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IBS, possibly menopause, any advice
Hello, I’m looking for any advice if possible, I was diagnosed with IBS over 20 years ago now. I think I had it as a child, it seemed to come about right around the same time I got my periods at 11. Every month I would have horrendously heavy menstrual cycles that were so painful I’d almost pass out
Hello, I’m looking for any advice if possible, I was diagnosed with IBS over 20 years ago now. I think I had it as a child, it seemed to come about right around the same time I got my periods at 11. Every month I would have horrendously heavy menstrual cycles that were so painful I’d almost pass out
Droidus
in
IBS Network
1 month ago
New & Confused with GCA
Hello, I’m asking for help and advice as the wife (and carer) for my husband who was diagnosed with GCA on April 1st…I wish it had been an Fools’ Day prank, but alas, no. He was put on 60mgs Pred stat and thankfully, the headaches and scalp tenderness etc, has gone but he still has double vision and
Hello, I’m asking for help and advice as the wife (and carer) for my husband who was diagnosed with GCA on April 1st…I wish it had been an Fools’ Day prank, but alas, no. He was put on 60mgs Pred stat and thankfully, the headaches and scalp tenderness etc, has gone but he still has double vision and
Hidden
in
PMRGCAuk
2 months ago
Is it safe to have another Covid vaccination?
A month after having my 4th Covid
vaccination
& a flu jab in September ‘22 I was diagnosed with PMR - coincidence probably? Anyway, I’ve received my invite for a 5th Covid jab ‘as my immune system is compromised’.
A month after having my 4th Covid
vaccination
& a flu jab in September ‘22 I was diagnosed with PMR - coincidence probably? Anyway, I’ve received my invite for a 5th Covid jab ‘as my immune system is compromised’.
Sherlock57
in
PMRGCAuk
1 year ago
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CLL survival times ARE improving, thanks to BTK and BCL-2 inhibitors
Many of us were shocked after our CLL/SLL diagnosis when we googled for survival times. [u]Hopefully[/u] we subsequently read that search engine information from Google, Bing, etc., is way out of date, due to the fact that with CLL being a chronic disease, the relatively long survival times with this
Many of us were shocked after our CLL/SLL diagnosis when we googled for survival times. [u]Hopefully[/u] we subsequently read that search engine information from Google, Bing, etc., is way out of date, due to the fact that with CLL being a chronic disease, the relatively long survival times with this
AussieNeil
Administrator
in
CLL Support
2 months ago
My first COVID positive test ever came up twice positive
I thought I had a cold coming Wednesday night while at work at the local hospital, then yesterday had my rutuximab at the local chemo unit told them about my cold, they were happy to carry on , I did test on Wednesday evening at work negative Tested today twice both positive Been aching a lot especially
I thought I had a cold coming Wednesday night while at work at the local hospital, then yesterday had my rutuximab at the local chemo unit told them about my cold, they were happy to carry on , I did test on Wednesday evening at work negative Tested today twice both positive Been aching a lot especially
Stewie_1968
in
CLL Support
2 months ago
Evusheld still works for hematological disorders
Our results thus indicate that pre-exposure prophylaxis,
vaccination
, and early intervention for COVID-19 are effective strategies for decreasing the mortality risk in immunocompromised patients."
Our results thus indicate that pre-exposure prophylaxis,
vaccination
, and early intervention for COVID-19 are effective strategies for decreasing the mortality risk in immunocompromised patients."
JIDD
in
CLL Support
11 months ago
New medication for boosting immunity against covid19
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Gardner-NY
in
Kidney Transplant
2 months ago
Travel Vaccinations
Hi. I have already emailed my Rheumatology Team but thought I would also ask for others experiences. I am considering travelling to countries which recommend vaccinations for things like Polio, Diphtheria, Hep A and B, Cholera, Tetanus etc. Now, I have had some of these in the past but longer than 10
Hi. I have already emailed my Rheumatology Team but thought I would also ask for others experiences. I am considering travelling to countries which recommend vaccinations for things like Polio, Diphtheria, Hep A and B, Cholera, Tetanus etc. Now, I have had some of these in the past but longer than 10
grumpygirl
in
NRAS
2 months ago
A Shingrix thank you
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Schubert1870
in
CLL Support
2 months ago
Travel vaccinations
I’m travelling to Bali in April and been recommended to have Typhoid, Tetanus and Hepatitis A boosters. Has anyone experienced any issues following these vaccinations please? Currently on 0.5mg Pred and no intention of reducing further until after the holiday!
I’m travelling to Bali in April and been recommended to have Typhoid, Tetanus and Hepatitis A boosters. Has anyone experienced any issues following these vaccinations please? Currently on 0.5mg Pred and no intention of reducing further until after the holiday!
Dorothy61
in
PMRGCAuk
3 months ago
who cares for the carer?
