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Really severe rls plus mds
I recently was able to see my moms records. She has been told she has mds too. Also there is a problem with her blood levels. The doctors cant seem to get her blood levels to go up. She is taking a needle injection every other day. Last night i stayed up with her again cause it was so severe. Sometimes
I recently was able to see my moms records. She has been told she has mds too. Also there is a problem with her blood levels. The doctors cant seem to get her blood levels to go up. She is taking a needle injection every other day. Last night i stayed up with her again cause it was so severe. Sometimes
SevereRLS-4mom
in
Restless Legs Syndrome
15 days ago
Do I Poke The Bear?
I had my B12 jab last week, I get these every 2 months and am grateful to have them. I've suffered B12 issues since childhood, have dim memories of blood tests and B12 jabs back in the day. I changed surgeries in the early 90's due to moving and have been with this practice ever since. So I'm not sure
I had my B12 jab last week, I get these every 2 months and am grateful to have them. I've suffered B12 issues since childhood, have dim memories of blood tests and B12 jabs back in the day. I changed surgeries in the early 90's due to moving and have been with this practice ever since. So I'm not sure
Sparklingsunshine
in
Pernicious Anaemia Society
15 days ago
Exhausted still after B12 injection.
I was diagnosed a year ago with pernicious anemia. I find that literally half an hour after my injection I'm back to being exhausted again. I do also have RA so do get a lot of tiredness from that and the bucket load of medication I take. I did mention it to the nurse when I had my last injection
I was diagnosed a year ago with pernicious anemia. I find that literally half an hour after my injection I'm back to being exhausted again. I do also have RA so do get a lot of tiredness from that and the bucket load of medication I take. I did mention it to the nurse when I had my last injection
Dolly260
in
Pernicious Anaemia Society
15 days ago
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Hebden Bridge Help Needed Please
Hi All I am posting on behalf of a member who is very poorly and who lives in Hebden Bridge, HX7. She needs help with her B12 injections as she is too weak to be able to do them effectively as she is so unwell. Please contact me via Chat if you think you could help and I shall put you in touch with
Hi All I am posting on behalf of a member who is very poorly and who lives in Hebden Bridge, HX7. She needs help with her B12 injections as she is too weak to be able to do them effectively as she is so unwell. Please contact me via Chat if you think you could help and I shall put you in touch with
Wwwdot
in
Pernicious Anaemia Society
15 days ago
lanzoprazole side effects
gp switched me fro omeprazole to lanzoprazole a few weeks ago . I seem to have developed very loose bowels every morning . I have recently been prescribed folic acid for low folate ? Has anyone had this side effect to either of these 2 meds please ?
gp switched me fro omeprazole to lanzoprazole a few weeks ago . I seem to have developed very loose bowels every morning . I have recently been prescribed folic acid for low folate ? Has anyone had this side effect to either of these 2 meds please ?
Stent2024
in
British Heart Foundation
15 days ago
Update with Vit B12 & Folate results
Hi, I posted a little while ago with recent Thyroid results. SlowDragonsuggested I come back with some other results once I had them. I'm not diagnosed with a Thyroid issue as of yet. These results are following an appointment with an NHS Endocrinologist. I didn't think about him taking bloods at
Hi, I posted a little while ago with recent Thyroid results. SlowDragonsuggested I come back with some other results once I had them. I'm not diagnosed with a Thyroid issue as of yet. These results are following an appointment with an NHS Endocrinologist. I didn't think about him taking bloods at
Sunnyyellowlady
in
Thyroid UK
15 days ago
Does anyone know anything about low SigA levels and links with b12 deficiency please?
