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Experiences with
Transurethral resection of the prostate (TURP)
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Next steps after PBRT
Hi all - First and foremost, Happy Holidays. I had my prostate removed 8/22, with subsequent Proton Beam treatment ending 4/23 (after PSA did not drop to undetectable) brought upon after a mild uptake (during a Petscan) in an obturator lymph node. I’m on Orgovyx and Xtandi, with a plan to stay on them
Hi all - First and foremost, Happy Holidays. I had my prostate removed 8/22, with subsequent Proton Beam treatment ending 4/23 (after PSA did not drop to undetectable) brought upon after a mild uptake (during a Petscan) in an obturator lymph node. I’m on Orgovyx and Xtandi, with a plan to stay on them
Vp7174
in
Advanced Prostate Cancer
5 months ago
husband with CRPC needing advice
Dearest fellow Warriors, I am new to the forum and appreciate reading your stories and advice. June 2009, my husband was diagnosed with Prostate Cancer with a PSA of 18 and Gleason 7 - Aug 2009, Radical Prostatectomy - PSA was .03 for two months, then began steadily rising - January 2012, 35 radiations
Dearest fellow Warriors, I am new to the forum and appreciate reading your stories and advice. June 2009, my husband was diagnosed with Prostate Cancer with a PSA of 18 and Gleason 7 - Aug 2009, Radical Prostatectomy - PSA was .03 for two months, then began steadily rising - January 2012, 35 radiations
Betsyhrd
in
Advanced Prostate Cancer
6 months ago
What testosterone test should I get in my final blood test prior to HT starting?
Hi All, I intend on getting my own blood test that will form the baseline for how the future HT is working. When it comes to getting testosterone tests, I note there are a few to select from. Which one should I get from the following list? 1: Testosterone Free/Total + SHBG 2: Testosterone Total
Hi All, I intend on getting my own blood test that will form the baseline for how the future HT is working. When it comes to getting testosterone tests, I note there are a few to select from. Which one should I get from the following list? 1: Testosterone Free/Total + SHBG 2: Testosterone Total
CJ1958
in
Prostate Cancer Network
5 months ago
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Remission
In remission since May 2018. All PSA testing from oncologist has ranged from .04 to .05. Why not have my internist take my PSA yearly? Or is going to my oncologist for testing the better way to go?
In remission since May 2018. All PSA testing from oncologist has ranged from .04 to .05. Why not have my internist take my PSA yearly? Or is going to my oncologist for testing the better way to go?
Coupe31
in
Advanced Prostate Cancer
5 months ago
help - prostate cancer with bone metastasis in bones - patient 70 years old - PERU
Good morning, my dad (70 years old) was diagnosed with prostate cancer (stage 4) in June last year, he had plasma surgery to remove his prostate and cut off his testicles. In March of this year, his PSA rose to 16. In June due to an injury problem, an MRI was performed on his spine in which it was seen
Good morning, my dad (70 years old) was diagnosed with prostate cancer (stage 4) in June last year, he had plasma surgery to remove his prostate and cut off his testicles. In March of this year, his PSA rose to 16. In June due to an injury problem, an MRI was performed on his spine in which it was seen
DiegoFerruaPE
in
Advanced Prostate Cancer
6 months ago
Abiraterone side effect
After 12 doses of abirateron/prednisone I developed a rather severe cough. Even though this is one of the listed side effects of abiraterone my oncologist says that she has never heard of it happening before. Has anyone here ever had this experience and, if so, was there a remedy for the cough or an
After 12 doses of abirateron/prednisone I developed a rather severe cough. Even though this is one of the listed side effects of abiraterone my oncologist says that she has never heard of it happening before. Has anyone here ever had this experience and, if so, was there a remedy for the cough or an
GrantB47
in
Advanced Prostate Cancer
8 months ago
still here
Hi All I like to try and update my journey so you can see that there are some longer term survivors. I am still on 0 PSA with advanced cancer. My journey is on my bio. I was diagnosed at 47 and now I’m 54 with no progression. My primary treatment was Zytiga and it is still working. I take a concoction
