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Trying to make the most of being chronically ill and unemployed 💕
✨ Just some ideas on how to make the most of something that sucks and can be very isolating and lonely ✨ *depending on what you can do that day x • Quality time with loved ones • Getting a new pet or spending more quality time with yours. • Developing a self care routine • Free adult learning courses
✨ Just some ideas on how to make the most of something that sucks and can be very isolating and lonely ✨ *depending on what you can do that day x • Quality time with loved ones • Getting a new pet or spending more quality time with yours. • Developing a self care routine • Free adult learning courses
x_emily_x
in
Endometriosis UK
6 months ago
Rectal prolapse - Constipation. Laxido
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
briarhillcat
in
IBS Network
3 months ago
being redundant
I have an amazing ability to pick relevant podcasts while driving. Just had my blood work done in preparation of starting Pluvicto and not being able to choose wisely while driving I picked this podcast which i have heard before and have even advocated on this forum before. Dr Chetty is so brilliant
I have an amazing ability to pick relevant podcasts while driving. Just had my blood work done in preparation of starting Pluvicto and not being able to choose wisely while driving I picked this podcast which i have heard before and have even advocated on this forum before. Dr Chetty is so brilliant
spencoid2
in
Advanced Prostate Cancer
6 months ago
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Recommendations for a rheumatologist in Merseyside area please.
I was 65 in August, about six to eight weeks ago I started having really painful hips, fatigued, night sweats, eye and temple pains. I have mild lupus (remission) so was discharged by my rheumatologist in January 21 My GP recently did some bloods. ESR 10 He told me to contact rheumatology department
I was 65 in August, about six to eight weeks ago I started having really painful hips, fatigued, night sweats, eye and temple pains. I have mild lupus (remission) so was discharged by my rheumatologist in January 21 My GP recently did some bloods. ESR 10 He told me to contact rheumatology department
Pennypip
in
PMRGCAuk
6 months ago
I'm back....!
Bricking it now....thoracoscopy due on Thursday morning and I'm terrified....has anyone here had it done? I just hate pain of any sort even though I know I'll have sedation - Fentanyl and Midazolam -I'm still really, really panicking....😒🙄
Bricking it now....thoracoscopy due on Thursday morning and I'm terrified....has anyone here had it done? I just hate pain of any sort even though I know I'll have sedation - Fentanyl and Midazolam -I'm still really, really panicking....😒🙄
sue32
in
Lung Conditions Community Forum
6 months ago
Problems following microsuction
Hi everyone. After many issues with my ears over the years including tinnitus I finally got my appointment for the ENT and went in last week. I had a hearing test and it shows some hearing loss in both ears and alsoa pressure test that showed the pressure wasn't right in both ears as well, all the doctor
Hi everyone. After many issues with my ears over the years including tinnitus I finally got my appointment for the ENT and went in last week. I had a hearing test and it shows some hearing loss in both ears and alsoa pressure test that showed the pressure wasn't right in both ears as well, all the doctor
andy614
in
Tinnitus UK
6 months ago
Dry scalp
I have recently noticed increasingly dry scalp. Can anyone recommend any shampoo/ conditioner to help? No expense (at this scale) spared. I have very fine hair, and dont want this to have further effects. I've looked at all the commercially available ones, dont have any way to judge which work and are
I have recently noticed increasingly dry scalp. Can anyone recommend any shampoo/ conditioner to help? No expense (at this scale) spared. I have very fine hair, and dont want this to have further effects. I've looked at all the commercially available ones, dont have any way to judge which work and are
cathie
in
NRAS
6 months ago
Easyhaler vs salamol
Ive been on easyhaler for years but when I picked up my last prescription they gave me salamol.I don't feel as though it's helped as I've been a bit short of breath the past few days.Also I got changed from foxtail to luforbec a few months ago.I feel as though my asthma is flaring up at the moment.Anybody
Ive been on easyhaler for years but when I picked up my last prescription they gave me salamol.I don't feel as though it's helped as I've been a bit short of breath the past few days.Also I got changed from foxtail to luforbec a few months ago.I feel as though my asthma is flaring up at the moment.Anybody
Asthma1973
in
Asthma Community Forum
6 months ago
Next instalment
Before I start my next task, either proofreading or, dread the thought, cleaning the car, here`s the next instalment. Chris. One of mum's best friends from childhood was, without a doubt, Lydia, a confident who in later life became Aunty Lyds to all of us. Their friendship through their teenage years
Before I start my next task, either proofreading or, dread the thought, cleaning the car, here`s the next instalment. Chris. One of mum's best friends from childhood was, without a doubt, Lydia, a confident who in later life became Aunty Lyds to all of us. Their friendship through their teenage years
LissacFrance
in
Lung Conditions Community Forum
2 months ago
Busy, busy, busy!
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
MoyB
in
Lung Conditions Community Forum
7 months ago
When to test?
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
edeuweed
in
Pernicious Anaemia Society
3 months ago
Impact of brief CBT on chronic pain and anxiety
Hello, My name is Audrey and I am a student at Pepperdine University. I am doing a research study about the impact of brief Cognitive Behavioral Therapy on people with chronic pain and anxiety. I would appreciate it if you could take a few minutes to complete both parts. It will also expose you to a
Hello, My name is Audrey and I am a student at Pepperdine University. I am doing a research study about the impact of brief Cognitive Behavioral Therapy on people with chronic pain and anxiety. I would appreciate it if you could take a few minutes to complete both parts. It will also expose you to a
audreycosta
in
Pain Concern
2 months ago
Beta Alanine, okay or not okay?
