Bad conversion on levo t4 to t3: Hi everyone, I... - Thyroid UK

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Bad conversion on levo t4 to t3

Ganggywaller profile image
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Hi everyone, I posted a few weeks ago. But looking back wondered if it could be vaginal hrt cream (estradoil) or terbinefene . Anyone got any thoughts sont see endo for another two weeks. Hypo symptoms.

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Ganggywaller profile image
Ganggywaller
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Buddy195 profile image
Buddy195Administrator

T.S.H 1.21. 0.27-4.2

T3 2.5. 3.1-6.8

T4. 22.2. 12-22

THYROGLOBIN. 15.6. 0-115

THYROID ANTIBODIES <9 0-34

CRP HS1.02

FERRITIN. 7.5.2. 30-332

FOLATE SERUM 34.1

B12. 150. 37.5-188

VIT D. 73.9. 50-250

These are results you posted a month ago on 100mcg Levo.

FT4 slightly over range and so yes, significant conversion issues apparent. I personally experienced adverse symptoms with FT4 at top of range and see that SlowDragon previously suggested you might trial a small reduction in Levo to see if this helped. Unsure if you considered this?

Hopefully you are seeing an endo who is open to a trial of Liothyronine alongside a reduced dose of Levothyroxine. Is this NHS or private?

Did you take steps to address vitamins as per recommendations in previous post?

Ganggywaller profile image
Ganggywaller in reply to Buddy195

Thanks buddy , yes I have taken on board what slow dragon said about the vits and reduction in levo, my endo is a private referral from my nhs gp but she wrote on the bottom of referral letter that nhs."please note, we do not any alternative thyroxine preparations on nhs. So i dont know what will happen .

SlowDragon profile image
SlowDragonAdministrator in reply to Ganggywaller

please note, we do not any alternative thyroxine preparations on nhs.

That’s simply untrue

There were over 65,000 NHS prescriptions for T3 (liothyronine) alongside levothyroxine in England in last year

openprescribing.net/analyse...

However seeing an endocrinologist privately will not get you T3 on NHS

But it’s not that expensive privately

And, assuming you do well with addition of T3 ….if you can subsequently transfer to see same endocrinologist on NHS you may eventually get prescribed on NHS

arTistapple profile image
arTistapple in reply to SlowDragon

It may well be untrue SD but my GP writes similar on my endo referrals. I live in a strictly NO T3 zone, where the Open Prescribing (people) congratulate my practice and many others under the ‘rule of this specific chief endo’ for no more possible savings to be made re: liothyronine. Off course it’s at odds with NICE (this endo ironically a main instigator in producing said guidelines). I wish I had the energy and the brain power to challenge it. They truly are a law unto themselves.

pennyannie profile image
pennyannie

Hey there again :

I'm so sorry you haven't found any help yet -

I've nothing else to add to all I've already written and getting angry on your behalf and shall go and dig a bit in the garden.

You need T3 prescribed alongside a slightly lower dose of T4 in order to re-balance these 2 vital thyroid hormones and kick start your metabolism.

You have one through RAI thyroid ablation and no longer have any natural own thyroid hormone production.

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