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Vitamin B12 / Folic acid
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Thyroid medication update
So presently taking 60 NDT and 25 t4 synthroid. I couldn't tolerate 90 ndt so my doctor gave me 25 t4 as a slower release and doesn't hit as hard as ndt. So it seems this addition of t4 has helped me. My sleep is better, my eyebrows filling in more, the few pounds I was holding onto seem to have dropped
So presently taking 60 NDT and 25 t4 synthroid. I couldn't tolerate 90 ndt so my doctor gave me 25 t4 as a slower release and doesn't hit as hard as ndt. So it seems this addition of t4 has helped me. My sleep is better, my eyebrows filling in more, the few pounds I was holding onto seem to have dropped
Nora3
in
Thyroid UK
8 months ago
No improvement to tiredness after B12 injections
I have been having B12 injections since being diagnosed with pernicious anaemia 18 years ago. I never feel an improvement in energy levels and tiredness after an injection.When my dad had his injections for P.A. decades ago he would always say he could feel when his injection was due because of increased
I have been having B12 injections since being diagnosed with pernicious anaemia 18 years ago. I never feel an improvement in energy levels and tiredness after an injection.When my dad had his injections for P.A. decades ago he would always say he could feel when his injection was due because of increased
Suesue246
in
Pernicious Anaemia Society
8 months ago
Extra folate & biotin?
Since 24th April, I’ve taken 50mg levo daily, with BioCare Adreno Complex, Igennus Super B-Complex and separate Igennus B12. It’s early days, but in due course I plan to increase levo to 75mg, then 100mg, if my obliging GP will prescribe it. My question is this: is it safe/advisable/helpful to add in
Since 24th April, I’ve taken 50mg levo daily, with BioCare Adreno Complex, Igennus Super B-Complex and separate Igennus B12. It’s early days, but in due course I plan to increase levo to 75mg, then 100mg, if my obliging GP will prescribe it. My question is this: is it safe/advisable/helpful to add in
KingJohnVII
in
Thyroid UK
1 month ago
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Private GP visit
I saw I private GP today as I felt with more time to go through my symptoms and tests I might get somewhere. But she is of the opinion that my B12, ferritin and folate levels were all fine and nothing to worry about. They are within range. I asked about my symptoms, but she didn’t feel they warranted
I saw I private GP today as I felt with more time to go through my symptoms and tests I might get somewhere. But she is of the opinion that my B12, ferritin and folate levels were all fine and nothing to worry about. They are within range. I asked about my symptoms, but she didn’t feel they warranted
Chickens44
in
Pernicious Anaemia Society
1 month ago
New to the forum
Hoping anyone can give me guidance, I'm newly diagnosed, after years of just getting on with it, in terms of been tired, i eventually found my fingers and toes so painful, it actually spurred me into going to the GPs, after a several visits and many blood tests, i was told I have PA. I was given the
Hoping anyone can give me guidance, I'm newly diagnosed, after years of just getting on with it, in terms of been tired, i eventually found my fingers and toes so painful, it actually spurred me into going to the GPs, after a several visits and many blood tests, i was told I have PA. I was given the
polarbear69
in
Pernicious Anaemia Society
8 months ago
Correct me if I am wrong. Please
There are four forms of cobalamin commercially available for injection. Cynocabalamin which in tests of a non cobalamin deficient human has been tested for retention times. There is no comparative testing of the efficacy of Cynocabalamin versus other forms including no test of the effect on symptoms
There are four forms of cobalamin commercially available for injection. Cynocabalamin which in tests of a non cobalamin deficient human has been tested for retention times. There is no comparative testing of the efficacy of Cynocabalamin versus other forms including no test of the effect on symptoms
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
Reversing out worse than actual symptoms
I am 32 years old and had B12 deficiency. B12 was <83 pg/ml (normal 180-914) as the lab could not test below this value and Vitamin D was 16 ng/ml (normal 30-100). I had multiple symptoms, some are mentioned below 1. Vertigo 2. Consistent dizziness (feeling like sitting on a boat all the time) 3.
