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Letter from Government/GP???
Hi, I have ET Jak2 and am on Hydroxycarbamide and Clopidogrel. I am still confused. Have not had a letter to say have to isolate for 12 weeks. Anyone else still like me and not been advised? I am still awaiting what will be a tele consultation with haemotologist to verify. I have not rung him as
Hi, I have ET Jak2 and am on Hydroxycarbamide and Clopidogrel. I am still confused. Have not had a letter to say have to isolate for 12 weeks. Anyone else still like me and not been advised? I am still awaiting what will be a tele consultation with haemotologist to verify. I have not rung him as
Jennytheb
in
MPN Voice
4 years ago
Warfarin change
Hello again, just wanted to ask, does anyone know anything about Idoxipan? My Husband has AF etc; and is on Warfarin. The Surgery rang a few days ago to say his prescription has been charged from Warfarin to a new drug so that he doesn't have to keep going to have has INR taken every few weeks. He last
Hello again, just wanted to ask, does anyone know anything about Idoxipan? My Husband has AF etc; and is on Warfarin. The Surgery rang a few days ago to say his prescription has been charged from Warfarin to a new drug so that he doesn't have to keep going to have has INR taken every few weeks. He last
excel1234
in
AF Association
4 years ago
Mimicry of vasculitis and thrombosis are prominent features in severe COVID-19 patients
Hi, found a medical article on the web, it seems study on severe cases from China showed "4. Mimicry of vasculitis and thrombosis are prominent features in severe COVID-19 patients". If you are interested you can find it here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7102614/
Hi, found a medical article on the web, it seems study on severe cases from China showed "4. Mimicry of vasculitis and thrombosis are prominent features in severe COVID-19 patients". If you are interested you can find it here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7102614/
NacMacFeegle
in
Vasculitis UK
4 years ago
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Neighbours
Hi all I live in a corner bungalow with a narrow drive in and out for me and next door who says she has copd her two nieces live at 12&14 her sister at number 24 and cousin at 27 She’s at 16b with me stuck in the corner they are all in and out of next door daily it’s a nightmare I dread bin days as
Hi all I live in a corner bungalow with a narrow drive in and out for me and next door who says she has copd her two nieces live at 12&14 her sister at number 24 and cousin at 27 She’s at 16b with me stuck in the corner they are all in and out of next door daily it’s a nightmare I dread bin days as
PhilReade
in
MPN Voice
4 years ago
Blood clots with flare
Hi everyone I am new here, so hello to you all and I hope you are coping with the current lockdown OK. I was diagnosed with an autoimmune disease in late February, they told me that most of my markers indicate Lupus but not all. I have suffered blood clots including a Pulmonary Embolism which thankfully
Hi everyone I am new here, so hello to you all and I hope you are coping with the current lockdown OK. I was diagnosed with an autoimmune disease in late February, they told me that most of my markers indicate Lupus but not all. I have suffered blood clots including a Pulmonary Embolism which thankfully
Budbear
in
LUPUS UK
4 years ago
Three years later
I think its worth posting this as a bit of good news makes a change at the moment. I didn’t even notice this anniversary, but my daughter pointed it out to me; it is now three years since my mini-maze. I also had a catheter ablation for flutter and re-isolation of one of the pulmonary veins six months
I think its worth posting this as a bit of good news makes a change at the moment. I didn’t even notice this anniversary, but my daughter pointed it out to me; it is now three years since my mini-maze. I also had a catheter ablation for flutter and re-isolation of one of the pulmonary veins six months
johnMiosh
in
Atrial Fibrillation Support
4 years ago
I’m on warfarin, not for AF. But through thrombosis.