Hi…I’ve recently read an article, but can’t find it at mo! that low SigA levels along with high gastrin levels can indicate b12 deficiency. It caught my attention as on 2 previous tests, a stool and a saliva test, the SigA was included and very low both times which says can give rise to infections,allergies
Hi…I’ve recently read an article, but can’t find it at mo! that low SigA levels along with high gastrin levels can indicate b12 deficiency. It caught my attention as on 2 previous tests, a stool and a saliva test, the SigA was included and very low both times which says can give rise to infections,allergies
Jo5454
in
Pernicious Anaemia Society
16 days ago
Thoughts on my blood test results please
Hi there, The results from my latest advanced thyroid test are as follows. This is after reducing my Levothyroxine to 87.5mcg for two months. Blood test was taken 7:50am, 24 hours after levothyroxine, fasting and no supplements for a week. CRP HS 1.02 (0-3) Ferritin 116 (30-264) Folate serum 18.3
Hi there, The results from my latest advanced thyroid test are as follows. This is after reducing my Levothyroxine to 87.5mcg for two months. Blood test was taken 7:50am, 24 hours after levothyroxine, fasting and no supplements for a week. CRP HS 1.02 (0-3) Ferritin 116 (30-264) Folate serum 18.3
TiredMummy
in
Thyroid UK
16 days ago
Back to life thanks to this forum! GP Next steps though - further levo increase?
You've been so helpful. Your collective knowledge has led to a diagnosis of (ords) hashimotos, my levo being upped to 75mg and I'm pain free for the first time in 5 YEARS! Thank you. I feel alive again. I armed myself with printed NICE guidelines and facts/ research and GP didn't resist this time and
You've been so helpful. Your collective knowledge has led to a diagnosis of (ords) hashimotos, my levo being upped to 75mg and I'm pain free for the first time in 5 YEARS! Thank you. I feel alive again. I armed myself with printed NICE guidelines and facts/ research and GP didn't resist this time and
CherryPie2
in
Thyroid UK
16 days ago
lapararoscopy
I have a complex cyst probably 7.2-7.4cm and have been told that I will need eventual laparascopy. I am back 23rd of July again for another tvultrasound to check how it is. The gynae/surgeon has done watchful waiting with me since my diagnosis as he knows I am a carer for my mum and I have no one else
I have a complex cyst probably 7.2-7.4cm and have been told that I will need eventual laparascopy. I am back 23rd of July again for another tvultrasound to check how it is. The gynae/surgeon has done watchful waiting with me since my diagnosis as he knows I am a carer for my mum and I have no one else
Ova104
in
My Ovacome
16 days ago
Vitamins
Does anyone know the link to the guide on all the other vitamins you must take alongside SI B12? Tried looking through them all and can't find, TIA
Does anyone know the link to the guide on all the other vitamins you must take alongside SI B12? Tried looking through them all and can't find, TIA
Rach77788
in
Pernicious Anaemia Society
3 months ago
Reversing Intestinal Metaplasia.
.Hi, I have been reading the results of research from a link on another website stating that supplementation of 30mg folic acid daily can reverse precancerous conditions such as Metaplasia. Has anyone else read similar results from research. Thanks
.Hi, I have been reading the results of research from a link on another website stating that supplementation of 30mg folic acid daily can reverse precancerous conditions such as Metaplasia. Has anyone else read similar results from research. Thanks
Helliborous
in
Pernicious Anaemia Society
16 days ago
Gastritis
Hi all! Had my endoscopy last Friday.. my follow up (awaiting biopsies) I have mild erosive Gastritis which I understand can prevent B12 from absorbing? My Gastroenterologist says I haven’t got B12 deficiency ( before endoscopy) last test was 6 months ago! 226 ng/l (178ng/L - 2000ng/L (I did quote
Hi all! Had my endoscopy last Friday.. my follow up (awaiting biopsies) I have mild erosive Gastritis which I understand can prevent B12 from absorbing? My Gastroenterologist says I haven’t got B12 deficiency ( before endoscopy) last test was 6 months ago! 226 ng/l (178ng/L - 2000ng/L (I did quote
Doris11
in
Pernicious Anaemia Society
16 days ago
So fed up
Had Thyroid 10 years now, plus depression recently I have been feeling fatigue cold tired exhausted, soft nails, I know I am not depressed, I know my body, had test done in March came back normal, full blood count, iron, ferritin etc the lot came back normal, but was told folic acid was low, started
Had Thyroid 10 years now, plus depression recently I have been feeling fatigue cold tired exhausted, soft nails, I know I am not depressed, I know my body, had test done in March came back normal, full blood count, iron, ferritin etc the lot came back normal, but was told folic acid was low, started
topgirl26
in
Thyroid UK
16 days ago
Update
Just an update as some one sagested me to try iron and vitamin c as was going away and waiting on seeing a specialist. I did it and it made a massive difference still getting restless legs but it was not as bad as before.Also I stopped taking omeprazole thanks again for the help..
