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Rebranding
I have written here often that I am self-treating with the assumption I experienced life-long B12 deficiency and transcobalamin issues. I am rebranding that I experienced Life Long Non-functioning B12 cellular deficiency at varying degrees the most recent the most severe for reasons unknown. I can
I have written here often that I am self-treating with the assumption I experienced life-long B12 deficiency and transcobalamin issues. I am rebranding that I experienced Life Long Non-functioning B12 cellular deficiency at varying degrees the most recent the most severe for reasons unknown. I can
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
Picking Brains
Took daughter for some blood tests this morning and had a discussion with phlebotomist, B12, auto immune stuff, etc. I have told her about HealthUnlocked and asked her to look it up as there are lots of forums. What saddened me most is how anxious she was about B12. I mentioned PA and she said she
Took daughter for some blood tests this morning and had a discussion with phlebotomist, B12, auto immune stuff, etc. I have told her about HealthUnlocked and asked her to look it up as there are lots of forums. What saddened me most is how anxious she was about B12. I mentioned PA and she said she
Polo22
in
Pernicious Anaemia Society
6 months ago
Weak Eggs. Causes. no blastos. WHY?
Does the protocol alter the quality of eggs? I got three eggs and two fertilised on my first cycle. My two eggs make it to day 5 blastocycts. (Though I was told they were ok on day 4) The cause was put down to age by the specialist. So gutting I am 39 and a half with FSH around 8 and AMH 2.2 I
Does the protocol alter the quality of eggs? I got three eggs and two fertilised on my first cycle. My two eggs make it to day 5 blastocycts. (Though I was told they were ok on day 4) The cause was put down to age by the specialist. So gutting I am 39 and a half with FSH around 8 and AMH 2.2 I
Cuppppatea
in
Fertility Network UK
7 months ago
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latest DEXA scan
Just had my 7 year anniversary of my PMR diagnosis. The last couple years have gone well with a couple minor flares but I've been at 1 mg and in a holding pattern for a few months until seen by Rheumy #5 in another week, another one I've never talked to before. I did have a DEXA scan in the first
Just had my 7 year anniversary of my PMR diagnosis. The last couple years have gone well with a couple minor flares but I've been at 1 mg and in a holding pattern for a few months until seen by Rheumy #5 in another week, another one I've never talked to before. I did have a DEXA scan in the first
Raven1955
in
PMRGCAuk
6 months ago
Help - high - Anti-Thyroglobulin Antibody
Hi I had a private general health blood test as a checkup. My thyroid results are ok but I have a very high level of - Anti-Thyroglobulin Antibody. Its supposed yo be below 115 but my score is 237. I do have mild symptoms of underactive thyroid, ie freezing cold hands, low heart rate - typically 46
Hi I had a private general health blood test as a checkup. My thyroid results are ok but I have a very high level of - Anti-Thyroglobulin Antibody. Its supposed yo be below 115 but my score is 237. I do have mild symptoms of underactive thyroid, ie freezing cold hands, low heart rate - typically 46
SteveT3
in
Thyroid UK
6 months ago
very long story…. Need support.
