Need help with latest results : Hi, I have had a... - Thyroid UK

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Need help with latest results

santiagomark profile image
21 Replies

Hi,

I have had a thyroid test recently with other blood results. Anyone make sense of them? It’s been a nightmare getting hold of the NHS Endo and the admin team . I’ve posted on here before with previous results and have been reffred to 2 different endos now who siply keep saying that ‘I’m fine and don’t need any meds. I am now trying to see if I can get a 3rd endo. It’s exhausting .

Also, when I sweat eg sports/hot day etc, I get 2 large patches on the pec area through my t shirt. Looks like I am literally lactating. Embarrassing! . It’s really odd, just seems to appear in those specific areas. I wonder if it’s related to the thyroid/Renal results? I am sweating lots after eating too.

Also, my Erectile dysfunction is worse than ever and I have given up on it now and nearly resigned to the possibility of never having a healthy sex life again ,NHS is useless and I can’t afford private. All the docs do is prescribe ciallis. I am thinking it’s thyroid/kidney related too. My second endo has just said ‘eat less sugar’ and everything will be fine. He seems to talk more about diabetes. It’s all so exhausting. Been like this for years now.

RESULTS FEB 2024 after fasting. NHS

RENAL PROFILE

serum sodium 143 - range 133-146

serum potassium 4.6 - range 3.5 -5.3

serum creatinine 100 range 53- 97 (Recorded as ‘High’)

serum Urea 8.0 range 2.5 7.8 (Recorded as ‘High’)

LIVER PROFILE

serum billirubin 9 range 0- 20

serum ALT 27 range 7- 40

serum ALK Phosphate 57 range 46- 116

serum albumin 44 range 35-40

TSH 6.34 0.35- 5.50 ((Recorded as ‘High’)

FSH.LH

FSH 4.4 1.4- 18.1

LH 4,1 1.5-9.3

Testosterone 16.2 range 8.2 -32.2

B12 and Folate-B12 369 211-911

Folate 4.34 >5.38(reported ‘Low’)

glucose plasma 4.9 3.0 -6.0

A1C Haemoglobin 29 20-41

FT4 –Free T4 12.1 10-20.00

Egfr(MDRD formula) 67 >60

BLOOD COUNT

Hb 150 130-180

WBC 5.6 4.0- 11.0

PLTS 256 150-450

RCC 5.19 4.5-5.5

HCT 0.441 0.40- 0.50

MCV 85 80-100

MCH 28.9 27.0- 32

MCHC 340 315-350

RDW 14.4 11.5-14.5

NEUT 2.5 2.0 7.5

NEUT 45 40-75

LYMPH 2.5 1.0-4.0

LYMPH 46 15-45 (Recorded as ‘High’)

MONO 0.4 0.2-0.8

MONO 8 2-10

EOS 0.1 0.0-0.4

EOS 1 0-7

BASO 0.0 0- 0.2

BASO 0 0.0- 2

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21 Replies
SlowDragon profile image
SlowDragonAdministrator

You are not on any levothyroxine?

TSH is too high

Is this first test with TSH over 5?

with two tests with TSH over 5 and symptoms you should be started on trial of levothyroxine

Starting levothyroxine - flow chart

gps.northcentrallondonccg.n...

was this test done early morning?

You need 2nd test in 6 weeks …..early morning, ideally before 9am, only drink water between waking and test

TSH, Ft4, Ft3 and BOTH TPO and TG thyroid antibodies tested

Also need vitamin D and ferritin levels tested

Meanwhile working on very low B12 and deficient folate

Low vitamin levels are direct result of being hypo

Low vitamin levels tend to lower TSH

First step is get all four vitamins tested and optimal

santiagomark profile image
santiagomark in reply to SlowDragon

Thanks for the reply. No. I have not een put on Levo. I need to get my Vit D done again. Yes, i did this at 7.50 an -fasting.

No, i have had a few tests done where it is ranging from 3 to 8.5.

SlowDragon profile image
SlowDragonAdministrator

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

SlowDragon profile image
SlowDragonAdministrator

B12 369 211-911

B12 far too low

Folate 4.34 >5.38

Folate is deficient

Low B12 symptoms

b12deficiency.info/signs-an...

methyl-life.com/blogs/defic...

