Hi everyone ❤️
I posted some weeks ago about my appointment with an endocrinologist on Dec 27th, who just stopped my T3 prescription and put me back on T4 levothyroxin to which in her own report she stated... This lady is intolorent to both T4 and T3, therefore I recommend she goes back on T4 levothyroxin 🤦♀️.
She didn't give me any other option, I asked about NDT and were shot down 😡
So I was without any thyroid medication for around 9 days as I'd ran out, and the first prescription was for oral liquid which I've tried twice and vomited it back (endocrinologist was awear of this)
I managed to convey this to the gp and she sent a prescription for T4 teva tablets 😤 this is by far the worst thyroid medication I've been on 3rd time now,.. 🤮.. No surprise after 4 days all side effects started again, I tried to push through but after I soiled myself I'd had enough and discontinued them, it's been 9 days today without any thyroid medication and to be honest I feel OK, all gastric symptoms have gone, headache, metalic taste, shakes (feels like I've stepped off a washing machine on spin dry, palpitations, sweating (this along with the shaking feels like heaven🙏) I'm more alert have more energy, my body pain as gone down, I have no idea why🤷♀️ I just feel great.
Now I know this will not last, as my last bloods showed TSH at 11.58..T3 4.7 (on T3 only then)
So I know my T3 will probably be on the floor now, goodness knows what my TSH will be, but I'd like to ask how do you know your going into bad hypothyroidism, I have never really felt hypo symptoms, or the ones that the NHS pop up on its site😬.
I've been to see the gp this morning after I sent a letter to the practice manager stating my disappointment in trying to obtain an appointment to discuss the fact I've had to discontinue my thyroid medication T4 and why.
The gp was pretty good she as listened to my fears about the endocrinologists in Newcastle where she as referred me and is looking for another endocrinologist appointment 🙌 as I told her she needs to put in her letter my particular needs, in that it's a gastric problem I'm having with the thyroid medication both T4, T3 and would there be anyone capable enough to look into my problem?
She knows I'm now no longer on any thyroid medication but doesn't seem bothered, she knows I have no thyroid also, she as not requested I have any thyroid bloods done either 🤷♀️ I'm a bit bothered about those to things😔