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Update following meeting with MO
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
Benkaymel
in
Advanced Prostate Cancer
4 months ago
Considerations when starting out with private endo
I’m thinking of going to a private Endo. Looking at the list, there’s none in my county. I can travel half hour to one that’s just private and he sounds good but that means if I do get T3 and it does work, I’ll be forever paying for it (I don’t know costs yet). There’s one that’s NHS and private
I’m thinking of going to a private Endo. Looking at the list, there’s none in my county. I can travel half hour to one that’s just private and he sounds good but that means if I do get T3 and it does work, I’ll be forever paying for it (I don’t know costs yet). There’s one that’s NHS and private
Loopnova
in
Thyroid UK
4 months ago
T3 stopped 😡
Hi everyone ❤️ As some of you may know my gp stopped my T3 until I saw the endo on Dec 27th which didn't go well😠.. My gp said I would see the endo before my T3 ran out😂 this of course never happened so she gave me one months supply to tide me over. The appointment with the endo was for thyroid medication
Hi everyone ❤️ As some of you may know my gp stopped my T3 until I saw the endo on Dec 27th which didn't go well😠.. My gp said I would see the endo before my T3 ran out😂 this of course never happened so she gave me one months supply to tide me over. The appointment with the endo was for thyroid medication
birkie
in
Thyroid UK
4 months ago
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GP advice needed please!
Hello, I was (eventually) diagnosed with Hashimoto's 25 years ago (the misdiagnosis nearly killed me, I was literally a week away from a coma, the consultant said.) I've been on 150mcg on day one and 175mcg day two, for 25 years. Every time I move house, the gp decides to reduce it, then puts it back
Hello, I was (eventually) diagnosed with Hashimoto's 25 years ago (the misdiagnosis nearly killed me, I was literally a week away from a coma, the consultant said.) I've been on 150mcg on day one and 175mcg day two, for 25 years. Every time I move house, the gp decides to reduce it, then puts it back
hcmoss68
in
Thyroid UK
4 months ago
Choices
Apologies for this seemingly random question but which do members think has the ‘least worst’ effect on T4 - pain or analgesics?
Apologies for this seemingly random question but which do members think has the ‘least worst’ effect on T4 - pain or analgesics?
Calceolaria
in
Thyroid UK
4 months ago
Cholesterol unexpected increase
Had cholesterol checked in October and total was 3.2. Was checked again yesterday and it had increased to 4.5... completely shocked as despite Christmas nothing in my diet has changed in months. I take Atorvastatin 40mg daily and for past 12 months my cholesterol has been stable. My only thought was
Had cholesterol checked in October and total was 3.2. Was checked again yesterday and it had increased to 4.5... completely shocked as despite Christmas nothing in my diet has changed in months. I take Atorvastatin 40mg daily and for past 12 months my cholesterol has been stable. My only thought was
APC65
in
British Heart Foundation
4 months ago
What should my optimal vitamin levels be please?
Hi there, I’m trying to get vitamin levels up to hopefully help with poor conversion. Iron was low and I’ve recently retested for that after supplementing for about 3 months. Ferritin is now at 65 ug/L Folate has dropped from >45 a year ago to 8.5ug/L My question is what should they ideally be?
Hi there, I’m trying to get vitamin levels up to hopefully help with poor conversion. Iron was low and I’ve recently retested for that after supplementing for about 3 months. Ferritin is now at 65 ug/L Folate has dropped from >45 a year ago to 8.5ug/L My question is what should they ideally be?
Thywotsit
in
Thyroid UK
4 months ago
Trusted T3 sources
I’d like to buy T3 privately. If you have a trusted supplier can you please send me a link via private message? Many thanks
I’d like to buy T3 privately. If you have a trusted supplier can you please send me a link via private message? Many thanks
Bagster2
in
Thyroid UK
4 months ago
Post ectopic pregnancy
Hello, new here. Just wondering if anyone else had trouble conceiving after having a salpingectomy? And how long it took post surgery to conceive again? Im 36 and have only had one pregnancy in a year and a half of trying, it was unfortunately ectopic. Not sure if we should keep trying or go to our GP
Hello, new here. Just wondering if anyone else had trouble conceiving after having a salpingectomy? And how long it took post surgery to conceive again? Im 36 and have only had one pregnancy in a year and a half of trying, it was unfortunately ectopic. Not sure if we should keep trying or go to our GP
SydneyJ
in
Fertility Network UK
4 months ago
walnuts
hello, I’m post breast cancer treatment and on tamoxifen. There’s been a bit of thyroxine wobbling as I started that so being monitored. I’m eating more nuts, particularly / including walnuts (good for Bc) for extra protein as I’m exercising and lifting weights. how long would you wait before
hello, I’m post breast cancer treatment and on tamoxifen. There’s been a bit of thyroxine wobbling as I started that so being monitored. I’m eating more nuts, particularly / including walnuts (good for Bc) for extra protein as I’m exercising and lifting weights. how long would you wait before
haggisplant
in
Thyroid UK
4 months ago
Help find endocrinologist pm only
Good morning lovely people. Would anyone PM me an endocrinologist that can help me with my low T3 after thyroidectomy in 2020. I am on levothyroxine only. I live in Wirral not too far from Liverpool. Feeling so poorly. Thank you in advance. Xx
Good morning lovely people. Would anyone PM me an endocrinologist that can help me with my low T3 after thyroidectomy in 2020. I am on levothyroxine only. I live in Wirral not too far from Liverpool. Feeling so poorly. Thank you in advance. Xx
Soaping
in
Thyroid UK
4 months ago
cost of t3
hi all I have been on thyroid sicca and my gp will no longer prescribe it. I am going to go private to try a t4/t3 combo. I did this once before and did well on it. I realise I will have a long drawn out battle to get this prescribed on the nhs. I wondered what prices people have been paying for it
hi all I have been on thyroid sicca and my gp will no longer prescribe it. I am going to go private to try a t4/t3 combo. I did this once before and did well on it. I realise I will have a long drawn out battle to get this prescribed on the nhs. I wondered what prices people have been paying for it
TheaW
in
Thyroid UK
4 months ago
Octasa / Mesalazine - Should I be seeing more of a change?