I am 32 years old and had B12 deficiency. B12 was <83 pg/ml (normal 180-914) as the lab could not test below this value and Vitamin D was 16 ng/ml (normal 30-100). I had multiple symptoms, some are mentioned below 1. Vertigo 2. Consistent dizziness (feeling like sitting on a boat all the time) 3.
Trialerror
in
Pernicious Anaemia Society
1 month ago
b1 vitamins
what has been your experience with taking B1 supplements? Dosage and frequency?
what has been your experience with taking B1 supplements? Dosage and frequency?
Teacher111
in
Cure Parkinson's
1 month ago
Canker Sores/Mouth ulcer
Hi everyone, PBC and Mouth Ulcer when runned down? I had a sinus infection for 2 months and had 20 days of antibiotics for it. (This was in July and August- last tablet was taken in The beginning of September from the antibiotics) While on antibiotics- I developed ulcers inside my lower inner lip
Hi everyone, PBC and Mouth Ulcer when runned down? I had a sinus infection for 2 months and had 20 days of antibiotics for it. (This was in July and August- last tablet was taken in The beginning of September from the antibiotics) While on antibiotics- I developed ulcers inside my lower inner lip
Tramezzini
in
PBC Foundation
8 months ago
New to PA and need info and support
Hi, for nearly 10 years I have been returning blood tests with low b12 levels, recently these have been 140 / 155 / 170 and 2 weeks ago 165. I continued to advise GP that there was an issue. In 2018 I had 6 loading doses but no follow up treatments. Throughout 2023 I reported tiredness and more concerningly
Hi, for nearly 10 years I have been returning blood tests with low b12 levels, recently these have been 140 / 155 / 170 and 2 weeks ago 165. I continued to advise GP that there was an issue. In 2018 I had 6 loading doses but no follow up treatments. Throughout 2023 I reported tiredness and more concerningly
Sailing63
in
Pernicious Anaemia Society
1 month ago
Blood test results in full. Can anyone find a cause in there for my continued fatigue etc?
I still have the same symptoms, although some have improved a bit, but not gone, by any means. Still housebound. I list below Blood test results. Can anyone suggest an issue that may cause my symptoms because my GP says no action, normal. Serum 25 - HO Vit D3 level 135nmol/L 50-174
I still have the same symptoms, although some have improved a bit, but not gone, by any means. Still housebound. I list below Blood test results. Can anyone suggest an issue that may cause my symptoms because my GP says no action, normal. Serum 25 - HO Vit D3 level 135nmol/L 50-174
DandyButch
in
Thyroid UK
1 month ago
Advice following GP visit please
Hi, I posted a few days ago asking for advice after having had results back from blood tests and struggling to see my GP. Well, I finally saw her today. She was sympathetic, and has referred my results to an endocrinologist for guidance. I wanted to get some thoughts on something she did say, bearing
Hi, I posted a few days ago asking for advice after having had results back from blood tests and struggling to see my GP. Well, I finally saw her today. She was sympathetic, and has referred my results to an endocrinologist for guidance. I wanted to get some thoughts on something she did say, bearing
TheMudRunner
in
Thyroid UK
1 month ago
Muscle Cramps?