NICE guidelines on B12 and testing

healthunlocked.com/redirect...

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement

A week later add a separate vitamin B Complex 

Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.

If Vegetarian or vegan likely to need ongoing separate B12 few times a week

Highly effective B12 drops

natureprovides.com/products...

Or

B12 sublingual lozenges

uk.iherb.com/pr/jarrow-form...

cytoplan.co.uk/shop-by-prod...

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate

healthunlocked.com/thyroidu...

Low folate

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

healthline.com/nutrition/fo...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid supplements

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Igennus B complex popular option. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose

Post discussing different B complex

healthunlocked.com/thyroidu...

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) Thorne can be difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

helvella.blogspot.com/p/hel...

Beads profile image
Beads

Results after fasting, so you hadn’t eaten that morning, had you had water to drink? Your kidney results don’t look too bad, sodium and potassium are neatly in range. Your urea and creatinine are elevated, but if you hadn’t drunk (water) normally before the test they’d be raised due to dehydration. Drinking more will reduce them a bit. They’re used to calculate the eGFR, which yours is 67, with a range of >60. How old are you? eGFR reduces with age, and is generally a bit higher (>90) in younger people. There’s a kidney forum here on HU if you want more information.

Your TSH is over range, your T4 is very low in range. Are these your first thyroid blood tests? TSH can increase randomly, be transient, which is not indicative of reduced thyroid output, so the docs won’t diagnose and prescribe on a single result. You’ll need to wait about 3 months for a repeat test, if your TSH is still raised, then if you’re suffering symptoms of an underactive thyroid then they should prescribe levo, as a trial, to see if it alleviates the symptoms. If it’s your second test, then get the NICE guidelines and go insist a trial of levo.

I have no idea if the sweating is relevant.

In the meantime you need to get your folate and B12 up to good levels, and get your ferritin tested as that can be low also. And there’s nothing about your hbA1C that suggests diabetes.

santiagomark profile image
santiagomark in reply to Beads

I was fasting. I do not drink enough water , that's for sure. No, i have had quite a few done and posted them on here. they alays range from 3 to 8.5. Endo keeps saying no need for meds as i am sub clinical. I have asked for a new endo now.

SlowDragon profile image
SlowDragonAdministrator in reply to santiagomark

With two separate thyroid tests with TSH over 5, high thyroid antibodies and symptoms you should have been started on levothyroxine years ago

Starting levothyroxine - flow chart

gps.northcentrallondonccg.n...

Endo keeps saying no need for meds as i am sub clinical

Which is ludicrous……sub clinical means not having any symptoms……you have masses of symptoms

Graph showing median TSH in healthy population is 1-1.5

web.archive.org/web/2004060...

SlowDragon profile image
SlowDragonAdministrator

Your post 4 years ago confirms Hashimoto’s

Absolutely dire vitamin levels and TSH of 8

healthunlocked.com/thyroidu...

You should have been started on levothyroxine

santiagomark profile image
santiagomark in reply to SlowDragon

Yes. I started the vits after that post but have not taken them for months inbetween. Are they vital to keep up? Can get expensive. I think i need my iron checking too

SlowDragon profile image
SlowDragonAdministrator in reply to santiagomark

Yes you will need to take vitamin D, magnesium and vitamin B complex daily and probably continuously

Initially a separate B12 daily now

Test vitamin D and ferritin now

And ensure plenty of iron rich foods in your diet

Test vitamin D twice year

Test folate, B12 and ferritin at least annually

SlowDragon profile image
SlowDragonAdministrator

Presumably you are still taking vitamin D daily

How much

Retest at least annually, ideally twice year

Essential with Hashimoto’s to maintain all four vitamins at GOOD levels

vitamin D at least over 80nmol

Ferritin at least over 100

B12 at least over 500

Active B12 over 100

Folate at top of range

Get FULL thyroid and vitamin levels retested

Gather up all your results over time onto a spreadsheet

Then see a thyroid specialist endocrinologist

Roughly where in U.K. are you

Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations

thyroiduk.org/contact-us/ge...

santiagomark profile image
santiagomark in reply to SlowDragon

much appreciated. no, i stopped taking the vits. Combo of finance and busy life and possible adhd(being diagnosed now). However, i am drained in mornings after sports and work outs or gardening. Absolutely wiped to point of not being able to walk first thing in morning if i have had a athletic day before or busy garden day. sometimes, i don't even do much and i am wiped. i guess it's the thyroidand vits wreaking havoc. I have asked to be reffred to a new endo.

