Search
Search
About
Log in
Join
Experiences with
Vitamin B12 / Folic acid
Posts
Communities
51,615 public posts
Filter results
Loading doses
I will try and keep this as short as possible. 21 years ago GP diagnosed PA and up until 3 years ago I had B12 injections every 12 weeks. 3 years ago the CCG instructed GP's to cut down giving injections to anyone unless they had PA. My jobsworth GP decided to give me a blood test, which was in range
I will try and keep this as short as possible. 21 years ago GP diagnosed PA and up until 3 years ago I had B12 injections every 12 weeks. 3 years ago the CCG instructed GP's to cut down giving injections to anyone unless they had PA. My jobsworth GP decided to give me a blood test, which was in range
Lilian15
in
Pernicious Anaemia Society
6 months ago
Hele36
How do you obtain B12 injections in Australia? There seems to be a serious scarcity. Does anyone know an outlet .?
How do you obtain B12 injections in Australia? There seems to be a serious scarcity. Does anyone know an outlet .?
36Hele
in
Pernicious Anaemia Society
6 months ago
Borderline B12 Deficiency
Hi, I have been diagnosed with Borderline Vit B12 Deficiency and am wondering if long term Pred could have caused itHad PMR from 2014 for six years, it is back again and have been on Pred since August 2023 I would value your opinions. Thank you Jenny
Hi, I have been diagnosed with Borderline Vit B12 Deficiency and am wondering if long term Pred could have caused itHad PMR from 2014 for six years, it is back again and have been on Pred since August 2023 I would value your opinions. Thank you Jenny
Attic
in
PMRGCAuk
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Advice on egg freezing and hysterectomy for severely heavy bleeding
Hi everyone, I'm doing a little bit of research so I can take a huge stack of notes to my next gynaecology appointment, and wondered if anyone was able to share their experiences. I'm looking at potentially freezing some of my eggs, as I have endometriomas. I'm still undecided as to whether I want children
Hi everyone, I'm doing a little bit of research so I can take a huge stack of notes to my next gynaecology appointment, and wondered if anyone was able to share their experiences. I'm looking at potentially freezing some of my eggs, as I have endometriomas. I'm still undecided as to whether I want children
GrouchoSparx
in
Endometriosis UK
4 months ago
Private Dexa Scan
I have been on 40mg pred for 3 weeks for positive GCA.I have agreed to take weekly alendronic acid as advised by my rheumatologist, and took my first dose yesterday. I asked him about having a dexa scan. He says he will arrange a dexa scan when/if I am off steroids, which he says may be in 1 - 1.5
I have been on 40mg pred for 3 weeks for positive GCA.I have agreed to take weekly alendronic acid as advised by my rheumatologist, and took my first dose yesterday. I asked him about having a dexa scan. He says he will arrange a dexa scan when/if I am off steroids, which he says may be in 1 - 1.5
kalgoorlie
in
PMRGCAuk
4 months ago
How to inject Hevert ampoules
I ordered the Hevert B12.A few responses were from people who had used these ampoules. These ampoules contain a lot more liquid than Panpharma ones. Can you tell me how to use them please. Do I inject in two goes or is it safe to inject the full amount at once. I am now doing sub cut but will go back
I ordered the Hevert B12.A few responses were from people who had used these ampoules. These ampoules contain a lot more liquid than Panpharma ones. Can you tell me how to use them please. Do I inject in two goes or is it safe to inject the full amount at once. I am now doing sub cut but will go back
3rdNettydoon
in
Pernicious Anaemia Society
6 months ago
Hypothesis VIIIl
That B12 is a progressive condition with an unknowable age of onset and intermittent to varying degrees. That all symptoms can be caused by B12 deficiency in the cells including hematological symptoms and digestive issues. Symptoms are only measurable at an untreated advanced stage. A few competent
That B12 is a progressive condition with an unknowable age of onset and intermittent to varying degrees. That all symptoms can be caused by B12 deficiency in the cells including hematological symptoms and digestive issues. Symptoms are only measurable at an untreated advanced stage. A few competent
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
B6 and tingling in toes
My brother has been experiencing tingling in his toes. A retired doctor who my brother sees socially told him to have B12 tested, and also B6. I briefly googled B6 and saw reports in general websites that both high and low levels of B6 can cause tingling in toes. My brother told me that his B6 tested
My brother has been experiencing tingling in his toes. A retired doctor who my brother sees socially told him to have B12 tested, and also B6. I briefly googled B6 and saw reports in general websites that both high and low levels of B6 can cause tingling in toes. My brother told me that his B6 tested
WiscGuy
in
Pernicious Anaemia Society
6 months ago
Alendronic Acid
Hi. I've been taking Alendronic Acid for 5.5 years with no problems. Now I'm told I need a treatment break for 2 years. Why would this be? I'm on Letrozole since March 2018 and have been having bone scans every 2 years since 2020.
Hi. I've been taking Alendronic Acid for 5.5 years with no problems. Now I'm told I need a treatment break for 2 years. Why would this be? I'm on Letrozole since March 2018 and have been having bone scans every 2 years since 2020.
Walkingwizard
in
PMRGCAuk
4 months ago
New smaller needle issue
Following recommendations on here. I used 31G 6 mm Needle for subcutaneous, I've previously been using 1inch needles for I M injections. I have just used the new 31G needle and have a lump on my thigh under my skin is this normal? Has the B12 gone in? What have I done wrong??