I'm following Elliott Overton's B1 therapy and am on week 4 of his protocol using various forms of thiamine totaling 1500 mg a day. I'm noticing improvement in Parkinsons symptoms but have developed very sore and cramping calf muscles for the past couple of days. Since I haven't increased physical activity
I'm following Elliott Overton's B1 therapy and am on week 4 of his protocol using various forms of thiamine totaling 1500 mg a day. I'm noticing improvement in Parkinsons symptoms but have developed very sore and cramping calf muscles for the past couple of days. Since I haven't increased physical activity
Carrielam
in
Cure Parkinson's
1 month ago
😩 STRESS
I'm due to go to the doctors surgery tomorrow for my IM B12 injectionI looked at my NHS app . A named person has cancelled my repeat prescription of b12 ampoules I've just found out the named person is a receptionist at my new surgery . ( old one closed ) It was cancelled on starting there then
I'm due to go to the doctors surgery tomorrow for my IM B12 injectionI looked at my NHS app . A named person has cancelled my repeat prescription of b12 ampoules I've just found out the named person is a receptionist at my new surgery . ( old one closed ) It was cancelled on starting there then
Nackapan
in
Pernicious Anaemia Society
8 months ago
Looking for advice please
Hello folks. I've been on here for a couple weeks reading peoples comments/stories. but have not posted anything until now. Hope you all are doing ok. Im looking for a bit of advice if anyone can help please. Back in august last year i was diagnosed with Liver cirrhosis from drinking. for the
Hello folks. I've been on here for a couple weeks reading peoples comments/stories. but have not posted anything until now. Hope you all are doing ok. Im looking for a bit of advice if anyone can help please. Back in august last year i was diagnosed with Liver cirrhosis from drinking. for the
StokieB
in
British Liver Trust
1 month ago
Risk of reversing out for A'levels
Hi everyone. I'm in a conundrum. My youngest daughter, 17, has low B12 (181ng/L, so not low enough for our GP to take any notice), inherited from me (141ng/L and now self-injecting) and her grandmother (hospitalised on intravenous B12 for several months in the '50s). She has quite low folate at 5.5.
Hi everyone. I'm in a conundrum. My youngest daughter, 17, has low B12 (181ng/L, so not low enough for our GP to take any notice), inherited from me (141ng/L and now self-injecting) and her grandmother (hospitalised on intravenous B12 for several months in the '50s). She has quite low folate at 5.5.
Cotswolds23
in
Pernicious Anaemia Society
2 months ago
Mum's battle
Hi all, Mum has suffered from adrenal insufficiency over the past 15 years, as well as pernicious anemia, hypothyroidism, low WBC count and was hospitalised several times with low electrolytes. The electrolyte imbalance was caused by the cortisol acetate supplement she takes. She was numerous doctors
Hi all, Mum has suffered from adrenal insufficiency over the past 15 years, as well as pernicious anemia, hypothyroidism, low WBC count and was hospitalised several times with low electrolytes. The electrolyte imbalance was caused by the cortisol acetate supplement she takes. She was numerous doctors
quicklyinsignificant
in
Thyroid UK
2 months ago
Deadly facts of b12
There is a guy on tiktok called Gary Brecka giving the 'deadly facts of b12' I looked in the comments he has people terrified of cyanocobalamin. I'm still alive and have it every 4 weeks 🤔😂
There is a guy on tiktok called Gary Brecka giving the 'deadly facts of b12' I looked in the comments he has people terrified of cyanocobalamin. I'm still alive and have it every 4 weeks 🤔😂
SunnyWorld
in
Pernicious Anaemia Society
8 months ago
Help please in results interpretation of advanced function thyroid test
I’ve just received results of private test because surgery has reduced levothyroxine from 75mcg to 50mcg. Please see below. I would welcome some advice before I approach anyone. Jan 30 TSH 0.23 (0.27-4.2) T4 17.7 (10.5-24.5) At this point doctor wanted me to reduce to 50mcg but I confessed that
I’ve just received results of private test because surgery has reduced levothyroxine from 75mcg to 50mcg. Please see below. I would welcome some advice before I approach anyone. Jan 30 TSH 0.23 (0.27-4.2) T4 17.7 (10.5-24.5) At this point doctor wanted me to reduce to 50mcg but I confessed that
Libuse
in
Thyroid UK
2 months ago
Bad batch of B12
Hi I'm just adding to the posts about bad batches of B12 - there's been a couple in the last month. I have self-injected since 2020 - originally every other day, increased to every day after having Covid in July 2021. Taking control has felt miraculous as I have been able to return to full-time
Hi I'm just adding to the posts about bad batches of B12 - there's been a couple in the last month. I have self-injected since 2020 - originally every other day, increased to every day after having Covid in July 2021. Taking control has felt miraculous as I have been able to return to full-time
LizWilsonpa
in
Pernicious Anaemia Society
2 months ago
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