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Another update
My husband and i have finally got answers we needed as last Thursday and Friday we were badly let down by the medical professionals. Monday afternoon this week finally saw a cll specialist and was fully informed of what was going on he was severely anaemic and is currently on steroids as basically his
My husband and i have finally got answers we needed as last Thursday and Friday we were badly let down by the medical professionals. Monday afternoon this week finally saw a cll specialist and was fully informed of what was going on he was severely anaemic and is currently on steroids as basically his
Nikkij81
in
CLL Support
1 month ago
thyroid results help appreciated
Hi, I am new to the forum. Am in U.K and received these results via medichecks advanced thyroid check. Currently on 125mcg Levothyroxine. G.P wants me to take 150mcg one day then 125mcg alternate days. Any advice welcome please. I am vitamin D deficient to start taking vitamin D and on folic acid.
Hi, I am new to the forum. Am in U.K and received these results via medichecks advanced thyroid check. Currently on 125mcg Levothyroxine. G.P wants me to take 150mcg one day then 125mcg alternate days. Any advice welcome please. I am vitamin D deficient to start taking vitamin D and on folic acid.
Jammypiece
in
Thyroid UK
1 month ago
folic acid
Hi I’m taking 15 mg methotrexate & 5mg folic acid the day after . The day after the folic acid I am very bad, spaced out, headaches & dizzy for few days. I put it down to the methotrexate but recently I forgot the folic acid & took it late. I got all the side effects straight after the folic acid so
Hi I’m taking 15 mg methotrexate & 5mg folic acid the day after . The day after the folic acid I am very bad, spaced out, headaches & dizzy for few days. I put it down to the methotrexate but recently I forgot the folic acid & took it late. I got all the side effects straight after the folic acid so
Taichigirl
in
NRAS
1 month ago
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Methotrexate
Hi all. This is my first post. I'm 51 and I was diagnosed with rheumatoid arthritis Nov 2022. I started hydroxychloroquine straight away. Tried sulfasalazine but experienced awful side effects with my Hiatus Hernia Started on 15mg Methotrexate in January with side effects of mostly fatigue and nausea
Hi all. This is my first post. I'm 51 and I was diagnosed with rheumatoid arthritis Nov 2022. I started hydroxychloroquine straight away. Tried sulfasalazine but experienced awful side effects with my Hiatus Hernia Started on 15mg Methotrexate in January with side effects of mostly fatigue and nausea
Granblue
in
NRAS
1 month ago
Weakness
Hello,I've had rheumatoid arthritis 28 years been on different drugs over years ,I have been methotrexate 25mg weekly for years folic acid I've been on rituximab every 6 months first course then 2 weeks later 2nd course for 4 year ,I'm starting to feel very weak I'm normally won't let it beat me ,I feel
Hello,I've had rheumatoid arthritis 28 years been on different drugs over years ,I have been methotrexate 25mg weekly for years folic acid I've been on rituximab every 6 months first course then 2 weeks later 2nd course for 4 year ,I'm starting to feel very weak I'm normally won't let it beat me ,I feel
Justlucy
in
NRAS
1 month ago
Folate timing
Good morning, I’m taking folate as we’re trying for a baby and I’ve read this is better than folic acid. My question is do I need to take it at a different time to levothyroxine? I take it 30 mins to an hour after, but I’m not sure if it’s like iron and should be several hours apart. Many thanks for
Good morning, I’m taking folate as we’re trying for a baby and I’ve read this is better than folic acid. My question is do I need to take it at a different time to levothyroxine? I take it 30 mins to an hour after, but I’m not sure if it’s like iron and should be several hours apart. Many thanks for
mountaingoat83
in
Thyroid UK
1 month ago
Newbie in need 😢🙏
Hello, this is my 1st post but have been reading your posts for a few months. I have not as yet had my fibro diagnosis- though gp says it probably is. Have had bloods done and all normal except for extremely low folate levels. I have pain in most of my body and extremely fatigued regularly, but what