Following recommendations on here. I used 31G 6 mm Needle for subcutaneous, I've previously been using 1inch needles for I M injections. I have just used the new 31G needle and have a lump on my thigh under my skin is this normal? Has the B12 gone in? What have I done wrong??
pinkpaddleboarder
in
Pernicious Anaemia Society
6 months ago
Loading doses of B12
I will try and keep this as short as possible. 21 years ago GP diagnosed PA and up until 3 years ago I had B12 injections every 12 weeks. 3 years ago the CCG instructed GP's to cut down giving injections to anyone unless they had PA. My jobsworth GP decided to give me a blood test, which was in
I will try and keep this as short as possible. 21 years ago GP diagnosed PA and up until 3 years ago I had B12 injections every 12 weeks. 3 years ago the CCG instructed GP's to cut down giving injections to anyone unless they had PA. My jobsworth GP decided to give me a blood test, which was in
Lilian15
in
Diabetes & Hypertension Help Society
6 months ago
b12 testing
My worry is this. I had low b12 2 years ago (aug 2022) , it came back in the 200s, can’t quite remember. I had loading doses and it came back in 900s. The doctors left it at that. Then in September of this year (2 months ago) it came back at 390 (180-900). Ive been feeling worse and worse ever since
My worry is this. I had low b12 2 years ago (aug 2022) , it came back in the 200s, can’t quite remember. I had loading doses and it came back in 900s. The doctors left it at that. Then in September of this year (2 months ago) it came back at 390 (180-900). Ive been feeling worse and worse ever since
Angie10116
in
Thyroid UK
6 months ago
Using up my B1 Thiamine.
I never got the hang of knowing when I used up my B12 as some experience. Likely as I was also B1 deficient. The only way to determine if you are B1 deficient is to do a trial. The blood test is useless. Functional Deficiency of a Vitamin may be nothing more than a work around for not understanding
I never got the hang of knowing when I used up my B12 as some experience. Likely as I was also B1 deficient. The only way to determine if you are B1 deficient is to do a trial. The blood test is useless. Functional Deficiency of a Vitamin may be nothing more than a work around for not understanding
WIZARD6787
in
Pernicious Anaemia Society
1 month ago
Advice please - B12 auditory/optical neuropathy
Does anyone have any experience of sight and hearing loss with B12. My daughter (27) suffered with low B12 and was nearly reduced to being wheelchair. There is a family history of PA etc. The severity of her symptoms means that she has has been injecting every day and has regained 95% of her mobility
Does anyone have any experience of sight and hearing loss with B12. My daughter (27) suffered with low B12 and was nearly reduced to being wheelchair. There is a family history of PA etc. The severity of her symptoms means that she has has been injecting every day and has regained 95% of her mobility
Corney23uk
in
Pernicious Anaemia Society
6 months ago
GP preparation after bloods
Hi, have had my 7 week blood test after starting Levo for Hashimotos, on 100 mg. I have a GP call to discuss the results on 2 Jan and I am just pre-empting her telling me to stay where I am as TSH has dropped from 6.6 to 1.6. I have felt better in ups and downs but feeling less good this end of the
Hi, have had my 7 week blood test after starting Levo for Hashimotos, on 100 mg. I have a GP call to discuss the results on 2 Jan and I am just pre-empting her telling me to stay where I am as TSH has dropped from 6.6 to 1.6. I have felt better in ups and downs but feeling less good this end of the
Kate261
in
Thyroid UK
6 months ago
monitor my health
Fist time I’ve used MMH and they dont seem to include ranges along with some of the results ie b12. Any thoughts?
Fist time I’ve used MMH and they dont seem to include ranges along with some of the results ie b12. Any thoughts?
bikebabe
in
Thyroid UK
6 months ago
Breakthrough?
Only 15 days in to the successful regiment of 2 mg every 5 hours including setting an alarm and injecting at night. So three times in the last 15 days I essentially skipped a dose. The breakthrough is I was able to observe that there was a 10 to 15 hour delay in the effects of that missed dose. Or
Only 15 days in to the successful regiment of 2 mg every 5 hours including setting an alarm and injecting at night. So three times in the last 15 days I essentially skipped a dose. The breakthrough is I was able to observe that there was a 10 to 15 hour delay in the effects of that missed dose. Or
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
Pins and Needles
I made an error in not being aware that I was reading pins and needles and equating that with the agony and debilitating pain I used to experience. Not the same experience. Part of this error is the treatment protocols are the same no matter the pain and agony level so to physicians the severity is
I made an error in not being aware that I was reading pins and needles and equating that with the agony and debilitating pain I used to experience. Not the same experience. Part of this error is the treatment protocols are the same no matter the pain and agony level so to physicians the severity is
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
In what order please
Hi...I am about to restart SI b12 but my vits are all low too. What is the best order to start things. Thank you 😊
Hi...I am about to restart SI b12 but my vits are all low too. What is the best order to start things. Thank you 😊
49goingon99
in
Pernicious Anaemia Society
6 months ago
NAC and Alpha Lipoic Acid
hi, I have been reading about NAC and Alpha Lipoic Acid for egg n sperm health. Has anyone take these supplements and seen improved outcomes? Can I take these without consulting my clinic? Please let me know. Thank you x
hi, I have been reading about NAC and Alpha Lipoic Acid for egg n sperm health. Has anyone take these supplements and seen improved outcomes? Can I take these without consulting my clinic? Please let me know. Thank you x
Shwet_16
in
Fertility Network UK
4 months ago
1
...
29
30
31
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
21500 results
Pernicious Anaemia Society
13088 results
Cure Parkinson's
1537 results
View top 10 communities
Sort by
Most Relevant
Newest