years and I'm still not fully diagnosed, originally diagnosed with fibromyalgia but specialist say I have something else. Have had positive ANA result but not during recent testing. Smooth muscle test positive to. GP is certain I have lupus but can't do anything until rhuemo
Dwarman
in
LUPUS UK
7 years ago
Getting Diagnosed
Hello everyone! I'm new here and wanted to ask how long it took you folks to get a diagnosis or are some still not? I have a rheumatologist appointment next week so don't know what to expect for a first appointment? The doctor had referred me as I had been back and fourth for over a year to see her with
Hello everyone! I'm new here and wanted to ask how long it took you folks to get a diagnosis or are some still not? I have a rheumatologist appointment next week so don't know what to expect for a first appointment? The doctor had referred me as I had been back and fourth for over a year to see her with
hunnybuns79
in
LUPUS UK
7 years ago
Positive ANA
Does anybody else here have a positive ANA and a diagnosis of just RA? I have a positive ANA, 1:320 homogenous pattern and I have only been diagnosed with RA. My rheumatologist told me a positive ANA can happen with RA, but I can't find much on that anywhere on the internet. Everything says mixed connective
Does anybody else here have a positive ANA and a diagnosis of just RA? I have a positive ANA, 1:320 homogenous pattern and I have only been diagnosed with RA. My rheumatologist told me a positive ANA can happen with RA, but I can't find much on that anywhere on the internet. Everything says mixed connective
karilynn85
in
NRAS
7 years ago
Test for lupus
Hi I am just in the process of having test done for lupus. I have been suffering from joint pain and pain pressure points. One of my GP s has sent me to a vascular surgeon to which they are operating on me in February for varicose veins. I have had both my hands operated on for carpal tunnel syndrome
Hi I am just in the process of having test done for lupus. I have been suffering from joint pain and pain pressure points. One of my GP s has sent me to a vascular surgeon to which they are operating on me in February for varicose veins. I have had both my hands operated on for carpal tunnel syndrome
Angiejill
in
LUPUS UK
7 years ago
Rash on face
I haven't been diagnosed with Lupus yet bit my bloodwork says yes. ANA positive, Titer is homogeneous. Inflammatory marker were really high and had just come off steriods the day before they done blood work. Anyways, I developed a rash on my face and was wondering if others have experienced the same?
I haven't been diagnosed with Lupus yet bit my bloodwork says yes. ANA positive, Titer is homogeneous. Inflammatory marker were really high and had just come off steriods the day before they done blood work. Anyways, I developed a rash on my face and was wondering if others have experienced the same?
jamiesue423
in
LUpus Patients Understanding and Support
7 years ago
Waiting for diagnosis
I'm 39 and just had my first appointment with a rheumatologist yesterday. She did x rays and ultrasound on my joints and says she does not think it's RA and now doing more blood tests which may indicate lupus I have had a positive ANA along with pretty much every symptom of RA except swollen, red joints
I'm 39 and just had my first appointment with a rheumatologist yesterday. She did x rays and ultrasound on my joints and says she does not think it's RA and now doing more blood tests which may indicate lupus I have had a positive ANA along with pretty much every symptom of RA except swollen, red joints
DenverKUK
in
LUPUS UK
7 years ago
More blood test results for interpretation
Hello thyroid fans! I have been to a new haematologist who has carried out a swathe of tests to get a baseline, including some thyroid related ones that I hadn't been able to convince the previous 8 doctors to do! She said she would get I touch if there were any problems - she hasn't but has referred
Hello thyroid fans! I have been to a new haematologist who has carried out a swathe of tests to get a baseline, including some thyroid related ones that I hadn't been able to convince the previous 8 doctors to do! She said she would get I touch if there were any problems - she hasn't but has referred
Kiwidel
in
Thyroid UK
7 years ago
Positive dsdna, then negative and my rheumatologist says I don't have lupus...
I would like to hear some opinion from people who might went through the same thing as me because my diagnosis has been very confusing. Back in July I had knee and wrist pain for a couple of weeks and I visited my GP, she run blood work and I was Ana positive and dsdna positive also, it was very low
I would like to hear some opinion from people who might went through the same thing as me because my diagnosis has been very confusing. Back in July I had knee and wrist pain for a couple of weeks and I visited my GP, she run blood work and I was Ana positive and dsdna positive also, it was very low
guis
in
LUPUS UK
7 years ago
Update: B12 Toxicity (Ha)...B12 Not Working...Diagnostic Busses Rolling In...Treatment Has Commenced...and a Big Thank You.
Hi All. A quick recap on where I was when I first joined...severely ill with gastric problems, 2 stone weight loss, unable to eat at all for 4 weeks, symptoms of B12 deficiency returning with a vengeance (including neuro symptoms), asked for more frequent B12 injections (which I should have been on in
Hi All. A quick recap on where I was when I first joined...severely ill with gastric problems, 2 stone weight loss, unable to eat at all for 4 weeks, symptoms of B12 deficiency returning with a vengeance (including neuro symptoms), asked for more frequent B12 injections (which I should have been on in
Foggyme
Administrator
in
Pernicious Anaemia Society
8 years ago
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