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Tiredness
Hi, Can anyone help please. I am under Haemotology at the hospital for active monitoring as a bone marrow biopsy showed I have Weinstrom M( a type of Lymphoma) I have a three monthly B12 inj and am on 75 mcg of Levothyroxine for my thyroid. My bloods last week at the Haemotology dept showed all my bloodwork
Hi, Can anyone help please. I am under Haemotology at the hospital for active monitoring as a bone marrow biopsy showed I have Weinstrom M( a type of Lymphoma) I have a three monthly B12 inj and am on 75 mcg of Levothyroxine for my thyroid. My bloods last week at the Haemotology dept showed all my bloodwork
PamBow
in
Thyroid UK
4 months ago
Essential nutrient results
I've just had the following results from my surgery and realise I now need to update my levels. I was told all are satisfactory!! Advice on best way forward would be hugely appreciated....my nutrient knowledge is too scrappy to be relied on!! I'm currently prescribed Fultium -D3 800 IUcapsules
I've just had the following results from my surgery and realise I now need to update my levels. I was told all are satisfactory!! Advice on best way forward would be hugely appreciated....my nutrient knowledge is too scrappy to be relied on!! I'm currently prescribed Fultium -D3 800 IUcapsules
DippyDame
in
Thyroid UK
9 months ago
Views on my test results
New to this forum, so glad to have found it, I was beginning to despair with my GP who explains nothing to me. Shocked to learn how badly thyroid conditions are treated in UK. Began losing my eyebrows 2 years ago and my diverticulitis began flaring up after years of being stable. Various ultrasound
New to this forum, so glad to have found it, I was beginning to despair with my GP who explains nothing to me. Shocked to learn how badly thyroid conditions are treated in UK. Began losing my eyebrows 2 years ago and my diverticulitis began flaring up after years of being stable. Various ultrasound
Norash
in
Thyroid UK
9 months ago
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diabetes & B12 Deficiency
Hi all, for the last 4 months I’ve been on the B12 deficiency (possibly PA) path and have assumed that eventually the B12 injections will make me feel better. I’ve had all the classic symptoms. I’ve had the 6 loading doses, 2 further jabs at 6 weeks apart and I’m now on a 4 weekly regime with the UK
Hi all, for the last 4 months I’ve been on the B12 deficiency (possibly PA) path and have assumed that eventually the B12 injections will make me feel better. I’ve had all the classic symptoms. I’ve had the 6 loading doses, 2 further jabs at 6 weeks apart and I’m now on a 4 weekly regime with the UK
Pa234aw
in
Pernicious Anaemia Society
4 months ago
blood thinners and cod liver oil?
hi everyone hope you all had a good Christmas, I was diagnosed with AF in November so still learning lots from this forum. I am on edoxaban 60mg and Bisoprolol 2.5 as PIP which I have been taking approx every 7 days. I wanted to ask about taking cod liver oil and other vitamins, as I read that fish oil
hi everyone hope you all had a good Christmas, I was diagnosed with AF in November so still learning lots from this forum. I am on edoxaban 60mg and Bisoprolol 2.5 as PIP which I have been taking approx every 7 days. I wanted to ask about taking cod liver oil and other vitamins, as I read that fish oil
Jamontoast
in
Atrial Fibrillation Support
6 months ago
B12 injections out of stock for a long time
My last post was regarding this but I don’t know what date that was. Versandapo.de and Apohealth.de have been out of stock with the Panpharma B12 for a long time. I have given my email address to Versandapo and they said they will contact me when back in stock but it’s been a couple of months (since
My last post was regarding this but I don’t know what date that was. Versandapo.de and Apohealth.de have been out of stock with the Panpharma B12 for a long time. I have given my email address to Versandapo and they said they will contact me when back in stock but it’s been a couple of months (since
Ryaan
in
Pernicious Anaemia Society
4 months ago
B12 over 4000 with injections, any need to worry?
Hello lovely people, I've been SI 1500ug twice weekly since mid December as a bit of an experiment to see if it would help my symptoms, many which are neuro. Not officially diagnosed as B12 deficient as my blood tests before were all fine but I was heavily supplementing so not really possible to say
Hello lovely people, I've been SI 1500ug twice weekly since mid December as a bit of an experiment to see if it would help my symptoms, many which are neuro. Not officially diagnosed as B12 deficient as my blood tests before were all fine but I was heavily supplementing so not really possible to say
Bertiepuss
in
Pernicious Anaemia Society
4 months ago
Courage
There seems to be a misconception that it takes courage to make the rational choices I make with regards to my self treatment. I am guessing it is a projection of others fears which I do not have. It only took about 6 months for me to firmly establish that those in the medicial field were very comfortable
There seems to be a misconception that it takes courage to make the rational choices I make with regards to my self treatment. I am guessing it is a projection of others fears which I do not have. It only took about 6 months for me to firmly establish that those in the medicial field were very comfortable
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
Which Brand B12 NHS injections please ?