Hi All I like to try and update my journey so you can see that there are some longer term survivors. I am still on 0 PSA with advanced cancer. My journey is on my bio. I was diagnosed at 47 and now I’m 54 with no progression. My primary treatment was Zytiga and it is still working. I take a concoction
Apollo123
in
Advanced Prostate Cancer
5 months ago
TURP for prostate cancer patients
It’s more than 6 months since my last post. My dad took Lu-J591 in last August 2022 and I planned to share his experience if the result’s positive. Unfortunately, his PSA did not reduce and now it is 135. From last April, he had suprapubic catheterization because of urine retention. It makes him easily
It’s more than 6 months since my last post. My dad took Lu-J591 in last August 2022 and I planned to share his experience if the result’s positive. Unfortunately, his PSA did not reduce and now it is 135. From last April, he had suprapubic catheterization because of urine retention. It makes him easily
Hidden
in
Advanced Prostate Cancer
1 year ago
In what it says is world first, Hadassah medical team saves fetus’s twisted ovaries
[i]Dr. Noa Ofek Shlomai, head of neonatology at Hadassah Medical Center, holds the baby who successfully underwent surgery immediately following birth to correct bilateral ovarian torsion detected in-utero. Next to them are Dr. Dan Arbel (center), director of the pediatric oncology surgery department
[i]Dr. Noa Ofek Shlomai, head of neonatology at Hadassah Medical Center, holds the baby who successfully underwent surgery immediately following birth to correct bilateral ovarian torsion detected in-utero. Next to them are Dr. Dan Arbel (center), director of the pediatric oncology surgery department
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
10 months ago
Good news for mCRPC (hopefully), phase 2
And here we go: "mCRPC patients who have relapsed or are refractory to androgen receptor signalling inhibitors (ARSIs) such as apalutamide, darolutamide, abiraterone and enzalutamide are included in the study." https://www.clinicaltrialsarena.com/news/oncternal-patient-prostate-cancer/
And here we go: "mCRPC patients who have relapsed or are refractory to androgen receptor signalling inhibitors (ARSIs) such as apalutamide, darolutamide, abiraterone and enzalutamide are included in the study." https://www.clinicaltrialsarena.com/news/oncternal-patient-prostate-cancer/
Maxone73
in
Advanced Prostate Cancer
8 months ago
PSA trippled since last Lupron infusion
My PSA was 0.05 between February 2023 and June 2023, then in September it ticked higher to 0.06 and at yesterday's Lupron injection it was 0.17. Should I be concerned? Anybody with similar experience: what did you do? Am I CR or still CS? Should I ask for Lu-177/Pluvicto ASAP? Thanks for reading.
My PSA was 0.05 between February 2023 and June 2023, then in September it ticked higher to 0.06 and at yesterday's Lupron injection it was 0.17. Should I be concerned? Anybody with similar experience: what did you do? Am I CR or still CS? Should I ask for Lu-177/Pluvicto ASAP? Thanks for reading.
Oldie68
in
Advanced Prostate Cancer
5 months ago
happy holidays …. And a quick update
Just a quick note to wish all the warriors here a happy holidays with friends and family. As an update, I’m off all treatments and my psa remains <0.014. I remain grateful for the respite. My last degeralix injection and darolutamide was in May, and the SBRT to my ribs and neck about 2 years ago
Just a quick note to wish all the warriors here a happy holidays with friends and family. As an update, I’m off all treatments and my psa remains <0.014. I remain grateful for the respite. My last degeralix injection and darolutamide was in May, and the SBRT to my ribs and neck about 2 years ago
PGDuan
in
Advanced Prostate Cancer
5 months ago
Fosfestrol (Honvan)
New paper from India [1]. "
Outcomes and toxicity of oral Fosfestrol in metastatic castration-resistant prostate cancer-a real-world experience
" This brought back memories of being in groups shortly after I was diagnosed. There were men who discussed where to obtain Honvan (Forfestrol) a
New paper from India [1]. "
Outcomes and toxicity of oral Fosfestrol in metastatic castration-resistant prostate cancer-a real-world experience
" This brought back memories of being in groups shortly after I was diagnosed. There were men who discussed where to obtain Honvan (Forfestrol) a
pca2004
in
Fight Prostate Cancer
8 months ago
Is inconsistent bowel and urine part of the Prostate cancer? Also almost like dementia?
