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PMR symptoms or flare of Stills Disease?
I was diagnosed with Adult onset Stills Disease aged 17. Symptoms are rash, fever, sore throat, fatigue, bilateral stiff painful joints. I’m 60 now and apart from pain relief have been drug free since my mid 20s. I recall my medication as enteric coated aspirin, steroids, iron, distalgesics and Indocid
I was diagnosed with Adult onset Stills Disease aged 17. Symptoms are rash, fever, sore throat, fatigue, bilateral stiff painful joints. I’m 60 now and apart from pain relief have been drug free since my mid 20s. I recall my medication as enteric coated aspirin, steroids, iron, distalgesics and Indocid
Hidden
in
PMRGCAuk
2 years ago
COVID jabs - higher risk?
I have received my invite for my Spring COVID booster
vaccination
. This is under the Higher Risk category. I need to provide a letter from Dr's to say why I need it which will be near on impossible to obtain but I wondered what your experiences have been?
I have received my invite for my Spring COVID booster
vaccination
. This is under the Higher Risk category. I need to provide a letter from Dr's to say why I need it which will be near on impossible to obtain but I wondered what your experiences have been?
GreenBamboo
in
Encephalitis Society
2 years ago
Travel Vaccinations
Hello. I am planning to travel to India and so will need to have a range of vaccinations. I have had a heart attack with 3 stents and also have angina. Is anyone aware of any contraindications between heart medicines and travel vaccines Thanks Peter
Hello. I am planning to travel to India and so will need to have a range of vaccinations. I have had a heart attack with 3 stents and also have angina. Is anyone aware of any contraindications between heart medicines and travel vaccines Thanks Peter
Peterbaldo
in
British Heart Foundation
2 years ago
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Pneumovax
I had a Pneumovax
vaccination
in 2011 when I was 64. I was diagnosed with CLL in 2017. Should I ask my doctor for another one or is one enough? Many thanks.
I had a Pneumovax
vaccination
in 2011 when I was 64. I was diagnosed with CLL in 2017. Should I ask my doctor for another one or is one enough? Many thanks.
shornoff
in
CLL Support
2 years ago
Shingles vaccination
I know catching shingles with PMR is a complete no-no, but does anyone know if we are OK having the
vaccination
? I imagine if we are, it’s a good idea
I know catching shingles with PMR is a complete no-no, but does anyone know if we are OK having the
vaccination
? I imagine if we are, it’s a good idea
calibriel
in
PMRGCAuk
2 years ago
Autumn vaccinations
I am trying to find information about best timing for the autumn Covid booster and flu vaccinations in UK? I booked both online through NHS site with no problem ll, but at different pharmacies and with a 3 day interval. As my son living elsewhere in UK has been contacted by his surgery to have both
I am trying to find information about best timing for the autumn Covid booster and flu vaccinations in UK? I booked both online through NHS site with no problem ll, but at different pharmacies and with a 3 day interval. As my son living elsewhere in UK has been contacted by his surgery to have both
Inclement
in
MPN Voice
2 years ago
Seeking one volunteer to work conference booth in November
Blue Faery is seeking a volunteer to work our conference booth at the annual AASLD Liver Meeting in Washington DC from Friday, November 4 to Monday, November 7. Learn more about the meeting here: https://www.aasld.org/the-liver-meeting
You must be outgoing, energetic, and willing to speak to anyone
Blue Faery is seeking a volunteer to work our conference booth at the annual AASLD Liver Meeting in Washington DC from Friday, November 4 to Monday, November 7. Learn more about the meeting here: https://www.aasld.org/the-liver-meeting
You must be outgoing, energetic, and willing to speak to anyone
AndreaWilson_Founder
Caregiver
in
Blue Faery Liver Cancer
2 years ago
100% Eletrical Heart block with A Flutter
I’m a 69-year-old man who’s been suffering with a flutter and a fib for the last eight years I’ve had four ablations many cardioversions my last ablation was with one of the top doctors in Austin none of them worked and I’m still in a flutter. I am 100% heart block which was caused by Covid even though
I’m a 69-year-old man who’s been suffering with a flutter and a fib for the last eight years I’ve had four ablations many cardioversions my last ablation was with one of the top doctors in Austin none of them worked and I’m still in a flutter. I am 100% heart block which was caused by Covid even though
jsanta
in
AF Association
2 years ago
Acalabrutinib versus Covid19?
