Search
Search
About
Log in
Join
Experiences with
Vitamin B12 / Folic acid
Posts
Communities
51,470 public posts
Filter results
If your doctor worries that too much B12 is toxic, show them this study on ALS & B12
ALS is the same as Lou Gehrig's disease, and is also what Stephen Hawking had. It is a neurodegenerative disease, thought to mostly affect the motor neurons. Ryosuke Oki, et al, "Efficacy and Safety of Ultrahigh-Dose Methylcobalamin in Early-Stage Amyotrophic Lateral Sclerosis" JAMA Neurol. 2022;
ALS is the same as Lou Gehrig's disease, and is also what Stephen Hawking had. It is a neurodegenerative disease, thought to mostly affect the motor neurons. Ryosuke Oki, et al, "Efficacy and Safety of Ultrahigh-Dose Methylcobalamin in Early-Stage Amyotrophic Lateral Sclerosis" JAMA Neurol. 2022;
jade_s
in
Pernicious Anaemia Society
10 months ago
Anyone experience morning hunger but nausea when trying to eat?
Hello, My daughter has asked me to ask if anyone experiences not being able to get food or liquid down in the morning, despite feeling hungry? She gets hungry (normal hunger pangs in stomach) and wants to eat, but then feels nauseous, even water makes her feel 'yucky'. As I have mentioned on other
Hello, My daughter has asked me to ask if anyone experiences not being able to get food or liquid down in the morning, despite feeling hungry? She gets hungry (normal hunger pangs in stomach) and wants to eat, but then feels nauseous, even water makes her feel 'yucky'. As I have mentioned on other
Sneedle
in
Pernicious Anaemia Society
10 months ago
Confused by B12 deficiency symptoms
Good morning from a confused anxious member. After I had my loading shots I tried to persuade my GP to give me more frequent injections due to my neuropathy symptoms and she agreed to two more, fortnightly. But she put a seed of doubt in my mind by saying maybe something else was going on rather than
Good morning from a confused anxious member. After I had my loading shots I tried to persuade my GP to give me more frequent injections due to my neuropathy symptoms and she agreed to two more, fortnightly. But she put a seed of doubt in my mind by saying maybe something else was going on rather than
Kerrieblue
in
Pernicious Anaemia Society
10 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Be Careful
Morning everyone, hope you are all well. I have pernicious anaemia and through the years have managed with self injections, resting, eating as well as I could (within reason), watching my weight and exercising as well as I can. In general I thought I was doing not too badly at all. Albeit tingling,
Morning everyone, hope you are all well. I have pernicious anaemia and through the years have managed with self injections, resting, eating as well as I could (within reason), watching my weight and exercising as well as I can. In general I thought I was doing not too badly at all. Albeit tingling,
Miss-guineapig
in
Pernicious Anaemia Society
10 months ago
Weight gain and osteoporosis
I am in great discomfort because I have developed severe osteoporosis in the spine. I have compression fractures in three areas of the thoracic spine (T10, T11 and T12) and one area of the lumbar spine ( L1). I was diagnosed with GCA in September 2022 and have been on high doses of steroids until very
I am in great discomfort because I have developed severe osteoporosis in the spine. I have compression fractures in three areas of the thoracic spine (T10, T11 and T12) and one area of the lumbar spine ( L1). I was diagnosed with GCA in September 2022 and have been on high doses of steroids until very
Raga72
in
PMRGCAuk
9 months ago
b12 injections making me worse
Hi, My bloods came back as having a serum b12 of 73 so my doctor started me on b12 injections. I have had 3 out of 6 so far, but instead of feeling better my symptoms seem to be getting worse. I can't think straight and missed my 4th b12 injection today because I thought it was at a different time
Hi, My bloods came back as having a serum b12 of 73 so my doctor started me on b12 injections. I have had 3 out of 6 so far, but instead of feeling better my symptoms seem to be getting worse. I can't think straight and missed my 4th b12 injection today because I thought it was at a different time
hc918
in
Pernicious Anaemia Society
4 months ago
Clueless and looking for advice!