Since a young age, I have had hyperthyroidism. I was treated with carbimazole for years and in 2021 I had radioactive therapy (a radioactive table) for my thyroid. This ended up killing it and now I am on level thyroxine. When I first got diagnosed with hypothyroidism, I believe my TSH was 60-ISH. Since
Since a young age, I have had hyperthyroidism. I was treated with carbimazole for years and in 2021 I had radioactive therapy (a radioactive table) for my thyroid. This ended up killing it and now I am on level thyroxine. When I first got diagnosed with hypothyroidism, I believe my TSH was 60-ISH. Since
Angie10116
in
Thyroid UK
6 months ago
no better no T3 no idea
in this weather thyroid is awful cant get T3 at all easily feel cold n ill -- iron tablets make no difference b12 supplements not much difference what a life .......best to those decrepid like me at 43 years old after 20 years thyroid isssues
in this weather thyroid is awful cant get T3 at all easily feel cold n ill -- iron tablets make no difference b12 supplements not much difference what a life .......best to those decrepid like me at 43 years old after 20 years thyroid isssues
Vasiliki99
in
Thyroid UK
6 months ago
is there any hope for me
I haven’t posted much about my journey. I am in the USA. I have never been in true remission. I am braca neg, her2 negative, folate on at 60 % HGS. No mutations in cancer tumor or me. Diagnosed Dec 2019 stage 3c now stage 4 metastasis Here is how much I have fought: Dec2019 full debunking surgery
I haven’t posted much about my journey. I am in the USA. I have never been in true remission. I am braca neg, her2 negative, folate on at 60 % HGS. No mutations in cancer tumor or me. Diagnosed Dec 2019 stage 3c now stage 4 metastasis Here is how much I have fought: Dec2019 full debunking surgery
Summergold2
in
My Ovacome
6 months ago
b12 symptoms
Hi, Need advice on what else I should have included in my blood test. Haematologist is already going to test active B12, MMA and homocysteine after stopping B12 injections for 4 months to try to get to the bottom of why I’m having symptoms. History of Hashimotos 2019, vitamin d 2020 plus co factors
Hi, Need advice on what else I should have included in my blood test. Haematologist is already going to test active B12, MMA and homocysteine after stopping B12 injections for 4 months to try to get to the bottom of why I’m having symptoms. History of Hashimotos 2019, vitamin d 2020 plus co factors
Fluffyone
in
Pernicious Anaemia Society
6 months ago
Rheumatologist Visit after 9 months
Hi its been a couple of months since my last post and my mums skin flap has healed really well and thankfully apart from the usual bruises there have been no more incidents. She is looking well and has even lost a bit of weight which she is delighted with. Our concern at moment is she is still feeling
Hi its been a couple of months since my last post and my mums skin flap has healed really well and thankfully apart from the usual bruises there have been no more incidents. She is looking well and has even lost a bit of weight which she is delighted with. Our concern at moment is she is still feeling
Buchanan16
in
PMRGCAuk
6 months ago
Thoughts!
So I have been looking into lots of way to healing the thyroid and coming off the thyroxine. Has anyone ever successfully managed to do this. I have been following and reading a lot of information from Gary Brecka who is a biologist and does a lot of work on thyroid function. I have started supplements
So I have been looking into lots of way to healing the thyroid and coming off the thyroxine. Has anyone ever successfully managed to do this. I have been following and reading a lot of information from Gary Brecka who is a biologist and does a lot of work on thyroid function. I have started supplements
jodes86baldwin
in
Thyroid UK
6 months ago
Haematologist’s unsupportive B12 response
In a recent pathology test, my gastroenterologist was concerned with my low haemoglobin count and a high reticulocyte count. She mentioned that although I’m low in ferritin (40) I’m not yet needing an iron infusion just yet. My white cell count was seemingly low also and she suggested that I should get
In a recent pathology test, my gastroenterologist was concerned with my low haemoglobin count and a high reticulocyte count. She mentioned that although I’m low in ferritin (40) I’m not yet needing an iron infusion just yet. My white cell count was seemingly low also and she suggested that I should get
GoneWithTheWind1972
in
Pernicious Anaemia Society
19 days ago
Increased my ferritin levels
Hi all,I have known about the RLS/iron link for many years however as my ferritin iron level has always been around 100 I haven't taken iron consistently.Five months ago I started "getting serious " in taking it every other night with vitamin C as even with my Zomorph and Pregablin I was still getting
