Anurysim and primary cns vasculitis - Vasculitis UK

Vasculitis UK

7,799 members6,814 posts

Anurysim and primary cns vasculitis

Vickili profile image
0 Replies

Hi I’ve been diagnosed with primary cns vasculitis 8 weeks ago, initially I had tia which resolved within 1 hr then mri showed tumour on left frontal lobe, I also had 3 focal seizures leading up to tumour removal operation 1 week after initial tia. Tumour removed successfully, mri post operation showed 4cm cerebral Aneurysm. I was put on high dose prednisolone and cyclomide. Follow up mri 1 month after operation shows anurysim is 5cm now. If anurysim shows more growth it will have to be coiled but I will also need to be off all medications, nervously waiting for next mri in 3 weeks. Nephrologist wants to keep treating vasculitis but if I ignore anurysim it could be fatal as well. Has anybody else experienced anurysim while on these medications.

Written by
Vickili profile image
Vickili
To view profiles and participate in discussions please or .
Read more about...

You may also like...

CNS Vasculitis - Stopping medication

Recently Diagnosed with CNS Vasculitis

diagnosed in the last year with various forms of vasculitis, CNS and systemic, I am just learning...

Is there always a rash with vasculitis?

a dinus operation (blowing out scans from her nose), nasal drip, and the removal of a tumour in the...

ANCA Associated Vasculitis and Proteinase 3

feels I have ANCA associated vasculitis and Proteinase 3. He initially said Churg Strauss, but is...

Could this be Vasculitis?

Hi I’m new here, don’t know that I have Vasculitis so wondered if you’d be able to share some...