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When to test?
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
edeuweed
in
Pernicious Anaemia Society
3 months ago
exercise and thyroid
Good morning all! Hope everyone is doing well today. a quick question if I may - I have been living with a thyroid diagnosis for the last 5 years. In this time, there’s been a load of experimenting, trials and tribulations with diet etc. I am happy with that (thank goodness because it’s taken some
Good morning all! Hope everyone is doing well today. a quick question if I may - I have been living with a thyroid diagnosis for the last 5 years. In this time, there’s been a load of experimenting, trials and tribulations with diet etc. I am happy with that (thank goodness because it’s taken some
Choc_Cream
in
Thyroid UK
3 months ago
clinical trials
have had all symptoms of pancreatitis from alcohol I think I have had every scan for the last 26 months since intial attack even EUS they say no chronic not even the subtle changes but elastase was 220 low normal ! I’m know something happen an they say everything is fine !! I’m trying to see what I
have had all symptoms of pancreatitis from alcohol I think I have had every scan for the last 26 months since intial attack even EUS they say no chronic not even the subtle changes but elastase was 220 low normal ! I’m know something happen an they say everything is fine !! I’m trying to see what I
Taper710
in
Chronic Pancreatitis Support
5 months ago
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Updated my Stack (what's in your stack?)
So I updated my stack. What's in your stack? Does it seem to be helping? Success Stories are Welcome.
About 6 weeks ago I cut Methylene Blue out of my stack. My tongue was getting really sore for a long time so I stopped. I don't think this is a side effect of MB, but it has been 6 weeks and
So I updated my stack. What's in your stack? Does it seem to be helping? Success Stories are Welcome.
About 6 weeks ago I cut Methylene Blue out of my stack. My tongue was getting really sore for a long time so I stopped. I don't think this is a side effect of MB, but it has been 6 weeks and
Bolt_Upright
in
Cure Parkinson's
3 months ago
I find this helpful.
Some do heal with minimal treatment. It is hard as there is no way to know how their life might be different with different treatment. I do not buy into it is established that it is about delay of treatment and or severity of symptoms. There is no basis for stating that as fact although it often
Some do heal with minimal treatment. It is hard as there is no way to know how their life might be different with different treatment. I do not buy into it is established that it is about delay of treatment and or severity of symptoms. There is no basis for stating that as fact although it often
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
Imerslund-Gräsbeck one to know about
https://en.m.wikipedia.org/wiki/Imerslund%E2%80%93Gr%C3%A4sbeck_syndrome I had an argument last week with a Dr 'Fresh out the box' quoting the text book at me. He said the intrinsic factor antibody test was 95% accurate. So I retorted maybe I was one of the 5%! "That would be very unlikely." About 5
https://en.m.wikipedia.org/wiki/Imerslund%E2%80%93Gr%C3%A4sbeck_syndrome I had an argument last week with a Dr 'Fresh out the box' quoting the text book at me. He said the intrinsic factor antibody test was 95% accurate. So I retorted maybe I was one of the 5%! "That would be very unlikely." About 5
Oneash
in
Pernicious Anaemia Society
3 months ago
Blood Pressure Medication
Unfortunately I now have to start BP medication and GP can only seem to find capsules. As I have problems with Acacia Powder and Cellulose and these seem to be in all BP medication, GP has not found me ones I can take after seeming to look for the last fortnight. Is there anyone on this forum who
Unfortunately I now have to start BP medication and GP can only seem to find capsules. As I have problems with Acacia Powder and Cellulose and these seem to be in all BP medication, GP has not found me ones I can take after seeming to look for the last fortnight. Is there anyone on this forum who
nightingale-56
in
Thyroid UK
3 months ago
New Concept?
