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Experiences with
Vitamin B12 deficiency
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Confused about folate
Having been doing quite well I have taken quite a sudden turn of dizziness and cognitive problems over the last 3 days. I am receiving 3 times a week B12 injections along with 5mg folic acid. I have also been taking Thorne Basic B complex. Levothyroxine 100/112.5 alternating. What are the issues and
Having been doing quite well I have taken quite a sudden turn of dizziness and cognitive problems over the last 3 days. I am receiving 3 times a week B12 injections along with 5mg folic acid. I have also been taking Thorne Basic B complex. Levothyroxine 100/112.5 alternating. What are the issues and
GW1000
in
Thyroid UK
2 months ago
consultant Gastroenterologist
A phone call yesterday from a consultant Gastroenterologist was very unsuccessful! It lasted less than 5 mins! I explained my symptoms and what my last blood tests results were and I am indeterminate B12 deficient (as per March 24 N.I.C.E guidlines); I also explained it may be my gastric band that’s
A phone call yesterday from a consultant Gastroenterologist was very unsuccessful! It lasted less than 5 mins! I explained my symptoms and what my last blood tests results were and I am indeterminate B12 deficient (as per March 24 N.I.C.E guidlines); I also explained it may be my gastric band that’s
Doris11
in
Pernicious Anaemia Society
2 months ago
advice t3
hi all I have my thyroid removed( overactive) about 15 years ago and have felt tired and generally low mood and put on 2 stone I also feel like muscle aches and joint ache I have explained this on many occasions to my GP and they dutifully arrange my bloods to be done and come back ok although I take
hi all I have my thyroid removed( overactive) about 15 years ago and have felt tired and generally low mood and put on 2 stone I also feel like muscle aches and joint ache I have explained this on many occasions to my GP and they dutifully arrange my bloods to be done and come back ok although I take
Pangersa
in
Thyroid UK
3 months ago
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Morning Live this morning
Have just seen Morning Live this morning. They discussed Nitrous Oxide effects and banning with Dr Xand - and he talked about it's effects on B12 ! This may be useful to those with B12 deficiency who are told that their nerve damage is "something else" or that they do not have nerve damage at all.
Have just seen Morning Live this morning. They discussed Nitrous Oxide effects and banning with Dr Xand - and he talked about it's effects on B12 ! This may be useful to those with B12 deficiency who are told that their nerve damage is "something else" or that they do not have nerve damage at all.
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
8 months ago
Nicotinamide supplement
Hello all. Thanks to all who’ve shared their wisdom over the years. I hope the following can help others in this forum. We recently started our PWP on Nicotinamide (500mg, A squared fm Amazon) and switched from B12 to a B complex (Pure Encapsulations fm Amazon). There has been an improvement in
Hello all. Thanks to all who’ve shared their wisdom over the years. I hope the following can help others in this forum. We recently started our PWP on Nicotinamide (500mg, A squared fm Amazon) and switched from B12 to a B complex (Pure Encapsulations fm Amazon). There has been an improvement in
haoster
in
Cure Parkinson's
2 months ago
Jaundice
Has anyone with PA or very low B12 suffered from Jaundice , I read somewhere that this can be a common occurrence , many thanks , Will.
Has anyone with PA or very low B12 suffered from Jaundice , I read somewhere that this can be a common occurrence , many thanks , Will.
wp69
in
Pernicious Anaemia Society
8 months ago
Injections
Hello everyone. I'm waiting for NHS appt with endo which is 20th May. I don't know how much longer I can stay in work feeling like i do atm. I'm exhausted all the time. I cant afford private treatment for B12. I already pay private consultants for menopause care so I just can't add on anymore.
Hello everyone. I'm waiting for NHS appt with endo which is 20th May. I don't know how much longer I can stay in work feeling like i do atm. I'm exhausted all the time. I cant afford private treatment for B12. I already pay private consultants for menopause care so I just can't add on anymore.
