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Vitamin B12
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New blood test results
Hi all, Please see my first results 6 weeks after introducing T3. I'm on 125mcg of levo and 10mcg of lio. I am very confused because I was certain that my current symptoms were due to being undermedicated! And how can my T4 be top of range again despite me reducing my levo and introducing T3. TSH 0.007
Hi all, Please see my first results 6 weeks after introducing T3. I'm on 125mcg of levo and 10mcg of lio. I am very confused because I was certain that my current symptoms were due to being undermedicated! And how can my T4 be top of range again despite me reducing my levo and introducing T3. TSH 0.007
Cassav
in
Thyroid UK
2 months ago
Brain alterations with Chronic Fatigue
Hi all, I'm part of a chronic illness support group and they did a Zoom session on how to use telehealth visits for physical therapy . The physical therapist referenced an article about scientists recently finding what may be the physiological root of chronic fatigue and ME (myalgic encephalomyelitis
Hi all, I'm part of a chronic illness support group and they did a Zoom session on how to use telehealth visits for physical therapy . The physical therapist referenced an article about scientists recently finding what may be the physiological root of chronic fatigue and ME (myalgic encephalomyelitis
Cobalt1312
in
Pernicious Anaemia Society
2 months ago
where to get b12 injections to self administer?
hello, I am an American living in the UK. I was previously being treated in the USA for my pernicious anemia with once monthly, self injections. In the UK I have been met with absolute apathy and disregard for my condition. I am genuinely just tired of fighting for my care, and don’t have the strength
hello, I am an American living in the UK. I was previously being treated in the USA for my pernicious anemia with once monthly, self injections. In the UK I have been met with absolute apathy and disregard for my condition. I am genuinely just tired of fighting for my care, and don’t have the strength
Popcornlover1
in
Pernicious Anaemia Society
2 months ago
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ITV Evening News 6/3/24
I hear that the following is on ITV evening news. “Evening News on ITV will see Jimmy Norman share his story on ''how difficult it is'' to receive B12 injections regularly enough for him to be able to function on a daily basis...😞”
I hear that the following is on ITV evening news. “Evening News on ITV will see Jimmy Norman share his story on ''how difficult it is'' to receive B12 injections regularly enough for him to be able to function on a daily basis...😞”
B12again
in
Pernicious Anaemia Society
2 months ago
Any Tips To Help With Post B12 Injection Affects?
Hi, I had my 2nd of 6 loading dose B12 injections this morning and I’m feeling it now.. I was so rough yesterday, which was the day after my 1st one, I’ve been fine so far until a couple of hours ago but it feels like someone has poured ice in me I’m so cold, dizzy and spaced out and generally feeling
Hi, I had my 2nd of 6 loading dose B12 injections this morning and I’m feeling it now.. I was so rough yesterday, which was the day after my 1st one, I’ve been fine so far until a couple of hours ago but it feels like someone has poured ice in me I’m so cold, dizzy and spaced out and generally feeling
Hidden
in
Pernicious Anaemia Society
2 months ago
Things are getting worse
So i started getting vitaminb12 shots (had a recording of 161 ) in Jan 2024.My doctor started giving me 3 shots in the first week then one shot a week for subsquent 4 weeks.I was told that i will be getting monthly injections now-so in total i have had 7 shots to date.Im experiencing insomnia ever since
So i started getting vitaminb12 shots (had a recording of 161 ) in Jan 2024.My doctor started giving me 3 shots in the first week then one shot a week for subsquent 4 weeks.I was told that i will be getting monthly injections now-so in total i have had 7 shots to date.Im experiencing insomnia ever since
Vongai
in
Pernicious Anaemia Society
2 months ago
Bleeding when injecting
Hi everyone, I have just done a IM in the outside upper thigh area which I always do, alternating legs I use. I have never had bleeding before until this recent injection when I can only describe as a spurt of blood which then became discoloured with the B12 appearing tinged brown. Should I be worried
Hi everyone, I have just done a IM in the outside upper thigh area which I always do, alternating legs I use. I have never had bleeding before until this recent injection when I can only describe as a spurt of blood which then became discoloured with the B12 appearing tinged brown. Should I be worried
Helliborous
in
Pernicious Anaemia Society
2 months ago
New NICE guidelines
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
helvella
Thyroid UK
in
Thyroid UK
2 months ago
Fibro or B12 deficiency??
Hi All I just wanted to share this link which feature Dr Chandy talking about B12 deficiency. I am in both the fibromyalgia group and the one for pernicious anemia. I have been struggling lately with extreme fatigue, pins and needs, numbness in my arms, pain etc, worse then normal. I figured a Fibro
Hi All I just wanted to share this link which feature Dr Chandy talking about B12 deficiency. I am in both the fibromyalgia group and the one for pernicious anemia. I have been struggling lately with extreme fatigue, pins and needs, numbness in my arms, pain etc, worse then normal. I figured a Fibro
Blueoxo
in
Fibromyalgia Action UK
2 months ago
Help! Have I messed up
I have just had a telephone consultation with a GP hoping for help with the symptoms I have been experiencing. I tried to point him in the direction of the relevant guidelines for treating B12 deficiency, he said that he was familiar with the NICE CKS as he deals with B12 all the time and I m not anaemic
I have just had a telephone consultation with a GP hoping for help with the symptoms I have been experiencing. I tried to point him in the direction of the relevant guidelines for treating B12 deficiency, he said that he was familiar with the NICE CKS as he deals with B12 all the time and I m not anaemic
SpringerMom
in
Pernicious Anaemia Society
2 months ago
Increased symptoms after injections.
