PSP Association | HealthUnlocked

My husband was recently diagnosed with PSP, which comes on the tail of a stage 4 cancer diagnosis (he's in remission as of now). We're both already deep into...

I posted a while ago re whether we convert my parents’ house into having a downstairs bedroom and shower room for my mum, who has CBD. Thank you so much for...

My husband has psp. I’m trying to figure out if he is dreaming or hallucinating. When he is asleep, sometimes he does hand movements, calls out the strangest...

Hi all my husband dx in 2018 currently in hospital having had aspiration pneumonia, urine infection, bowl infection, COVID and a further chest infection. He is...

For over a year now, two neurologists have told us they believed my husband had PSP. He has all of the symptoms. The way his eyes don't go vertically was one...

My bad friends. I've been extremely busy with this year's Ice Cream Challenge and getting the fourth book ready for publication, that I forgot to post this...

Our hearts are broken as our dad passed away on April 15th. We wanted to summarise his journey and symptoms to hopefully help others and to also raise...

My beautiful Ben passed away on Monday and is now free of this terrible disease. My heartfelt thanks to everyone who contributes to this site. My partner died...

two years ago I was diagnosed with PSP. I had had over 200 falls in 3 years then dizzyness that won't stop. Now I walk with a rollator which I have used for 2...

Hi there. My dad was diagnosed last year and my sister and I are just trying to help him navigate this awful disease as much as we can. He is still quite...

Hi only just joined this group and was hoping for a little information/ advise. My mum has psp and is now choking on everything she tries to eat and drink. My...

I would like to share information about this book, as so little is written about this horrible disease. The author's husband was diagnosed with...

Hi Everyone, My mum had her meal this evening and looks like the food went the wrong way, she has been coughing, she feels like there is cough around her...

Nice to have a chat with Raynor after her show with Gigspanner in Worcester last night.

My 76 year old husband has just been diagnosed with CBD. His symptoms began about a year ago but now that I know what the beginning symptoms really are, he was...

A bit of fun for a good cause. You have to watch the video - sorry! https://youtu.be/sTjJA8bBIY8 We have Tim Brown (Daddyt on this site) to thank – he...

This is the most recent episode of my mum’s PSP, she barely chokes, now we are dealing with after a meal cough, she coughs few mins after having her...

My mum got diagnosed with PSP just last October,but that took 18 months .She is now in a residential home ,but I fell so guilty I couldn't keep her at home 😞...

Hi all, I am wondering if anyone has had any success with securing or appealing CHC funding under the Surrey heartlands ICB? My dad's assessment was in March...

Is anyone watching This Morning with the Salt Path couple?!

I have seen few articles about relaxing muscle around the eyes area for psp patients with affected eyes problems, Any experience from anyone will be helpful,...

Mum was only diagnosed with PSP last Octobershe is falling alot more now and ,her speech has really got very bad over the past month and I just wondered if...

This is the first time I've posted. I live in California and heard about HealthUnlocked so thought I'd give it a try. My husband of 53 years has been...

My beautiful sister in law has after a long journey been diagnosed with PSP initially a Parkinson diagnosis a year ago after many falls, but in February a...

Please could I ask if anyone has experience of surviving on liquid meals only. My 64 year old husband has PSP and is in advanced stages. He does not want to...

My husband who has PSP has Covid now (for the first time). He is in our community hospital for IV fluids and antibiotics. They said Covid medication is...

Good Morning! My husband was diagnosed with CBD in 2019. He is now bed bound, has difficulty making himself heard and his words are very slurred. He has been...

Hi! As I told you before, my father was diagnosed with PSP.Last week he had a respiratory infection with a fever and everything got worse. My father fell 3...

I’ve had psp for almost 4 years and always feel dizzy/lightheaded. Has anyone else experienced this and if so what have you done to resolve issue?...

Hi everyone, I just wanted to give an updat on the London Marathon. As many of you know, I posted in here that I was doing it for the PSPA, and quite a few of...