After my first test today (anorecora manometry)…to see how my muscles are preventing me from pushing what’s inside to me - I got home and was hoping that I would not have the urge to go..but I did, when I tried, I got stuck as usual, and after TWO enemas - I’m finished. I feel like I’m dying …the only thing I could do was take a tranquilizer and some wine and hope for sleep so I can sleep through this nightmare.
I wrote my GI doctor about what’s going on…but in th moment, I have no idea what to do. I have more details but due to the wine, etc. I’m fading fast - all I know is that I can’t live like this. I was normal my while life but for the past 6 months - something happened…and I’m really frightened.
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Trudijane
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Trudijane, I am so sorry you are feeling that low. I do understand. I have mostly IBS D, but had bad constipation once for only TWO days and I wondered what was going to happen to me as I was in pain and shaking all over. And that was just two days, and I didn't get to the level of taking enemas. I can only begin to imagine what you must be feeling.
I suppose you haven't got the results back for the manometry yet?
I don't blame you about the wine. Your nerves must have needed that, and it will help to relax you. At times a drink really helps my tummy to be honest.
I guess you're taking everything under the sun to make you "go" but it's the muscles that aren't working like they should. Does a warm bath help at all?
thank you for writing back. I did knock myself out last night - but when I woke up I had the sensation that I had to go - I never usually have that in the AM…as if something is stuck way inside of me; and I’m not sure if it’s gas or something else. I am tempted to do another enema - but holding off. I’m at the point right now that I don’t know what to do…I appreciate your comments though.
That sounds terrible. Please let us know what the tests come back with. I'd also be very interested in what kind of treatment is recommended.
What is your history with this? I'm familiar with a congenital condition (Hirschsprung's?) where the muscles simply aren't working. It's treatable (in infants, though), so hopefully yours will be too.
Thank you….right now it feel so stuck and am trying to avoid an enema…I’ve been having various problems for the past 6 months or so…I won’t go into details but today was terrible; I’m waiting for as long as I possibly can to go - it’s the most uncomfortable feeling in the world to be stuck,,sorry not feeling well again today, I’d like to say more but …not right now..thanks for responding
While I’m sitting here hoping that I don’t have to do an enema - I really think relying on them is not a good thing. Prunes & water always used to work for me - so I’m holding on for as long as I possibly can.
I was normal my whole life - no constipation what’s over - until the past 6 months. What started happening was I would have a normal BM, but there was more behind it; and pushing it out became impossible - I don’t k now why that is - I know what muscles I’m supposed to use and did so initially; but it’s very hard to be ‘stuck’ and stay ‘stuck’. I used to be scared of enemas - and now I seem to be relying on them way too much!!
Altho my GI Dr. says they are safe, I don’t feel right when it’s over. At first there is a lot of relief, but it comes with its own set of problems - dizziness, lower stomach cramps and feeling ‘off’ . I have no energy to do anything after that.
I don’t know what the tests might show - I feel as if I’m using thhe right muscles until they get tired of trying. This morning I woke up feeling as if someone was giving me that test all over again - it was very weird. The urge woke me up. I’m sooo tired of feeling this way.
If things get really bad for you go to the ER. They might have something that works a bit deeper than an enema? It's not the permanent solution but it might ease what you're going through right now. Take care, + hugs.
I am NEVER going to the ER again. I was there last week feeling ‘stuck’ which got worse & worse while I was there. First, I waited 2 hours to see a Dr. then I asked him to at least relieve me of what was going on - but he said I should have a MRI to see if something was blocked - w high was OK with me, except he said it would be a few minutes. After an hour of waiting - i couldn’t take it anymore - I begged them to give me an enema or something since they did not know when the MRI would be set up. So I went home, gave myself and enema and finally some relief. I was in agony there but no relief.
Oh I see. That was a useless visit to the ER. Plus it involved you in waiting and more pain. I can see why you don't want to go back. But I can also see why he wanted to give you the MRI. Just typical of a hospital situation that getting that sorted took so long. Could you still get an MRI done at some point, or would that be a waste of time?