Not sure why I have been directed to this particular forum? Can anyone help in how I change the topic forum to make it more personal to myself and learn more about my own condition. To help others. I was diagnosed with possible thrombosis 5 years ago, there is a familial predisposition as My Nan, my
Not sure why I have been directed to this particular forum? Can anyone help in how I change the topic forum to make it more personal to myself and learn more about my own condition. To help others. I was diagnosed with possible thrombosis 5 years ago, there is a familial predisposition as My Nan, my
Kitty76
in
AF Association
4 years ago
Incidence of thrombotic complications in critically ill ICU patients with COVID-19
https://doi.org/10.1016/j.thromres.2020.04.013Get rights and content
Abstract
Introduction
COVID-19 may predispose to both venous and arterial thromboembolism due to excessive inflammation, hypoxia, immobilisation and diffuse intravascular coagulation. Reports on the incidence of thrombotic
https://doi.org/10.1016/j.thromres.2020.04.013Get rights and content
Abstract
Introduction
COVID-19 may predispose to both venous and arterial thromboembolism due to excessive inflammation, hypoxia, immobilisation and diffuse intravascular coagulation. Reports on the incidence of thrombotic
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Practical guidance for the prevention of thrombosis and management of coagulopathy and disseminated intravascular coagulation of patients in
Practical guidance for the prevention of thrombosis and management of coagulopathy and disseminated intravascular coagulation of patients infected with COVID-19
Prof Beverley Hunt OBE
Dr Andrew Retter
Dr Claire McClintock
25th March 2020
Background
[
Practical guidance for the prevention of thrombosis and management of coagulopathy and disseminated intravascular coagulation of patients infected with COVID-19
Prof Beverley Hunt OBE
Dr Andrew Retter
Dr Claire McClintock
25th March 2020
Background
[
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
INFLAMMATION & CONNECTIONS W/ MYELOPROLIFERATIVE TYPES of BLOOD CANCER
Post by MPN-MATE Admin » Fri Apr 10, 2020 11:09 am Morning all... :D This article, whilst a little heavy in the reading, again points to the influence that 'Inflammation' can play in the progression of myeloproliferative blood cancers. The findings also suggest therapeutic strategies that might eventually
Post by MPN-MATE Admin » Fri Apr 10, 2020 11:09 am Morning all... :D This article, whilst a little heavy in the reading, again points to the influence that 'Inflammation' can play in the progression of myeloproliferative blood cancers. The findings also suggest therapeutic strategies that might eventually
socrates_8
in
MPN Voice
4 years ago
Penile Surgery Postponed & Contingency Plan
Hi Fellas, Hope everyone is faring well during this challenging time. Quick update, my surgery for penile implant was scheduled for 3/16, and was postponed due to Covid-19 catastrophe. It has been approximately 4 months post Lupron and my libido is beginning to return. I have been following Dr. Mulhall's
Hi Fellas, Hope everyone is faring well during this challenging time. Quick update, my surgery for penile implant was scheduled for 3/16, and was postponed due to Covid-19 catastrophe. It has been approximately 4 months post Lupron and my libido is beginning to return. I have been following Dr. Mulhall's
Dreamweaverman
in
Advanced Prostate Cancer
4 years ago
Some folk being swapped from warfarin to DOAC
OH is still on warfarin. Went for INR today (next in 10 weeks) and asked if this was happening. There has been discussion in the practice evidently but was told apparently because of the number of people being swapped there may be a shortage of apixaban ( their DOAC of choice). Because like BobD
OH is still on warfarin. Went for INR today (next in 10 weeks) and asked if this was happening. There has been discussion in the practice evidently but was told apparently because of the number of people being swapped there may be a shortage of apixaban ( their DOAC of choice). Because like BobD
Bagrat
in
AF Association
4 years ago
Covid19 is starting to remind me of CAPS
Has anyone else seen the resemblance of severe covid19 to catastrophic Antiphospholipid syndrome? High D dimer, pulmonary embolism, kidney and liver failure with high cytokine Storm. Treatments are similar as well. Plasma, monoclonal antibodies, HCQ and now most recent success stories include anticoagulant
