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B1 Therapy for Parkinson's
My wife was diagnosed with Parkinson's 4 years ago aged 64 and is finding walking and balance becoming increasingly difficult. My father who died aged 79 also suffered from Parkinson's I myself may be displaying early indicators of Parkinson's having developed a very poor sense of smell around 8 years
My wife was diagnosed with Parkinson's 4 years ago aged 64 and is finding walking and balance becoming increasingly difficult. My father who died aged 79 also suffered from Parkinson's I myself may be displaying early indicators of Parkinson's having developed a very poor sense of smell around 8 years
Ianisit
in
Cure Parkinson's
2 months ago
flashing lights
hello everyone! I hope this finds you well. I must say I really love this forum it’s the best ! I wanted to ask a question, is it normal that after taking a b12 shot I see flashes of lights while my eyes are closed ? I’m Not sure how to explain it
hello everyone! I hope this finds you well. I must say I really love this forum it’s the best ! I wanted to ask a question, is it normal that after taking a b12 shot I see flashes of lights while my eyes are closed ? I’m Not sure how to explain it
Reembow
in
Pernicious Anaemia Society
2 months ago
Tips on Disc Surgery Recuperation?
I had C4/5 disc replacement surgery 6 months ago, after suffering severe myelopathy for 3 years. Recovery has been brutal and I’m experiencing neurological symptom I never had before the surgery. I have the antibody type PA and I’m wondering if anyone else has had experience self-injecting B12 in a
I had C4/5 disc replacement surgery 6 months ago, after suffering severe myelopathy for 3 years. Recovery has been brutal and I’m experiencing neurological symptom I never had before the surgery. I have the antibody type PA and I’m wondering if anyone else has had experience self-injecting B12 in a
Bellmore2089
in
Pernicious Anaemia Society
2 months ago
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T3 or lack of
how do you actually know you need T3 ? Here in England T3 isn’t tested because we can’t get the drugs for it here , been on levo for yrs … and the past 2-3 yrs my symptoms have become worse had a blood test last week has my arms n legs have become weak .. tingling in my feet n fingers , and want to
how do you actually know you need T3 ? Here in England T3 isn’t tested because we can’t get the drugs for it here , been on levo for yrs … and the past 2-3 yrs my symptoms have become worse had a blood test last week has my arms n legs have become weak .. tingling in my feet n fingers , and want to
Catlady73
in
Thyroid UK
2 months ago
feeling overwhelmed
hey all I’ve been underactive for quite a while now and on 50 Levo a day for a long time, in that time I’ve been told I’m b12 deficient low iron the lot but I can’t help but think it’s actually all down to my thyroid? Had these tests done today and doctor has advised to up to 85 levo a day, I feel
hey all I’ve been underactive for quite a while now and on 50 Levo a day for a long time, in that time I’ve been told I’m b12 deficient low iron the lot but I can’t help but think it’s actually all down to my thyroid? Had these tests done today and doctor has advised to up to 85 levo a day, I feel
Dondays
in
Thyroid UK
2 months ago
T3 Trial and feeling worse
Medichecks end Jan 2024 Hypothyroid (after RAI in c2004) Spent 2023 improving folate, B12, Vit D although ferritin still poor. Came off PPIs and now take Gaviscon twice daily. Gastritis issues ongoing though. Officially a poor converter (dud DIO2) so really wanted to try T3 Dec 2023 - Trial of T3
Medichecks end Jan 2024 Hypothyroid (after RAI in c2004) Spent 2023 improving folate, B12, Vit D although ferritin still poor. Came off PPIs and now take Gaviscon twice daily. Gastritis issues ongoing though. Officially a poor converter (dud DIO2) so really wanted to try T3 Dec 2023 - Trial of T3
Rambling9
in
Thyroid UK
2 months ago
thyroid and high blood pressure
Hi all So have been struggling to get a GP appointment to discuss my Thyroid meds. After MUCH sulking from me my medication was reduced to 75mcg from 100. Although I managed to hold out for 100 whilst I was on holiday- feel not so good so have been trying to get my meds reinstated. This since end
Hi all So have been struggling to get a GP appointment to discuss my Thyroid meds. After MUCH sulking from me my medication was reduced to 75mcg from 100. Although I managed to hold out for 100 whilst I was on holiday- feel not so good so have been trying to get my meds reinstated. This since end
Jillyb15
in
Thyroid UK
2 months ago
Blood test
Hi Sorry for being a pest but I'm completely drained and brain fog preventing memory , GP stopped my T3 I advised her to increase my T4 ( I don't convert ) accordingly, she queried why I would need an increase ( I query is she qualified) I explained why ( she was clueless ) anyway she's ordered a full
Hi Sorry for being a pest but I'm completely drained and brain fog preventing memory , GP stopped my T3 I advised her to increase my T4 ( I don't convert ) accordingly, she queried why I would need an increase ( I query is she qualified) I explained why ( she was clueless ) anyway she's ordered a full
Jodiedebs
in
Thyroid UK
2 months ago
Rasagiline/Azilect?
