Posts - My Ovacome | HealthUnlocked

My Ovacome

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Nervous wreck

Hi Everyone, I’m a 33 female, I recently had a CA 125 blood test completed and the result was 42, I had just come off my period the time of the test. I’m due...

Hi Everyone, I’m a 33 female, I recently had a CA 125 blood test completed and ...

Hidden111

•22 hours ago

6 Replies

Pain relief

Evening everyone 😁 I haven't posted in a while but you have always been so great with advice. I have been experiencing OC symptoms since September and have...

Evening everyone 😁 I haven't posted in a while but you have always been so grea...

redthedog85

•23 hours ago

14 Replies

Ca125 huge rise please help

My mother 's Ca 125 had a huge Spike from 2.74 last november to 11.42 at the begininng of May. CEA went Down instead. She changed Lab and this new Lab has a...

My mother 's Ca 125 had a huge Spike from 2.74 last november to 11.42 at the beg...

Belindajames

•2 days ago

9 Replies

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cyclophosphomide

Has any one taken Cyclophosphomide when all chemo options have been exhausted. Did you have many side effects ? Any information greatly appreciated .

Has any one taken Cyclophosphomide when all chemo options have been exhausted. ...

Veria

•2 days ago

5 Replies

I am terminal

Dearest, Yesterday during a consultation was told that I have 1 in 10 chances of the chemo be able to get rid of my cancer.Is in my tummy.Extremly painful,...

Dearest, Yesterday during a consultation was told that I have 1 in 10 chances o...

Pumpkininja

•2 days ago

17 Replies

Happy holiday post!

Quick catch up to give a boost if you're struggling right now starting your journey 😘 Basics Stage4b hgsc hrd+ brca negative with lymph nodes next to my heart...

Quick catch up to give a boost if you're struggling right now starting your jour...

Newbery3

•2 days ago

21 Replies

Recurrence confirmed

I knew. When the nurse followed the doctor in. I knew. I was shaking and couldn't really take in what they were saying. It's like the words were bouncing...

I knew. When the nurse followed the doctor in. I knew. I was shaking and co...

DianaPrince_

•3 days ago

19 Replies

Op update

hi everyone! my mum had her debunking surgery 4 weeks ago yesterday and was told at the time the surgery had gone perfectly and she was NED. We went in...

hi everyone! my mum had her debunking surgery 4 weeks ago yesterday and was to...

georgiageorgia182

•3 days ago

4 Replies

Happy Day - Thank You

Hello lovely ladies I just wanted to say a big thank you to everyone who sent me a lovely message about my son’s wedding. I had such a fantastic day that I...

Hello lovely ladies I just wanted to say a big thank you to everyone who sent m...

SuffolkJen

•3 days ago

4 Replies

Muscinous ovarian cancer

Hi, I am diagnosed with mucinous cancer following initial benign ovary mass in 2021 when i had the tumour removed as well as hysterectomy and appendix...

Hi, I am diagnosed with mucinous cancer following initial benign ovary mass in 2...

Cah60

•4 days ago

1 Reply

What's on at Ovacome next week? (week commencing Monday 27 May 2024)

Good morning everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good morning everyone This is our weekly post to let you know about the diffe...

OvacomeSupport

Partner•4 days ago

Be the first to reply

Worried my Ca125 is 145 after 5 chemos, one to go.

Hello ladies I am almost to the end of first line treatment for stage 4 clear cell. I had 3 chemos, then successful surgery, then 2 more chemos. My final one...

Hello ladies I am almost to the end of first line treatment for stage 4 clear ce...

Kazzh

•5 days ago

8 Replies

Birmingham Health and Wellbeing Day - 29th June

Good morning all, You are all warmly invited to join our next Health and Wellbeing Day which will be taking place in Birmingham (very close to the NEC) on...

Good morning all, You are all warmly invited to join our next Health and Wellbe...

OvacomeSupport

Partner•5 days ago

Be the first to reply

A Happy Day

Just wanted to post this happy news. My son is getting married tomorrow. 👰 🤵 When I got diagnosed Sept 22 I wasn’t even sure I’d make this day. Fast...

Just wanted to post this happy news. My son is getting married tomorrow. 👰 🤵 ...

SuffolkJen

•5 days ago

26 Replies

worried pelvic pain

Getting a lot of pelvic pain in the last few days...very swollen belly. Any tips? Tried heat but that didn't seem to do anything. Making me feel weak and...

Getting a lot of pelvic pain in the last few days...very swollen belly. Any tips...

Ova104

•6 days ago

34 Replies

Raised liver function

Just a quick update from my last post. Had review by oncologist on Monday, my liver function is greatly improved so they have agreed it's ok to go on holiday...

Just a quick update from my last post. Had review by oncologist on Monday, my li...