SlowDragon profile image
SlowDragonAdministrator in reply to santiagomark

Vast majority of endocrinologists are diabetic specialists and useless for thyroid

Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists who will prescribe T3

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations

thyroiduk.org/contact-us/ge...

Roughly where in U.K. are you

BEFORE booking any consultation you need to get FULL thyroid and vitamin testing done

Low thyroid will result in low stomach acid and poor nutrient absorption. This results in low vitamin levels

Assuming vitamin levels have crashed …..Work on improving low vitamin levels essential

Low vitamin levels tend to lower TSH

come back with new post once you get new test results

santiagomark profile image
santiagomark in reply to SlowDragon

Thanks. Yes, i will start all the vits again and get some more tests done and have a read of all the info. I will update again

radd profile image
radd

santiagomark,

Oh poor you. This is awful. Your results and previous clearly show you are hypothyroid, under a diabetes specialist who hasn’t recognised the signs.

Creatinine & urea raises with inadequate thyroid hormone whilst eGFR decreases. This is due to slowed renal function and research shows a raise in creatinine to be linked to elevated TSH. (I suffered this which reversed when medicated on Levothyroxine. GP was amazed).

Lymphocytes are commonly high in Hashimoto sufferers.

Great advice already given regarding the rest but I will add there is a chance you are suffering stress induced lactation after exercise, as prolactin can raise inline with elevated TRH whether you are male or female. (TRH drives TSH that drives thyroid hormones).

Elevated prolactin will also cause low testosterone and so erectile dysfunction and can raise in response to mental and physical stress, which you have by default with unmanaged hypothyroidism.

Ask your GP to test prolactin first thing in the morning for suspected galactorrhea, as a positive result will add to your cause for medicating Levothyroxine.

Also the four nutrients always mentioned on the forum are vital (Vit D, Vit B12, folate, & iron) but so is selenium and zinc used in the production and conversion of thyroid hormone, and commonly low in hypothyroidism. Ask if your GP will test these also (I was very deficient in zinc).

Galactorrhea … mayoclinic.org/diseases-con....

Consistent Reversible Elevations of Serum Creatinine Levels in Severe Hypothyroidism … jamanetwork.com/journals/ja....

santiagomark profile image
santiagomark in reply to radd

Thank you for the advice. Yes, he is more of a diabetes specialist i think because he talks alot about diabetes related stuff. I will keep pushing my gp now and start my Vits again and keep them up. I sometimes think they are not vital to take and just procrastinate. I am sure i have ADHD and just going through diagnoses, so, this makes me procrastinate heavily. I will update on here once i get more info.

SlowDragon profile image
SlowDragonAdministrator in reply to santiagomark

ADHD or symptoms similar are linked to having Hashimoto’s and likely to improve once thyroid is treated

thyroiduk.org/related-condi...

santiagomark profile image
santiagomark in reply to SlowDragon

oh wow really. Didn't realise there was a link. I will have a look into it. God, it's exhausting fighting these gps though. Thanks for the advice

SlowDragon profile image
SlowDragonAdministrator

High prolactin linked to having Hashimoto’s

pubmed.ncbi.nlm.nih.gov/915...

Hyperprolactinoma and low testosterone

ncbi.nlm.nih.gov/pmc/articl....

santiagomark profile image
santiagomark

i'm in west yorkshire btw

SlowDragon profile image
SlowDragonAdministrator in reply to santiagomark

Look on the list

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations

thyroiduk.org/contact-us/ge...

Some on list do zoom

So location not an issue

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