Hello, this is my 1st post but have been reading your posts for a few months. I have not as yet had my fibro diagnosis- though gp says it probably is. Have had bloods done and all normal except for extremely low folate levels. I have pain in most of my body and extremely fatigued regularly, but what
Molliesmamma
in
Fibromyalgia Action UK
2 months ago
New to the group - looking for some realistic advice on recovery time after loading doses
Hi all. I am new to the group and this delightful condition we all have! Similar story to many, blood tests showing low B12/folate/ferritin (although this hasn't been mentioned at all by my GP). Had 6 x loading doses followed by 5mg folic acid that I'm on for three months. I was told last week that since
Hi all. I am new to the group and this delightful condition we all have! Similar story to many, blood tests showing low B12/folate/ferritin (although this hasn't been mentioned at all by my GP). Had 6 x loading doses followed by 5mg folic acid that I'm on for three months. I was told last week that since
ClaireWF1346
in
Pernicious Anaemia Society
2 months ago
Mrs Judy Jowers
Our daughter has had RA for many years and I have always said I wish it were me rather than her with the condition. Now I have joined her in being diagnosed with inflammatory arthritis and am just beginning to appreciate the impact it has on life! I have been fortunate in being quickly assessed and
Our daughter has had RA for many years and I have always said I wish it were me rather than her with the condition. Now I have joined her in being diagnosed with inflammatory arthritis and am just beginning to appreciate the impact it has on life! I have been fortunate in being quickly assessed and
Tiapurple
in
NRAS
2 months ago
folate level
Hi Managed to get the Nurse to include folate when doing my recent Thyroid test. It came back as 4.7ug/L (range 3 -20) The Test is stating Normal? Comments please on this level . Many Thanks
Hi Managed to get the Nurse to include folate when doing my recent Thyroid test. It came back as 4.7ug/L (range 3 -20) The Test is stating Normal? Comments please on this level . Many Thanks
Fortie
in
Thyroid UK
2 months ago
supplements
I’ve been on Methatrexate long term and tolerating it well thankfully, I’ve just recently started taking a multivitamin/mineral and that’s the only other thing I take (apart from folic acid ) I’m now curious to know what others who are on Methatrexate take and is there anything that’s best avoided?
I’ve been on Methatrexate long term and tolerating it well thankfully, I’ve just recently started taking a multivitamin/mineral and that’s the only other thing I take (apart from folic acid ) I’m now curious to know what others who are on Methatrexate take and is there anything that’s best avoided?
A234
in
NRAS
2 months ago
Extremely weak legs
Morning everyone, I have fibromyalgia and osteoarthritis in most joints in my body. Since Christmas I have had extremely weak legs to the point now that even going from my chair to the bathroom I’m near collapsing. My legs go very wobbly and start to shake then my whole body shakes and I get breathless
Morning everyone, I have fibromyalgia and osteoarthritis in most joints in my body. Since Christmas I have had extremely weak legs to the point now that even going from my chair to the bathroom I’m near collapsing. My legs go very wobbly and start to shake then my whole body shakes and I get breathless
Cockerspaniels2
in
Fibromyalgia Action UK
2 months ago
Last dosage before blood test
Can anyone advise when to stop taking medications before getting bloods taken, I'm booked in to get bloods done on Tuesday morning on 26th March. The medication I'm on are: Levothyroxine 125mg (Mon to fri) Levothyroxine 100mg (sat to sun) Liothyronine 10mg (daily) Pregnacare max (daily) Vit d3&k (4000iu
Can anyone advise when to stop taking medications before getting bloods taken, I'm booked in to get bloods done on Tuesday morning on 26th March. The medication I'm on are: Levothyroxine 125mg (Mon to fri) Levothyroxine 100mg (sat to sun) Liothyronine 10mg (daily) Pregnacare max (daily) Vit d3&k (4000iu
sara0322
in
Thyroid UK
2 months ago
First time poster overwhelmed with symptoms and considering self-medicating with bovine adrenals & NDT. Asking for advice & recommendations
TLDR: First time poster diagnosed Hashimotos and POI, investigating IBS which is potentially also autoimmune cause. Fatigue, depression and anxiety are ruining my life. Low Adrenal Index Test results so considering self-medicating with Bovine Adrenals. High TSH and anti thyroid antibodies, but low-end-of-normal