Hi ! My hwp (77) diagnosed 2017. But of course with hindsight symptoms manifested earlier. Started C/L last year : 25/100 @ 3 times a day. Azilect 1 mg once a day . Walking became a really serious problem a month ago. Partly because of ongoing "sciatica" but also freezing a few times a day. Two weeks
Hi ! My hwp (77) diagnosed 2017. But of course with hindsight symptoms manifested earlier. Started C/L last year : 25/100 @ 3 times a day. Azilect 1 mg once a day . Walking became a really serious problem a month ago. Partly because of ongoing "sciatica" but also freezing a few times a day. Two weeks
ghoegap
in
Cure Parkinson's
2 months ago
not PA, next steps
Hi all. I am now SI EOD and have had my iron infusion which is great. I’ve had my autoimmune blood tests back which show I don’t have an autoimmune disease or Pernicious Anaemia (results attached). I’ve been advised that means I have a gut issue which is blocking absorption, I’m keen to get this looked
Hi all. I am now SI EOD and have had my iron infusion which is great. I’ve had my autoimmune blood tests back which show I don’t have an autoimmune disease or Pernicious Anaemia (results attached). I’ve been advised that means I have a gut issue which is blocking absorption, I’m keen to get this looked
AJackson21
in
Pernicious Anaemia Society
2 months ago
Out of interest......what were you initially (mis)diagnosed with?
I'm just wondering what people were initially misdiagnosed with? When I was at my most unwell my GP at the time wanted to diagnose me with Fibromyalgia. I was adamant it wasn't that, and would not accept that diagnosis. Another GP at the surgery was talking about going down the MS route. That was until
I'm just wondering what people were initially misdiagnosed with? When I was at my most unwell my GP at the time wanted to diagnose me with Fibromyalgia. I was adamant it wasn't that, and would not accept that diagnosis. Another GP at the surgery was talking about going down the MS route. That was until
BeachArt
in
Pernicious Anaemia Society
2 months ago
Letrozole/CTD agony. Yoga is better than massage says Med Research!
I tend to favour natural remedies, excellent diet, tons of Omega 3 and huge amounts of
vitamins
and greens, keep very hydrated and also do hatha yoga most evenings at home.. and have now also been throwing money at the pain with weekly professional massages with acupuncture... but I am also on codeine
I tend to favour natural remedies, excellent diet, tons of Omega 3 and huge amounts of
vitamins
and greens, keep very hydrated and also do hatha yoga most evenings at home.. and have now also been throwing money at the pain with weekly professional massages with acupuncture... but I am also on codeine
DJK99
in
My Breast Cancer Community
1 year ago
help please, liothyronine, Roma brand
please forgive how long winded this will be I’m spaced out and not with it at all. I only posted a few months ago and my T4 results were a little on the high side. I was on 200mcg of Levo and alternate day 225mcg. I’ve reduce this down to 200mcg over 5 days and two doses of 25mcg over 2 days. Example
please forgive how long winded this will be I’m spaced out and not with it at all. I only posted a few months ago and my T4 results were a little on the high side. I was on 200mcg of Levo and alternate day 225mcg. I’ve reduce this down to 200mcg over 5 days and two doses of 25mcg over 2 days. Example
Cheekycharlie1981
in
Thyroid UK
3 months ago
Blood results - Any Advice?
