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Venclexta
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Heart Issues and Venclexta?
Has anyone had problems with their heart racing on
Venclexta
? My husband was diagnosed with CLL 17p deletion 53 mutation In 2018. Over the past 5, almost 6 years, he’s been treated with Ibrutinib,
Venclexta
, and Acalabrutinib.
Has anyone had problems with their heart racing on
Venclexta
? My husband was diagnosed with CLL 17p deletion 53 mutation In 2018. Over the past 5, almost 6 years, he’s been treated with Ibrutinib,
Venclexta
, and Acalabrutinib.
KKwtx
in
CLL Support
6 months ago
Cll to Hodgkins lymphoma
They then added
Venclexta
in Dec. He still wasn’t getting better, so after a pet scan and lymph biopsy, it was determined he now also has Hodgkin’s lymphoma. Apparently, this is a very rare (but treatable) transformation. He has had 3 chemo treatments so far (AVD and Keytruda) every other week.
They then added
Venclexta
in Dec. He still wasn’t getting better, so after a pet scan and lymph biopsy, it was determined he now also has Hodgkin’s lymphoma. Apparently, this is a very rare (but treatable) transformation. He has had 3 chemo treatments so far (AVD and Keytruda) every other week.
Junebug20
in
CLL Support
8 days ago
CLL Patients -- Venclexta
I am looking for CLL patients in the U.S. who have been diagnosed within 3-4 years and who are taking
Venclexta
as their treatment. I work with an organization (Patient Power) that shares patient stories to help advocate and educate others on various cancers.
I am looking for CLL patients in the U.S. who have been diagnosed within 3-4 years and who are taking
Venclexta
as their treatment. I work with an organization (Patient Power) that shares patient stories to help advocate and educate others on various cancers.
AlexCam
in
CLL Support
5 months ago
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CLL GUY
got very sick, emergency room twice, then they put me on
Venclexta
, which has been working very well so far. My numbers are good right now. very happy about that. but I know it might be only short term and I might get sick again at any time. Wishing everyone the best.
got very sick, emergency room twice, then they put me on
Venclexta
, which has been working very well so far. My numbers are good right now. very happy about that. but I know it might be only short term and I might get sick again at any time. Wishing everyone the best.
bandit44
in
CLL Support
2 months ago
Venclexta & Obinutuzumab not working?
I am getting ready for my 6th infusion, all my bloodwork is practically normal. I am Trisomy 12 with notch 1, NRAS, ATM and MITF. Before I started treatment my wbc had dropped on its own from 18,000 to 11,000. And my lymph nodes in my neck and armpits had started to reduce in size. They started me on
I am getting ready for my 6th infusion, all my bloodwork is practically normal. I am Trisomy 12 with notch 1, NRAS, ATM and MITF. Before I started treatment my wbc had dropped on its own from 18,000 to 11,000. And my lymph nodes in my neck and armpits had started to reduce in size. They started me on
Corgidad
in
CLL Support
4 months ago
GAZYVA & VENCLEXTA…I thought it wasn’t working. Apparently it was, extremely well
GAZYVA and
Venclexta
is no joke. Now, I still have to figure out what my pain is…
GAZYVA and
Venclexta
is no joke. Now, I still have to figure out what my pain is…
Corgidad
in
CLL Support
4 months ago
What’s next?
After year one of
Venclexta
, my Lymphocytes were at 12.9% with a MRD of 2.5%. Test showed abnormal expressions as follows: CD5 mod, CD19 mod, CD20 dim, CD22 dim, CD43 mod, CD79b dim and CD81 dim. After two years on
Venclexta
, this past MRD showed 20% Lymphocytes and a MRD of 2.81%.
After year one of
Venclexta
, my Lymphocytes were at 12.9% with a MRD of 2.5%. Test showed abnormal expressions as follows: CD5 mod, CD19 mod, CD20 dim, CD22 dim, CD43 mod, CD79b dim and CD81 dim. After two years on
Venclexta
, this past MRD showed 20% Lymphocytes and a MRD of 2.81%.
Pokerguy
in
CLL Support
8 months ago
Venclexta dosing schedule question.
I am trying to figure out when I will be done with my
Venclexta
but I'm kind of confused. I started the ramp up on 11/17/2022. I started the Gazyva infusions on 10/27 & 28. Is there anyone who is knowledgeable at figuring this out?
I am trying to figure out when I will be done with my
Venclexta
but I'm kind of confused. I started the ramp up on 11/17/2022. I started the Gazyva infusions on 10/27 & 28. Is there anyone who is knowledgeable at figuring this out?
Gradyboy
in
CLL Support
8 months ago
Venatoclax mono therapy
I have had fewer side effects than most people on
Venclexta
get, in fact on any drugs I've taken. I had a short remission after the original obin with a little bit of Chemo. Then took ibrutinib and a holiday after a half year, with no progression.
I have had fewer side effects than most people on
Venclexta
get, in fact on any drugs I've taken. I had a short remission after the original obin with a little bit of Chemo. Then took ibrutinib and a holiday after a half year, with no progression.
onu1tadi2
in
CLL Support
4 months ago
Venclexta mono therapy vs Venclexta plus gazyva
I was treated with Ibrutinib for five years until resistance developed.Following with
venclexta
mono therapy for about a year, stopped due to pandemic. Remission lasted 2 years and now I am faced with a choice that has me very worried.