The dr. Told me it would be ready in a few minutes; so I thought it was a good idea too - at first - after 1/2 hour I grabbed him going by and said that I couldn’t wait anymore; he said ‘soon’ - another hour goes by and I start begging the nurse to do an enema for some relief - she wouldn’t so I was pretty frustrated, angry and in pain; all that waiting for nothing…I don’t know what an MRI would show - at the time it may have showed if there were some sort of blockage..I’ll have to ask my Dr. about that. I’m scheduled to have a colonoscopy (January)…I gave into an enema again just now - I hate them. I hope they can find something that is causing this…
When you say 'holding on' do you mean you get the urge but try to ignore it and hold on? I'm no expert, but it sounds to me a bit like your body is trying to function and you are overriding that urge-did you have to hold on at some time, so the colon continues to remove fluid from the stool, and it gets drier and harder to eliminate. To be honest, enema's might exacerbate the issue, you said about prunes, yes, good idea, or stool softeners, which absorb water into the bowel to make the stool softer to get rid of. It is most uncomfortable, but hot bath might help, alongside prunes and softeners. Hope you manage to get relief soon. Then, no more enemas, but take the softener and try to increase the fibre in your diet, which absorbs more water, so making the stool softer-it's a vicious circle.
You may be right about the enemas but I feel like I have no other choice ..lately. I actually 2 different ones this morning….because I feel stuck deep inside - I still feel the same way - and my body has had enough. My Dr. called; I want to go to the ER but if it’s like the last time…..??
People keep mentioning doing enemas. Can you do it at home?? If so how?? Please there are times when I think I could do with one. Sorry I have no suggestions to help.
hi, so sorry you are going through this, I’m in a similar position, I’ve not tried enamas yet but I may have to, my doctors and gastro team don’t seem to do anything apart from offer me lactulose which does nothing, it used to work but not any more, I’ve tried all kinds of laxatives but having no effect, I get bowel obstructions so really need an answer, don’t know why it’s happening, it's horrible, you have my sumpathy.
That sounds awful, I'm so sorry. I've got a similar problem and I can't push too hard or I get hemorrhoids. I can 'go' or at least start off but it feels like the rest is stuck around a bend. I am managing with my jar of coconut oil. I keep it in the fridge so it stays hard, then when I need to, I cut off a small chunk and push it up as far as a can, I can usually feel some poo and break it down as much as I can, with the coconut oil melting. It's a horrible thing to have to do and I'm going to have to get some help..... you have my utmost sympathy.
You could have a blockage due to something stuck quite high up in the colon. Enemas may only work on the lower end like suppositories, not sure. I have a loopy colon and stuff gets stuck around the bends.
You may have dyssynergic defecation. That is when you try to push, but the anus will not open and pushing is useless. I had this problem, but it was resolved by an examination and exercises given to me by a colo-rectal surgeon. Try to find a colorectal surgeon who deals with constipation and leakage issues. They are used to treating this condition, if that is what you have.
I regret having the test I did altho i felt it was necessary. The reason i regret it is because ever since then, I’ve woken up to the urge to have to go and I NEVEr felt that way in the AM until now. I;m forced to do an enema morning and night - and I’m terrified. It doesn’t even feel like the enama has finished…but I had to stop due to pain.
I’m really in trouble today and not sure how to get through it - even after my Dr. called, wha t could he do?? AM - urge to go - went a little bit, but didn’t want to remain ‘stuck’ so I turned to an enema, 2 enemas - and I’m still feeling blocked, have the chills, my stomach is in knots; and I’m terrified. I’m not sure if I can through this…I just want to feel OK and I can’t.
Retired medical professional here. Concerned about mixing wine and a tranquilizer.
I cannot take any form of calcium whether in vitamin preparations or as a supplement. It constipates like crazy. Rice is constipating . I am on medication for paroxysmal atrial fibrillation, . Ever since I have gas from hell and constipation. It’s better if I take meds with food.
Any opiate is constipating. My gut is similar. As a matter of fact, when the doctor did the colonoscopy, she told me that my gut just clamps down. She couldn’t pass the scope, and so they gave me a medication to open it.
Do you know about the website helpforibs.com ?
There are lots of hints there that help.
For getting “stuck” I found a glycerine suppository gets it going without the dangers of laxatives. ( Use a disposable glove for insertion).
Anxiety about the gut can cause it to “go into knots”.
