Just a little update - Cautious optimism...!

Hi all,

Just wanted to update in case it's helpful for anyone.

4 weeks and 2 days ago I started taking 125mcg levo and 20mcg T3 a day, split as levo & 10mcg T3 in the morning and 10mcg T3 at 2:30/3ish.

(I was previously taking 50mcg Levo/10mcg T3/60mg Erfa NDT.)

Week 1: Fine - no real obvious difference

Week 2: started to wobble a bit

Week 3 (first half): I was a gibbering wreck; OCD was high, I was crying all the time, seriously contemplating moving far away because my children deserved a better parent than me and they would be better off without me.

Week 3 (second half) : I seriously wanted a divorce. I even googled how much child maintenance I would be owed so I could make budgets for being a single parent.

Week 4 (second half): I feel like I have levelled up and might finally be nearly there. After 3 years.

Yesterday I got up at 5:45 (feeling awake! No anxiety), got the kids breakfast ready, made packed lunches, got dressed, put petrol in the car, took the dogs to the dog field (I don't walk them, we go to a secure field where they run and I sit and watch!), worked for 5 hours, picked the kids up from school, took them into town for sight tests, bought some bits for work, went to the supermarket for a top-up shop and THEN went to work for 2.5 hours and finally went to bed at 10:45.

This morning I am awake again and got up at 7.

This is astonishing.

2 weeks ago I was struggling to get out of bed at 6:30 after going to bed at 9:30. I'd take the dogs to the field, usually arriving late, come home and work for 5 hours, do the school run and then sit down. That would be it. My husband would do dinner and the kids and I would watch tv until dinner time.

I have no anxiety anymore. The OCD is still there, but the intrusive thoughts are rare and easily quelled now. I am waking feeling refreshed, like I have actually slept. The hot flushes have stopped and I'm on day 25 of my cycle which is the longest I've had in ages! I feel capable now where before I just felt like a husk with zero resilience. My brain works, I feel competent at work again.

I still have ongoing symptoms by by Jove! It makes me savage when the medics say T3 doesn't work.

I wouldn't be where I am without this forum and I am filled with gratitude and I wish there were someway I could pay it back. Thank you.

I am cautiously optimistic. 🌤️

[HeartWoman]

That is fantastic! I increased my T4 dose yesterday from 75mcg to 100mcg and wondering how much longer I can do this. I also take 5mcg of T3. I doubt my T3 gers raised until I give T4 and good trial.

I want my happy, easy-going self back and I am tired of waiting. I can handle the physical stuff, but the mental stuff has got to go.

[Hidden in reply to HeartWoman]

OCD has been an enormous struggle for me with my thyroid. It has consumed me for months on end.

I have/had covert compulsions so noone has ever been able to bear witness to it and it's been lonely and soul destroying.

I have had a few days now with very few intrusive thoughts which just galvanises my opinion that my OCD has hormonal.

I was diagnosed in June 2020... It's been a long journey to get where I am now so my optimism will remain cautious because I know it could all come crashing down again but for now I'm enjoying it. 🤗

[TiggerMe]

This is marvellous news 🥳 can we all do a group silly joyous dance around the garden at 9pm... that'll set the dogs off 💃💃💃

and a much simpler regime too.... lets hope it lasts... so happy for you, you ex lump on the sofa you 🤣😅

[Hidden in reply to TiggerMe]

😂 cautious optimism!!

I'm aware that it could all come crashing down but I've had a run of such good days that I don't dare to hope that this might be it. 🙏🏼

[TiggerMe in reply to Hidden]

Ah, but at least you have rekindled the knowledge that you can be You again which is such a tonic... just don't overdo it, you are playing the long game now 🤗

[Hidden in reply to TiggerMe]

I've slowed down this week; not sure what last week was all about but I still managed to take the kids with me to do chores yesterday afternoon, made everyone dinner, and then made jam!

So I'm still able to do stuff, it's just getting harder but I'm in week 5 which is about when I start to slow down after a dose change so it's about right. 😁

[TiggerMe in reply to Hidden]

Sounds pretty good! 🤗 I would expect with the sudden burst of activity that it'll catch up with you and you'll need to ease back a little and find your groove... If you are anything like me you'll have been pushing your boundaries 😏

I actually took myself out for a paddle around in the kayak...twice this weekend! Having removed 2 years worth of spiders and snails 😬 Even though having to perform more as kids are home for 3 weeks... No awful crash 😀

I've actually just bought myself a little row boat (overexcited wee small hours purchase) 🚣‍♀️ so plan on spending the summer trying to regain some muscles... this was the dream when we moved here 6 years ago

We have got this girl... we are on the way back up 🤩

p.s what flavour jam? 😋

[Hidden in reply to TiggerMe]

It's so brilliant to hear you're doing so well too! 🤗

I considered buying some new running trainers but then I had to spend £350 on my dog. Who apparently has hayfever. 🙄 Expensive beast he is!

Jam is Strawberry and Elderflower Except I got impatient and poured it too soon so at the moment it's strawberry and elderflower syrup. 😂

[TiggerMe in reply to Hidden]

😬 I've got one on three legs at the moment.... under supervision as I think she is milking it... seems to work fine if something needs chasing otherwise quite happy to be carried for the boring bits 🙄

Sounds lovely... I haven't the patience for jam it used to vary between a hard blob or runny goo..... I only make rosehip jelly/ syrup to cover my failings 🙃

I'm sticking with low impact... even got my bike out... only to look at it so far 😏

[Litatamon]

Just found this post. Very happy for you Witchinghour. Thanks for sharing with us.

I always try to advise people to push through their symptoms far enough to really see, often people leave a dose or choice of hormone not even knowing that it could have been a good fit.

All the best to you.