RedOne1
in
Pernicious Anaemia Society
2 months ago
milk thistle - t3 - conflicting reports
hi there my liver enzymes 151 alt max is 35 so very very high - last November were 48. AST 58 (max is 35) I read that milk thistle can help liver - and help conversion but also lowers t3 ? I’m Taking NAC 1800mg and inflammation is negligible. ESR 6 and CRP 0.6 ! 👌 ferritin 121 B12 902 and
hi there my liver enzymes 151 alt max is 35 so very very high - last November were 48. AST 58 (max is 35) I read that milk thistle can help liver - and help conversion but also lowers t3 ? I’m Taking NAC 1800mg and inflammation is negligible. ESR 6 and CRP 0.6 ! 👌 ferritin 121 B12 902 and
Chouchou1234
in
Thyroid UK
2 months ago
Hypothyroidism Help please - Blood test results
Hello. I’ve had hypothyroidism for years, (current GP system doesn’t let me view medical history :( so I can’t give you the year ) but never looked as if I do, eg current weight is 7st 11 lb and I’m 5’ 4” tall. I’ve been on Levothyroxine, was on 75mcg then last year it was increased to 100mcg I still
Hello. I’ve had hypothyroidism for years, (current GP system doesn’t let me view medical history :( so I can’t give you the year ) but never looked as if I do, eg current weight is 7st 11 lb and I’m 5’ 4” tall. I’ve been on Levothyroxine, was on 75mcg then last year it was increased to 100mcg I still
LizzieAFib
in
Thyroid UK
8 months ago
Great doctor!
I want to share my experience with my lovely new doctor! I thought from my conversation that he had PA like me. It turns out itis a very rare condition that took years of frustration like us to be diagnosed and has left him with intense chronic pain and debilitating exhaustion He can only work 3days
I want to share my experience with my lovely new doctor! I thought from my conversation that he had PA like me. It turns out itis a very rare condition that took years of frustration like us to be diagnosed and has left him with intense chronic pain and debilitating exhaustion He can only work 3days
brenanddave
in
Pernicious Anaemia Society
8 months ago
Skin issues and b12
Hi guys! I am wondering if anyone here has experienced a continuous thickening of skin over their face. It started like dermatitis and was very itchy Now I am finding that the itch has gone but the skin over a couple of days after exfoliating starts to become like a dry mask and the only thing that softens
Hi guys! I am wondering if anyone here has experienced a continuous thickening of skin over their face. It started like dermatitis and was very itchy Now I am finding that the itch has gone but the skin over a couple of days after exfoliating starts to become like a dry mask and the only thing that softens
brenanddave
in
Pernicious Anaemia Society
8 months ago
Iron levels
Had an awesome break through with a locum GP who checked my iron levels, found them to be low and gave me Ferrous Sulphate. It’s worked wonders. Yay! However, three months in and my normal GP has asked me to go for another blood test to check my iron levels now and won’t give me further ferrous sulphate
Had an awesome break through with a locum GP who checked my iron levels, found them to be low and gave me Ferrous Sulphate. It’s worked wonders. Yay! However, three months in and my normal GP has asked me to go for another blood test to check my iron levels now and won’t give me further ferrous sulphate
DrPaulHT
in
Restless Legs Syndrome
6 months ago
Could This Be Thyroid?