Hi! Just looking for maintenance recommendations and any advice is greatly appreciated! Went to a new doctor (endocrinologist) to get a 2nd opinion on my thyroid condition. Of course, my goal is to heal and get off meds completely one day but she said she does not feel it is possible. Was first
Hi! Just looking for maintenance recommendations and any advice is greatly appreciated! Went to a new doctor (endocrinologist) to get a 2nd opinion on my thyroid condition. Of course, my goal is to heal and get off meds completely one day but she said she does not feel it is possible. Was first
Kim327
in
Thyroid UK
3 months ago
UPDATE: NEW RESULTS
Hi all hope you are all ok. I apologise this is a long post, sit down with a drink before you start Or ignore if it’s too much 🤣 Some may remember I posted in December (I think) as I had seen a private Endo who told me after 30 years of being Hypothyroid I was now Hyperthyroid (I know, impossible
Hi all hope you are all ok. I apologise this is a long post, sit down with a drink before you start Or ignore if it’s too much 🤣 Some may remember I posted in December (I think) as I had seen a private Endo who told me after 30 years of being Hypothyroid I was now Hyperthyroid (I know, impossible
irishacres
in
Thyroid UK
3 months ago
Zypan?
Hi everyone. Just wondering if anybody here is taking Zypan or have taken it before? Just watched a really helpful video from Dr Berg on YouTube on PA where he mentions this helps to absorb B12 if there is a lack of intrinsic factor
Hi everyone. Just wondering if anybody here is taking Zypan or have taken it before? Just watched a really helpful video from Dr Berg on YouTube on PA where he mentions this helps to absorb B12 if there is a lack of intrinsic factor
MLJ2024
in
Pernicious Anaemia Society
3 months ago
Is this too little or too much NDT Armour symptom?
Hi All Still here, feeling dreadfully weak. Im having weird weak quads and calves (weaker than usual) 5-10 mins after food and also 5-10 mins after Armour. I take 1 1/4 grains in 2 split doses AM and 3 PM ish, giving a TSH of 0.09 (0.27-4.2) FT4 15.3 (12-22) FT3 4.6 (3.1-6.8) Recent NHS Iron
Hi All Still here, feeling dreadfully weak. Im having weird weak quads and calves (weaker than usual) 5-10 mins after food and also 5-10 mins after Armour. I take 1 1/4 grains in 2 split doses AM and 3 PM ish, giving a TSH of 0.09 (0.27-4.2) FT4 15.3 (12-22) FT3 4.6 (3.1-6.8) Recent NHS Iron
Gillybean1
in
Thyroid UK
3 months ago
B12 ampules
I have noticed that my B12 ampules are a few months out of date, will they still be effective? I had a fall and brain injury in December and wonder if the extra fatigue is due to the injury. Thank you
I have noticed that my B12 ampules are a few months out of date, will they still be effective? I had a fall and brain injury in December and wonder if the extra fatigue is due to the injury. Thank you
bethmoggie
in
Pernicious Anaemia Society
3 months ago
are my labs showing anything?
Hi all, wondered if anyone could offer some advice, i started B12 injections a couple weeks ago i only did a few days as i started to get symptoms of severe neuropathy n breathing & this cold sensation all over my body, ended up in A&E 🙄 I didnt know if it was because of injections or an advancement
Hi all, wondered if anyone could offer some advice, i started B12 injections a couple weeks ago i only did a few days as i started to get symptoms of severe neuropathy n breathing & this cold sensation all over my body, ended up in A&E 🙄 I didnt know if it was because of injections or an advancement
M-usher
in
Pernicious Anaemia Society
3 months ago
Private blood test results
Thyroid Function TSH H: 12.40 / 0.27 - 4.20 mU/L New range & unit T4 Total: 100.0 / 66 - 181 nmol/L Free T4: 17.2 / 12.0 - 22.0 pmol/L Free T3: 4.66 / 3.1 - 6.8 pmol/L New range Immunology Anti-Thyroidperoxidase abs H: 146 / <34 IU/mL New units Anti-Thyroglobulin Abs H: 212 / <115 IU/mL New units
Vitamins
Thyroid Function TSH H: 12.40 / 0.27 - 4.20 mU/L New range & unit T4 Total: 100.0 / 66 - 181 nmol/L Free T4: 17.2 / 12.0 - 22.0 pmol/L Free T3: 4.66 / 3.1 - 6.8 pmol/L New range Immunology Anti-Thyroidperoxidase abs H: 146 / <34 IU/mL New units Anti-Thyroglobulin Abs H: 212 / <115 IU/mL New units
Vitamins
DanW
in
Thyroid UK
1 year ago
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