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First appointment with nhs Rheumy
Hi, I had my first nhs appointment with the Rheumy who is based at the same health centre as the one I have seen privately. He did say to me that he was aware that I had seen one, I had already had my bloods done prior to the appointment. He said my RF was 170 which is high, he gave me two booklets
Hi, I had my first nhs appointment with the Rheumy who is based at the same health centre as the one I have seen privately. He did say to me that he was aware that I had seen one, I had already had my bloods done prior to the appointment. He said my RF was 170 which is high, he gave me two booklets
Wonderfullifeandmore
in
PMRGCAuk
24 days ago
Chemo Side Effects
On lupron since 2011, recurrance, SPLASH TRIAL, Provenge NOv 2023. Strarted on Taxatere (doxcetel) in March. My MO put me on an 18 infusion schedule (I believe 1/2 normal dose) because of my age, 84. I get infused ever week for 3 weeks, then 1 week off and continue for 28 infusions. I have had 6 infusions
On lupron since 2011, recurrance, SPLASH TRIAL, Provenge NOv 2023. Strarted on Taxatere (doxcetel) in March. My MO put me on an 18 infusion schedule (I believe 1/2 normal dose) because of my age, 84. I get infused ever week for 3 weeks, then 1 week off and continue for 28 infusions. I have had 6 infusions
Joeym1040
in
Advanced Prostate Cancer
25 days ago
Hemosiderin staining?
Hi, Has anyone else experienced this? I’ve woken up today with rust like staining, mainly on my left hand with a little on my right. No logical cause from anything I’ve touched. Googling seems to suggest it is hemosiderin staining, though they are mainly US sites. This could make sense as I still
Hi, Has anyone else experienced this? I’ve woken up today with rust like staining, mainly on my left hand with a little on my right. No logical cause from anything I’ve touched. Googling seems to suggest it is hemosiderin staining, though they are mainly US sites. This could make sense as I still
Allotmental
in
Vasculitis UK
1 month ago
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Newbie help for my partner
Hi All, My wife has just been diagnosed with raynauds by the doctor ... her hands get so cold they hurt and so do her feet How do you all manage it in the colder months?... tips, tricks, products We've suspected she had it for a while but it's gotten worse and painful when she warms up. Shes against
Hi All, My wife has just been diagnosed with raynauds by the doctor ... her hands get so cold they hurt and so do her feet How do you all manage it in the colder months?... tips, tricks, products We've suspected she had it for a while but it's gotten worse and painful when she warms up. Shes against
Chip_y2kuk
in
Scleroderma & Raynaud's UK (SRUK)
1 month ago
Eliquis for Antiphospholipid syndrome?
I had a pulmonary embolism and was prescribed Eliquis 5 mg 2xday. Does anyone else take Eliquis for pulmonary embolism? Are you experiencing any side effects?
I had a pulmonary embolism and was prescribed Eliquis 5 mg 2xday. Does anyone else take Eliquis for pulmonary embolism? Are you experiencing any side effects?
LavenderLemonade
in
Hughes Syndrome APS Forum
1 month ago
apixiban and tumeric
I stopped taking tumeric and related supplements when I started taking apixiban on advice of Anti-Coagulation clinic. As a result of stopping tumeric, i got really bad joint pains over past four years. Is there really a possibility that I can actually take tumeric while taking apixiban? I do
I stopped taking tumeric and related supplements when I started taking apixiban on advice of Anti-Coagulation clinic. As a result of stopping tumeric, i got really bad joint pains over past four years. Is there really a possibility that I can actually take tumeric while taking apixiban? I do
kayberry
in
Atrial Fibrillation Support
1 month ago
Work on healing balance
My balance is no longer a major issue. I am working on improving it. I do work on my core. I consider my balance issues to be a neurological issue. I balance on both feet or one foot and focus on one point. Then I move my eyes back and forth in focus and same up and down. I also move my head to change
My balance is no longer a major issue. I am working on improving it. I do work on my core. I consider my balance issues to be a neurological issue. I balance on both feet or one foot and focus on one point. Then I move my eyes back and forth in focus and same up and down. I also move my head to change
WIZARD6787
in
Pernicious Anaemia Society
1 month ago
Restless legs syndrome
Hi. Wondering if anyone knows if the following pain meds would trigger my rls.In south africa it's called synaleve: meprobamate and codeine Xefo: lornoxicam I'm not sure what UK brands are but these are the ingredients Many thanks
Hi. Wondering if anyone knows if the following pain meds would trigger my rls.In south africa it's called synaleve: meprobamate and codeine Xefo: lornoxicam I'm not sure what UK brands are but these are the ingredients Many thanks
AzraCG
in
Restless Legs Syndrome
1 month ago
Diagnosed with Venous thromboembolism
End of last year I felt really bad and over Xmas time really struggling to breath at times. Wen to the doctor and was diagnosed with High Blood pressure. I was already on tablets so they gave me a higher doses of Candesartan. First week in January my leg really started to hurt and as I had Deep Vein
End of last year I felt really bad and over Xmas time really struggling to breath at times. Wen to the doctor and was diagnosed with High Blood pressure. I was already on tablets so they gave me a higher doses of Candesartan. First week in January my leg really started to hurt and as I had Deep Vein
esquin
in
Anticoagulation Support
1 month ago
Anticoagulant changes
I wonder if any of you can advise me please on anticoagulants. I have been on Apixaban for some years and recently when I have had my repeat prescription from the pharmacy the manufacturer of Apixaban has changed four times. With the last one I experienced light headedness and with all of them tiredness
I wonder if any of you can advise me please on anticoagulants. I have been on Apixaban for some years and recently when I have had my repeat prescription from the pharmacy the manufacturer of Apixaban has changed four times. With the last one I experienced light headedness and with all of them tiredness
