Need some guidance

[Oldtymetedd]

hi I need help I had thyroiditis 2017/8

Was put on Levo then when I went back to hospital they took me off of it as they sad my level s were ok

I’m still having problems I have an autoimmune condition lichen planus I have pancreatic insufficiency I have many symptoms of thyroid sleeping from 7 at night feeling cold all I can explain like a shivering from inside ! Always tired my bones joints everywhere aches

My last thyroid function Test they are saying is normal which was august 2022 I don’t think it is nor sure what levels it should be thinking of second opinion

Any one can point me in right direction pls

[SlowDragon Administrator]

So you need to get FULL thyroid and vitamin testing

Are you in the U.K.

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

 

For full Thyroid evaluation you need TSH, FT4 and FT3 tested 

Also both TPO and TG thyroid antibodies tested at least once 

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies 

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis. 

Both are autoimmune and generally called Hashimoto’s.

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis 

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning. 

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism 

thyroiduk.org/wp-content/up...

[Lalatoot]

Normal in doctor speak just means within a given range. For me that is like sharing a wardrobe of clothes with your best friend. You go to the wardrobe and take out an outfit for the day only to find the jeans are too tight and the top too low cut for you. That is because although you and your friend are both normal sizes what suits her doesn't suit or quite fit you and you are very uncomfortable with the result.

Ask your surgery for your actual results and the ranges. Ranges are the numbers in brackets after your result - the ranges are the wardrobe you share with your friend. Post your results and the ranges on here and folks will comment and offer advice as to how you can get optimal rather than normal.

Also worth getting vit d, b12, folate and ferritin levels checked as you need good levels of vitamins to keep the body working efficiently.

[SlowDragon Administrator]

pancreatic insufficiency can be linked to being hypothyroid

thyroidpharmacist.com/artic...

pubmed.ncbi.nlm.nih.gov/201...