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GP wont prescribe Hydroxycobalamin until further blood tests conducted despite neuro involvement.
Good morning.I've found this forum out of desperation having experienced what I now know are symptoms of B12 deficiency for a few years. After repeated B12 levels over the years which consistently showed my levels dropping (treatable since 2021 in some parts of the country) they were finally low enough
Good morning.I've found this forum out of desperation having experienced what I now know are symptoms of B12 deficiency for a few years. After repeated B12 levels over the years which consistently showed my levels dropping (treatable since 2021 in some parts of the country) they were finally low enough
Betwelvepatient
in
Pernicious Anaemia Society
5 months ago
Advice on ‘normal’ test results
Hi I’ve recently joined and wanted some guidance on blood tests that my doctors are saying need no action. I went struggling with neck pain and neurological symptoms and they ordered full bloods. In the last two years I’ve gained a huge amount of weight, my face is puffy, and I’ve struggled with running
Hi I’ve recently joined and wanted some guidance on blood tests that my doctors are saying need no action. I went struggling with neck pain and neurological symptoms and they ordered full bloods. In the last two years I’ve gained a huge amount of weight, my face is puffy, and I’ve struggled with running
Bubblesgirl78
in
Thyroid UK
5 months ago
Sudden recent darkness under eyes
Hey, all, I think I know that a lot of people have dark area around their eyes just as part of their normal selves. But I have never had any rings under my eyes. But in the last couple days, have definitely noticed slightly dark rings under my eyes. I am thinking this is more likely a nutrient issue
Hey, all, I think I know that a lot of people have dark area around their eyes just as part of their normal selves. But I have never had any rings under my eyes. But in the last couple days, have definitely noticed slightly dark rings under my eyes. I am thinking this is more likely a nutrient issue
Vlaminck
in
CLL Support
5 months ago
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starting dosage of levothyroxine. GP ignoring Endocrinologist recommendation
hi everyone, in relation to my original post I decided to “give it to God” and await the endocrinologist referral. https://healthunlocked.com/thyroiduk/posts/150231411/gp-referred-me-to-endocrinology As recommended by you lovely people (Thank you again):- I have supplemented 1000ug of folate (
hi everyone, in relation to my original post I decided to “give it to God” and await the endocrinologist referral. https://healthunlocked.com/thyroiduk/posts/150231411/gp-referred-me-to-endocrinology As recommended by you lovely people (Thank you again):- I have supplemented 1000ug of folate (
Kaatse
in
Thyroid UK
5 months ago
20 hours of non-injecting
Having completed a two week trial I did not inject until my stuffy head came back. It was then three days of recovery but nothing severe. I thought that I might be experiencing shortness of breath at about 6 hours but nothing definitive. I woke up at 11 am with my stuffy head and injected and went
Having completed a two week trial I did not inject until my stuffy head came back. It was then three days of recovery but nothing severe. I thought that I might be experiencing shortness of breath at about 6 hours but nothing definitive. I woke up at 11 am with my stuffy head and injected and went
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Suspected B12 deficiency
Hello everyone I found this group via thyroid UK group. It was there that they helpfully made me aware of my low b12 results. Please see results from November attached. I have lots of symptoms which I initially thought was thyroid issues but am now looking into B12 deficiency. I have an appt on
Hello everyone I found this group via thyroid UK group. It was there that they helpfully made me aware of my low b12 results. Please see results from November attached. I have lots of symptoms which I initially thought was thyroid issues but am now looking into B12 deficiency. I have an appt on
RedOne1
in
Pernicious Anaemia Society
3 months ago
Thank you in advance