Hello lovely people. In July 2023 i found myself needing to go the A and E as i was breathless and my GP sent me there for a chest xray but i ended up calling a ambulance and when they took my HR is was 200 beats a min i was taken straight in to the resuscitation area at the RSCH. I had no chest pains
Hello lovely people. In July 2023 i found myself needing to go the A and E as i was breathless and my GP sent me there for a chest xray but i ended up calling a ambulance and when they took my HR is was 200 beats a min i was taken straight in to the resuscitation area at the RSCH. I had no chest pains
Sindyblue
in
Atrial Fibrillation Support
3 months ago
Covid jabs to be sold in pharmacies
hi Has anyone else any information regarding selling of Covid jabs from next month . this was in the Times this morning. This will allow people who are not eligible for NHS booster jabs to get vaccinated . They are saying the cost will be £15-£20 .
hi Has anyone else any information regarding selling of Covid jabs from next month . this was in the Times this morning. This will allow people who are not eligible for NHS booster jabs to get vaccinated . They are saying the cost will be £15-£20 .
Main1234
in
Vasculitis UK
3 months ago
Measles
With info about measles cases increases I wondered if anyone had experience of being vaccinated against measles since RA diagnosis. I thought I was vaccinated as a child (pre MMR vaccine) but GP doesn't have a record of it.Thanks in advance for any info
With info about measles cases increases I wondered if anyone had experience of being vaccinated against measles since RA diagnosis. I thought I was vaccinated as a child (pre MMR vaccine) but GP doesn't have a record of it.Thanks in advance for any info
Sky42
in
NRAS
4 months ago
Oncology appointment - due diligence
Recently had my long awaited oncology appointment with an internist who also works in oncology. My CLL was discovered early, during routine bloodwork. Just curious if the doc did full due diligence, compared to other’s experiences. I do not have any symptoms atm. He spent some time reviewing CLL
Recently had my long awaited oncology appointment with an internist who also works in oncology. My CLL was discovered early, during routine bloodwork. Just curious if the doc did full due diligence, compared to other’s experiences. I do not have any symptoms atm. He spent some time reviewing CLL
BC-CLLguy
in
CLL Support
4 months ago
moderate encephalitis recovery
Hello All :) Im reaching out because 3 months ago I experienced a moderate case of encephalitis due to an allergic reaction to a rabies
vaccination
I received.
Hello All :) Im reaching out because 3 months ago I experienced a moderate case of encephalitis due to an allergic reaction to a rabies
vaccination
I received.
Flo2023
in
Encephalitis Society
11 months ago
One year stem cell transplant anniversary
This week a year ago I received my donor's stem cells. For those of you not following my posts, it was hard going in the early months but by late June things were looking a lot better both mentally and physically and my hair started its return.. My platelets were one of the slowest things to recover
This week a year ago I received my donor's stem cells. For those of you not following my posts, it was hard going in the early months but by late June things were looking a lot better both mentally and physically and my hair started its return.. My platelets were one of the slowest things to recover
Scaredy_cat
in
MPN Voice
4 months ago
hello
I’m beginning to see a correlation between the flu
vaccination
and a flare up. I try to think that each day is a new day and get on with life but I hate prednisolone and the various ways in which it bites you!
I’m beginning to see a correlation between the flu
vaccination
and a flare up. I try to think that each day is a new day and get on with life but I hate prednisolone and the various ways in which it bites you!
Hidden
in
PMRGCAuk
5 months ago
Lagevrio
Having escaped Covid over the last few years, I did a test yesterday as I felt fluey and coldy. It was positive. I have had seven vaccinations! Couldn't believe it! Was convinced it was a false positive. Anyway, went to the emergency oncology service, was retested and confirmed I had Covid and Rhinovirus
Having escaped Covid over the last few years, I did a test yesterday as I felt fluey and coldy. It was positive. I have had seven vaccinations! Couldn't believe it! Was convinced it was a false positive. Anyway, went to the emergency oncology service, was retested and confirmed I had Covid and Rhinovirus
Adlucy
in
CLL Support
4 months ago
Adult whooping cough - second time!
Hello. Just wondering if anyone has any experience of the unfortunate luck of having caught whooping cough twice.Currently awaiting blood test results to confirm this, however I had it back in 2015 (confirmed with a blood test then also) and I was extremely ill for nine months. My symptoms are less severe
Hello. Just wondering if anyone has any experience of the unfortunate luck of having caught whooping cough twice.Currently awaiting blood test results to confirm this, however I had it back in 2015 (confirmed with a blood test then also) and I was extremely ill for nine months. My symptoms are less severe
Tucker43
in
Lung Conditions Community Forum
4 months ago
COVID-19 immune cell vaccine eases SLE symptoms in girl: Report
A day after the
vaccination
, she experienced gradual pain reductions and motor function improvements. A week later, she could move independently and walk without any aids. Laboratory findings supported this clinical improvement, with normalization of blood parameters.
A day after the
vaccination
, she experienced gradual pain reductions and motor function improvements. A week later, she could move independently and walk without any aids. Laboratory findings supported this clinical improvement, with normalization of blood parameters.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
8 months ago
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