I just finished a successful 14 day trial. Injecting 2 mg 5 times a day including setting an alarm is a different world for me and trials are definitave in 14 days not like when I was under supplementing and it was 30 days and I was pretty sure the trial was positive. I made a rational increase of
I just finished a successful 14 day trial. Injecting 2 mg 5 times a day including setting an alarm is a different world for me and trials are definitave in 14 days not like when I was under supplementing and it was 30 days and I was pretty sure the trial was positive. I made a rational increase of
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
Iron Infusions
Hi all, just wondering if anyone in this group has ever had an iron infusion? When I was first diagnosed with my B12 deficiency, they also found that my vitamin D was deficient and my iron was only just in normal. Vitamin D is now fine on the daily tablets, but I've been struggling for about 18 months
Hi all, just wondering if anyone in this group has ever had an iron infusion? When I was first diagnosed with my B12 deficiency, they also found that my vitamin D was deficient and my iron was only just in normal. Vitamin D is now fine on the daily tablets, but I've been struggling for about 18 months
KatieG75147
in
Pernicious Anaemia Society
3 months ago
Tiredness
Hi, Can anyone help please. I am under Haemotology at the hospital for active monitoring as a bone marrow biopsy showed I have Weinstrom M( a type of Lymphoma) I have a three monthly B12 inj and am on 75 mcg of Levothyroxine for my thyroid. My bloods last week at the Haemotology dept showed all my bloodwork
Hi, Can anyone help please. I am under Haemotology at the hospital for active monitoring as a bone marrow biopsy showed I have Weinstrom M( a type of Lymphoma) I have a three monthly B12 inj and am on 75 mcg of Levothyroxine for my thyroid. My bloods last week at the Haemotology dept showed all my bloodwork
PamBow
in
Thyroid UK
3 months ago
diabetes & B12 Deficiency
Hi all, for the last 4 months I’ve been on the B12 deficiency (possibly PA) path and have assumed that eventually the B12 injections will make me feel better. I’ve had all the classic symptoms. I’ve had the 6 loading doses, 2 further jabs at 6 weeks apart and I’m now on a 4 weekly regime with the UK
Hi all, for the last 4 months I’ve been on the B12 deficiency (possibly PA) path and have assumed that eventually the B12 injections will make me feel better. I’ve had all the classic symptoms. I’ve had the 6 loading doses, 2 further jabs at 6 weeks apart and I’m now on a 4 weekly regime with the UK
Pa234aw
in
Pernicious Anaemia Society
3 months ago
B12 injections out of stock for a long time
My last post was regarding this but I don’t know what date that was. Versandapo.de and Apohealth.de have been out of stock with the Panpharma B12 for a long time. I have given my email address to Versandapo and they said they will contact me when back in stock but it’s been a couple of months (since
My last post was regarding this but I don’t know what date that was. Versandapo.de and Apohealth.de have been out of stock with the Panpharma B12 for a long time. I have given my email address to Versandapo and they said they will contact me when back in stock but it’s been a couple of months (since
Ryaan
in
Pernicious Anaemia Society
3 months ago
Any suggestions please.
Hello. I wonder if you would be kind enough to give me your views on my latest results please. I currently take 100mcg thyroxine at bedtime. My GP withdrew my T3 ( 5mcg) around 5 years ago. Apparently it doesn't work and was too expensive. I feel dreadful. I'm underweight with a BMI of 18 and on top
Hello. I wonder if you would be kind enough to give me your views on my latest results please. I currently take 100mcg thyroxine at bedtime. My GP withdrew my T3 ( 5mcg) around 5 years ago. Apparently it doesn't work and was too expensive. I feel dreadful. I'm underweight with a BMI of 18 and on top
andreab
in
Thyroid UK
3 months ago
Latest test after 4 months on T3
I just wanted to check in as my endo has scheduled an 'urgent' call with me after seeing these results. Should I be worried? TIA all you beautiful people! TSH X <0.005 mIU/L (Range: 0.27 - 4.2) Free T3 5.3 pmol/L (Range: 3.1 - 6.8) Free Thyroxine 18.3 pmol/L (Range: 12 - 22) Thyroglobulin Antibodies
I just wanted to check in as my endo has scheduled an 'urgent' call with me after seeing these results. Should I be worried? TIA all you beautiful people! TSH X <0.005 mIU/L (Range: 0.27 - 4.2) Free T3 5.3 pmol/L (Range: 3.1 - 6.8) Free Thyroxine 18.3 pmol/L (Range: 12 - 22) Thyroglobulin Antibodies
wavedancers
in
Thyroid UK
3 months ago
Hypo Dr lowered dose!