I had my 4th covid 19
vaccination
today but remain extremely concerned as to my chances if I get covid 19. Other patients experiences will be much appreciated. Thankyou.
I had my 4th covid 19
vaccination
today but remain extremely concerned as to my chances if I get covid 19. Other patients experiences will be much appreciated. Thankyou.
spanish36
in
CLL Support
2 years ago
Vaccine shortened menstrual cycle
Hi all! So I’m not posting this to spark a debate about vaccines. Each to their own. I was just simply curious if anyone else has notice a DRASTIC change in their periods after receiving the Covid Vaccinations. I got 2 doses of the Pfizer (no booster) and let me tell you my periods have went from
Hi all! So I’m not posting this to spark a debate about vaccines. Each to their own. I was just simply curious if anyone else has notice a DRASTIC change in their periods after receiving the Covid Vaccinations. I got 2 doses of the Pfizer (no booster) and let me tell you my periods have went from
StarKitty22
in
Pregnancy and Parenting Support
2 years ago
6-in-1 Vaccine for babies
I just wondered if everyone went down the NHS standard
vaccination
route, or if anyone went private and did them separately? And if so which vaccines did you go for? I'm not keen on the idea of little one having them all at once. Thanks in advance!
I just wondered if everyone went down the NHS standard
vaccination
route, or if anyone went private and did them separately? And if so which vaccines did you go for? I'm not keen on the idea of little one having them all at once. Thanks in advance!
Pink-Pineapple
in
Pregnancy and Parenting Support
2 years ago
Prof Tom Foltynie: “Does the repurposing of diabetes drugs offer hope for Parkinson’s patients?” - Wed 29th June at 7.30 pm London time
He is chief investigator for a series of trials of Exenatide- a potential neurorestorative treatment for PD, as well as the lead clinician at UCL for trials of alpha synuclein
vaccination
for PD and Oxford Biomedica/ Axovant’s gene therapy product for PD, and the Transeuro PD cell transplantation programme
He is chief investigator for a series of trials of Exenatide- a potential neurorestorative treatment for PD, as well as the lead clinician at UCL for trials of alpha synuclein
vaccination
for PD and Oxford Biomedica/ Axovant’s gene therapy product for PD, and the Transeuro PD cell transplantation programme
Michel0220
in
Cure Parkinson's
2 years ago
Travelling on public transport with liver disease
Hi all, this is not quite the first post from me - have tried to answer a couple of questions some while back - but could really do with some help for myself now. I've not been diagnosed with liver disease but am pretty sure I have it - weight loss, fluid retention and also - for nearly thirty years
Hi all, this is not quite the first post from me - have tried to answer a couple of questions some while back - but could really do with some help for myself now. I've not been diagnosed with liver disease but am pretty sure I have it - weight loss, fluid retention and also - for nearly thirty years
Daphnis61
in
British Liver Trust
2 years ago
Covid vaccine
Flu jabs are given earlier because of liver disease, the NHS wrote months ago saying because cirrhosis causes low immunity I qualify for antivirals if I catch covid but
vaccination
centre turned me away for the spring booster even though I had the consultants letter confirming cirrhosis.
Flu jabs are given earlier because of liver disease, the NHS wrote months ago saying because cirrhosis causes low immunity I qualify for antivirals if I catch covid but
vaccination
centre turned me away for the spring booster even though I had the consultants letter confirming cirrhosis.