The last two months my husband has wet himself many times and almost many more times in the last week he has solid himself 3 times when we were out. He doesn't have diarrhea he says he can't tell he has to go until he HAS to go than it's to late. Also in the last two months he has done things like point
The last two months my husband has wet himself many times and almost many more times in the last week he has solid himself 3 times when we were out. He doesn't have diarrhea he says he can't tell he has to go until he HAS to go than it's to late. Also in the last two months he has done things like point
Bo1948
in
Advanced Prostate Cancer
5 months ago
Hi again, re: Cannabis/THC use for PC
The answers I am getting are more for pain relief. Have there been any studies linking cannabis/THC to curative effects for PC or lowering PSA? Or is it just used for pain relief? Any studies on proven benefits beyond pain relief? Thanks so much. Ran across this study: ncbi.nlm.nih.gov/pmc
The answers I am getting are more for pain relief. Have there been any studies linking cannabis/THC to curative effects for PC or lowering PSA? Or is it just used for pain relief? Any studies on proven benefits beyond pain relief? Thanks so much. Ran across this study: ncbi.nlm.nih.gov/pmc
Cactus297
in
Advanced Prostate Cancer
8 months ago
Change in PSA
My PSA has been <.064 for a couple years. This time it was <.05. The test is always done by the same lab. Does this mean anything?
My PSA has been <.064 for a couple years. This time it was <.05. The test is always done by the same lab. Does this mean anything?
epfj3333
in
Advanced Prostate Cancer
5 months ago
treatment or no treatment?
it’s been almost 3 years since i was diagnosed with a Gleason 8 prostate cancer, confined to the prostate. To date I have elected not to be treated but instead have been monitoring my PSA levels. Originally this was 6 now 15. I am 66 with no symptoms and no other health issues. I have declined treatment
it’s been almost 3 years since i was diagnosed with a Gleason 8 prostate cancer, confined to the prostate. To date I have elected not to be treated but instead have been monitoring my PSA levels. Originally this was 6 now 15. I am 66 with no symptoms and no other health issues. I have declined treatment
Mark2025
in
Advanced Prostate Cancer
6 months ago
Newly diagnosed metastatic PC treatment options
Hi, I'm 68 years old. Here are the key points in my story so far: In July 2023 a blood test showed a PSA value of 45. On September 26 2023, prostate MRI showed a dominant tumor in the prostate with extension into the right seminal vesicle. Also the fat plane between the rectum and prostate is lost
Hi, I'm 68 years old. Here are the key points in my story so far: In July 2023 a blood test showed a PSA value of 45. On September 26 2023, prostate MRI showed a dominant tumor in the prostate with extension into the right seminal vesicle. Also the fat plane between the rectum and prostate is lost
ShorePine
in
Advanced Prostate Cancer
6 months ago
Effects of fenbendazole and vitamin E succinate on the growth and survival of prostate cancer cells
As I mentioned in a previous reply , here is an article on Fenben and VES.I added the VES (400mg} to my Fenben protocol few weeks age taken along with Tudca and Bovine Lactoferrin for my morning dosing. Mid afternoon it's Fenben/DMSO , Evening is Ivermectin / Tudca / Lactoferrin. Herbs etc in between
As I mentioned in a previous reply , here is an article on Fenben and VES.I added the VES (400mg} to my Fenben protocol few weeks age taken along with Tudca and Bovine Lactoferrin for my morning dosing. Mid afternoon it's Fenben/DMSO , Evening is Ivermectin / Tudca / Lactoferrin. Herbs etc in between
85745
in
Advanced Prostate Cancer
8 months ago
Adding Docetaxel to T3b?
My husband is 63, stage T3b N0M0. His biopsy showed all 12 cores positive with 80%+ cancer, GL 4+5 with
intraductal carcinoma
and original PSA was 12. According to PSMA pet scan 12 months ago, he has additional risk factors such as
ECE, SVI, PNI
, but no other spread. He has completed 39
My husband is 63, stage T3b N0M0. His biopsy showed all 12 cores positive with 80%+ cancer, GL 4+5 with
intraductal carcinoma
and original PSA was 12. According to PSMA pet scan 12 months ago, he has additional risk factors such as
ECE, SVI, PNI
, but no other spread. He has completed 39
Adendino
in
Advanced Prostate Cancer
5 months ago
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