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Hi all, so happy to have found this forum. I was diagnosed as B12 deficient just a couple of weeks ago after being unable to attribute my weird collection of symptoms to either a busy life (fatigue, brain fog) or spinal nerve inpingement (cramp, twitches, bone pain). It was the lip twitching that finally
Hi all, so happy to have found this forum. I was diagnosed as B12 deficient just a couple of weeks ago after being unable to attribute my weird collection of symptoms to either a busy life (fatigue, brain fog) or spinal nerve inpingement (cramp, twitches, bone pain). It was the lip twitching that finally
Myoldcat
in
Pernicious Anaemia Society
6 months ago
Results advice please
Good morning, I would really welcome some advice from this amazing community about my latest results. Due to advice from this group I have been increasing my Levothyroxine dose since July as I was under medicated for a long time (25mg daily). I increased to 50mg on 25th July and retested in Sept, I
Good morning, I would really welcome some advice from this amazing community about my latest results. Due to advice from this group I have been increasing my Levothyroxine dose since July as I was under medicated for a long time (25mg daily). I increased to 50mg on 25th July and retested in Sept, I
Flamingo60
in
Thyroid UK
6 months ago
Latest test results
Hello I have been taking 75mcg of Levothyroxine (50mcg Accord and 25mcg of Mercury Pharma) for 7 weeks. I had a blood test on Monday 18.12 following all the advised protocols. My GP (8.45am) result is TSH 1.01 (0.27 - 4.2) Monitor My Health (7.30am) results from the same day are TSH 1.19 (0.27
Hello I have been taking 75mcg of Levothyroxine (50mcg Accord and 25mcg of Mercury Pharma) for 7 weeks. I had a blood test on Monday 18.12 following all the advised protocols. My GP (8.45am) result is TSH 1.01 (0.27 - 4.2) Monitor My Health (7.30am) results from the same day are TSH 1.19 (0.27
Amtired
in
Thyroid UK
6 months ago
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Serum T3 too low? (Combo therapy)
Hi, I have been stable on 150mcg T4 + 12.5mcg T3 for about 10 weeks (gradually dropped the levo and added the T3), I did this test the other week and was surprised to see such low serum T3. - I did the test fasted at 9.20am - The 12.5mcg T3 was taken the previous night at 9.20pm (12 hours before
Hi, I have been stable on 150mcg T4 + 12.5mcg T3 for about 10 weeks (gradually dropped the levo and added the T3), I did this test the other week and was surprised to see such low serum T3. - I did the test fasted at 9.20am - The 12.5mcg T3 was taken the previous night at 9.20pm (12 hours before
cody_lamonica
in
Thyroid UK
6 months ago
Best way of treatement?
Hi, all dear B12 def sufferers, After one year of sc injections EOD my bloods are still not excellent. Low Hb, low count of erytrocytes and MCV is high. My neurological spts are much improved comparing to my situation one year back. I still have some spts of subacute degeneration of spinal cord,
Hi, all dear B12 def sufferers, After one year of sc injections EOD my bloods are still not excellent. Low Hb, low count of erytrocytes and MCV is high. My neurological spts are much improved comparing to my situation one year back. I still have some spts of subacute degeneration of spinal cord,
Annaunge
in
Pernicious Anaemia Society
6 months ago
Frozen transfer tips
Hi all, I’m about to start my first frozen cycle, and am feeling quite apprehensive. I’ve previously done 2 fresh, the second which I have my little girl from and my frozen embryos are from that round too. Is there any tips on lifestyle prep? With frozen because I already have the embryo I wasn’t
Hi all, I’m about to start my first frozen cycle, and am feeling quite apprehensive. I’ve previously done 2 fresh, the second which I have my little girl from and my frozen embryos are from that round too. Is there any tips on lifestyle prep? With frozen because I already have the embryo I wasn’t
IMax93
in
Fertility Network UK
6 months ago
Provider “B”-ware: Using Methylmalonic Acid Levels to Diagnose B12-deficiency Neuropathy
[i]"We present a patient with findings of subacute combined degeneration (SCD) in the setting of a mild B12 deficiency, with a normal methylmalonic acid level."[/i] https://www.neurology.org/doi/abs/10.1212/WNL.0000000000208306 Although this will not be news to old-timers here, it's important to note
[i]"We present a patient with findings of subacute combined degeneration (SCD) in the setting of a mild B12 deficiency, with a normal methylmalonic acid level."[/i] https://www.neurology.org/doi/abs/10.1212/WNL.0000000000208306 Although this will not be news to old-timers here, it's important to note
Technoid
in
Pernicious Anaemia Society
2 months ago
Pharmacy out of stock?