I know what you're going to say... do these tests and just wait and see... I'm very anxious with symptoms right now and just looking for some thoughts. Although I am currently awaiting investigations into what I'm fearful might be a liver or pancreas problem (you know what I'm saying), I'm hoping some
I know what you're going to say... do these tests and just wait and see... I'm very anxious with symptoms right now and just looking for some thoughts. Although I am currently awaiting investigations into what I'm fearful might be a liver or pancreas problem (you know what I'm saying), I'm hoping some
Mrs_Walsh
in
Thyroid UK
2 months ago
Starting B12 injections
Hi I am hypothyroid, on Armour Thyroid but still dog tired all the time. I’m on HRT and I have horrible peripheral neuropathy in my feet and lower legs. I can’t walk well or for long at all. My gait feels really off. I’m stiff and have no muscular strength in my legs anymore so crouching down is impossible
Hi I am hypothyroid, on Armour Thyroid but still dog tired all the time. I’m on HRT and I have horrible peripheral neuropathy in my feet and lower legs. I can’t walk well or for long at all. My gait feels really off. I’m stiff and have no muscular strength in my legs anymore so crouching down is impossible
FancyPants54
in
Pernicious Anaemia Society
8 months ago
Supplements before Diagnostic Blood Tests - Newbie Question
Hello I’ve had unexplained fatigue and neurological symptoms for 10+ years. I recently found out about PA. The symptoms fit my profile and when I mentioned PA to my mum she remembered that two of my great aunts had it. I have Hashimoto’s and psoriasis. So it looks like PA is worth investigating. I
Hello I’ve had unexplained fatigue and neurological symptoms for 10+ years. I recently found out about PA. The symptoms fit my profile and when I mentioned PA to my mum she remembered that two of my great aunts had it. I have Hashimoto’s and psoriasis. So it looks like PA is worth investigating. I
Harpee
in
Pernicious Anaemia Society
8 months ago
Seeking reassurance on fatigue and recovery
Hi everyone, I've been managing a rollercoaster of symptoms lately and wanted to see if anyone has experienced something similar.
Onset
: Since December 2022, I had recurring, short episodes of fatigue. About once every month, I would feel it coming on (almost like a cold, but with no sinus/respiratory
Hi everyone, I've been managing a rollercoaster of symptoms lately and wanted to see if anyone has experienced something similar.
Onset
: Since December 2022, I had recurring, short episodes of fatigue. About once every month, I would feel it coming on (almost like a cold, but with no sinus/respiratory
chonkytonk
in
Pernicious Anaemia Society
2 months ago
British story vaguely about B12 and dementia
https://www.express.co.uk/life-style/health/1695311/
vitamin
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b12
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deficiency
-symptoms-injection-foods
https://www.express.co.uk/life-style/health/1695311/
vitamin
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b12
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deficiency
-symptoms-injection-foods
WiscGuy
in
Pernicious Anaemia Society
2 years ago
Levo being reduced, but feeling under medicated.
Hi, I would greatly appreciate some input on my test results! I have been hypothyroid for over 17 years, and have always adhered unquestioningly to the doctor’s guidance, assuming that they were doing all they could. Having found this site, however, I am starting to wonder if there is more that can
Hi, I would greatly appreciate some input on my test results! I have been hypothyroid for over 17 years, and have always adhered unquestioningly to the doctor’s guidance, assuming that they were doing all they could. Having found this site, however, I am starting to wonder if there is more that can
Bbmamma
in
Thyroid UK
2 months ago
Some more results
I’ve had these results and all have back in range but wondered what people’s thoughts were as some were on the lower side. Thank you! Serum vitamin B12: 426 ng/L Normal range: 187 to 883 Serum folate: 5.2 ug/L Normal range: 3.1 to 20.5 Serum ferritin: 42 ng/mL Normal range: 20 to 235
I’ve had these results and all have back in range but wondered what people’s thoughts were as some were on the lower side. Thank you! Serum vitamin B12: 426 ng/L Normal range: 187 to 883 Serum folate: 5.2 ug/L Normal range: 3.1 to 20.5 Serum ferritin: 42 ng/mL Normal range: 20 to 235
Lollipop93
in
Thyroid UK
2 months ago
PCOS HASHIMOTOS FBC RESULTS ADVICE NEEDED
Hello,I'm a 26 years old woman with two young children aged 2 and 3. I've had Hashitmotos disease since 2017 and suffered from postpartum thyroiditis after both pregnancys. I also suffer eith PCOS for over 10 years. I've recently come off the contraceptive pill (progesterone only) I was only on it
Hello,I'm a 26 years old woman with two young children aged 2 and 3. I've had Hashitmotos disease since 2017 and suffered from postpartum thyroiditis after both pregnancys. I also suffer eith PCOS for over 10 years. I've recently come off the contraceptive pill (progesterone only) I was only on it
Serendipity97
in
PCOS UK (Verity)
3 months ago
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