Hello. I have struggled with symptoms for 2 years - loose, frequent bowels, always with urgency, fatigue, etc. Had colonoscopy and relevant tests and doctor says that I likely have crohns and is treating me as such. I had steroids for 3 months which generally helped (though my calprotectin was higher
Hello. I have struggled with symptoms for 2 years - loose, frequent bowels, always with urgency, fatigue, etc. Had colonoscopy and relevant tests and doctor says that I likely have crohns and is treating me as such. I had steroids for 3 months which generally helped (though my calprotectin was higher
VV_1990
in
Crohn's and Colitis Support
4 months ago
T4/T3 Combi Overmedicated Help Please
I posted yesterday about my recent feelings of overmedication but didnt get many replies. Its just symptoms, not blood tests, but had palpitations, fatigue, fast heart beat, shortness of breath. Was on 150mcg Levo and 12.5 T3 daily. Also added daily selenium which might have complicated things. Cut
I posted yesterday about my recent feelings of overmedication but didnt get many replies. Its just symptoms, not blood tests, but had palpitations, fatigue, fast heart beat, shortness of breath. Was on 150mcg Levo and 12.5 T3 daily. Also added daily selenium which might have complicated things. Cut
Sparklingsunshine
in
Thyroid UK
21 hours ago
Early morning blood tests
I see on other posts that an early morning blood test before 09:00hrs is suggested for an accurate reading. I went to have bloods taken yesterday morning at 08:55hrs for ferritin. My phlebotomist found that my blood flow was a bit on the slow side... but ok for the lab test. She thought she might have
I see on other posts that an early morning blood test before 09:00hrs is suggested for an accurate reading. I went to have bloods taken yesterday morning at 08:55hrs for ferritin. My phlebotomist found that my blood flow was a bit on the slow side... but ok for the lab test. She thought she might have
LKA-dot
in
Thyroid UK
2 days ago
Possible Overmedication Woes
I switched to T4/T3 combo in December, I'm self sourcing Tiromel. I was at that point taking 200mcg of Levo, felt okish but felt T3 could be higher it was 5.2 on a range of 3.1-6.8. This was a private test in October. I didnt want to add more Levo so following advice decoded to try some T3. Added 6.25mcg
I switched to T4/T3 combo in December, I'm self sourcing Tiromel. I was at that point taking 200mcg of Levo, felt okish but felt T3 could be higher it was 5.2 on a range of 3.1-6.8. This was a private test in October. I didnt want to add more Levo so following advice decoded to try some T3. Added 6.25mcg
Sparklingsunshine
in
Thyroid UK
2 days ago
Help with latest Blood Test
Hello, I’m hoping someone can give some advice on latest blood test please. I am on 100mgs Levothyroxine. I did trial T3 but didn’t notice much difference by taking T3really. Im not sure if this is because I wasn’t on a high enough dose of L4 at the start of trialing it. I have taken the D1o2 test
Hello, I’m hoping someone can give some advice on latest blood test please. I am on 100mgs Levothyroxine. I did trial T3 but didn’t notice much difference by taking T3really. Im not sure if this is because I wasn’t on a high enough dose of L4 at the start of trialing it. I have taken the D1o2 test
Bright-eyes
in
Thyroid UK
4 days ago
Latest results
Hi I was taken off Carb 15mg on my last visit to GP on Dec 8th as I complained that my voice had changed and I was struggling to get out of bed. He looked at my results taken 23.10.23 which were TSH 7.85 (0.27-4.20) and FT4 10.5 (11.0-25.0) I assume the GP had done this incase of over medicated for
Hi I was taken off Carb 15mg on my last visit to GP on Dec 8th as I complained that my voice had changed and I was struggling to get out of bed. He looked at my results taken 23.10.23 which were TSH 7.85 (0.27-4.20) and FT4 10.5 (11.0-25.0) I assume the GP had done this incase of over medicated for
Amethyst123
in
Thyroid UK
4 months ago
T3 Uni-pharma
Happy New year to all! I have been a member for a few years now although I haven’t posted recently. I have been taking levothyroxine for over ten years and about 3 years ago I starting adding a very small amount of t3 which I self source. My question is, have uni-pharma stop producing t3 all together
Happy New year to all! I have been a member for a few years now although I haven’t posted recently. I have been taking levothyroxine for over ten years and about 3 years ago I starting adding a very small amount of t3 which I self source. My question is, have uni-pharma stop producing t3 all together
Tula2017
in
Thyroid UK
4 months ago
Dr Harvinder Chahal
Hello, I’m exploring Endocrinologists for a second opinion. My existing Endo is brilliant however I want to get an opinion on something before starting treatment for elevated blood sugars. My medical insurer has suggested Dr Chahal based in London. Anyone have any experience with him, particularly
Hello, I’m exploring Endocrinologists for a second opinion. My existing Endo is brilliant however I want to get an opinion on something before starting treatment for elevated blood sugars. My medical insurer has suggested Dr Chahal based in London. Anyone have any experience with him, particularly
Wired123
in
Thyroid UK
4 months ago
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