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Urso
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PBC Vit D now getting bone pain
I was diagnosed with PBC by gastro and put on
URSO
and questran. I also went to see the general medicine guy and he said he couldn’t understand why I had been sent to see him. So I think he felt sorry for me and said would run some vitamin test as a Vit D deficiency could be causing muscle pain.
I was diagnosed with PBC by gastro and put on
URSO
and questran. I also went to see the general medicine guy and he said he couldn’t understand why I had been sent to see him. So I think he felt sorry for me and said would run some vitamin test as a Vit D deficiency could be causing muscle pain.
marieharris67
in
PBC Foundation
6 years ago
Pins and needles
Does anybody get pins and needles in their legs and feet im on
urso
and only had this since starting it 4 weeks ago
Does anybody get pins and needles in their legs and feet im on
urso
and only had this since starting it 4 weeks ago
kingsnorth
in
PBC Foundation
6 years ago
alk phos climbing
I have been on
Urso
for a year and 5 months on Ocalvia and my Alk Phos is still climbing. Has anyone else experienced this?
I have been on
Urso
for a year and 5 months on Ocalvia and my Alk Phos is still climbing. Has anyone else experienced this?
happy0507
in
PBC Foundation
6 years ago
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My partner has PBC, just looking for some help, advice and support
She has been taking
Urso
for around 3 years but according to the doctor this has not really had any positive effect - the PBC is apparently getting worse and there is now signs of cirrhosis on the liver, according to a recent biopsy and also to readings from blood tests.
She has been taking
Urso
for around 3 years but according to the doctor this has not really had any positive effect - the PBC is apparently getting worse and there is now signs of cirrhosis on the liver, according to a recent biopsy and also to readings from blood tests.
djws
in
PBC Foundation
6 years ago
Lower tummy pains with Urso
Hi, i was diagnosed with PBC in December and i am in my 3rd week of taking
Urso
, 3 x day. For the past 2 weeks i have a bloated tummy which is tender and a painfull lower tummy. It seems to get worse after each dose of
Urso
. The last dose is the most painfull.
Hi, i was diagnosed with PBC in December and i am in my 3rd week of taking
Urso
, 3 x day. For the past 2 weeks i have a bloated tummy which is tender and a painfull lower tummy. It seems to get worse after each dose of
Urso
. The last dose is the most painfull.
pottery1
in
PBC Foundation
6 years ago
Concerns
After a definite diagnosis 5 weeks ago of pbc and aih consultant started me on proper dose of
urso
and steroids for aih , within 24 hrs the constant muscle pains had gone as had the fatigue, I was s new woman 😄5 weeks later steroids reduced from 8 a day to 6 a day and immune suppression drug added ,
After a definite diagnosis 5 weeks ago of pbc and aih consultant started me on proper dose of
urso
and steroids for aih , within 24 hrs the constant muscle pains had gone as had the fatigue, I was s new woman 😄5 weeks later steroids reduced from 8 a day to 6 a day and immune suppression drug added ,
Louisethew
in
PBC Foundation
6 years ago
Cold again!!!!
Can I take Night Nurse tablets with
Urso
, I am tired of repeat colds this winter just paracetemol doesnt do anything, o I thought I would try these.?
Can I take Night Nurse tablets with
Urso
, I am tired of repeat colds this winter just paracetemol doesnt do anything, o I thought I would try these.?
Sandie1
in
PBC Foundation
6 years ago
12 week update on Ocaliva - plateau’ed.
Went on
urso
which was helping but then plateaued over the summer. Started Ocaliva 11/13, at the lowest dose 5 mg/day. I was very nervous about it. Was really itchy weeks 2-4, it subsided and now comes and goes.
Went on
urso
which was helping but then plateaued over the summer. Started Ocaliva 11/13, at the lowest dose 5 mg/day. I was very nervous about it. Was really itchy weeks 2-4, it subsided and now comes and goes.
Ottley3
in
PBC Foundation
6 years ago
What can this be?
For the past 4 years I have had high LFT counts which is controlled by 500mgs of
Urso
x 2 daily. I am 64 years old and tests for AMA and a biopsy, both 3 years ago, were negative. Now have aching pain in the liver area, painful joints, fatigue & itching - what can this be?
For the past 4 years I have had high LFT counts which is controlled by 500mgs of
Urso
x 2 daily. I am 64 years old and tests for AMA and a biopsy, both 3 years ago, were negative. Now have aching pain in the liver area, painful joints, fatigue & itching - what can this be?
KathyFish
in
PBC Foundation
6 years ago
itchy help. PBC diagnose questions- where do we go now
I was prescribed
urso
but quickly found it made me feel sick when I took it and also made my itching worse. I was started on questran to help with the itching and while I was hopeful it worked in the beginning, it didnt me much relief.
