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Experiences with
Traumatic macular hole
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Communities
11 public communities
Macular Society
5,165 members
Macular disease is the biggest cause of sight loss in the UK, with around 300 people diagnosed every day. The Macular Society is the only charity in the UK determined to beat the fear and isolation of macular disease with world class research, and the best advice and support. Our research programme is focused on finding new treatments and a cure to Beat Macular Disease forever. To support people affected by macular disease now, the Macular Society provides a range of support, information and services. If you see someone with a "Helping Hand" badge by their name, this member has been recognized as someone who regularly contributes to the forum and helps others, this could be through sharing their own experiences with Macular conditions, giving some advice or ideas, or by signposting members to maybe call us directly to get more specific advice.
PTSD Support
642 members
About Post- Traumatic Stress Disorder (PTSD) Support Community This is a safe space for those affected by PTSD to share and talk with others who truly understand. ADAA is an international nonprofit dedicated to the prevention, treatment, & cure of anxiety, depression, OCD, PTSD and co-occurring disorders through education, practice, & research. www.adaa.org ADAA offers free educational resources for more than 7 million annual unique visitors; a Find-a-Therapist database; webinars, blog posts, podcasts & videos; support groups, and more. ADAA also hosts a separate Anxiety and Depression, Major Depressive Disorder, as well as a Spanish-language support community. ADAA does not provide psychiatric, psychological, or medical advice, diagnosis, or treatment. Please note: You may be contacted by one of our administrators to invite you to serve as a volunteer administrator or to share your story. If we do reach out to you, your anonymity is not compromised unless you agree to share personal contact information with us. If you do not wish to engage with us, simply do not respond.
Circulation Foundation
578 members
We are an online peer support community for everyone affected by circulatory disorders. Join us to share your experience, ask questions and support one another! This community is run by the Circulation Foundation.
Heal My PTSD
8,836 members
The Heal My PTSD forum is a safe, supportive and informative space where survivors and their caregivers can connect to others with similar experiences. It is run by volunteers, which are PTSD survivors themselves. It was founded by award winning author and blogger, Michele Rosenthal, who has since moved on to other projects. This community is based on mutual support, exchanging experiences and ideas for healing. Our vision is to provide support and practical tips on how to cope in daily life with various PTSD symptoms (anxiety, depression, fear, flashbacks, nightmares, intrusive thoughts, hypervigilance, dissociation and others) as well as share successes and ideas for recovery. Our personal experiences and recovery journeys are unique but by connecting to others we discover that there are things we can relate to and that we truly aren’t alone.
Sight Loss Support
249 members
We are a friendly support community for people living with or caring for someone with Sight Loss. Join to connect with others who understand! Why not share your story today: https://healthunlocked.com/sight-loss-support/write/
Kidney Health New Zealand
428 members
We support patients and their families living in New Zealand who have been impacted by kidney disease.
Parents of Children with Kidney Disease
916 members
Welcome to the National Kidney Foundation's Community for Parents of Children with Kidney Disease! In this community you will find a safe and supportive space where you can share your experiences, ask questions, and get answers that are accurate and up to date. Fueled by passion and urgency, NKF is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health. Relentless in our work, we enhance lives through action, education and accelerating change.
Kidney Disease
11,337 members
Welcome to the National Kidney Foundation's Community for people affected by Chronic Kidney Disease (CKD)! In this community you will find a safe and supportive space where you can share your experiences, ask questions, and get answers that are accurate and up to date. Fueled by passion and urgency, NKF is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health. Relentless in our work, we enhance lives through action, education and accelerating change.
South West Wales Neurological Alliance
288 members
We are community that supports individuals, groups and organisations that represent Neurological Conditions and those associated with their care; in Neath Port Talbot, Swansea and Bridgend, Wales.
Scleroderma & Raynaud's UK (SRUK)
10,897 members
We are Scleroderma & Raynaud's UK (SRUK), the only UK Charity dedicated to improving the lives of people with Scleroderma and Raynaud's phenomenon. We are here to improve awareness and understanding of these conditions, to support those affected, and ultimately, to find a cure.
Anticoagulation Support
3,822 members
The Anticoagulation Support community is for anyone impacted by a health condition such as atrial fibrillation, stroke, deep vein thrombosis (DVT) and pulmonary embolism (PE), aortic heart valve replacement, antiphospholipid syndrome and thrombotic disorders. These conditions can increase the risk of blood clots or thrombosis and may require anticoagulation therapy to treat or prevent blood clots from happening. Anticoagulant therapy is sometimes described as a blood thinner and can be given for a short period of time (to prevent clots after hip and knee replacement surgery) or long term for people with thrombotic disorders to prevent recurrence of clotting episodes. Some people may be offered anticoagulation medication when they are being treated for cancer. Anyone requiring anticoagulation therapy should discuss medication options with a health care provider and be given adequate information around the duration and monitoring of the treatment provided. In the UK, there are several oral anticoagulant medications available - Apixaban, Dabigatran, Edoxaban, Rivaroxaban and Warfarin. Heparin is given by injection. Anticoagulation Support aims to help individuals engage with people who have lived experience of living with a condition and being treated with anticoagulants. The site is moderated by HealthUnlocked with input from an anticoagulation patient expert and an anticoagulation healthcare professional. For information about anticoagulation therapy and related conditions visit.... NHS website - https://www.nhs.uk/ National Institute of Health and Care Excellence(NICE) - https://www.nice.org.uk