Any thoughts about my recent results: Cortisol... - Thyroid UK

Thyroid UK

138,438 members162,425 posts

Any thoughts about my recent results

Clementik profile image
23 Replies

Cortisol Salvia Test:

9:15 Waking : 20,6 mnol/L (<20,3) high

12:00 : 12,9 mnol/L (1,6-5,6) high

16:00 : 5,56 mono/L (<6,94) normal

23:00 Before bed : <1,5 mono/L (<7,56) normal

Hi, any thoughs about my recent test results please ?

I did Blue Horizon blood test and Medicheck cortisol salvia test

Reason I did them is Vertigo, eyes discomfort and few more symptoms which started after 2 weeks on Levothyroxine (50mcg) and I was worrying about my cortisol level as I read few thing about Levothyroxine and low cortisol and my health anxiety been extremely kicking also wanted to know how my key vitamins are and wanted to see TPO results as NHS still don't send me my result after a month but in general feeling better on Levo specially my heart function is better

My TSH was 7,85 exactly 4 weeks ago and now is 3,45 and re-test in GP clinic in 4,5 weeks from now

Starting vitamins from today as had break due to tests

Cortisol looks good to me

What are you thoughts on my results please ?

Any helping thoughts to share to 31 years old male with Hashimoto's disease ?

J972 Buddy195 helvella greygoose Jaydee1507 caledoniancat

Written by
Clementik profile image
Clementik
To view profiles and participate in discussions please or .
Read more about...
23 Replies
SlowDragon profile image
SlowDragonAdministrator

what vitamin supplements are you going back to taking

How long had you been taking them before test?

Aiming for

Vitamin D up around 100nmol

Folate towards top of range

Active B12 around 100 minimum

Clementik profile image
Clementik in reply to SlowDragon

Thank you for your answer, I was not taking any vitamins for last 4 weeks due to often testing etc

I got multivitamin centrum performance and iron, folic acid, vitamin D and B complex from Holland and Barret

How much should i take ? just daily doses or any extra ? and for how long ? when to retest ?

SlowDragon profile image
SlowDragonAdministrator in reply to Clementik

Ditch the multivitamins too little and cheap poorly absorbed ingredients

Low vitamin D

GP should prescribe 1600iu everyday for 6 months

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

GP will often only prescribe to bring vitamin D levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But with Hashimoto’s, improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly when supplementing

Can test via NHS private testing service

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7.

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

Suggest you start on 2000iu or 3000iu daily

Retest in 2-3 months

Vitamin D and thyroid disease

grassrootshealth.net/blog/t...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Recipe ideas

bbc.co.uk/food/articles/mag...

Interesting article by Dr Malcolm Kendrick on magnesium

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

SlowDragon profile image
SlowDragonAdministrator in reply to Clementik

Only add one supplement at a time then wait 10-14 days to assess before adding another

Low B12 symptoms

b12deficiency.info/signs-an...

methyl-life.com/blogs/defic...

NICE guidelines on B12 and testing

healthunlocked.com/redirect...

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement

A week later add a separate vitamin B Complex 

Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.

If Vegetarian or vegan likely to need ongoing separate B12 few times a week

Highly effective B12 drops

natureprovides.com/products...

Or

B12 sublingual lozenges

uk.iherb.com/pr/jarrow-form...

cytoplan.co.uk/shop-by-prod...

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate

healthunlocked.com/thyroidu...

Low folate

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

healthline.com/nutrition/fo...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid supplements

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Igennus B complex popular option. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose

Post discussing different B complex

healthunlocked.com/thyroidu...

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) Thorne can be difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

helvella.blogspot.com/p/hel...

Clementik profile image
Clementik in reply to SlowDragon

thank you for all, it's so many information to absorb all in once, i though it will be easier process but thank you will work on it

SlowDragon profile image
SlowDragonAdministrator in reply to Clementik

Add vitamin D with K2 first

Then B12

Then vitamin B complex

Then magnesium

SlowDragon profile image
SlowDragonAdministrator

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances.

Most common by far is gluten.

Dairy is second most common.

A trial of strictly gluten free diet is always worth doing

Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential

A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first as per NICE Guidelines

nice.org.uk/guidance/ng20/c...

