Thyroid problems

[VLJones]

Just wanting some advise wasn't feeling too good and had an Endo app. After seeing my blood results . The endo raised my levothyroxine to 100gm per day. Instead of 75mg for monday tuesday wednesday. Other days 100 . The endo asked my practice to do bloods in august these are the results. But they only did thyroid and nothing else surely they should do all to get a better picture of what is required. Can you wonderful people have a look at the result and tell me how i would get my doctors to do all the neccessary bloods done. Thank you

[SlowDragon Administrator]

Was test done early morning, ideally just before 9am and only water to drink between waking and test and last dose levothyroxine 24 hours before test

How do you feel

Do you always get same brand levothyroxine at each prescription

[VLJones in reply to SlowDragon]

Well test done at 10.00 am but did not eat or drink anything . I now get the same brand of mefication

[SlowDragon Administrator in reply to VLJones]

And when was last dose levothyroxine

[VLJones in reply to SlowDragon]

Day before at 9.00am

[SlowDragon Administrator in reply to VLJones]

So yes you need dose INCREASE in Levothyroxine

Request endo increase to 112.5mcg daily

Retest 6-8 weeks later

Approximately how much do you weigh in kilo

[VLJones in reply to SlowDragon]

I'm 80kg have been trying very hard to keep my weight in check thank you slow dragon.

[SlowDragon Administrator in reply to VLJones]

So likely to need to eventually be on at least 125mcg levothyroxine daily

[VLJones in reply to SlowDragon]

Just waiting for a phone call from my endo. I know he will do the right thing for me. Thank you for all your help with my symtoms.

[SlowDragon Administrator]

Looking at previous posts you had RAI for Graves’ disease

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease - Graves or Hashimoto’s

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

You can try asking GP to test vitamin levels

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Symptoms of hypothyroidism

thyroiduk.org/wp-content/up...

Tips on how to do DIY finger prick test

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

[VLJones in reply to SlowDragon]

Thank you normally when my endo does the bloodtest he does everything. But my doctors only do thebear it so tospeak as i have been told by my gp in thepast that i'm costing them tomuch money.

[pennyannie in reply to VLJones]

That is disgusting since it 's likely the treatment you were given for Graves Disease , RAI , and likely the lack of knowledge from your medical team plus the inadequate treatment you have received through the NHS.

[VLJones in reply to SlowDragon]

Thank you for all the information i have a brillant endo. Who will do the full hit in october and i will be able to get bloods done at 8.30. As my app. Is 8.30 and bloods are done before you see endo.

[SlowDragon Administrator in reply to VLJones]

What vitamin supplements do you take

Remember to stop vitamin B complex 5-7 days before test, then instead take daily folate and separate B12 that week

[pennyannie]

Hey there again Val :

Well your T4 in now in the range but not really high enough at just around 36 % through the range as we generally feel best when the T4 is up in the top quadrant of it's range.

As you have had RAI thyroid ablation it is essential that you are dosed and monitored on your Free T3 and Free T4 readings and not a TSH and or an occasional T4 reading.

After RAI the Hypothalamus - Pituitary - Thyroid feedback loop - on which the TSH relies on as working - does not respond in the ' normal ' way -

plus if your RAI was because of Graves Disease we can still have antibodies circulating in our blood and ' stuck on ' our TSH receptor sites driving down the TSH - but now the thyroid isn't there - to power up our thyroid production - we can't become hyper ever again.

Your thyroid has been burnt out in situ - and rendered totally disabled - and for all intent and purpose - is not there and certainly not able to function in the normal manner.

You must be dosed and monitored on your Free T3 and Free T4 readings with a view for these two vital hormones to be balanced in their ranges at around a 1/4 ratio T3 to T4.

I see I replied to you years ago - so there' little point writing it all out again -

We do now have a couple of research papers that you may or may not like to read but I'm in the same boat as I drank this toxic substance way back in 2005.

You may remember me as I chose to self medicate when I came up against various brick walls in 2016/18 and now run my own blood tests once a year to include the vitamins and minerals and am vastly improved as to how I was left on the NHS treatment protocol.

pubmed.ncbi.nlm.nih.gov/338...

ncbi.nlm.nih.gov/pubmed/306...

[VLJones in reply to pennyannie]

Hi pennyannie thanks for info. My gp is a nightmare don't think they know anything about thyroid problems. Its a good job my endo. Is great and won't take any messing from the gp. I had a problem with Teva products and until the Endo. Told them to make sure that i was given an alterative.