Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,642 members • 8,179 posts

Sort posts by:

skin changes

hi everyone , hope you are all good , I have noticed my skin on my face looking yellow , I have mets in both lungs , I am on Ibrance and Letrozole , my...

hi everyone , hope you are all good , I have noticed my skin on my face looki...

Liessie2014

•6 hours ago

Be the first to reply

Anyone have withdrawal symptoms when dropping a treatment?

ER/PR positive HER2- Diagnosed 2019 primary breast cancer. IIIB chemo/infection/mastectomy radiation. 2021 - MBC bone Ibrance /Faslodex 2023- primary Lung...

ER/PR positive HER2- Diagnosed 2019 primary breast cancer. IIIB chemo/infectio...

Elle713

•2 days ago

6 Replies

Piqray/alpelesib. Oncologists. And various.

Hello all. Photo of Stevie. My little girl is growing up. I’m popping in to say I’ve been told, as of last Friday, I’m doing well on Piqray/Alpelesib and...

Hello all. Photo of Stevie. My little girl is growing up. I’m popping in to say...

Timtam56

•2 days ago

35 Replies

Want to take advantage of all our features? Just log in!

Ablation Liver Mets

Would love to hear from anyone who has had local therapy to the liver. My oncologist is not enthusiastic (to say the least). From what I understand, ablation...

Would love to hear from anyone who has had local therapy to the liver. My oncol...

Trissh

•3 days ago

7 Replies

clinical trial

hi. Just wondering if anyone is on the clinical trial at Dana Farber in Boston with verzenio and oserdu? Thanks. Marianne

hi. Just wondering if anyone is on the clinical trial at Dana Farber in Boston w...

marianne88

•3 days ago

Be the first to reply

MBC, blood clots and blood thinners

How many of you have been out in blood thinners? I have been on Eliquis for the past year and a half. I take anastrozole and Ibrance and got a blood clot from...

How many of you have been out in blood thinners? I have been on Eliquis for the ...

Sharon0122

•4 days ago

40 Replies

Ibrance side effects

I am on Ibrance 125 mg and letrozole and I have bloody nose constantly and bleeding gums. I have a cold and slight cough. Not bacterial because I had recent...

I am on Ibrance 125 mg and letrozole and I have bloody nose constantly and bleed...

monkeygirl62

•4 days ago

37 Replies

New treatment

2 weeks ago I had liver ablation to remove 3 tumors on my liver. 2 were responding to treatment (anastrozole and kisqali for HER2 neg) and 1 was not. Surgery...

2 weeks ago I had liver ablation to remove 3 tumors on my liver. 2 were respondi...

JulieB76

•4 days ago

4 Replies

TRIAL OF FULVESTRANT PLUS ABERMACICLIB WITH RUN IN OF FULVESTRANT

I HAVE BEEEN ON LETROZOLE AND I-BRANCE 100 FOR APROX 3 1/2 YEARS AND my latest PET scan show more activity and the above study has been recommended to me by my...

I HAVE BEEEN ON LETROZOLE AND I-BRANCE 100 FOR APROX 3 1/2 YEARS AND my latest P...

25047

•5 days ago

3 Replies

Major Progression on Orserdu. Went from one spine met to multiple Mets and now liver. Has anyone had Tredlovy infusions?

HR/PR+HER- Chemo/Radiation/Mastectomy Ibrance/Faslodex/Orserdu

Elle713

•5 days ago

7 Replies

Metastatic breast cancer and lung cancer

I had breast cancer diagnosed in 2007 along with unrelated lung cancer. Bilateral mastectomies, chemo and radiation then upper left lung removed. Started oral...

I had breast cancer diagnosed in 2007 along with unrelated lung cancer. Bilatera...

Oberammergaux2

•6 days ago

15 Replies

Looking for options after Verzenio.

Spoke with my onc today and she said if Verzenio fails she’s thinking about Afinitor. Said I’m running out of options and IV chemo might not be far off after...

Spoke with my onc today and she said if Verzenio fails she’s thinking about Afin...

Nocillo

•6 days ago

17 Replies

Everolimus Anyone???? All experiences welcome!! Thanks

about to start! Any intell or advise??

BorisCarloff

•9 days ago

21 Replies

What IV chemos have worked for you?

Hi all, I’ve failed on both Enhertu (which shrunk my cancer but cause pneumonitis) and now Trodelvy (did not work at all - had major progression in first 3...

Hi all, I’ve failed on both Enhertu (which shrunk my cancer but cause pneumonit...

LDR1

•11 days ago

11 Replies

Moving on from Xeloda

sadly my markers have been rising and I have been having belly pain plus my neck node doubled in size since before my 2 months in New Zealand… weirdly but...

sadly my markers have been rising and I have been having belly pain plus my neck...

Bettybuckets

•11 days ago

52 Replies

Interesting new targeted therapy trial

I like this company’s mission. They have a Phase 1/2 trial underway at Mass General in Boston with a new miRNA-10b treatment....

I like this company’s mission. They have a Phase 1/2 trial underway at Mass Gen...