Once, after a very disturbing phone call, I was thinking about it when I was driving and I ended up with the most awful abdominal pain that I couldn’t even drive. I ended up calling the police who called an ambulance and I went to the emergency room; they did the CAT scan after I drank the dye and all this showed that my belly was in knots.Thank God no tumors.
I’ve survived wine/tranquilizers before - and when Im feeling desperate - like today - I do whatever I can do to relax me. I managed to lie down for awhile - and finally managed to have a little diarhhea - it’s something - better than nothingI. The after effects from drinking wine etc. is secondary to the pain/agony I’ve been going through all day. I pray that something is found that is causing all of this - to be frank - it scares me to death. And I feel helpless to help myself…I’m feeling dizzy right now, tight stomach, blood pressure high - the whole ordeal is scary…there has to be an end to this.
I’ve been a long-time user of suboxone - but for that time it hasn’t affected me. I have been taking calcium every day for years…as for colonoscopy; I need to be anesthetized to have it done. It’s supposed to be in January if I lost that long. This is the worst medical problem I’ve ever had.
can I suggest trying for one day, just drink warm water--we need lots of water each day, -2 its at least, which is about 3 1/2 pints- I think I said before, your body continually absorbs water from your gut, blood etc, to function and if you aren't having enough, your poo gets drier and harder, and that's how fissures start- you push and nothing happens, so you push harder and the dry poo scratches the lining of the colon, etc. If you do go to A&E, collapse on the floor-you'll be seen straight away! (I've never done that but witnessed it at least once!)
To be honest, the best course of action is to go back to ER and sit it out... as you said, they were happy to do an MRI and that is the test you need (alongside colonoscopy). If you were not happy at the hospital you attended, is there somewhere else you could go? If someone is in a huge amount of pain, hospitals should at least, give you strong pain relief until the MRI is set up.. here in the UK we can expect to wait many hours in our A and E departments (10 plus hours...) so hopefully you will not be waiting anywhere near as long to be seen!
My doctor is stumped and can’t really answer a lot of questions that I’ve been having - he has a good rep as a GI doctor - but there is something new that is going on that Im very confused about.
Ever since I had to do an enema in the AM (which I never did before) before my anorectal manometry test; I got through the test just fine - but since then - I’ve been waking up in the AM - having to go - whereas before I NEVER had to go in the AM. Now I do - I held it in all day yesterday and finally gave into an enema when it was too painful to handle - I was ‘stuck’ an nothing could get it out - it became an absolute necessity. At first the enema is a big relief, but it last a long long time…for hours afterward.
So now I;m tempted to do that in the AM too? Can I live this way? Did my body become reprogrammed to have to go in the AM? I asked my doc about it; and he doesn’t know or understand it. When I was there, i told him that I really had to go - and yet when he examined me - he didn’t see anything there. I found that difficult to believe…when I left the office, i stopped by the bathroom; and there was A LOT there; or as much as I could get out…I’m very bothered by this.
He keeps saying we have to wait for the tests to come back. I can ‘feel’ what muscles I need to use - and as always, in the beginning - I can push things out; but then I get stuck! Why I don’t know.
All I DO know is that I can’t live this way. Normal my whole life until the last 6 months or more.
I’ve had enough. After 2 enemas - it didn’t work - I feel someting stuck deep down inside of me - i feel so sick and feel like I’m dying,…I don’t know what happened, but I’m not sure how I’m going to get through the night…Never been so sick before; very frightening
It’s worse today; and I don’t have a clue what’s happening…very scared; I just read what I wrote before - and last night I seemed to be doing fine - I succumbed to 1 enema late in the evening; and I woke up feeling fine. As I was getting breakfast ready; I had this feeling like gas dropping and I rushed to the bathroom. But for some reason, I did not get it out - so I stopped and pretended it was not a big thing…since then - this day has been a nightmare; all it felt like was gas and yet I turned to the enema again - to help myself feel better. Strange thing - only some came out - the rest felt stuck. An hour later, enema #2 … once again a little came out - but not what I was expecting. I couldn’t try anymore due to soreness and feeling dizzy; I tried to numb myself to whatever is happening by drinking wine and taking 1/2 tranquilizer - didn’t work. . . I feel so sick now and wondering if I’m going to survive the night. Why is my body betraying me…It started out OK, but what felt stuck was something deep inside of me…or is that just my imagination?? I feel like giving up.
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feeling like a cripple
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