Has anyone else seen the resemblance of severe covid19 to catastrophic Antiphospholipid syndrome? High D dimer, pulmonary embolism, kidney and liver failure with high cytokine Storm. Treatments are similar as well. Plasma, monoclonal antibodies, HCQ and now most recent success stories include anticoagulant
Roarah
in
LUPUS UK
4 years ago
flecainide
For sometime now I have been able to keep my AFIB under control with Nebivolol but today I have had a very fast and irregular heart beat again, I have taken a flecainide given as a PIP could anyone tell me how long they usually take to slow ones heart down,? with everything going on I have not been
For sometime now I have been able to keep my AFIB under control with Nebivolol but today I have had a very fast and irregular heart beat again, I have taken a flecainide given as a PIP could anyone tell me how long they usually take to slow ones heart down,? with everything going on I have not been
Florenceamelia
in
AF Association
4 years ago
Pelvic pain, Regional Pain Syndrome, Rectal Pain, good news - please read and pass on
Hello Everyone, It has been quite some time that I have been on here, my husband Bryce was suffering from a fissure for 2 months, and Praise be to God it healed! So grateful to God for that. He was still in pain and having spasms up furter in his rectum so he had his internal hemmoroids treated with
Hello Everyone, It has been quite some time that I have been on here, my husband Bryce was suffering from a fissure for 2 months, and Praise be to God it healed! So grateful to God for that. He was still in pain and having spasms up furter in his rectum so he had his internal hemmoroids treated with
brycesara
in
Pelvic Pain Support Network
4 years ago
Re visit to surgery with COVID-19 and INR?
Hello I hope everyone is keeping safe and well. My hubby had two AF ops, the second one in 2013 which thankfully was successful. He opted to go onto warfarin at that time. He is due an INR but is worried about going to the surgery for obvious reasons and we are self isolating. He is 67. His doc phoned
Hello I hope everyone is keeping safe and well. My hubby had two AF ops, the second one in 2013 which thankfully was successful. He opted to go onto warfarin at that time. He is due an INR but is worried about going to the surgery for obvious reasons and we are self isolating. He is 67. His doc phoned
JaneChapple
in
Atrial Fibrillation Support
4 years ago
How can I cope with post-traumatic stress?
I witnessed an event that's scarred me and I was diagnosed with PTSD. How can I cope? It's given me terrible anxiety and I can't sleep.
I witnessed an event that's scarred me and I was diagnosed with PTSD. How can I cope? It's given me terrible anxiety and I can't sleep.
bluebaker01
in
Anxiety and Depression Support
4 years ago
Apixaban
I have changed from Xarelto to Apixaban . I now have really upset gut and tight chest . Is it just me being neurotic or have others experienced this ? I don stand much chance of getting it changed now. I cMe iff Xarelto because of increasing joint pain. Hope you are all well.
I have changed from Xarelto to Apixaban . I now have really upset gut and tight chest . Is it just me being neurotic or have others experienced this ? I don stand much chance of getting it changed now. I cMe iff Xarelto because of increasing joint pain. Hope you are all well.
Luludean
in
AF Association
4 years ago
Just been diagnosed
Hello all . I’ve just been diagnosed with aps, I’ve been on clopidgroil for past 9 months . My blood has tested twice for lupus anticoagulant and I’ve had a mri scan that shows the remains off blood clot in my brain but never felt anything . Just seen consultant and he’s thinking about changing my medication
Hello all . I’ve just been diagnosed with aps, I’ve been on clopidgroil for past 9 months . My blood has tested twice for lupus anticoagulant and I’ve had a mri scan that shows the remains off blood clot in my brain but never felt anything . Just seen consultant and he’s thinking about changing my medication
Nesting
in
Hughes Syndrome APS Forum
4 years ago
Ptsd
I suffer from PTSD as it is, I am trying to be calm with this virus, another traumatic event. But my husband refuses to believe all the things they tell us to do , to be safe. We are also ording from the Jewel for our groceries because of me, he would rather go. When I’m ordering, I’m trying to ask him
I suffer from PTSD as it is, I am trying to be calm with this virus, another traumatic event. But my husband refuses to believe all the things they tell us to do , to be safe. We are also ording from the Jewel for our groceries because of me, he would rather go. When I’m ordering, I’m trying to ask him
Hidden
in
Anxiety and Depression Support
4 years ago
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