Hi, I was recommended to post here from the thyroid uk group. I did a medichecks test last week, and my vitamin levels were as follows. I have also included previous results from 2022 that the GP took. Vit D (50-250 normal range) 01/04/22. 31nmol 15/07/22. 42nmol 29/02/24. 55.1nmol Ferritin (30-
Hi, I was recommended to post here from the thyroid uk group. I did a medichecks test last week, and my vitamin levels were as follows. I have also included previous results from 2022 that the GP took. Vit D (50-250 normal range) 01/04/22. 31nmol 15/07/22. 42nmol 29/02/24. 55.1nmol Ferritin (30-
KTEO
in
Pernicious Anaemia Society
3 months ago
blood test results
could someone interpret my blood results please? I have a phone conversation with my Endo next week and would like to be prepared. Many thanks. Haemaglobin 112 Red cell count 3.69 Haematocrit 0.331 Serum ferritin 19 Serum vitamin B12 882 Serum TSH 0.11 Serum Free T4 17 Serum Free T3 3.8 Thank
could someone interpret my blood results please? I have a phone conversation with my Endo next week and would like to be prepared. Many thanks. Haemaglobin 112 Red cell count 3.69 Haematocrit 0.331 Serum ferritin 19 Serum vitamin B12 882 Serum TSH 0.11 Serum Free T4 17 Serum Free T3 3.8 Thank
Silverangel
in
Thyroid UK
10 months ago
HELP before speaking to GP tomorrow!
Hello, I’m still new to this forum and finding my way around. I posted earlier this week for the first time about my story and received lots and lots of helpful information, more information than I’ve ever received from my GP since my diagnosis so thank you everyone! It was recommended that I started
Hello, I’m still new to this forum and finding my way around. I posted earlier this week for the first time about my story and received lots and lots of helpful information, more information than I’ve ever received from my GP since my diagnosis so thank you everyone! It was recommended that I started
Dissydee
in
Thyroid UK
3 months ago
Can anyone help with iron panel interpretation please
This is a friend’s recent iron panel Posted a couple of days ago but hoping for a better response this time I’ve looked on rT3 adrenals where it says a low transferrin level indicates a lack of capacity for supplemental iron. I really don’t understand this when it’s clear her whole panel is low,
This is a friend’s recent iron panel Posted a couple of days ago but hoping for a better response this time I’ve looked on rT3 adrenals where it says a low transferrin level indicates a lack of capacity for supplemental iron. I really don’t understand this when it’s clear her whole panel is low,
Noelnoel
in
Thyroid UK
6 months ago
PA B12 deficiency
hello l was wondering at what point do you start to feel better after the B12 injections? I have just finished my period of injections every two days. I have days when I have so much energy that l can’t sleep or total exhaustion that doing anything ware’s me out and I just want to sleep. I have also
hello l was wondering at what point do you start to feel better after the B12 injections? I have just finished my period of injections every two days. I have days when I have so much energy that l can’t sleep or total exhaustion that doing anything ware’s me out and I just want to sleep. I have also
Ooopsy
in
Pernicious Anaemia Society
10 months ago
stopping vitamins before tests
hi everyone, I can’t remember if I have to stop my vitamin b12 and D before doing my medichecks test - the one that tests for t3, t4, tsh, folate, b12, D, ferritin and inflammation. I’m taking the vitamins in spray form now so no biotin - is there any other reason I have to stop before testing? Thanks
hi everyone, I can’t remember if I have to stop my vitamin b12 and D before doing my medichecks test - the one that tests for t3, t4, tsh, folate, b12, D, ferritin and inflammation. I’m taking the vitamins in spray form now so no biotin - is there any other reason I have to stop before testing? Thanks
Mazes
in
Thyroid UK
4 months ago
B12 recommendation
My B12 level looked OK once I was taking a separate supplement, now I'm on the Bcomplex only I feel it might have dropped again, the OTC brand I was recommended by the endocrinologist was a dissolvable tab full of other rubbish, and i haven't seen a decent one here in Greece, I'd like to order a good
My B12 level looked OK once I was taking a separate supplement, now I'm on the Bcomplex only I feel it might have dropped again, the OTC brand I was recommended by the endocrinologist was a dissolvable tab full of other rubbish, and i haven't seen a decent one here in Greece, I'd like to order a good
Kriticat
in
Thyroid UK
10 months ago
test result help?