Hi Guys Had another blood test done - taken at 8.20am results TSH 5.85 ( 0.27-4.2) 3 months ago was 5.19 Thyroid antibodies >15 ( 0.0-33.0) Folate 5.2 (4.5-37.3) Ferritin and B12 both haemolysed Cholesterol total 4.8 Have been asked to book a telephone appointment with G.P. This is my 3rd test
Hi Guys Had another blood test done - taken at 8.20am results TSH 5.85 ( 0.27-4.2) 3 months ago was 5.19 Thyroid antibodies >15 ( 0.0-33.0) Folate 5.2 (4.5-37.3) Ferritin and B12 both haemolysed Cholesterol total 4.8 Have been asked to book a telephone appointment with G.P. This is my 3rd test
Louis2305
in
Thyroid UK
5 months ago
Need your feedback and suggestions = please review the video and comment
I came across an enlightening YouTube video featuring Dr. Jonathan Sackner-Bernstein -------------paste [https:] then add [//youtu.be/k703Shlgkhw?si=iuLPYvtohxJ-Q3pQ] ---------------, prompting me to discontinue my use of LD medication. Note - the modarator has a heavy french accent - you
I came across an enlightening YouTube video featuring Dr. Jonathan Sackner-Bernstein -------------paste [https:] then add [//youtu.be/k703Shlgkhw?si=iuLPYvtohxJ-Q3pQ] ---------------, prompting me to discontinue my use of LD medication. Note - the modarator has a heavy french accent - you
RioIsHerName
in
Cure Parkinson's
5 months ago
GP disagreement re levo. Plus wondering if FT3/TPO link to Pernicious anaemia B12 treatment?
Question re changing GP in same surgery and differing GP views. So sorry its a long one, added alot of health backstory incase its useful. I'm in the UK and was dx hypothyroid last year. Been titrating levo and got to about 1 this spring. Was doing OK, not brilliant and was certin I hahe Pernicious Anaemia
Question re changing GP in same surgery and differing GP views. So sorry its a long one, added alot of health backstory incase its useful. I'm in the UK and was dx hypothyroid last year. Been titrating levo and got to about 1 this spring. Was doing OK, not brilliant and was certin I hahe Pernicious Anaemia
Opal79
in
Thyroid UK
5 months ago
What level is normal after B12 injections
First post after being diagnosed with very low B12 (67). I am in the UK and had the course of six injections within two weeks 12 weeks ago. My level of B12 has just been tested and is 360 but I have no idea whether this would be normal at this stage? I am debating whether to have another injection or
First post after being diagnosed with very low B12 (67). I am in the UK and had the course of six injections within two weeks 12 weeks ago. My level of B12 has just been tested and is 360 but I have no idea whether this would be normal at this stage? I am debating whether to have another injection or
NeverSayDi
in
Pernicious Anaemia Society
5 months ago
1st ever vitamin tests - newly hypo
I’ve followed your excellent advice and got my vitamins tested and was wondering if I could please have some advise on these results. Starting Levo dose 75 (48kg) As a reminder I was diagnosed hypo 1 month ago. Since starting Levo have been muscle and joint pain with acid reflux. Scalloped tongue
I’ve followed your excellent advice and got my vitamins tested and was wondering if I could please have some advise on these results. Starting Levo dose 75 (48kg) As a reminder I was diagnosed hypo 1 month ago. Since starting Levo have been muscle and joint pain with acid reflux. Scalloped tongue
StormsPass
in
Thyroid UK
6 months ago
low folic acid
Hi all, I’ve been prescribed 5mg of folic acid for 3 months, i have Graves disease and am on Carb 20mg a day. My b12 was 536 pg/mL on last test but doctor didn’t say how low folic acid was! She also said my cortisol level was above range but only slightly but couldn’t advise as was down to the Endo doc
Hi all, I’ve been prescribed 5mg of folic acid for 3 months, i have Graves disease and am on Carb 20mg a day. My b12 was 536 pg/mL on last test but doctor didn’t say how low folic acid was! She also said my cortisol level was above range but only slightly but couldn’t advise as was down to the Endo doc
Blackberrymoo
in
Thyroid UK
6 months ago
Update on my partner
Just wanted to say thank you to everyone. We are 4 weeks into EOD injections a local pharmacist showed me how to inject my partner and iv been doing them for him. Originally using panpharma but it was sold out so have just started with pascoe 1500. Much easier to draw up and inject and apparently no