Ashburton51
in
Atrial Fibrillation Support
1 month ago
alcohol with permanent AF
I am in permanent AF controlled with apixoban and verapamil have never had more than Ihalf a glass of wine probably a week however since being diagnosed have not touched any as am paranoid about making things worse a a chemist told me I was being overcautious when I asked about garlic does any one
I am in permanent AF controlled with apixoban and verapamil have never had more than Ihalf a glass of wine probably a week however since being diagnosed have not touched any as am paranoid about making things worse a a chemist told me I was being overcautious when I asked about garlic does any one
KelliEAnniE
in
Atrial Fibrillation Support
1 month ago
Incidence of Large Vessel Vasculitis in late diagnosis of PMR
When I read members’ experiences of prompt PMR diagnoses I’m truly pleased for them but I have to admit to feeling a degree of envy. My diagnosis arrived ‘only’ five months after onset of symptoms; I say ‘only’ because I know that for others the wait was far, far longer: PMRpro, for example, was without
When I read members’ experiences of prompt PMR diagnoses I’m truly pleased for them but I have to admit to feeling a degree of envy. My diagnosis arrived ‘only’ five months after onset of symptoms; I say ‘only’ because I know that for others the wait was far, far longer: PMRpro, for example, was without
123-go
in
PMRGCAuk
1 month ago
Sore stomach on apixaban
I’ve been on apixaban for just over 2 months and have 3 weeks to go, then 4 weeks off before a d dimer blood test. I’ve had awful stomach cramps for a couple of weeks, blood in stools and leaking watery blood like I’m wetting myself (lovely picture!). The doctor is sending me for the fast track bladder
I’ve been on apixaban for just over 2 months and have 3 weeks to go, then 4 weeks off before a d dimer blood test. I’ve had awful stomach cramps for a couple of weeks, blood in stools and leaking watery blood like I’m wetting myself (lovely picture!). The doctor is sending me for the fast track bladder
Florrie2
in
Anticoagulation Support
1 month ago
Thinning Hair
I’ve been taking Rivaroxaban with Flecainide and Adizem for AFib. My hair has become noticeable thinner. My Consultant has just changed my Rivaroxaban to Apixaban which also has hair loss as a side effect. Does anyone have this problem and are you able to recommend anything to help? I’m 76 years old
I’ve been taking Rivaroxaban with Flecainide and Adizem for AFib. My hair has become noticeable thinner. My Consultant has just changed my Rivaroxaban to Apixaban which also has hair loss as a side effect. Does anyone have this problem and are you able to recommend anything to help? I’m 76 years old
PAP48
in
Atrial Fibrillation Support
1 month ago
Motion Sickness
At the ripe old age of 77, I will be taking my first cruise this summer with my children and grandchildren. I'm trying to be prepared for anything so I asked my doctor about medications for motion sickness. He said I would not be able to use the patch that is worn behind the ear because it can cause
At the ripe old age of 77, I will be taking my first cruise this summer with my children and grandchildren. I'm trying to be prepared for anything so I asked my doctor about medications for motion sickness. He said I would not be able to use the patch that is worn behind the ear because it can cause
JudyMarieC
in
Atrial Fibrillation Support
2 months ago
Side Effects of Hydrea?
Ho everyone, I had a stroke last year which led to them discovering that I am Jak2 positive. I was initial put onto Pegasus, but that had horrendous side effects and was then put onto Hydrea. Almost since first getting put onto Hydrea, there have been a bunch of different things that I feel can
Ho everyone, I had a stroke last year which led to them discovering that I am Jak2 positive. I was initial put onto Pegasus, but that had horrendous side effects and was then put onto Hydrea. Almost since first getting put onto Hydrea, there have been a bunch of different things that I feel can
TyronR
in
MPN Voice
2 months ago
Tests
How do you all get these tests done. I've had IBS for over 10 years and no test has ever been offered to me . I suffer every other day . And even going to my GP all she said is take probiotics, mebeverine and cut down on fibre , as I have IBS (D) and sometimes mixed . Every morning is a battle going
How do you all get these tests done. I've had IBS for over 10 years and no test has ever been offered to me . I suffer every other day . And even going to my GP all she said is take probiotics, mebeverine and cut down on fibre , as I have IBS (D) and sometimes mixed . Every morning is a battle going
Ceasersalad
in
IBS Network
2 months ago
Tia Stroke
Recent numbness in right arm and face. 10 minute duration. Bloodwork good. CT and CTA good. MRI with contrast good. Holter 48 hr. Good. No AF since first episode in 1994. Recent Echo Of Heart and Carotids. Good. Ironically, discussing stopping Flecainide and this happens. Has anyone taken Flecainide
Recent numbness in right arm and face. 10 minute duration. Bloodwork good. CT and CTA good. MRI with contrast good. Holter 48 hr. Good. No AF since first episode in 1994. Recent Echo Of Heart and Carotids. Good. Ironically, discussing stopping Flecainide and this happens. Has anyone taken Flecainide
Robv1954
in
Atrial Fibrillation Support
2 months ago
Suggestions on Supplements
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
JayPwP
in
Cure Parkinson's
2 months ago
Costochondritis / sternum / chest poping
Hello.i was so excited when I found this post but not really after seeing that no one has really gotten over it. Apparently it's permanent for the most part.i just got my 6k bill from hospital because I couldn't take it I thought it was a serious lung or heart problem but I'm cleared.i have the same
Hello.i was so excited when I found this post but not really after seeing that no one has really gotten over it. Apparently it's permanent for the most part.i just got my 6k bill from hospital because I couldn't take it I thought it was a serious lung or heart problem but I'm cleared.i have the same
EliezerCan2
in
Pain Concern
2 months ago
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