Roy1955
in
British Liver Trust
2 years ago
Views on the new Moderna Double Vaccine just announced please.
Having just heard on the news that this new vaccine has just been approved in the UK, the first country to do so, I am wondering what everyone thinks about it’s safety and side effects possibility. I have stuck to Pfizer for all my 5 Vaccinations as it suited me OK. I have read and heard of too many
Having just heard on the news that this new vaccine has just been approved in the UK, the first country to do so, I am wondering what everyone thinks about it’s safety and side effects possibility. I have stuck to Pfizer for all my 5 Vaccinations as it suited me OK. I have read and heard of too many
azaelea
in
MPN Voice
2 years ago
What do I do?Next step another ablation for A Flutter or not
I’m a 69-year-old male who is diagnosed with a flutter seven years ago then the a flutter turned into a fib. Had to oblations for the a flutter and a fib they did not work three or four years later I moved to Dallas and went on Tykosyn and cured my a flutter and a fib right after I had the cardioversion
I’m a 69-year-old male who is diagnosed with a flutter seven years ago then the a flutter turned into a fib. Had to oblations for the a flutter and a fib they did not work three or four years later I moved to Dallas and went on Tykosyn and cured my a flutter and a fib right after I had the cardioversion
jsanta
in
AF Association
2 years ago
New guidance for people treated with methotrexate when they have the COVID-19 vaccine
You can read about the VROOM Study and the new guidance at https://www.lupusuk.org.uk/mtx-covid19-
vaccination
/ If you are treated with methotrexate, please speak with your doctor before your next COVID-19 vaccine dose. It is not recommended to pause treatment without approval of your doctor.
You can read about the VROOM Study and the new guidance at https://www.lupusuk.org.uk/mtx-covid19-
vaccination
/ If you are treated with methotrexate, please speak with your doctor before your next COVID-19 vaccine dose. It is not recommended to pause treatment without approval of your doctor.
Paul_Howard
LUPUS UK
in
LUPUS UK
2 years ago
Vaccinations in CLL-Instructions for "Beginners"
Why am I posting this post-because at my last appointment with the hematologist, he was so tired and I was so scared (he is the big boss hematologist at this hospital) that I forgot to ask him about the vaccines. I "swallowed" my tongue. Maybe I got a scary dementia (I think I invented a new disease
Why am I posting this post-because at my last appointment with the hematologist, he was so tired and I was so scared (he is the big boss hematologist at this hospital) that I forgot to ask him about the vaccines. I "swallowed" my tongue. Maybe I got a scary dementia (I think I invented a new disease
Yalokin
in
CLL Support
2 years ago
Experimental lupus treatment aims to prevent inflammatory attacks
Alpine, Evotec Expanding Production of ALPN-303, Potential Therapy Experimental lupus treatment aims to prevent inflammatory attacks by Marisa Wexler, MS | August 15, 2022 Alpine Immune Sciences and Evotec announced the expansion of an agreement to manufacture ALPN-303, an experimental anti-inflammatory
Alpine, Evotec Expanding Production of ALPN-303, Potential Therapy Experimental lupus treatment aims to prevent inflammatory attacks by Marisa Wexler, MS | August 15, 2022 Alpine Immune Sciences and Evotec announced the expansion of an agreement to manufacture ALPN-303, an experimental anti-inflammatory
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Got in the End
After surviving the pandemic, and following all the rules, I had the jabs and boosters now standing at 5 injections, Covid got me, and I don't recommend it to anybody, but on top of that I had to stop my methotrexate and benepali injections for 2 weeks, and because I was given the anti-viral drug "Paxlovid
After surviving the pandemic, and following all the rules, I had the jabs and boosters now standing at 5 injections, Covid got me, and I don't recommend it to anybody, but on top of that I had to stop my methotrexate and benepali injections for 2 weeks, and because I was given the anti-viral drug "Paxlovid
Jessiedog67
in
Arthritis Action
2 years ago
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