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Moving on to hospice care
many of you have heard from me before at this point. My dad (68, diagnosed almost 2 years ago) had his last appointment with his MO two weeks ago or so. Radium 223 is out of the picture for him as he is just not well and it would not aid his survival at this point. They suggested some radiation for the
many of you have heard from me before at this point. My dad (68, diagnosed almost 2 years ago) had his last appointment with his MO two weeks ago or so. Radium 223 is out of the picture for him as he is just not well and it would not aid his survival at this point. They suggested some radiation for the
StayingSTRNG
in
Advanced Prostate Cancer
3 months ago
ALP AND RADIUM 223
My husband has had 2 sessions of radium 223 and the oncologist is pleased that his ALP has reduced to ‘normal’ levels after the first session and stayed the same after the second. However his PSA has continued to rise and has doubled over the last 3 months since he stopped abiraterone. The oncologist
My husband has had 2 sessions of radium 223 and the oncologist is pleased that his ALP has reduced to ‘normal’ levels after the first session and stayed the same after the second. However his PSA has continued to rise and has doubled over the last 3 months since he stopped abiraterone. The oncologist
NLondon43
in
Advanced Prostate Cancer
3 months ago
Armour Thyroid for over 20 years
I have been taking Armour thyroid since 2000... Have had my current Dr for at least 20. When I had COVID last time (about 2 years ago .. very mild case) I noticed my TSH was up (over 3...very high for me and on Armour). I mentioned it to my Dr and she suggested waiting, it could be temporary. In the
I have been taking Armour thyroid since 2000... Have had my current Dr for at least 20. When I had COVID last time (about 2 years ago .. very mild case) I noticed my TSH was up (over 3...very high for me and on Armour). I mentioned it to my Dr and she suggested waiting, it could be temporary. In the
NanaV54
in
Thyroid UK
3 months ago
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My response to WinnieThePoo.
"You are sure it's [ALS/PD/AD] a toxic syndrome? Can you describe a mechanism of action for the disease process? You are sure it's not diet? Or stress? Of course you are sure. But unlikely to offer a viable solution to share. Meanwhile, those less blinkered [blinded by tunnel vision] research solutions
"You are sure it's [ALS/PD/AD] a toxic syndrome? Can you describe a mechanism of action for the disease process? You are sure it's not diet? Or stress? Of course you are sure. But unlikely to offer a viable solution to share. Meanwhile, those less blinkered [blinded by tunnel vision] research solutions
SilentEchoes
in
Cure Parkinson's
8 months ago
angina
hello I have been getting throat and chest pain when walking . Just been to the dr she said I have angina and given me a spray don’t know how to use it and told to buy aspirin . She will refer me back to the cardiologist. No advice and I was in shock to ask should I stop doing everything until the
hello I have been getting throat and chest pain when walking . Just been to the dr she said I have angina and given me a spray don’t know how to use it and told to buy aspirin . She will refer me back to the cardiologist. No advice and I was in shock to ask should I stop doing everything until the
Mar321
in
British Heart Foundation
8 months ago
Calcium, vitamin D and protein
Hello, I am just posting this for information. I follow a couple of forums on osteoporosis as I have osteoporosis and want to keep as informed as possible. Recently someone posted about an article on the benefit of taking extra protein alongside calcium and vitamin D supplements. I am going to check
Hello, I am just posting this for information. I follow a couple of forums on osteoporosis as I have osteoporosis and want to keep as informed as possible. Recently someone posted about an article on the benefit of taking extra protein alongside calcium and vitamin D supplements. I am going to check
strongmouse
in
Bone Health and Osteoporosis UK
8 months ago
Multi vitamins minus calcium and vitamin D
Saw Rheumy nurse yesterday. Still waiting to start Etanercept jab. But she said I should get multivitamins but minus vitamin D and Calcium as I'm already on calcichew D3 twice a day. Looked on line but cannot find any without these. Has anyone multi vitamins without calcium and vitamin D3?
Saw Rheumy nurse yesterday. Still waiting to start Etanercept jab. But she said I should get multivitamins but minus vitamin D and Calcium as I'm already on calcichew D3 twice a day. Looked on line but cannot find any without these. Has anyone multi vitamins without calcium and vitamin D3?
Haz58
in
NRAS
8 months ago
GP disagrees with diagnosis of osteoporosis
I had a Dexa scan 2 weeks ago and the lady who did the scan told me I had osteoporosis and gave me a leaflet about it and an information sheet about Alendronic acid. She said GP would contact me when he got the results to start me on AA. Last week I got a text from GP saying “your bone thickness is
I had a Dexa scan 2 weeks ago and the lady who did the scan told me I had osteoporosis and gave me a leaflet about it and an information sheet about Alendronic acid. She said GP would contact me when he got the results to start me on AA. Last week I got a text from GP saying “your bone thickness is
Mfaepink1973
in
PMRGCAuk
8 months ago
Calcium and cytomel
Hi, I need help adjusting my schedule for calcium and cytomel. Can somebody help please? I have to take calcium 3-4 times a day, and unfortunately also cytomel is spread out through the day. Now the schedule looks like this Cytomel at 7.00, 10:45, 14:00, 16.20 Calcium at 8:45, 12:00, 18:00 When
Hi, I need help adjusting my schedule for calcium and cytomel. Can somebody help please? I have to take calcium 3-4 times a day, and unfortunately also cytomel is spread out through the day. Now the schedule looks like this Cytomel at 7.00, 10:45, 14:00, 16.20 Calcium at 8:45, 12:00, 18:00 When
Viv123
in
Thyroid UK
5 months ago
4th line palliative systemic options?