My NHS surgery use Gerot Lannach and boy do they sting ! 😲 Had a conversation with the nurse doing the injection today, who is more than happy (.......to the point of being over excited ! ) to fight on our behalf to change to a different, non stinging brand, if I can give her some suggestions of what
My NHS surgery use Gerot Lannach and boy do they sting ! 😲 Had a conversation with the nurse doing the injection today, who is more than happy (.......to the point of being over excited ! ) to fight on our behalf to change to a different, non stinging brand, if I can give her some suggestions of what
Spritze
in
Pernicious Anaemia Society
4 months ago
friend with MS… interesting parallels
hi just sharing as this intrigued me. Visited a friend I haven’t seen for 12 years recently, she moved away. She was diagnosed with MS just before she left and talking to her I learned the following. MS support group recommended loading dose of 40,000 iu Vit D then 8,000 a day more in winter. This
hi just sharing as this intrigued me. Visited a friend I haven’t seen for 12 years recently, she moved away. She was diagnosed with MS just before she left and talking to her I learned the following. MS support group recommended loading dose of 40,000 iu Vit D then 8,000 a day more in winter. This
Regenallotment
in
Thyroid UK
4 months ago
Link between Vitamin B12 Deficiency and MS
A recent study, conducted by researchers from Sanford Burnham Prebys, in collaboration with others, and published in the December 2023 issue of Cell Reports, sheds more light on the subject, revealing a molecular link between vitamin B12 deficiency and multiple sclerosis. The researchers suggest the
A recent study, conducted by researchers from Sanford Burnham Prebys, in collaboration with others, and published in the December 2023 issue of Cell Reports, sheds more light on the subject, revealing a molecular link between vitamin B12 deficiency and multiple sclerosis. The researchers suggest the
BettysMom
in
My MSAA Community
4 months ago
Flying with b12 medication
Good evening, Just wondering, if a person ever needs to travel (fly) with their b12 medication... Is that fine? Has anyone had any issues with that? Thank you, S
Good evening, Just wondering, if a person ever needs to travel (fly) with their b12 medication... Is that fine? Has anyone had any issues with that? Thank you, S
Suffering_sunny
in
Pernicious Anaemia Society
4 months ago
A positive tale...so far
Hi all, I wanted to share a positive story of B12 deficiency diagnosis and treatment. My GP started me on loading doses in mid December after a serum B12 result of 202. Since then I've had every blood test under the sun which have all showed normal. Meanwhile he kept me on twice weekly injections after
Hi all, I wanted to share a positive story of B12 deficiency diagnosis and treatment. My GP started me on loading doses in mid December after a serum B12 result of 202. Since then I've had every blood test under the sun which have all showed normal. Meanwhile he kept me on twice weekly injections after
Myoldcat
in
Pernicious Anaemia Society
4 months ago
Supplies of b12 injections
Hi everyone, hope you are all ok. I need to order some more b12, where is the best place to order it from at the moment. Many thanks🙏🙏
Hi everyone, hope you are all ok. I need to order some more b12, where is the best place to order it from at the moment. Many thanks🙏🙏
Mrsmr
in
Pernicious Anaemia Society
4 months ago
Falling apart
Just had my first ever Medichecks results through and some (most) are pretty bad although all have that lovely green mark!All supplements were stopped about 6 weeks ago - long story but I've only just got round to doing the test. Test taken at 9am with just water beforehand and last dose of Levothyroxine
Just had my first ever Medichecks results through and some (most) are pretty bad although all have that lovely green mark!All supplements were stopped about 6 weeks ago - long story but I've only just got round to doing the test. Test taken at 9am with just water beforehand and last dose of Levothyroxine
Jingley
in
Thyroid UK
4 months ago
Osteopenia?
A chat with the doctor's nurse and the diagnosis of of osteopenia. Osteopenia is the first stage before osteoporosis. Osteoporosis is when you break bones by falling. I fall now and then but it's because of peroneal nerve entrapment. The peroneal nerve lifts my toes. Without its help I trip
A chat with the doctor's nurse and the diagnosis of of osteopenia. Osteopenia is the first stage before osteoporosis. Osteoporosis is when you break bones by falling. I fall now and then but it's because of peroneal nerve entrapment. The peroneal nerve lifts my toes. Without its help I trip
kaypeeoh
in
Cure Parkinson's
4 months ago
B12 loading dose
Hi I am diagnosed with MS Trigeminal Neuralgia and hughes syndrome I also had a stroke in the Pons 3 years ago I had a message from the GP this morning to say I have low B12 and need to have loading doses and they have made me an appointment with the nurse (absolutely no further information other than
Hi I am diagnosed with MS Trigeminal Neuralgia and hughes syndrome I also had a stroke in the Pons 3 years ago I had a message from the GP this morning to say I have low B12 and need to have loading doses and they have made me an appointment with the nurse (absolutely no further information other than
mully
in
Pernicious Anaemia Society
4 months ago
B12 Injections
Hi I wonder if anyone can tell me of their experiences of B12 injections I have just been told I am deficient in B12 and need too have some loading doses Did this cause a flare up of your MS I'm especially worried as I also have Trigeminal Neuralgia and fear the pain not being controlled Thanks
Hi I wonder if anyone can tell me of their experiences of B12 injections I have just been told I am deficient in B12 and need too have some loading doses Did this cause a flare up of your MS I'm especially worried as I also have Trigeminal Neuralgia and fear the pain not being controlled Thanks
mully
in
My MSAA Community
4 months ago
RBC advice
Hi everyone! I hope you are all doing better than yesterday and that tomorrow will be even better. I have been SI twice daily and taking all cofactors for around 9-10 months now along with 1100mg of gabapentin (unfortunately)and though I am feeling alive again in so many ways I am still struck every
Hi everyone! I hope you are all doing better than yesterday and that tomorrow will be even better. I have been SI twice daily and taking all cofactors for around 9-10 months now along with 1100mg of gabapentin (unfortunately)and though I am feeling alive again in so many ways I am still struck every
brenanddave
in
Pernicious Anaemia Society
4 months ago
Zentiva
Has anyone tried this???? .. . . . ZENTIVA Vitamin B 12 Lichtenstein Ampoules
Has anyone tried this???? .. . . . ZENTIVA Vitamin B 12 Lichtenstein Ampoules
OldmanD
in
Pernicious Anaemia Society
4 months ago
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