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Contribute your story to the Covid-19 Inquiry
Every Story Matters is your chance to share your experience of the pandemic with the UK Covid-19 Inquiry. Every story and experience is valuable in shaping the Inquiry’s recommendations for the future. Help them to hear the voices of people with lupus and their friends and loved ones. Your experience
Every Story Matters is your chance to share your experience of the pandemic with the UK Covid-19 Inquiry. Every story and experience is valuable in shaping the Inquiry’s recommendations for the future. Help them to hear the voices of people with lupus and their friends and loved ones. Your experience
Debbie_kinsey
Administrator
in
LUPUS UK
11 months ago
Pneumonia vacinne
I've been asked by my doctor's clinic if I'd like the pneumonia vacinne as I'm now 65.I have hypothyroidism and want to know if it's ok to take this vacinne with this condition. Just being cautious. Thank you.
I've been asked by my doctor's clinic if I'd like the pneumonia vacinne as I'm now 65.I have hypothyroidism and want to know if it's ok to take this vacinne with this condition. Just being cautious. Thank you.
292426
in
Thyroid UK
1 year ago
What to do
Hello, I have had one failed round of IVF on the NHS and feeling deflated if its worth it to carry on. I have a low AMH for my age (33) and my husband has poor morphology below 1%. We have tried for two years and done life style changes and supplements. We got 4 eggs and managed to get one blastocyst
Hello, I have had one failed round of IVF on the NHS and feeling deflated if its worth it to carry on. I have a low AMH for my age (33) and my husband has poor morphology below 1%. We have tried for two years and done life style changes and supplements. We got 4 eggs and managed to get one blastocyst
Lionkingblue
in
Fertility Network UK
4 months ago
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US doctor discusses ways to prevent PD
US doctor discusses ways to prevent PD. The estimate is 15% of PwP have a genetic cause and 85% is from environmental exposure to chemicals. Some have been discussed here. I don't think TCE has been. It was used in dry cleaning and semiconductor processing, but for many years now the US and Japan
US doctor discusses ways to prevent PD. The estimate is 15% of PwP have a genetic cause and 85% is from environmental exposure to chemicals. Some have been discussed here. I don't think TCE has been. It was used in dry cleaning and semiconductor processing, but for many years now the US and Japan
pvw2
in
Cure Parkinson's
1 year ago
1st failed round
hey there, wondering if anyone has had success with ICSI? We had 13 good quality eggs but none fertilised so think we need ICSI. Hoping there are some success stories with people like us?
hey there, wondering if anyone has had success with ICSI? We had 13 good quality eggs but none fertilised so think we need ICSI. Hoping there are some success stories with people like us?
Newcastle12
in
Fertility Network UK
4 months ago
31 eggs but only 1 blastocyst
I’m wondering if anyone has had a similar experience and can offer any advice. After natural 1st baby, struggled to conceive second time. We were recommended ICSI due to partner’s low mobility count. I have high AMH (30) at age 38 and stims went (too) well with 31 eggs collected, 24 of which were mature
I’m wondering if anyone has had a similar experience and can offer any advice. After natural 1st baby, struggled to conceive second time. We were recommended ICSI due to partner’s low mobility count. I have high AMH (30) at age 38 and stims went (too) well with 31 eggs collected, 24 of which were mature
K_LNB
in
Fertility Network UK
4 months ago
Pegasys Injection Help
Anyone use insulin needles to inject Pegasys? It appears to be exactly the same other than it says "units" where my prescription calls out "mls". However they both measure out the same. .25ml = 25units Thanks!