Hi everyone, My Dr. lowered my prescription from 150mcg to 125mcg on the basis of a TSH result of 0.01. Test done as advised on here. No T4 or T3 was done. No discussion about symptoms . In fact it was done without any discussion. I’ve had to wait a month to have an appointment with my Dr. Was not
Hi everyone, My Dr. lowered my prescription from 150mcg to 125mcg on the basis of a TSH result of 0.01. Test done as advised on here. No T4 or T3 was done. No discussion about symptoms . In fact it was done without any discussion. I’ve had to wait a month to have an appointment with my Dr. Was not
Lowestoft
in
Thyroid UK
3 months ago
B12 over 4000 with injections, any need to worry?
Hello lovely people, I've been SI 1500ug twice weekly since mid December as a bit of an experiment to see if it would help my symptoms, many which are neuro. Not officially diagnosed as B12 deficient as my blood tests before were all fine but I was heavily supplementing so not really possible to say
Hello lovely people, I've been SI 1500ug twice weekly since mid December as a bit of an experiment to see if it would help my symptoms, many which are neuro. Not officially diagnosed as B12 deficient as my blood tests before were all fine but I was heavily supplementing so not really possible to say
Bertiepuss
in
Pernicious Anaemia Society
3 months ago
Courage
There seems to be a misconception that it takes courage to make the rational choices I make with regards to my self treatment. I am guessing it is a projection of others fears which I do not have. It only took about 6 months for me to firmly establish that those in the medicial field were very comfortable
There seems to be a misconception that it takes courage to make the rational choices I make with regards to my self treatment. I am guessing it is a projection of others fears which I do not have. It only took about 6 months for me to firmly establish that those in the medicial field were very comfortable
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
advise please
New to group, 69 yo female, new dx osteoporosis. Scores are:Spine 1-3, BMD0.768 TSCORE 2-3 Z SCORE 0.3, FEMUR ltn BMD 0.566, T SCORE 2.5 Z SCORE 0.8, FRAX 41% overall, hip 15%. Kidney transplant 16 yrs prior on low dose prednisone, immunosuppresents. Please advise on vitamins, brands that are better
New to group, 69 yo female, new dx osteoporosis. Scores are:Spine 1-3, BMD0.768 TSCORE 2-3 Z SCORE 0.3, FEMUR ltn BMD 0.566, T SCORE 2.5 Z SCORE 0.8, FRAX 41% overall, hip 15%. Kidney transplant 16 yrs prior on low dose prednisone, immunosuppresents. Please advise on vitamins, brands that are better
05011954
in
Osteoporosis Support
5 months ago
Iron blood test results are back, please could you take a look for me?
In a previous post I gave my Ferritin result from a blood test in March (this was 36.90) and I was recommended to check my other iron levels before taking iron supplements . I now have these results back and would be really grateful if you could let me know your thoughts please : Medichecks BLOOD TEST
In a previous post I gave my Ferritin result from a blood test in March (this was 36.90) and I was recommended to check my other iron levels before taking iron supplements . I now have these results back and would be really grateful if you could let me know your thoughts please : Medichecks BLOOD TEST
Alternatively
in
Thyroid UK
1 month ago
Tardive dyskinesia. Been on the causative med quetiapine 400 mg for 20 years.Unable to get off it. Been creative. I am a registered nurse.
I am an inpatient acute mental health nurse actually - for the last 15 years. I also have Bipolar disorder on lithium. Very well controlled. But side effects of quetiapine were becoming impossible to live with. I tried aripiprazole and a reduction in quetiapine to a disastrous effect. I appeared severely
I am an inpatient acute mental health nurse actually - for the last 15 years. I also have Bipolar disorder on lithium. Very well controlled. But side effects of quetiapine were becoming impossible to live with. I tried aripiprazole and a reduction in quetiapine to a disastrous effect. I appeared severely
Equinedreams
in
Mental Health Support
4 months ago
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