TLDR: First time poster diagnosed Hashimotos and POI, investigating IBS which is potentially also autoimmune cause. Fatigue, depression and anxiety are ruining my life. Low Adrenal Index Test results so considering self-medicating with Bovine Adrenals. High TSH and anti thyroid antibodies, but low-end-of-normal
KayNaomi
in
Thyroid UK
2 months ago
latest resulta
hi , just had my latest results and would appreciate advise ! I take 4 grains of Real Thyroid spilt into 2 dose( 2 between 5-6 am m I between 11-3 pm , depending on when I eat ) Free T4 18.1( pmol/L ( 9.0-25.0) Free T3 7.2 pmol/L ( 3.5.6.5 ) TSH <0.05 Bloods taken fasting
hi , just had my latest results and would appreciate advise ! I take 4 grains of Real Thyroid spilt into 2 dose( 2 between 5-6 am m I between 11-3 pm , depending on when I eat ) Free T4 18.1( pmol/L ( 9.0-25.0) Free T3 7.2 pmol/L ( 3.5.6.5 ) TSH <0.05 Bloods taken fasting
Oliva1955
in
Thyroid UK
2 months ago
Two Experiences
1)Two days ago I went wading in the lake where I open water swim. I did not measure the temperature but it was frozen 5 days prior. The pain was not as severe as it was when I waded in very cold water in 1965. There was not the relief I have experienced since 1965. The reason is I am not in as much
1)Two days ago I went wading in the lake where I open water swim. I did not measure the temperature but it was frozen 5 days prior. The pain was not as severe as it was when I waded in very cold water in 1965. There was not the relief I have experienced since 1965. The reason is I am not in as much
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
MTX, fatigue and brain fog
Hi all.I've an annual (actually 16 months) review next week. First one since being diagnosed and I want to try and get the most out of it. I take MTX, 20mg weekly (orally) and folic acid 6 days a week. The MTX seems to be working in terms of joint pain and CRP is usually close to zero. I get mild
Hi all.I've an annual (actually 16 months) review next week. First one since being diagnosed and I want to try and get the most out of it. I take MTX, 20mg weekly (orally) and folic acid 6 days a week. The MTX seems to be working in terms of joint pain and CRP is usually close to zero. I get mild
Sebastian247
in
NRAS
2 months ago
high folate
does anyone know what causes high folate, im usually very low as in 3.5 ( normal is 2-20) im now 24….. ferritin also keeps dropping, it’s gone from 110 to 90 then a month ago it was 49 and now 33 I kvow I should not ask and I kvow no one can advise, but I can’t see a dr until next week and nothing on
does anyone know what causes high folate, im usually very low as in 3.5 ( normal is 2-20) im now 24….. ferritin also keeps dropping, it’s gone from 110 to 90 then a month ago it was 49 and now 33 I kvow I should not ask and I kvow no one can advise, but I can’t see a dr until next week and nothing on
Sophia1968
in
British Liver Trust
2 months ago
Crash after jab from different source?
I'm wondering if anyone has had issues with getting a jab from a different source. My husband normally does my jab (Pascoe 1500 hydroxo, was every 10 days but have recently gone to weekly). He was out of town so I had it done at my GP's office -- the nurse was a real snot about it because my levels (
I'm wondering if anyone has had issues with getting a jab from a different source. My husband normally does my jab (Pascoe 1500 hydroxo, was every 10 days but have recently gone to weekly). He was out of town so I had it done at my GP's office -- the nurse was a real snot about it because my levels (
cdragin
in
Pernicious Anaemia Society
2 months ago
GGT level
Hi, I was told that in 2015 I had a fatty liver from having a scan for suspected gall stones. I wasn't told much more and no advice or follow up given. Last year I started getting pain and a kind of tight feeling on my right side just under my lowest rib. Gp did some blood tests and said nothing came
Hi, I was told that in 2015 I had a fatty liver from having a scan for suspected gall stones. I wasn't told much more and no advice or follow up given. Last year I started getting pain and a kind of tight feeling on my right side just under my lowest rib. Gp did some blood tests and said nothing came
Vavoomm
in
British Liver Trust
2 months ago
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