Just wanted to say thank you to everyone. We are 4 weeks into EOD injections a local pharmacist showed me how to inject my partner and iv been doing them for him. Originally using panpharma but it was sold out so have just started with pascoe 1500. Much easier to draw up and inject and apparently no
Nic878
in
Pernicious Anaemia Society
5 months ago
New Blood results - still have brain fog
24 male, diagnosed with autoimmune hypo at 16. Was on 200mcg levothyroxine (Synthroid) for years and felt amazing, 0 symptoms. Blood test I have from past on 200mcg; FT4 18 (9-19), and tsh 1.46. Again, felt great, tons of energy. Went off meds for 16 days Nov 2022, felt like crap, tsh 224 and FT4
24 male, diagnosed with autoimmune hypo at 16. Was on 200mcg levothyroxine (Synthroid) for years and felt amazing, 0 symptoms. Blood test I have from past on 200mcg; FT4 18 (9-19), and tsh 1.46. Again, felt great, tons of energy. Went off meds for 16 days Nov 2022, felt like crap, tsh 224 and FT4
Johnfishman22
in
Thyroid UK
5 months ago
Please help me understand advanced thyroid test results
I’m returning here after following advice to get my mum a full thyroid check via medichecks as her GP had dismissed her previously marginal results. She is switching to a new surgery and we are hoping she will be taken more seriously, following these additional test results. I’m hoping someone can
I’m returning here after following advice to get my mum a full thyroid check via medichecks as her GP had dismissed her previously marginal results. She is switching to a new surgery and we are hoping she will be taken more seriously, following these additional test results. I’m hoping someone can
Roo32
in
Thyroid UK
5 months ago
Pharmacy out of stock?
I just got prescribed Ritalin 💊—10mg tablets for a month. The prescription was sent to CVS Pharmacy. I waited two days with no phone call, so I called in and they said they were out of stock. I’ve heard of people waiting a month to get their medicine, and I don't want to be that guy 🤷♂️ Do you have
I just got prescribed Ritalin 💊—10mg tablets for a month. The prescription was sent to CVS Pharmacy. I waited two days with no phone call, so I called in and they said they were out of stock. I’ve heard of people waiting a month to get their medicine, and I don't want to be that guy 🤷♂️ Do you have
Michael909
in
CHADD's Adult ADHD Support
3 months ago
b12 and ferratin
hi all does anyone know if a ferratin level of 35 can have negative effects on my b12 injections. Doctors have told me it’s well with range(15-300). been feel terrible for 18 months and feels as if the b12 has stopped working. Thanks
hi all does anyone know if a ferratin level of 35 can have negative effects on my b12 injections. Doctors have told me it’s well with range(15-300). been feel terrible for 18 months and feels as if the b12 has stopped working. Thanks
Lee_maynard
in
Pernicious Anaemia Society
5 months ago
vitamin d
can you advise a vitamin d please
can you advise a vitamin d please
Gullysully84
in
Thyroid UK
5 months ago
Schilling Test -or something else ?
I recently found this out: Seventeen years ago, my cousin was found to have B12 deficiency. She would have been in her early 30s then - and was told that PA was unlikely at that young age. They tested her. From what she has told me, it sounds as if she was given the Schilling test - as she remembers
I recently found this out: Seventeen years ago, my cousin was found to have B12 deficiency. She would have been in her early 30s then - and was told that PA was unlikely at that young age. They tested her. From what she has told me, it sounds as if she was given the Schilling test - as she remembers
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
5 months ago
Numb hands 😞
Hello, I have been suffering with numb hands at night and during the day for a while. They really hurt at night and wake me up. It seems that it's made worse by laying on my side and not so connected to the position of my wrists. Splints don't make much difference. Has anyone had anything similar and
Hello, I have been suffering with numb hands at night and during the day for a while. They really hurt at night and wake me up. It seems that it's made worse by laying on my side and not so connected to the position of my wrists. Splints don't make much difference. Has anyone had anything similar and
Auntbessy
in
Thyroid UK
5 months ago
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