Anyone use insulin needles to inject Pegasys? It appears to be exactly the same other than it says "units" where my prescription calls out "mls". However they both measure out the same. .25ml = 25units Thanks!
russkatt
in
MPN Voice
1 year ago
Having a Covid Booster vaccination and Flu vaccination at the same time with Lupus (SLE)
Hi everyone, I need to get a Covid booster vaccination and also a Flu jab. The WHO suggests that it’s safe to have both vaccinations at the same time (in different arms) but I was wondering if there was anyone here with personal experience of having SLE and getting both of these vaccinations. Thanks
Hi everyone, I need to get a Covid booster vaccination and also a Flu jab. The WHO suggests that it’s safe to have both vaccinations at the same time (in different arms) but I was wondering if there was anyone here with personal experience of having SLE and getting both of these vaccinations. Thanks
MariaVT
in
LUPUS UK
8 months ago
IVF and covid
Hello wonderful people, I’ve just started my second round of IVF after a failed transfer and no freezable embryos. Currently on day 3 of down regulation and have only gone and tested positive for covid. As this round has already been delayed due to a functional cyst and waiting for it to clear I’m
Hello wonderful people, I’ve just started my second round of IVF after a failed transfer and no freezable embryos. Currently on day 3 of down regulation and have only gone and tested positive for covid. As this round has already been delayed due to a functional cyst and waiting for it to clear I’m
Aansey
in
Fertility Network UK
11 months ago
Finance in UK vs fitting treatment abroad around work? 🤷🏻♀️
Hi all, hope blue Monday isn’t too blue! I’m currently waiting for 2nd biopsy results from the Tommy’s clinic in Warwick to know what treatment they might recommend for my “robost womb” (charming!) to then be ready to go go go! I have logged into my Gaia account today to check that’s all ready and
Hi all, hope blue Monday isn’t too blue! I’m currently waiting for 2nd biopsy results from the Tommy’s clinic in Warwick to know what treatment they might recommend for my “robost womb” (charming!) to then be ready to go go go! I have logged into my Gaia account today to check that’s all ready and
Darcy1996
in
Fertility Network UK
4 months ago
Edema post transplant
So one year post transplant and what a complete shitshow.It has been nothing but one thing after another.First got covid from hospital when transplanted,then when being treated in hospital for that picked up COP and had 2 weeks in isolation on iv antibiotics 3 times daily.Finally got home suffer horrible
So one year post transplant and what a complete shitshow.It has been nothing but one thing after another.First got covid from hospital when transplanted,then when being treated in hospital for that picked up COP and had 2 weeks in isolation on iv antibiotics 3 times daily.Finally got home suffer horrible
Parkerbarker
in
Kidney Transplant
11 months ago
The Flu Jab.
The Flu Jab. Good afternoon everyone. I went along along for my yearly Flu Jab yesterday morning early doors and had mine done. I had a fairly busy day so when my jab was complete I put it to the back of my mind. As yesterday went on I felt a little more tired that usual so I went to bed a little earlier
The Flu Jab. Good afternoon everyone. I went along along for my yearly Flu Jab yesterday morning early doors and had mine done. I had a fairly busy day so when my jab was complete I put it to the back of my mind. As yesterday went on I felt a little more tired that usual so I went to bed a little earlier
Joseph260268
in
Lung Conditions Community Forum
8 months ago
IVF in Spain for male factor
Hi All,I've decided to go to Spain for ICSI IVF mainly because we want to try fresh surgically retrieved sperm (through sync egg retrieval and TESA/PESA) and our local clinic doesn't offer this option, only freezing sperm in advance. Can you please private message me with your feedback and results from
Hi All,I've decided to go to Spain for ICSI IVF mainly because we want to try fresh surgically retrieved sperm (through sync egg retrieval and TESA/PESA) and our local clinic doesn't offer this option, only freezing sperm in advance. Can you please private message me with your feedback and results from
Anonimatoz
in
Fertility Network UK
5 months ago
anti anxiety with Eliquis
I started having a fibs in 2007 after having Lyme disease and also possibly too much thyroid medication. I’ve managed it all these years and after I turned 65 2 1/2 years ago, the doctor started pressuring me to go on blood thinner because of stroke risk. my score is only a two and it’s a gray area for