I was prescribed
urso
but quickly found it made me feel sick when I took it and also made my itching worse. I was started on questran to help with the itching and while I was hopeful it worked in the beginning, it didnt me much relief.
ead0724
in
PBC Foundation
6 years ago
Fibroscan results
Hi was diagnosed with pbc through blood test October 2017 and now on
Urso
. I had a fibroscan in January and the eresults were 13.9kpa F3 fibrosis. Can any explain this to me please?
Hi was diagnosed with pbc through blood test October 2017 and now on
Urso
. I had a fibroscan in January and the eresults were 13.9kpa F3 fibrosis. Can any explain this to me please?
ETW1
in
PBC Foundation
6 years ago
Urso wake up call
I've been diagnosed & on
urso
for four years. All doing well bloods coming back with ok levels occasionally itching but not too bad Drs are very pleased with me.
I've been diagnosed & on
urso
for four years. All doing well bloods coming back with ok levels occasionally itching but not too bad Drs are very pleased with me.
teddybear7
in
PBC Foundation
6 years ago
Fatty liver diet
Hi, I was diagnosed with PBC 6 years ago and taking
urso
. Was also told I had a fatty liver. My levels are getting worse despite increasing my
urso
and wondered if following a fatty liver diet would help. Didn’t know one existed till I read someone was on it on this site.
Hi, I was diagnosed with PBC 6 years ago and taking
urso
. Was also told I had a fatty liver. My levels are getting worse despite increasing my
urso
and wondered if following a fatty liver diet would help. Didn’t know one existed till I read someone was on it on this site.
Catherine3883
in
PBC Foundation
6 years ago
Liver not good after stopping Urso
I said before I’ll keep you posted about the result of stopping
Urso
, generally after six weeks without it I felt much better but tested proved otherwise. My liver did like it so looking fo a new doctor to see what else I can take?
I said before I’ll keep you posted about the result of stopping
Urso
, generally after six weeks without it I felt much better but tested proved otherwise. My liver did like it so looking fo a new doctor to see what else I can take?
Evaibrahim60
in
PBC Foundation
6 years ago
newly diagnosed
I was diagnosed with pbc two weeks ago by way of biopsy I have started
URSO
I have been reading that lots of people don't respond to
URSO
and I might be one of them Im am so worried. Im 67
I was diagnosed with pbc two weeks ago by way of biopsy I have started
URSO
I have been reading that lots of people don't respond to
URSO
and I might be one of them Im am so worried. Im 67
kingsnorth
in
PBC Foundation
6 years ago
im scared and dont know what to do
have come back ok blood,scans,ect..i always felt dr made a mistake when he told me my pbc was caused by drinking..so i just went to a liver clinic for a second opinion ..they took there own blood work which came back as normal i dont even have the antibodies in my blood for it they want me to stop the
urso
have come back ok blood,scans,ect..i always felt dr made a mistake when he told me my pbc was caused by drinking..so i just went to a liver clinic for a second opinion ..they took there own blood work which came back as normal i dont even have the antibodies in my blood for it they want me to stop the
urso
Hidden
in
PBC Foundation
6 years ago
Bezafibrate
I already take 1000mg of
Urso
per day. Look forward to your replies - good or bad 😀
I already take 1000mg of
Urso
per day. Look forward to your replies - good or bad 😀
IOW-gal
in
PBC Foundation
6 years ago
Bike extract
Has anyone ever tried a bile extract along with the
Urso
? I was told by someone that they were able to bring their labs to normal and eventually get off
Urso
by using a bile extract. I’m very reluctant to try. Any input would be greatly appreciated.
Has anyone ever tried a bile extract along with the
Urso
? I was told by someone that they were able to bring their labs to normal and eventually get off
Urso
by using a bile extract. I’m very reluctant to try. Any input would be greatly appreciated.
LorraineLouise
in
PBC Foundation
6 years ago
Newby
Hi im Christine 67 and was dianosed with pbc 2 weeks ago by way of biopsy l also have lupus and sjogrens l started
urso
2 weeks ago and got to see my consultant again in June. I must say this diagnosis has totally floored me and im worried for my future.
Hi im Christine 67 and was dianosed with pbc 2 weeks ago by way of biopsy l also have lupus and sjogrens l started
urso
2 weeks ago and got to see my consultant again in June. I must say this diagnosis has totally floored me and im worried for my future.
kingsnorth
in
PBC Foundation
6 years ago
Meds
2 weeks in with correct dose of
urso
for pbc and steroids for newly diagnosed aih and I feel like a new woman 😄. Muscle pain reduced within 24 hrs from a pain score of 10 to a 2 , for the first time in over 6 months I feel I'm actually doing my job properly at work ( I support autistic adults) .
2 weeks in with correct dose of
urso
for pbc and steroids for newly diagnosed aih and I feel like a new woman 😄. Muscle pain reduced within 24 hrs from a pain score of 10 to a 2 , for the first time in over 6 months I feel I'm actually doing my job properly at work ( I support autistic adults) .
Louisethew
in
PBC Foundation
6 years ago
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