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Stopping Kevzara
I have had to stop my Sarilumab jabs, yet again, because my white cells have dropped again. I have been off the drug for over three weeks now and have heard nothing since my last blood test. I expected to feel gradually worse without it but I don't. I still have the pain and take my painkillers, but
I have had to stop my Sarilumab jabs, yet again, because my white cells have dropped again. I have been off the drug for over three weeks now and have heard nothing since my last blood test. I expected to feel gradually worse without it but I don't. I still have the pain and take my painkillers, but
tazman3
in
NRAS
4 months ago
fibro
Hi everyone, I’ve just been officially diagnosed with fibromyalgia even though my symptoms started 10 years ago. I’ve spent so much money on trying to get rid of pain especially in the shoulders and middle of the back but doctors just handed out painkillers, I then suffered different side effects with
Hi everyone, I’ve just been officially diagnosed with fibromyalgia even though my symptoms started 10 years ago. I’ve spent so much money on trying to get rid of pain especially in the shoulders and middle of the back but doctors just handed out painkillers, I then suffered different side effects with
Labradoodlelove
in
Fibromyalgia Action UK
4 months ago
Diverticulitis
I am 75 years old. On Thursday morning I awoke with terrible abdominal pain and diarrhoea followed by heavy blood loss. I was very frightened. I went to A and E where I was looked after really well. They gave me painkillers and X-rays and a CT scan. I had diverticulitis and inflammation of sigmoid colon
I am 75 years old. On Thursday morning I awoke with terrible abdominal pain and diarrhoea followed by heavy blood loss. I was very frightened. I went to A and E where I was looked after really well. They gave me painkillers and X-rays and a CT scan. I had diverticulitis and inflammation of sigmoid colon
France21
in
Bowel Disease Support
4 months ago
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7 days post and home.
Hi the next installment, I got admitted as planned and the operation went well, the surgeon had to change from keyhole to open surgery as something wasn't quite right so it took a bit longer than expected about 4hrs 30. Woke up in HDU feeling like a double decker bus had run over and to be honest I am
Hi the next installment, I got admitted as planned and the operation went well, the surgeon had to change from keyhole to open surgery as something wasn't quite right so it took a bit longer than expected about 4hrs 30. Woke up in HDU feeling like a double decker bus had run over and to be honest I am
Thanksnhs
in
British Heart Foundation
4 months ago
Pain relief medication
Hi there, I had a stent fitted in LAD in 2021. Have a mild to moderate aortic leaky valve. I also have two slipped discs in lower back. For the most part, I have no pain or restricted movement. Every now and again, I’m in excruciating pain with my back for a few days, then all goes back to normal
Hi there, I had a stent fitted in LAD in 2021. Have a mild to moderate aortic leaky valve. I also have two slipped discs in lower back. For the most part, I have no pain or restricted movement. Every now and again, I’m in excruciating pain with my back for a few days, then all goes back to normal
simplysal
in
British Heart Foundation
4 months ago
Any tips for recovery please
Had 2/3 of my right lung removed beginning of January for yet unknown lung cancer (Will see consultant for pathology this week) I coped alone with recovery but was do able. 2 Weeks ago after visiting A&E and a CT scan, I was found to have Pulmonary Embolisms in both lungs and Pneumonia in surgery lung
Had 2/3 of my right lung removed beginning of January for yet unknown lung cancer (Will see consultant for pathology this week) I coped alone with recovery but was do able. 2 Weeks ago after visiting A&E and a CT scan, I was found to have Pulmonary Embolisms in both lungs and Pneumonia in surgery lung
xinte60
in
The Roy Castle Lung Cancer Foundation
4 months ago
Mother in pain
My 88 year old mother has severe osteoporosis and kyphosis. She has episodes of severe back pain under her shoulders, which I am assuming is due to vertebral fractures of the spine. She uses a heating pad, over the counter pain medicine, and Tylenol with codeine when she cannot tolerate the pain anymore