I started having a fibs in 2007 after having Lyme disease and also possibly too much thyroid medication. I’ve managed it all these years and after I turned 65 2 1/2 years ago, the doctor started pressuring me to go on blood thinner because of stroke risk. my score is only a two and it’s a gray area for
Fblue
in
Atrial Fibrillation Support
8 months ago
Evaluating Success
See profile for current understanding of my life long B12 deficiency and self designed supplementation regiment. [u]July 2023[/u] Over time I changed by supplementation starting 90 days ago. Before that I was improving to some degree. I used the pain from Peripheral Neuropathy to monitor improvement
See profile for current understanding of my life long B12 deficiency and self designed supplementation regiment. [u]July 2023[/u] Over time I changed by supplementation starting 90 days ago. Before that I was improving to some degree. I used the pain from Peripheral Neuropathy to monitor improvement
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
Prostap injections and bleeding
hello everyone, I’m having a bit of a tough time at the moment, I started prostap injections last year in may without HRT until December, and up until present day having the injection every three months with my daily tibilone tablet. The thing is when I started everything was fine no pain, no bleeding
hello everyone, I’m having a bit of a tough time at the moment, I started prostap injections last year in may without HRT until December, and up until present day having the injection every three months with my daily tibilone tablet. The thing is when I started everything was fine no pain, no bleeding
Leenie0811
in
Endometriosis UK
9 months ago
Sore throat 1dp5dt (FET)
Hi guys, So I feel like I’m going nuts… I’ve had a verrry slight sore throat in the few days leading up to my 2nd FET. Nothing bad, I swear I had it leading up to my first FET in December (I was so worried about getting covid and it being cancelled). But of course both times it was not covid so have
Hi guys, So I feel like I’m going nuts… I’ve had a verrry slight sore throat in the few days leading up to my 2nd FET. Nothing bad, I swear I had it leading up to my first FET in December (I was so worried about getting covid and it being cancelled). But of course both times it was not covid so have
Esb27
in
Fertility Network UK
11 months ago
Covid, meds do they help?
I have CKD stage 3a, I just got covid. I was thinking about calling my doctor tomorrow to see if I need meds to help. I have body aches, headache, and sore throat. I was vaccinated in Nov. Not sure if it’s worth it to take meds and if it hurts the kidneys..could you share your experiences?
I have CKD stage 3a, I just got covid. I was thinking about calling my doctor tomorrow to see if I need meds to help. I have body aches, headache, and sore throat. I was vaccinated in Nov. Not sure if it’s worth it to take meds and if it hurts the kidneys..could you share your experiences?
Sarah_402
in
Kidney Disease
11 months ago
Low AMH downhearted 4th round
Hi, I have had 3 rounds of IVF in the past 20months and am now 35yrs of age. One resulted in a missed miscarriage at 7weeks and the other two I had nothing to transfer as we have also undergone genetic testing due to an issue on my side. We've been very fortunate in that these cycles were NHS funded
Hi, I have had 3 rounds of IVF in the past 20months and am now 35yrs of age. One resulted in a missed miscarriage at 7weeks and the other two I had nothing to transfer as we have also undergone genetic testing due to an issue on my side. We've been very fortunate in that these cycles were NHS funded
Deltasunshine
in
Fertility Network UK
5 months ago
Not impressed
Decided to go through my medical notes such as they are, and blood tests again now I'm more sensible again. All hospital consultations are missed off and consequently diagnoses. Oh, and there is a gp consultation noted that never took place. Basically my notes appear to be a mess. What really
Decided to go through my medical notes such as they are, and blood tests again now I'm more sensible again. All hospital consultations are missed off and consequently diagnoses. Oh, and there is a gp consultation noted that never took place. Basically my notes appear to be a mess. What really
Wheat
in
Pernicious Anaemia Society
7 months ago
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