I'm still trying to get my head around everything and I have a memory like a sieve regarding what I've read to date...I always have had so that's not necessarily due to the P.A. So after 18 years of 10 weekly injections I have now had one a week so far for the last 4 weeks as advised by a consultant.
I'm still trying to get my head around everything and I have a memory like a sieve regarding what I've read to date...I always have had so that's not necessarily due to the P.A. So after 18 years of 10 weekly injections I have now had one a week so far for the last 4 weeks as advised by a consultant.
Suesue246
in
Pernicious Anaemia Society
2 months ago
Advice before I see the endo
hi oracles I could really do with some advice as to what I should do next. I’m going to see my Endo next Tuesday and my TSH is under the range, she’s going to want to reduce my meds and I don’t know what I feel anymore. Here’s my last results from private tests from 2 weeks ago … TSH - 0.154 Range
hi oracles I could really do with some advice as to what I should do next. I’m going to see my Endo next Tuesday and my TSH is under the range, she’s going to want to reduce my meds and I don’t know what I feel anymore. Here’s my last results from private tests from 2 weeks ago … TSH - 0.154 Range
Fliplaar
in
Thyroid UK
2 months ago
The ongoing battle to be well
Since I had Graves diagnosed years ago have struggled with levothyroxine alone..had RAI ...although my previous doctor gave me a private prescription for Thybon Henning Liothyronine. Which I have got - but due to house move changed doctors..present one said it would not help so I did not take it!!
Since I had Graves diagnosed years ago have struggled with levothyroxine alone..had RAI ...although my previous doctor gave me a private prescription for Thybon Henning Liothyronine. Which I have got - but due to house move changed doctors..present one said it would not help so I did not take it!!
Hurtlocker
in
Thyroid UK
2 months ago
Vitamin B12 and Metformin
As a diabetic, I have been prescribed Metformin which I tolerated well. Recently I have been feeling really tired and am now being tested for B12 deficiency, at my request. No guidance has ever been given on this at my diabetic clinic and the leaflet that comes in the box suggests that this is an extremely
As a diabetic, I have been prescribed Metformin which I tolerated well. Recently I have been feeling really tired and am now being tested for B12 deficiency, at my request. No guidance has ever been given on this at my diabetic clinic and the leaflet that comes in the box suggests that this is an extremely
24yearsandcounting
in
Diabetes Research & Wellness Foundation
11 months ago
B12 Injection Side Effects
Hi! I had my first of 6 B12 injection yesterday and it’s totally floored me. It’s like I’ve been given a sleeping tablet I feel so groggy and spaced out, sick and dizzy and my arms and legs hurt too. Is this normal? The nurse giving it said there shouldn’t be any side effects apart from a sore or red
Hi! I had my first of 6 B12 injection yesterday and it’s totally floored me. It’s like I’ve been given a sleeping tablet I feel so groggy and spaced out, sick and dizzy and my arms and legs hurt too. Is this normal? The nurse giving it said there shouldn’t be any side effects apart from a sore or red
Hidden
in
Pernicious Anaemia Society
2 months ago
Would Low Dose Naltrexone (LDN) affect the absorption of B12 injections?
Would Low Dose Naltrexone (LDN) affect the absorption of B12 injections? Answered by Sebastian Denison, RPh https://youtu.be/jA1P9Jpf2_Y
Would Low Dose Naltrexone (LDN) affect the absorption of B12 injections? Answered by Sebastian Denison, RPh https://youtu.be/jA1P9Jpf2_Y
Shewulf
Administrator
in
LDN Research Trust
2 months ago
Uncooperative GP
My husband died in summer 2022 in hospital. At the time I was having very successful B12 loading injections for anaemia but after his death I was overwhelmed with work. I had asked the surgery not to use my mobile phone number (which they insisted on having) and use my landline instead but the GP
My husband died in summer 2022 in hospital. At the time I was having very successful B12 loading injections for anaemia but after his death I was overwhelmed with work. I had asked the surgery not to use my mobile phone number (which they insisted on having) and use my landline instead but the GP
Eulophia47
in
Pernicious Anaemia Society
2 months ago
BD microfine integral needle and syringe. 199 surplus to requirements.PM me if anyone wants them
Got these for my son to inject B12 but he prefers the separate needle and syringe. Understandably Amazon don’t want them back
Got these for my son to inject B12 but he prefers the separate needle and syringe. Understandably Amazon don’t want them back
Noelnoel
in
Pernicious Anaemia Society
2 months ago
Draft NICE B12?
Hi everyone, I was checking the NICE site for B12 guidelines in anticipation of Wednesday’s publication and noticed that the release date has been removed and the stakeholders updated. I am praying that this is not another delay as my confirmed diagnosis from 2016 was overturned by a new GP as a false
Hi everyone, I was checking the NICE site for B12 guidelines in anticipation of Wednesday’s publication and noticed that the release date has been removed and the stakeholders updated. I am praying that this is not another delay as my confirmed diagnosis from 2016 was overturned by a new GP as a false
RoseFlowerDew
in
Pernicious Anaemia Society
2 months ago
Winter Down Turn
I experienced a slowing of healing during the winter months. The reasons are not definitively knowable. This seems to be on the wane. Factors are less light, less sun energy, lower outside ambivalent temperature and only 16 weeks of not under supplementing. It is also a factor I have learned to expect
I experienced a slowing of healing during the winter months. The reasons are not definitively knowable. This seems to be on the wane. Factors are less light, less sun energy, lower outside ambivalent temperature and only 16 weeks of not under supplementing. It is also a factor I have learned to expect
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
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