Oncologist phone call today was not the news we were hoping for.PSA had been at 20 past 4 months and hubby was diagnosed as stable. Monthly PSA blood work is done and this month PSA jumped to 29. Oncologist is sending hubby for another Bone and CT scan. She has suggested either abiraterone, clinical
Oncologist phone call today was not the news we were hoping for.PSA had been at 20 past 4 months and hubby was diagnosed as stable. Monthly PSA blood work is done and this month PSA jumped to 29. Oncologist is sending hubby for another Bone and CT scan. She has suggested either abiraterone, clinical
Docker53
in
Advanced Prostate Cancer
4 months ago
Endo appointment, T3 results at last and hyperparathyroidism possible
Thanks for your replies to my previous post and also the advice that I should investigate hyperparathyroidism. I saw the endocrinologist today and apparently my July '23 results (which I hadn't been told, and certainly they'd never mentioned they'd do T3) were: TSH: 0.02 (0.27-4.2) T4: 20.5 (12-
Thanks for your replies to my previous post and also the advice that I should investigate hyperparathyroidism. I saw the endocrinologist today and apparently my July '23 results (which I hadn't been told, and certainly they'd never mentioned they'd do T3) were: TSH: 0.02 (0.27-4.2) T4: 20.5 (12-
Maztee
in
Thyroid UK
8 months ago
Zolendronic Acid Infusions
I know this treatment is for osteoporosis and not PMR but I’ve been offered this treatment as I’m over 65 and I’m on the cusp of being osteopenic and my bone fracture score is now just above 10.. Recently my rheumy said that the results of my dexascan were some of the best he had seen for someone on
I know this treatment is for osteoporosis and not PMR but I’ve been offered this treatment as I’m over 65 and I’m on the cusp of being osteopenic and my bone fracture score is now just above 10.. Recently my rheumy said that the results of my dexascan were some of the best he had seen for someone on
Janet57
in
PMRGCAuk
8 months ago
constipation help
hi,I have again started to suffer from constipation, I have been trying to find the best one because a lot of them contain a lot of sodium that draws calcium out of your bones, I have got to be careful with severe osteoporosis,
hi,I have again started to suffer from constipation, I have been trying to find the best one because a lot of them contain a lot of sodium that draws calcium out of your bones, I have got to be careful with severe osteoporosis,
Radars
in
Bone Health and Osteoporosis UK
8 months ago
Strontium citrate
I was diagnosed with osteoporosis 10 years ago. I am now 73. I have been taking v D and calcium/magnesium and walking and gardening. But I have continued to loose BMD. I have not gone on any medication because I am reluctant to take a drug that interferes with the body's natural bone remodelling process
I was diagnosed with osteoporosis 10 years ago. I am now 73. I have been taking v D and calcium/magnesium and walking and gardening. But I have continued to loose BMD. I have not gone on any medication because I am reluctant to take a drug that interferes with the body's natural bone remodelling process
Frida22
in
Osteoporosis Support
4 months ago
suspected epidural tumour
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
StayingSTRNG
in
Advanced Prostate Cancer
4 months ago
Coronary Calcium Score High
I’ve had results of a scan a month ago but no interpretation. Calcium score is 2581 Agatston/Volume Mildly calcified Aortic valve High risk for obstructive CAD - precludes CTCA - alternative investigation advised. Also mild cylindrical Bronchiectasis 😵💫 Question Is the calcium score totally
I’ve had results of a scan a month ago but no interpretation. Calcium score is 2581 Agatston/Volume Mildly calcified Aortic valve High risk for obstructive CAD - precludes CTCA - alternative investigation advised. Also mild cylindrical Bronchiectasis 😵💫 Question Is the calcium score totally
OldaYoda
in
British Heart Foundation
8 months ago
Constipation
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Groda
in
PMRGCAuk
8 months ago
Good news or bad news ?
I have had nightime ectopic heart beats for over 5 years now and have had a real torrid time... I only seem to get them when I am in bed and trying to go to sleep...during the day I get nothing. To be fair to my consultant(s) they have given me every test and investigation possible including many ecg's
I have had nightime ectopic heart beats for over 5 years now and have had a real torrid time... I only seem to get them when I am in bed and trying to go to sleep...during the day I get nothing. To be fair to my consultant(s) they have given me every test and investigation possible including many ecg's
Mgs333
in
British Heart Foundation
8 months ago
Food supplements I hope will help
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
Brad70
in
Advanced Prostate Cancer
8 months ago
My Efforts to Educate the Scientific Community
I have written an article about my RLS experience which I have been working to disseminate in the medical and research communities. The bulk of the article follows: The medical community is generally unaware of the benefit of a low oxalate diet for treatment of RLS. In 2015, after 5 years of closely
I have written an article about my RLS experience which I have been working to disseminate in the medical and research communities. The bulk of the article follows: The medical community is generally unaware of the benefit of a low oxalate diet for treatment of RLS. In 2015, after 5 years of closely
notnowdad
in
Restless Legs Syndrome
8 months ago
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