hi can anyone advise me on these results? Tsh - 0.84 Free t4 - 19.1 Folate - 5.1 B12 -1057 (on injections every 12 weeks) Serum iron 15 Transferrin 2.69 Serum ferritin 80 Transferrin saturation 22% So they are all listed as satisfactory. But symptom wise - Exhausted Tachycardia (cardiology
hi can anyone advise me on these results? Tsh - 0.84 Free t4 - 19.1 Folate - 5.1 B12 -1057 (on injections every 12 weeks) Serum iron 15 Transferrin 2.69 Serum ferritin 80 Transferrin saturation 22% So they are all listed as satisfactory. But symptom wise - Exhausted Tachycardia (cardiology
Smurf8920
in
Thyroid UK
6 months ago
Help interpreting results
Hi, apologies for long post. I’m a 34yo female. I’ve had symptoms that line up with hypothyroid symptoms for years. Had a few tests when my eczema flared up really badly around 12 years ago, which coincides with the time that a lot of the symptoms began. Have had fatigue basically since catching Epstein-Barr
Hi, apologies for long post. I’m a 34yo female. I’ve had symptoms that line up with hypothyroid symptoms for years. Had a few tests when my eczema flared up really badly around 12 years ago, which coincides with the time that a lot of the symptoms began. Have had fatigue basically since catching Epstein-Barr
KTEO
in
Thyroid UK
3 months ago
High T4 - Test Results
CRP -HS 2-690 mg/L Range under 3 Ferritin 185.00 ug/L ( 30-650) Folate - sample error Vit B12 Active 83.2 pmol/L (37.5 - 188) Vit D
CRP -HS 2-690 mg/L Range under 3 Ferritin 185.00 ug/L ( 30-650) Folate - sample error Vit B12 Active 83.2 pmol/L (37.5 - 188) Vit D
Fortie
in
Thyroid UK
3 months ago
results
lets try again Result. Range Vit D 109 50-200 Optimal 75-200 Magnesium. 0.93. 0.66-0.99 CRP.
lets try again Result. Range Vit D 109 50-200 Optimal 75-200 Magnesium. 0.93. 0.66-0.99 CRP.
Honeybee66
in
Thyroid UK
3 months ago
MORE ADVICE ON RESULTS PLEASE !
Hi again kind people, Further to my last posts-I reduced Levo from 125ug to -100ug from 12/01/24 on Endo’s advice ( previous results as below ,he said ,still showed overmedication) 08/01/24: TSH 0.02 (0.27-4.3) FT4 4.2 ( 3.1- 6.8) FT4 21.9 (12.00-22.00) My latest blood results taken on 22/02/
Hi again kind people, Further to my last posts-I reduced Levo from 125ug to -100ug from 12/01/24 on Endo’s advice ( previous results as below ,he said ,still showed overmedication) 08/01/24: TSH 0.02 (0.27-4.3) FT4 4.2 ( 3.1- 6.8) FT4 21.9 (12.00-22.00) My latest blood results taken on 22/02/
Koababy20
in
Thyroid UK
3 months ago
B12 serum test level of 165(lab normal values 160-899)
Hello.My b12 serum level came back 165 pg/ml that my lab notmal range was(160-899pg/ml). Im 35 yrs male. I have symptoms like sleeppy, brain fog, feel dizzi or near faint senses. My CBC results also came back normal. But a little bit hgb in high limits. I mean hgb of 17. Do you think im b12 deficient
Hello.My b12 serum level came back 165 pg/ml that my lab notmal range was(160-899pg/ml). Im 35 yrs male. I have symptoms like sleeppy, brain fog, feel dizzi or near faint senses. My CBC results also came back normal. But a little bit hgb in high limits. I mean hgb of 17. Do you think im b12 deficient
Emiroskui
in
Pernicious Anaemia Society
10 months ago
Advice about diarrhoea symptoms please
I have had very little assistance from my GP in relation to my Pernicious Anaemia with gastric parietal cell antibodies diagnosis earlier this year. GP reluctantly agreed 5 loading doses but no more than three monthly injections after that, even though I have neurological symptoms. I have been supplementing
I have had very little assistance from my GP in relation to my Pernicious Anaemia with gastric parietal cell antibodies diagnosis earlier this year. GP reluctantly agreed 5 loading doses but no more than three monthly injections after that, even though I have neurological symptoms. I have been supplementing
yorkshiregirl4
in
Pernicious Anaemia Society
10 months ago
1
...
79
80
81
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
21445 results
Pernicious Anaemia Society
13039 results
Cure Parkinson's
1534 results
View top 10 communities
Sort by
Most Relevant
Newest