Just an update as some one sagested me to try iron and vitamin c as was going away and waiting on seeing a specialist. I did it and it made a massive difference still getting restless legs but it was not as bad as before.Also I stopped taking omeprazole thanks again for the help..
Bigrob1
in
Restless Legs Syndrome
16 days ago
Vertigo 3 months after starting the B12 treatment
Hi, I got vertigo today. It has been 3 months after I started treatment for B12 and D deficiency. I understand that people have mentioned about reversing symptoms but wanted to check if someone else has faced vertigo and completely recovered from it. Which medicine did you take for vertigo apart?
Hi, I got vertigo today. It has been 3 months after I started treatment for B12 and D deficiency. I understand that people have mentioned about reversing symptoms but wanted to check if someone else has faced vertigo and completely recovered from it. Which medicine did you take for vertigo apart?
Trialerror
in
Pernicious Anaemia Society
16 days ago
Seeking Diagnostic/Treatment Ideas
As an American living among far less progressive standards I’m so glad to discover this community. I’ve been trying to focus my brain cells to make this brief as I can. Thanks in advance for your generous reading. I’m a 60 year-old female who has for five years reported memory and cognition changes
As an American living among far less progressive standards I’m so glad to discover this community. I’ve been trying to focus my brain cells to make this brief as I can. Thanks in advance for your generous reading. I’m a 60 year-old female who has for five years reported memory and cognition changes
Pamelayne
in
Pernicious Anaemia Society
16 days ago
anyone got experience of private Drs or this reaction to dropping meds?
TO UPDATE, I HAVE BEEN IN TOUCH WITH AN ENDO FROM THE LIST AND AS MY ENDO ALREADY PRESCRIBES T3 ONLY THERAPY FOR ME (long story) HE MADE IT CLEAR THAT I WAS ALREADY GETTING THE BEST I PROBABLY COULD OUT OF AN NHS GP. SO NO NEED TO PAY PRIVATELY. Depressing to know no more nuanced help from anyone, but
TO UPDATE, I HAVE BEEN IN TOUCH WITH AN ENDO FROM THE LIST AND AS MY ENDO ALREADY PRESCRIBES T3 ONLY THERAPY FOR ME (long story) HE MADE IT CLEAR THAT I WAS ALREADY GETTING THE BEST I PROBABLY COULD OUT OF AN NHS GP. SO NO NEED TO PAY PRIVATELY. Depressing to know no more nuanced help from anyone, but
sulamaye
in
Thyroid UK
4 months ago
Help?
hello all, I’m new here - both to B12D (?PA). 36yo female Do you find that doctors understand the reversing out symptoms? My GP is trying her hardest to find something rare that makes sense of all the symptoms but I think it’s just B12 and chronic low iron. She has me on 1x monthly hydrox injection
hello all, I’m new here - both to B12D (?PA). 36yo female Do you find that doctors understand the reversing out symptoms? My GP is trying her hardest to find something rare that makes sense of all the symptoms but I think it’s just B12 and chronic low iron. She has me on 1x monthly hydrox injection
PlatypusProfit8077
in
Pernicious Anaemia Society
16 days ago
Hope this is a blip...
Hi all, I'm noticing a return of the nerve pings and tingles that first took me to the gp 5 months ago, especially the weird quivering lips... all this disappeared pretty soon after 6 loading doses, and I SI every 3 days since then. Taking iron, folic acid, VitD as recommended and eating a daily banana
Hi all, I'm noticing a return of the nerve pings and tingles that first took me to the gp 5 months ago, especially the weird quivering lips... all this disappeared pretty soon after 6 loading doses, and I SI every 3 days since then. Taking iron, folic acid, VitD as recommended and eating a daily banana
Myoldcat
in
Pernicious Anaemia Society
17 days ago
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