I was treated with Ibrutinib for five years until resistance developed.Following with
venclexta
mono therapy for about a year, stopped due to pandemic. Remission lasted 2 years and now I am faced with a choice that has me very worried.
ralphfelo
in
CLL Support
9 months ago
Venclexta
Has anyone gained weight on Ven? When starting Ven I had diarrhea and lost literally 15 lbs. After a month, I became and remained constipated and have not only regained the 15 lbs. but also an aditional 10 lbs. despite increased exercise and no change in calorie count. Any suggestions or ideas
Has anyone gained weight on Ven? When starting Ven I had diarrhea and lost literally 15 lbs. After a month, I became and remained constipated and have not only regained the 15 lbs. but also an aditional 10 lbs. despite increased exercise and no change in calorie count. Any suggestions or ideas
skipro
in
CLL Support
10 months ago
Vertigo and Venclexta?
My husband is starting cycle 12 of
Venclexta
, reduced to 200mg /day due to 2 bouts of Neutropenia, and has recently experienced Vertigo twice. The first time, I did not associate this with the treatment; however, it seemed peculiar when it happened a second time, only eight weeks later.
My husband is starting cycle 12 of
Venclexta
, reduced to 200mg /day due to 2 bouts of Neutropenia, and has recently experienced Vertigo twice. The first time, I did not associate this with the treatment; however, it seemed peculiar when it happened a second time, only eight weeks later.
lisakc1
in
CLL Support
9 months ago
Wearing a mask!
She is currently on
Venclexta
. My question I am sure has been discussed before. She goes in frequently for some infusions but mostly just taking the pill. The question is that none of the medical support staff wear masks. We always do for almost every indoor event such as stores, church, etc.
She is currently on
Venclexta
. My question I am sure has been discussed before. She goes in frequently for some infusions but mostly just taking the pill. The question is that none of the medical support staff wear masks. We always do for almost every indoor event such as stores, church, etc.
Ecalv
in
CLL Support
9 months ago
It Had To Happen!! Covid-19 Strikes!
It has been 18 months since I completed my CLL Obinutuzumab plus
Venclexta
treatment protocol. I was in remission. I have had four Covid-19 vaccinations and two Evusheld vaccinations over that time. So, last week is the first time I ventured into the public transportation system in 2-1/2 years.
It has been 18 months since I completed my CLL Obinutuzumab plus
Venclexta
treatment protocol. I was in remission. I have had four Covid-19 vaccinations and two Evusheld vaccinations over that time. So, last week is the first time I ventured into the public transportation system in 2-1/2 years.
DanBro1
in
CLL Support
7 months ago
What can happen with V+O in 3 months
Except for mild constipation with
venclexta
,solved with mira-lax, I have had
no (ZERO) side effects
.
Except for mild constipation with
venclexta
,solved with mira-lax, I have had
no (ZERO) side effects
.
Rico49
in
CLL Support
7 months ago
anybody achieved good blood results with venclexta in 6 months and stopped treatment?
I was on acalabrutinib for 1,5 years, then dr switched me on
venclexta
. My blood results are completely normal for 3 months and I want to stop treatmentbecause of side effects. My next appointment with dr in august , I hope he will take me off the drug. Any thoughts? Thanks.
I was on acalabrutinib for 1,5 years, then dr switched me on
venclexta
. My blood results are completely normal for 3 months and I want to stop treatmentbecause of side effects. My next appointment with dr in august , I hope he will take me off the drug. Any thoughts? Thanks.
Belkin123
in
CLL Support
11 months ago
Water or how much water on Gazyva?
An AI search on Microsoft first took me to drug .com but it went directly to
Venclexta
I guess since they are generally given together.
An AI search on Microsoft first took me to drug .com but it went directly to
Venclexta
I guess since they are generally given together.
Rico49
in
CLL Support
10 months ago
when start venclexta
I have an infusion each week for two weeks then start the
venclexta
and continue on with it all thru my Obinutuzumab infusions and beyond. But here’s my question. Is this the common process? I have thought that I was to do all my infusions first then start the pills.
I have an infusion each week for two weeks then start the
venclexta
and continue on with it all thru my Obinutuzumab infusions and beyond. But here’s my question. Is this the common process? I have thought that I was to do all my infusions first then start the pills.
sept149
in
CLL Support
11 months ago
venclexta cost
I saw the price of
venclexta
on the net. It’s insane!! I have US Medicare part a and b only. I think I have no insurance for this drug. What am I supposed to do? Use up what savings I have. Sell my house and move into government housing. Am I missing something here ?
I saw the price of
venclexta
on the net. It’s insane!! I have US Medicare part a and b only. I think I have no insurance for this drug. What am I supposed to do? Use up what savings I have. Sell my house and move into government housing. Am I missing something here ?
sept149
in
CLL Support
1 year ago
Great Change In Part D in 2024
This change will without question help all of us who take the grossly expensive Novel Targeted Therapeutic pills, which includes Imbruvica (Imbrutinib),
Venclexta
, etc. It will also help all of us on Medicare Part D with any other grossly expensive drugs.
This change will without question help all of us who take the grossly expensive Novel Targeted Therapeutic pills, which includes Imbruvica (Imbrutinib),
Venclexta
, etc. It will also help all of us on Medicare Part D with any other grossly expensive drugs.
wizzard166
in
CLL Support
8 months ago
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