I just got prescribed Ritalin 💊—10mg tablets for a month. The prescription was sent to CVS Pharmacy. I waited two days with no phone call, so I called in and they said they were out of stock. I’ve heard of people waiting a month to get their medicine, and I don't want to be that guy 🤷♂️ Do you have
I just got prescribed Ritalin 💊—10mg tablets for a month. The prescription was sent to CVS Pharmacy. I waited two days with no phone call, so I called in and they said they were out of stock. I’ve heard of people waiting a month to get their medicine, and I don't want to be that guy 🤷♂️ Do you have
Michael909
in
CHADD's Adult ADHD Support
4 months ago
Winter Solstice
Today is the Winter Solstice in New Hampshire USA. I had set a goal to not be sun deprived on the winter solstice. I achieved that goal. It was a near thing and the weather was favorable. I did not set the goal of not being sun deprived on the winter solstice or at any time prior. I did get sun deprived
Today is the Winter Solstice in New Hampshire USA. I had set a goal to not be sun deprived on the winter solstice. I achieved that goal. It was a near thing and the weather was favorable. I did not set the goal of not being sun deprived on the winter solstice or at any time prior. I did get sun deprived
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
Recently diagnosed under active thyroid - Hashimoto's, bit confusing!
So pleased to have found this forum! I had a routine blood test followed by a call from the GP asking me questions about how i was feeling. I get tired easily but put all symptoms like that down to getting older and haven't really any other symptoms. I had glandular fever age 18 and since then have
So pleased to have found this forum! I had a routine blood test followed by a call from the GP asking me questions about how i was feeling. I get tired easily but put all symptoms like that down to getting older and haven't really any other symptoms. I had glandular fever age 18 and since then have
CinnamonNutmeg
in
Thyroid UK
6 months ago
Armour thyroid
I have been on armour for several years and my endo is aware. 2 months ago I had a blood test which showed my levels were fairly low, TSH was 8 ish and t3 and t4 were low. So I increased my dose slightly whilst waiting for a further endo appointment. Within a couple of weeks I was hyper, no blood test
I have been on armour for several years and my endo is aware. 2 months ago I had a blood test which showed my levels were fairly low, TSH was 8 ish and t3 and t4 were low. So I increased my dose slightly whilst waiting for a further endo appointment. Within a couple of weeks I was hyper, no blood test
Anna0778
in
Thyroid UK
6 months ago
Bone health: review about the guidelines
weight bearing exercise, biphosphonates o Denosumab, vitamin D, calcium I do all of the above, even if I have very thick bone and not yet CR, the oncologist says that zometa is also used to contrast the spread of bone metastasis… https://www.urotoday.com/video-lectures/practice-guidelines-prostate
weight bearing exercise, biphosphonates o Denosumab, vitamin D, calcium I do all of the above, even if I have very thick bone and not yet CR, the oncologist says that zometa is also used to contrast the spread of bone metastasis… https://www.urotoday.com/video-lectures/practice-guidelines-prostate
Maxone73
in
Advanced Prostate Cancer
6 months ago
Covid sent me from managed hypo to hyper…
Hi all, I had been on 60mcg T3 & 25mcg levo, 6mg LDN for two years, managed hypothyroidism. Prior to this I presented with normal tsh, low T3, and normal T4. Vit d, B12, Ferratin, Folate all normal. I caught Covid in August and a week later started having severe symptoms of — insomnia, muscle
Hi all, I had been on 60mcg T3 & 25mcg levo, 6mg LDN for two years, managed hypothyroidism. Prior to this I presented with normal tsh, low T3, and normal T4. Vit d, B12, Ferratin, Folate all normal. I caught Covid in August and a week later started having severe symptoms of — insomnia, muscle
KettlebellQueen
in
Thyroid UK
6 months ago
Symptoms of thyroid issues but tests normal
Hi, can anyone help me understand please? My thyroid tests keep coming back as normal but I have symptoms which I’m trying to unpick from menopause symptoms. I’m on HRT but still feel cold, get crashing fatigue, have missing outer third of eyebrows, brain fog, low mood etc. My folate came back as low
Hi, can anyone help me understand please? My thyroid tests keep coming back as normal but I have symptoms which I’m trying to unpick from menopause symptoms. I’m on HRT but still feel cold, get crashing fatigue, have missing outer third of eyebrows, brain fog, low mood etc. My folate came back as low
Fizzwhizz
in
Thyroid UK
6 months ago
Wasting NHS Resources
I sincerely apologise to those non-U.K. based, however those abroad, I would be interested to know of how your Health Care systems works. P.A./AMAG/B12D can cause neuropsychiatric symptoms and on a person’s health journey, a person can be misdiagnosed with a Mental Health illness or disorder. This can
I sincerely apologise to those non-U.K. based, however those abroad, I would be interested to know of how your Health Care systems works. P.A./AMAG/B12D can cause neuropsychiatric symptoms and on a person’s health journey, a person can be misdiagnosed with a Mental Health illness or disorder. This can
Narwhal10
in
Pernicious Anaemia Society
6 months ago
Help with PCOS inositol supplements (trying to conceive!)
