Good morning. Yet another useless Endo appointment where he tells me there is nothing wrong with me and that all my symptoms are ‘unexplained’. He didn’t even look at my private blood tests and had made his mind up about me before I had walked in the room.
I showed him that my TG antibodies were 256 which is well above the top of the range (115) but he said I do not have Hashimoto’s because my TPO antibodies are in range. Is this true? Thanks for your help.
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Bearski
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Essential to test vitamin D, folate, ferritin and B12
Have you had these tested?
That’s your first step
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Ask GP to test vitamin levels or test via GP
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Is this how you do your tests?
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
Thank you, I do remember that post. My TG antibodies have more than doubled since then and I'm just getting nowhere. The Endo I saw recently was private, he was on the good Dr list on a facebook group that I'm in. He was utterly horrible, he made me cry. And even thought he could see I was getting more and more distressed he continued to be rude to me eventually telling me I just needed counselling. He even asked me what the 'scars' were on my stomach, they were just the marks where my jeans had been. Bit of a giveaway really! I've got his bill sat on my desk and I'm not paying it.
sorry I forgot to mention, he also told me to stop reading things online as it's not written by Doctors so is all a load of rubbish. I told him that a previous Dr (who since retired) had told me to take NDT but this Endo said I need to stop taking it as it will give me a heart attack and osteoporosis.
Thank you, I have been doing that but everything is all over the place. Since my last Dr retired I stopped taking it for a while and all my symptoms have got worse so I went back on it. I'm trying to follow the advise online regarding dose but not sure I'm making the best job of it so I though a new Endo would finally help me. I gave him all the info from the Thyroid UK page too but it didn't do any good with him. Just feel like I'm banging my head against a wall. My RT3 is also quite high, top of the range, my Iron was high so I went to give blood but was told I couldn't because my Haemoglobin was too low so I read about Anemia of Inflammation but the Endo said that was also rubbish but he gave me no explanation for anything. I just can't seem to get my ducks in a row! I think perhaps I just need to start from scratch?
[Thus, if your MTHFR gene has a mutation and that mutation is now expressing itself, your labs can look like this: higher than optimal serum iron and % saturation, a low ferritin….and a higher in the range TIBC]
Thank you Sweeneythyca. All my iron is high, top of the range or over except the UIBC. The results mention something about haemochromatosis which I don't know what is so I'm reading up on it?
Don't worry about the rT3. It's not even worth testing for, because it only tells you if it's high, not why. And, there are many, many reasons for high rT3. And, unless your FT4 is very high, it has nothing to do with thyroid.
So a journal is OK is you read it in the library but not if you read it online? And he is correct that many articles in journals are written by researchers and ghost writers, not medical doctors - but I bet he still gets his information from the same sources.Obviously channelling Doc Martin
When people like your Endo behave badly it is usually based on fear. He is probably fearful of you discovering his shocking lack of knowledge. Hold your head high ☆☆
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