Hi all,I have known about the RLS/iron link for many years however as my ferritin iron level has always been around 100 I haven't taken iron consistently.Five months ago I started "getting serious " in taking it every other night with vitamin C as even with my Zomorph and Pregablin I was still getting
Pippins2
in
Restless Legs Syndrome
20 days ago
Really lost - doctor advised me to stop injecting and now B12 keeps going down
Hi everyone, First, I want to say how much this group has been a help and source of comfort and much needed information! Thank you. In Feb 2019 I was diagnosed as having "Vitamin B12 deficiency anemia due to intrinsic factor deficiency." At the time I was 35. My doctor did not say "Pernicious Anemia
Hi everyone, First, I want to say how much this group has been a help and source of comfort and much needed information! Thank you. In Feb 2019 I was diagnosed as having "Vitamin B12 deficiency anemia due to intrinsic factor deficiency." At the time I was 35. My doctor did not say "Pernicious Anemia
marlesk
in
Pernicious Anaemia Society
20 days ago
NHS Lab tests available to buy privately
Hi everyone, Not sure if I am allowed to name the lab but if one of the moderators will advise I would be grateful. To give you an idea of costs TSH FT3 FT4 TPO Antibodies would cost £42 Thyroid Peroxidase £29 Diabetes Vitamin D Total Cholesterol Thyroid £49 They have gradually built up the tests
Hi everyone, Not sure if I am allowed to name the lab but if one of the moderators will advise I would be grateful. To give you an idea of costs TSH FT3 FT4 TPO Antibodies would cost £42 Thyroid Peroxidase £29 Diabetes Vitamin D Total Cholesterol Thyroid £49 They have gradually built up the tests
JudithW
in
Thyroid UK
6 months ago
need guidance
I need help. I recently lost my NP that monitored and subscribed my thyroid medication. I don’t have a thyroid. I had it removed in 2002 due to a thyroid nodules that were cancerous. I have taken 120 mg of Armour thyroid for years and a small dose of t3 12mcg. The new prescriber I just saw wants
I need help. I recently lost my NP that monitored and subscribed my thyroid medication. I don’t have a thyroid. I had it removed in 2002 due to a thyroid nodules that were cancerous. I have taken 120 mg of Armour thyroid for years and a small dose of t3 12mcg. The new prescriber I just saw wants
Hydejf66
in
Thyroid Cancer Support
6 months ago
subclinical - do I need levo?
I have been borderline Subclinical hypothyroidism for around 10 years. The GP put me on levothyroxine 2013, I took a low dose for a month or two but couldn’t tolerate it (palpitations), so I stopped. I was referred to Endo who did a check on my antibodies - was clear. Every year, my tsh was either just
I have been borderline Subclinical hypothyroidism for around 10 years. The GP put me on levothyroxine 2013, I took a low dose for a month or two but couldn’t tolerate it (palpitations), so I stopped. I was referred to Endo who did a check on my antibodies - was clear. Every year, my tsh was either just
Rambler16
in
Thyroid UK
6 months ago
UPDATE on Iron and Vitamin D
I just talked to my Doctor and he is putting me on 50,000 1 tablet a week vitamin D and has put me in for Iron infusion. I was surprised he said that I was iron deficient (not Anemic) but this is going in the wrong direction and is getting out of control and I need my iron to be closer to 100 (shocked
I just talked to my Doctor and he is putting me on 50,000 1 tablet a week vitamin D and has put me in for Iron infusion. I was surprised he said that I was iron deficient (not Anemic) but this is going in the wrong direction and is getting out of control and I need my iron to be closer to 100 (shocked
Batty1
in
Thyroid UK
21 days ago
Vitamin B2 Deficiency Can Cause B6 Toxicity! PWP Are Commonly Deficient In B2.
Vitamin B6 recycling. Image credit https://www.frontiersin.org/files/Articles/276491/fneur-08-00333-HTML/image_m/fneur-08-00333-g002.jpg From: https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2017.00333/full Vitamin B6 is a coenzyme required for over 100 different biochemical transformations
Vitamin B6 recycling. Image credit https://www.frontiersin.org/files/Articles/276491/fneur-08-00333-HTML/image_m/fneur-08-00333-g002.jpg From: https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2017.00333/full Vitamin B6 is a coenzyme required for over 100 different biochemical transformations
park_bear
in
Cure Parkinson's
6 months ago
Test results advice?
hello. I have just had a medichecks thyroid and cortisol test. I have an endo appt later this week. Cortisol is out of wack for sure as I think are the others. any thoughts gratefully received CRP 1 (0-5) (phew) FERRITIN 71 (30 - 400 R) FOLATE -16.4 (2.9 -16.98) VITAMIN B12 - 163 (
hello. I have just had a medichecks thyroid and cortisol test. I have an endo appt later this week. Cortisol is out of wack for sure as I think are the others. any thoughts gratefully received CRP 1 (0-5) (phew) FERRITIN 71 (30 - 400 R) FOLATE -16.4 (2.9 -16.98) VITAMIN B12 - 163 (
lauriegraham
in
Thyroid UK
6 months ago
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