Hi all! I've been diagnosed with PCOS in my teens. I had most of the symptoms on the list, no periods, acne, hirsutism, heavy bleeding when periods deign to appear. I lost count of how many different pills I took and had most of their side effects (apart from blood clots thankfully!). It got to a point
Hi all! I've been diagnosed with PCOS in my teens. I had most of the symptoms on the list, no periods, acne, hirsutism, heavy bleeding when periods deign to appear. I lost count of how many different pills I took and had most of their side effects (apart from blood clots thankfully!). It got to a point
Afive
in
PCOS UK (Verity)
6 months ago
B12 order
Are these OK to order. Having difficulty sourcing b12 supplies.
Are these OK to order. Having difficulty sourcing b12 supplies.
3rdNettydoon
in
Pernicious Anaemia Society
6 months ago
New results. I'd be grateful for some input!
So, after 3 years of testing every 8 weeks or so, I still don't trust my interpretation. 😂 Latest results on 150mcg T4 and 30mcg T3 are: TSH: 0.01 T4: 18.5 (12 - 22) 65% T3: 5.4 (3.1 - 6.8) 62% Previous results on 125mcg levo and 30mcg T3 were: TSH: 0.01 T4: 17.8 (12 - 22) 58% T3: 5.1 (3.1 - 6.8)
So, after 3 years of testing every 8 weeks or so, I still don't trust my interpretation. 😂 Latest results on 150mcg T4 and 30mcg T3 are: TSH: 0.01 T4: 18.5 (12 - 22) 65% T3: 5.4 (3.1 - 6.8) 62% Previous results on 125mcg levo and 30mcg T3 were: TSH: 0.01 T4: 17.8 (12 - 22) 58% T3: 5.1 (3.1 - 6.8)
WitchingHour2point0
in
Thyroid UK
6 months ago
ropinerole opps
My husband has been weening himself off of ropinerole for over 6 months. He got down to 4 mg (2 mg twice a day) from 8mg going down .25 mg every 2 weeks. Never had an issue until last month. About 1 month ago he realized he was took the wrong pills for a week - was taking 8 mg a day for 1 week, when
My husband has been weening himself off of ropinerole for over 6 months. He got down to 4 mg (2 mg twice a day) from 8mg going down .25 mg every 2 weeks. Never had an issue until last month. About 1 month ago he realized he was took the wrong pills for a week - was taking 8 mg a day for 1 week, when
Sandalsforever
in
Restless Legs Syndrome
6 months ago
14 day trial of methylcobalamin and adenosylcobalamin
After 3 years of researching I was able to obtain pharmaceutical grade adenosylcobalamin to. I choose not to share my source due to risk to myself and my source. Unfortunate but the reality. I considered if I wanted to post at all about it and went with I would want to know. I injected 1mg/1ml of
After 3 years of researching I was able to obtain pharmaceutical grade adenosylcobalamin to. I choose not to share my source due to risk to myself and my source. Unfortunate but the reality. I considered if I wanted to post at all about it and went with I would want to know. I injected 1mg/1ml of
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
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