My 88 year old mother has severe osteoporosis and kyphosis. She has episodes of severe back pain under her shoulders, which I am assuming is due to vertebral fractures of the spine. She uses a heating pad, over the counter pain medicine, and Tylenol with codeine when she cannot tolerate the pain anymore
WreckemTech
in
Osteoporosis Support
4 months ago
Endo, Crohn’s and Surgery
Hi, anyone in any kind of similar situation? I have Crohn’s Disease and have had three surgeries about 15 years ago. During IVF I was told I had endometriomas on my left ovary. These have been a nightmare for years now. Every specialist says they would usually remove these surgically but due to my
Hi, anyone in any kind of similar situation? I have Crohn’s Disease and have had three surgeries about 15 years ago. During IVF I was told I had endometriomas on my left ovary. These have been a nightmare for years now. Every specialist says they would usually remove these surgically but due to my
Westwoodendo
in
Endometriosis UK
4 months ago
My story
Given the start of my Seropositive RA in 2005. I had bad experiences with most of the traditional RA meds prescribed. I never really understood why doctors only seemed to give medication which would suppress the immune system. Generally I felt this approach was making me feel much worse. So for many
Given the start of my Seropositive RA in 2005. I had bad experiences with most of the traditional RA meds prescribed. I never really understood why doctors only seemed to give medication which would suppress the immune system. Generally I felt this approach was making me feel much worse. So for many
BEF12
in
British Heart Foundation
4 months ago
Participant Recruitment - Post Surgery Pain Management
Researchers from the
University of Manchester
are
recruiting participants for a study on post-surgery pain management
. Please get in touch with Neetu Bansal (lead researcher) directly if you are interested in taking part, or to get further information: 📧 neetu.bansal@manchester.ac.uk
Researchers from the
University of Manchester
are
recruiting participants for a study on post-surgery pain management
. Please get in touch with Neetu Bansal (lead researcher) directly if you are interested in taking part, or to get further information: 📧 neetu.bansal@manchester.ac.uk
PainConcernProjects
Pain Concern
in
Pain Concern
4 months ago
Burning sensation- anyone else?
Hi allI was diagnosed with endometriosis in 2020 (never told stage or anything like that) and scans I've had show probable adenomyosis as well. After my laparoscopy my pains came back fairly quickly and have escalated. About a year ago i started getting pain in the glutes and all down my leg (more on
Hi allI was diagnosed with endometriosis in 2020 (never told stage or anything like that) and scans I've had show probable adenomyosis as well. After my laparoscopy my pains came back fairly quickly and have escalated. About a year ago i started getting pain in the glutes and all down my leg (more on
Redfan
in
Endometriosis UK
4 months ago
Nubeqa and pain medication
I'm starting Nubeqa and from what I read your not suppose to take pain meds like tylenol, aleve, ibebrofin, asprin etc. My question is ... has anyone taking Nubeqa used any pain meds for their pain, if so what kind and did it react with the Nubeqa. I ask alot of questions on here because I need to know
I'm starting Nubeqa and from what I read your not suppose to take pain meds like tylenol, aleve, ibebrofin, asprin etc. My question is ... has anyone taking Nubeqa used any pain meds for their pain, if so what kind and did it react with the Nubeqa. I ask alot of questions on here because I need to know
woppaginny
in
Advanced Prostate Cancer
4 months ago
fibro pain and tiredness
hi, I had a fibro for over a year now, for about 8 months I have been on tramadol for it, slowly increasing dosage to 250mg or sometimes more a day, only one thing that helps me to be more mobile, relaxes my muscles a bit but not always that is the case, sometimes I don’t take tramadol or take less and
hi, I had a fibro for over a year now, for about 8 months I have been on tramadol for it, slowly increasing dosage to 250mg or sometimes more a day, only one thing that helps me to be more mobile, relaxes my muscles a bit but not always that is the case, sometimes I don’t take tramadol or take less and