Many pre workout supplements include beta Alanine. I used it in my pre PCA days because I felt it did help with the workout intensity, particularly those exercises that are short...I.e. weight lifting. Anyway, I liked the additional energy release and the slight tingly feeling when using this supplement
Many pre workout supplements include beta Alanine. I used it in my pre PCA days because I felt it did help with the workout intensity, particularly those exercises that are short...I.e. weight lifting. Anyway, I liked the additional energy release and the slight tingly feeling when using this supplement
MoonRocket
in
Advanced Prostate Cancer
7 months ago
Achille, fingers and now eye Inflammation need hope it will stop.
Hi. I'm counting the days to see the rhumathologist. I'm starting to get really discourage. The list of problem can't stop getting longer. I got 5 day only of prednisone for my achille tendonitis. It's was the best days of my last two years. But as soon as it stop the pain and stiffness come back and
Hi. I'm counting the days to see the rhumathologist. I'm starting to get really discourage. The list of problem can't stop getting longer. I got 5 day only of prednisone for my achille tendonitis. It's was the best days of my last two years. But as soon as it stop the pain and stiffness come back and
Shadow35
in
NRAS
7 months ago
GCA and hair loss
Have been on pred now since end of July 2023 - originally 60mg now tapered to 20mg. (stay on 20mg for 2 weeks). Feel fine on that dose. Will taper to 18 mg in a week Mon. and stay on it for 2 weeks, etc. then down by l0% every 2 weeks if all holds. I am losing my hair. Will taking folic acid help?
Have been on pred now since end of July 2023 - originally 60mg now tapered to 20mg. (stay on 20mg for 2 weeks). Feel fine on that dose. Will taper to 18 mg in a week Mon. and stay on it for 2 weeks, etc. then down by l0% every 2 weeks if all holds. I am losing my hair. Will taking folic acid help?
Groda
in
PMRGCAuk
7 months ago
Inulin pre-biotic - bowels/stomach restoration aid
Hi All, It seems to me one of the most common hypo complaints revolves around a slighty lazy digestion and slower bowels than desirable with poor absorption of nutrition from the food and a life taken up with researching any buying a load of supplements to mitigate the shortfall. This has certainly
Hi All, It seems to me one of the most common hypo complaints revolves around a slighty lazy digestion and slower bowels than desirable with poor absorption of nutrition from the food and a life taken up with researching any buying a load of supplements to mitigate the shortfall. This has certainly
Danielj1
in
Thyroid UK
7 months ago
PMR/Hiatus hernia and PPIs
I’m not sure what to do now. I was diagnosed in February with PMR and prescribed Omeprazole and 15mg pred (now down to 10mg). Hiatus hernia was discovered during a scan a couple of months ago. No particular problems with Omeprazole but asked for a different PPI after reading negative reports about a
I’m not sure what to do now. I was diagnosed in February with PMR and prescribed Omeprazole and 15mg pred (now down to 10mg). Hiatus hernia was discovered during a scan a couple of months ago. No particular problems with Omeprazole but asked for a different PPI after reading negative reports about a
Lclmlbls
in
PMRGCAuk
7 months ago
Mouth dryness no saliva
Hi all,Spoke to the Rheumatology nurse today ,was suggesting sprays a d pastilles for saliva replacement. But I want to know what any of you has use or have actually come across that is beneficial as a saliva replacement in day time and at night. Problem has is I have already have problems with my
Hi all,Spoke to the Rheumatology nurse today ,was suggesting sprays a d pastilles for saliva replacement. But I want to know what any of you has use or have actually come across that is beneficial as a saliva replacement in day time and at night. Problem has is I have already have problems with my
KnitSewPurl
in
LUPUS UK
7 months ago
Abdominal ultrasound
Hiya,Would just like people's views/experiences on if endo will be picked up on an ultrasound or the abdomen. I've had pelvic mri before which picked up endo everywhere and I'm awaiting surgery (endo,hysterectomy and bowel). I've not got abdomen pains so they've got me down for an ultrasound. I feel
Hiya,Would just like people's views/experiences on if endo will be picked up on an ultrasound or the abdomen. I've had pelvic mri before which picked up endo everywhere and I'm awaiting surgery (endo,hysterectomy and bowel). I've not got abdomen pains so they've got me down for an ultrasound. I feel
Loveneige
in
Endometriosis UK
7 months ago
Please help 🙏 Im trying to find HOPE. Has anyone had successful surgical treatments following very long standing AF due to Cardiomyopathy.
Hello everyone. I'm new to this ..and im desperately looking for any help anyone can offer on theor experience of positive outcomes following surgical treatments when you've had the condition for 30 years but has become life limiting in the last 9 years. I'm on Riveroxiban and Betablockers at 7.5 per
Hello everyone. I'm new to this ..and im desperately looking for any help anyone can offer on theor experience of positive outcomes following surgical treatments when you've had the condition for 30 years but has become life limiting in the last 9 years. I'm on Riveroxiban and Betablockers at 7.5 per
Yellowmango99
in
AF Association
7 months ago
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