Or buy a test online, about £20

Assuming test is negative you can immediately go on strictly gluten free diet 

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially) 

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

pubmed.ncbi.nlm.nih.gov/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

Similarly few months later consider trying dairy free too.

Approx 50-60% find dairy free beneficial

With loads of vegan dairy alternatives these days it’s not as difficult as in the past

Post discussing gluten

healthunlocked.com/thyroidu...

Clementik profile image
Clementik in reply to SlowDragon

I don't eat any gluten and dairy for 4 weeks now and my acid reflux gone, I was booked for gastroscopy but i was to scared to go there so i was not, thank you for all your info I don't think my GP will do it for me but I put it to my notes to get tested for celiac disease

SlowDragon profile image
SlowDragonAdministrator in reply to Clementik

No point testing for coeliac now

Just stay on gluten free diet

Clementik profile image
Clementik in reply to SlowDragon

why no point ? where to buy that 20£ test can you send link ?

what to do after 3 month on diet ?

SlowDragon profile image
SlowDragonAdministrator in reply to Clementik

You would need to be eating gluten at every meal for minimum 6 weeks before testing

SlowDragon profile image
SlowDragonAdministrator in reply to Clementik

what to do after 3 month on diet ?

If you feel better on gluten free…..stay on it

Clementik profile image
Clementik

 SlowDragon do you have something to say about my another results too please ? expect of vitamins ...

something about my cortisol and the rest of if or you can tag someone who understand it and will have look and say something

SlowDragon profile image
SlowDragonAdministrator in reply to Clementik

Cortisol should settle slowly as thyroid levels improve

Clementik profile image
Clementik in reply to SlowDragon

But at the moment looks not bad ?

SlowDragon profile image
SlowDragonAdministrator in reply to Clementik

Currently mildly raised, which you would expect

Adrenals try to compensate for lack of thyroid hormones

Clementik profile image
Clementik in reply to SlowDragon

Oh ok, reason i did that test was i was worrying if is not to low

Clementik profile image
Clementik

SlowDragon and what about my TSH goes down from 7,85 to 3,45 in exactly 4 weeks and retest booked in 4,5 weeks from now, i didn't expect it to go down that fast, it's normal ? I was messing with doses in beginning but now I'm sticked with same dose, sorry for many stupid question it's just all new to me and still learning about it got two books of the way and spending hours or internet which gave me just more health anxiety lol :D

SlowDragon profile image
SlowDragonAdministrator in reply to Clementik

Typically TSH drops significantly within 2-4 weeks of starting on levothyroxine

Then, when not on high enough dose levothyroxine, TSH will slowly increase as body realises it needs more

That’s why there’s little point testing until been minimum 6-8 weeks on a constant unchanging dose and brand of levothyroxine

As you get nearer full eventual dose levothyroxine ……waiting 10-12 weeks before retesting

Clementik profile image
Clementik in reply to SlowDragon

What TSH should aim ?

SlowDragon profile image
SlowDragonAdministrator in reply to Clementik

Most important results are Ft3 and Ft4 and resolution of symptoms

Keep notes of how you feel on each dose

Wether different brands affect you etc

And don’t rush

Clementik profile image
Clementik in reply to SlowDragon

Just seen that before I will get appoitment to a endocronologist I been booked to endocrinologist holding clinic to do some test it may be because my GP ordered short synacthen test but in between i did private cortisol 9am blood test and salvia test which showes as you said that is midly raised i will show up to the clinic but do i need this test if my cortisol is ok can it do any harm if my cortisol is ok/mildly higher ?

SlowDragon profile image
SlowDragonAdministrator in reply to Clementik

NHS doesn’t recognise/understand saliva cortisol test

NHS perhaps unlikely to test cortisol

They only do blood cortisol

Test should be early morning

You may also like...

Any thoughts on my thyroid results

dose of levothyroxine for a while now. Although my stats were in the perimeters of so called...

Any thoughts on my friend's thyroid results, please?

folks had any ideas about what could be going on with my friend's thyroid results? They seem crazy...

Any thoughts on my latest medichecks results?

busy and had a lot going on. I just got my medichecks results today and wondered how everything is...

My test results surprised me, any thoughts please !

My old gp's results had me as low as 20 (Uk) , i also take 100 mcg Levothyroxine Results yesterday...

Thoughts on recent hypothyroid blood results, please!

recently had an advance thyroid test done through Medichecks. Im posting my results below to see if...