MartynaMalinowska88
in
Fibromyalgia Action UK
4 months ago
suspected epidural tumour
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
StayingSTRNG
in
Advanced Prostate Cancer
4 months ago
Need to see a Doctor
The pain started a couple of months ago thought I was having a heart attack found it hard to even to breathe got checked out at hospital said it was muscular take pain killers. It eventually eased off but was back in a week so went to Doctors had bloods done and an xray of my chest all showed nothing
The pain started a couple of months ago thought I was having a heart attack found it hard to even to breathe got checked out at hospital said it was muscular take pain killers. It eventually eased off but was back in a week so went to Doctors had bloods done and an xray of my chest all showed nothing
Mikstar
in
Fibromyalgia Action UK
4 months ago
good morning everyone, hope you having a good one
Stiffness… I am feed up with myself, I don’t know what to do about it anymore, 😞.. every morning the stiffness kills me and the pain is horrible, every inch of my body is hurting like hell.. I am on Pregabalin 300mg/ day and no help, I even start yoga, Pilates and aqua aerobic exercises, I go 3 times
Stiffness… I am feed up with myself, I don’t know what to do about it anymore, 😞.. every morning the stiffness kills me and the pain is horrible, every inch of my body is hurting like hell.. I am on Pregabalin 300mg/ day and no help, I even start yoga, Pilates and aqua aerobic exercises, I go 3 times
Alice2004
in
Fibromyalgia Action UK
4 months ago
Umbilical endometriosis
Hi all. Reaching out for hopefully a little help. My belly button is so raw and on fire nothing is helping atm I'm wondering if anyone else suffers with umbilical endometriosis and has found anything that helps 😭 I use warm compress, keep it clean and have tried painkillers paracetamol and ibuprofen
Hi all. Reaching out for hopefully a little help. My belly button is so raw and on fire nothing is helping atm I'm wondering if anyone else suffers with umbilical endometriosis and has found anything that helps 😭 I use warm compress, keep it clean and have tried painkillers paracetamol and ibuprofen
Lornalost89
in
Endometriosis UK
4 months ago
Medicines and dementia risk
Hello. I'm 64 years old with a painful back problem (lumbar spinal stenosis, spondylosis and spondylolisthesis). While I wait for an appointment at the Pain Clinic, I was recommended by the musculoskeletal specialist to try a drug called gabapentin. My doctor put me on another from this group of drugs
Hello. I'm 64 years old with a painful back problem (lumbar spinal stenosis, spondylosis and spondylolisthesis). While I wait for an appointment at the Pain Clinic, I was recommended by the musculoskeletal specialist to try a drug called gabapentin. My doctor put me on another from this group of drugs
AliDeJ
in
PMRGCAuk
4 months ago
recurring illnesses
I’ve been trying to get stable on t3/4 combination, still a way to go as last results after increasing to 10 mcg liothyronine in 2 doses were the worst yet, t3 and t4 both at bottom of range, vitamin D draining away again despite supplements. I’ve increased levothyroxine back up to 75 ( I was advised
I’ve been trying to get stable on t3/4 combination, still a way to go as last results after increasing to 10 mcg liothyronine in 2 doses were the worst yet, t3 and t4 both at bottom of range, vitamin D draining away again despite supplements. I’ve increased levothyroxine back up to 75 ( I was advised
Mag999
in
Thyroid UK
4 months ago
is this a sign my meds are struggling or just how it is now?
Sorry for the long message but would appreciate knowing if this is typical or if I am being a little dramatic and unrealistic. diagnosed with RA nearly 2 years ago. Took a while but pretty much back to normal after moving to injecting 20mg MTX, 200g hydroxy and folic acid 6 days a week. Took just over
Sorry for the long message but would appreciate knowing if this is typical or if I am being a little dramatic and unrealistic. diagnosed with RA nearly 2 years ago. Took a while but pretty much back to normal after moving to injecting 20mg MTX, 200g hydroxy and folic acid 6 days a week. Took just over
Newbie73
in
NRAS
4 months ago
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