Best521

•12 days ago

8 Replies

Capivasertib, fulvestrant

Ibrance 100 mg. Letrozole seemed to decrease 7 areas of Mets. MRI to pelvic, lumber shows progression of Lumbar L1 ,and lesions right pelvic bone. Nov 2023....

Ibrance 100 mg. Letrozole seemed to decrease 7 areas of Mets. MRI to pelvic, l...

Hidden

•13 days ago

12 Replies

Trodelvy after one year update

Hello and please excuse the lengthy post as I have a lot bouncing around in my head. I want to review my treatment path so far: I was diagnosed denovo in...

Hello and please excuse the lengthy post as I have a lot bouncing around in my h...

Iwasborntodothis

•13 days ago

44 Replies

fasoldex

been on this for 9 months now doing well 🙏anyone else good reports 👍

Live2024

•14 days ago

22 Replies

fatigue

I have been on Ibrance plus Faslodex since 2018. I have been able to meet 2 more grandchildren and see them grow. I am extremely grateful for this. However the...

I have been on Ibrance plus Faslodex since 2018. I have been able to meet 2 more...

3sofar

•15 days ago

17 Replies

WHAT SHOULD I AVOID TAKING WITH IBRANCE

I am a Nigerian ,a single lady of 32years ,I was diagnosed of metastatic breast cancer on September 2023 then I redid my biopsy for a second opinion and it was...

I am a Nigerian ,a single lady of 32years ,I was diagnosed of metastatic breast ...

RuchiM

•16 days ago

16 Replies

Skull mets

Skull met - does anyone have pain or tenderness with skull mets? If so how long does it last or how frequently?

Skull met - does anyone have pain or tenderness with skull mets? If so how long...

Elle713

•17 days ago

24 Replies

Metastasis breast cancer

I jave neen daignosed with Metastasis breast cancer stage 4. I am on capecitabine 500 mg 2 tabs and capecitabine 150 mg tablet 2 tabs . Two weeks tablets and...

I jave neen daignosed with Metastasis breast cancer stage 4. I am on capecitabin...

Bikeriding

•18 days ago

8 Replies

Dana Farber 2nd opinion?

I just got back my PET/CT results from yesterday. Bad! I have never had so much progression. Little spots, some new, some growing from last time, mostly in...

I just got back my PET/CT results from yesterday. Bad! I have never had so much ...

TammyCross

•19 days ago

36 Replies

Orserdo

I am going to start Orserdo soon because my V erzenio quit working, How are you feeling while taking Orserdo. Thank You Helena

I am going to start Orserdo soon because my V erzenio quit working, How are you ...

Iwouldlike2knowmore

•20 days ago

6 Replies

liver lesions

I got the CT results today and I have multiple lesions showing in different liver lobes. I am currently on Flosodex and Piqray. Wondering about MRI or Biopsy?...

I got the CT results today and I have multiple lesions showing in different liv...

BluHydrangea

•21 days ago

13 Replies

ibrance

thanks for all the responses. I’ve been fighting metastatic bc since 2011 after 19 years from original diagnosis stage 2. Prognosis was very good. Surprised...

thanks for all the responses. I’ve been fighting metastatic bc since 2011 after ...

Jewelyn

•22 days ago

37 Replies

Ibrance followup for 73 months

I had been looking for this article since a friend was denied Ibrance after being successfully treated on it for 6 years. Finally found it. You may find it...

I had been looking for this article since a friend was denied Ibrance after bein...

genealogy74

•22 days ago

10 Replies

Ribocyclib dose

Hi there everyone, Thanks for the support, warmth and information of this platform. It is a really special community. My mother is managing metastatic...

Hi there everyone, Thanks for the support, warmth and information of this plat...

Stefftrees

•22 days ago

12 Replies

Am I crazy

Hi everyone. I am HER2+ with mets to liver and bone. After treatment liver lesions undetectable and bone is stable I have been stable with no progression...

Hi everyone. I am HER2+ with mets to liver and bone. After treatment liver les...

Onedayatatime60

•23 days ago

46 Replies

Write a post or ask a question

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

skin changes

Anyone have withdrawal symptoms when dropping a treatment?

Piqray/alpelesib. Oncologists. And various.

Ablation Liver Mets

clinical trial

MBC, blood clots and blood thinners

Ibrance side effects

New treatment

TRIAL OF FULVESTRANT PLUS ABERMACICLIB WITH RUN IN OF FULVESTRANT

Major Progression on Orserdu. Went from one spine met to multiple Mets and now liver. Has anyone had Tredlovy infusions?

Metastatic breast cancer and lung cancer

Looking for options after Verzenio.

Everolimus Anyone???? All experiences welcome!! Thanks

What IV chemos have worked for you?

Moving on from Xeloda

Interesting new targeted therapy trial

Capivasertib, fulvestrant

Trodelvy after one year update

fasoldex

fatigue

WHAT SHOULD I AVOID TAKING WITH IBRANCE

Skull mets

Metastasis breast cancer

Dana Farber 2nd opinion?

Orserdo

liver lesions

ibrance

Ibrance followup for 73 months

Ribocyclib dose

Am I crazy

Search posts

Pinned Posts

Latest poll

Has this community positively impacted your breast cancer journey? If yes, please describe how in the replies below

Topics

Archive