Bluedoor24

•6 days ago

4 Replies

Ovacome Day

I would just like to thank the Ovacome team for organising this for us. It was great to chat to people and all the talks were really informative and the...

I would just like to thank the Ovacome team for organising this for us. It was...

candyapplegrey

•7 days ago

4 Replies

Update

Hi wonderful warriors, I had my oncology appointment today & lymph nodes enlarged in my pelvis & under my arm. So platinum chemo for me starting tomorrow....

Hi wonderful warriors, I had my oncology appointment today & lymph nodes enlarge...

Pixiepurple

•7 days ago

18 Replies

Hi has anyone with mucinous had avistan with treatment? Thanks in advance

My wife has been diagnosed

Molste

•7 days ago

2 Replies

Recurence

Hi wondered what side effects with niropirad as am being offereredjust out hospital after total hysterectomy omentom removed and shock stoma was given...

Hi wondered what side effects with niropirad as am being offereredjust out hos...

PaumicB123

•7 days ago

13 Replies

second opinion

hello, Everyone I read on here a lot about second opinion, which doctors hospital, do ladies recommend, I have seen Christina fotoloupa, very soon after my...

hello, Everyone I read on here a lot about second opinion, which doctors hospita...

Balliol15

•8 days ago

6 Replies

Blood levels

I just received results for my blood tests and My white blood count, RBC and neutrophils has all dropped drastically. I only had one treatment on paradoxil...

I just received results for my blood tests and My white blood count, RBC and neu...

Jacquiemoo

•9 days ago

7 Replies

peewee

hello everyone just wondering I have been on rucaparib for about 6 weeks but my ca125 are still going up from 27 then 43 and now 171 getting a bit stressed but...

hello everyone just wondering I have been on rucaparib for about 6 weeks but my ...

Peewe

•11 days ago

5 Replies

Need advice please

I have posted on here on my situation. Diagnosed with stage 3c fallopian tube cancer. Went into remission and now it came back with enlarged lymph nodes that...

I have posted on here on my situation. Diagnosed with stage 3c fallopian tube c...

Jacquiemoo

•11 days ago

6 Replies

Raised liver function on niraparib

Good morning all,This is my first post although I have found the site very helpful during my journey, and thank everyone for sharing their experiences. It's...

Good morning all,This is my first post although I have found the site very helpf...

Bluedoor24

•11 days ago

13 Replies

gBRCA WT?

Hi ladies, Just a quick question. This has been added to my diagnosis on my letter but I didn't notice. I was told I didn't have BRCA gene. Is this what that...

Hi ladies, Just a quick question. This has been added to my diagnosis on my let...

candyapplegrey

•12 days ago

10 Replies

Swimming advice

Hello to all you amazing, strong, determined beautiful ladies 😍 I have always been an avid regular swimmer, the last 5 years I have swam in the sea and lakes...

Hello to all you amazing, strong, determined beautiful ladies 😍 I have always b...

Kazzh

•12 days ago

11 Replies

Primary Peritoneal Cancer

I was diagnosed with PPC stage III C in April of 2023. After consulting with onocologist and gynecologist/oncologist it was decided to do 3 rounds of...

I was diagnosed with PPC stage III C in April of 2023. After consulting with ono...

Hockeymom52

•13 days ago

16 Replies

Members day

Hello! I'm going to be attending the members day on Saturday on behalf of my mum and just wondered who else was planning to be there? There's at least a few...

Hello! I'm going to be attending the members day on Saturday on behalf of my mum...

georgiageorgia182

•13 days ago

8 Replies

lapararoscopy

I have a complex cyst probably 7.2-7.4cm and have been told that I will need eventual laparascopy. I am back 23rd of July again for another tvultrasound to...

I have a complex cyst probably 7.2-7.4cm and have been told that I will need eve...

Ova104

•14 days ago

16 Replies

Write a post or ask a question

Posts - My Ovacome | HealthUnlocked

My Ovacome

Nervous wreck

Pain relief

Ca125 huge rise please help

cyclophosphomide

I am terminal

Happy holiday post!

Recurrence confirmed

Op update

Happy Day - Thank You

Muscinous ovarian cancer

What's on at Ovacome next week? (week commencing Monday 27 May 2024)

Worried my Ca125 is 145 after 5 chemos, one to go.

Birmingham Health and Wellbeing Day - 29th June

A Happy Day

worried pelvic pain

Raised liver function

Ovacome Day

Update

Hi has anyone with mucinous had avistan with treatment? Thanks in advance

Recurence

second opinion

Blood levels

peewee

Need advice please

Raised liver function on niraparib

gBRCA WT?

Swimming advice

Primary Peritoneal Cancer

Members day

lapararoscopy

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