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operation steroid taper
Hi all, so I have managed to get down to 5.5 after raising for a week to 10 as thought I was having a flare.It’s difficult to tell if the pain in thighs is a flare or due to the arthritis in my hip. I’m having a hip replacement at the end of next month. My question is should I stay on 5.5 u till after
Hi all, so I have managed to get down to 5.5 after raising for a week to 10 as thought I was having a flare.It’s difficult to tell if the pain in thighs is a flare or due to the arthritis in my hip. I’m having a hip replacement at the end of next month. My question is should I stay on 5.5 u till after
Holycow2
in
PMRGCAuk
8 months ago
bleeding
I have been experiencing bleeding in my mouth, it occurs anytime during the day/ evening. The other night I experienced a blood clot, I have had another dentist appointment and everything is fine. Today I have experienced dull ache in the left side of my chest, even when I am sitting down, I have
I have been experiencing bleeding in my mouth, it occurs anytime during the day/ evening. The other night I experienced a blood clot, I have had another dentist appointment and everything is fine. Today I have experienced dull ache in the left side of my chest, even when I am sitting down, I have
AH31
in
British Heart Foundation
8 months ago
Needing answers....
Emergency OHS in May 2023 to deal with Aortic Aneurysm, tear, hole, clot and valve replacement. Been back and forth to local A&E since with Pneumonia, atrial fib and chest pain. Still having crushing chest and neck pain, problems with speech vocal palsy, exhaustion and light headedness. Just had follow
Emergency OHS in May 2023 to deal with Aortic Aneurysm, tear, hole, clot and valve replacement. Been back and forth to local A&E since with Pneumonia, atrial fib and chest pain. Still having crushing chest and neck pain, problems with speech vocal palsy, exhaustion and light headedness. Just had follow
Hugomum
in
British Heart Foundation
8 months ago
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update!
so after post a couple of days ago regarding I’ve finally been put on the list for total hysterectomy, I got a phone call from the hospital yesterday. I have a date! 8 weeks time! Quite nervous and not looking forward to the recovery phase ( I don’t do sitting still) but at lest it means no more treatments
so after post a couple of days ago regarding I’ve finally been put on the list for total hysterectomy, I got a phone call from the hospital yesterday. I have a date! 8 weeks time! Quite nervous and not looking forward to the recovery phase ( I don’t do sitting still) but at lest it means no more treatments
MrsPaddingtonBear
in
Endometriosis UK
10 months ago
hysterectomy advice
Hi, Can anyone offer any advice? I have grade 4 endo affecting both my bowel and bladder too. I’ve started GNrH injections (had 4) and saw the consultant today for a review and to discuss surgery. Surgery would be a complete hysterectomy but obviously there would be assistance from potential other
Hi, Can anyone offer any advice? I have grade 4 endo affecting both my bowel and bladder too. I’ve started GNrH injections (had 4) and saw the consultant today for a review and to discuss surgery. Surgery would be a complete hysterectomy but obviously there would be assistance from potential other
KTe23
in
Endometriosis UK
10 months ago
Waxing or hair removal when on Warfarin
Hi. I just had a mechanical valve replacement on the 16th of August 2023. I would like to get waxed. Is it possible to? I have never bled before warfarin. Are there other hair removal methods that are safer or can I stick to waxing?
Hi. I just had a mechanical valve replacement on the 16th of August 2023. I would like to get waxed. Is it possible to? I have never bled before warfarin. Are there other hair removal methods that are safer or can I stick to waxing?
Shahirahalkaff
in
Anticoagulation Support
8 months ago
Post Radiotherapy Fatigue
Hello. I had a total hysterectomy with BSO late December followed by 25 days of external beam radiotherapy in March / April. I’m really struggling with fatigue/ low energy levels. Is this normal? I had hoped for sone improvement four and a half months post treatment. I’ve had repeat blood tests to rule
Hello. I had a total hysterectomy with BSO late December followed by 25 days of external beam radiotherapy in March / April. I’m really struggling with fatigue/ low energy levels. Is this normal? I had hoped for sone improvement four and a half months post treatment. I’ve had repeat blood tests to rule
Fika500
in
SHARE Uterine Cancer Support
10 months ago
HRT / zolodex / hormone treatment help
Hi all. I posted recently about my concerns regarding zolodex etc. I think my only next steps is a complete hysterectomy due to my issues. HOWEVER. That being said, everyone seems to manage better withHRT and I'm looking to speak with people who have never been able to tolerate any form of hormone treatment
Hi all. I posted recently about my concerns regarding zolodex etc. I think my only next steps is a complete hysterectomy due to my issues. HOWEVER. That being said, everyone seems to manage better withHRT and I'm looking to speak with people who have never been able to tolerate any form of hormone treatment
Lornalost89
in
Endometriosis UK
8 months ago
At last!
Sooooooo happy! Had my appointment at the hospital today and my consultant finally agreed after 20 horrible long years to put me on the list for a total hysterectomy. Continuing Prostap and Evorell patches till then, but the papers are all signed. So relieved. I really thought he was going to fob me
Sooooooo happy! Had my appointment at the hospital today and my consultant finally agreed after 20 horrible long years to put me on the list for a total hysterectomy. Continuing Prostap and Evorell patches till then, but the papers are all signed. So relieved. I really thought he was going to fob me
MrsPaddingtonBear
in
Endometriosis UK
10 months ago
Estrogen Replacement therapy after surgical menopause
Hi everyone! I would like to chat with somebody who may have or is going through a similar experience. I had a full hysterectomy- removal of everything, over 20 years ago. I am on 2mg of Estrogen once per day. The docs used to do the implant yearly but it is no longer available. I am now 51
Hi everyone! I would like to chat with somebody who may have or is going through a similar experience. I had a full hysterectomy- removal of everything, over 20 years ago. I am on 2mg of Estrogen once per day. The docs used to do the implant yearly but it is no longer available. I am now 51
JenniferBut
in
Menopause and Perimenopause Support
5 months ago
Bowel issues and pain.
Hi everyone. I am hoping one of you lovely brave people may be able to help me. Apologies in advance for the long post. I am 21 weeks post total hysterectomy for Adenomyosis, along with extensive excision of DIE endometriosis, and bowel shave. I have previously had a Bilateral Salpingo Oophorectomy
Hi everyone. I am hoping one of you lovely brave people may be able to help me. Apologies in advance for the long post. I am 21 weeks post total hysterectomy for Adenomyosis, along with extensive excision of DIE endometriosis, and bowel shave. I have previously had a Bilateral Salpingo Oophorectomy
Sandygirl6697
in
Endometriosis UK
10 months ago
Chiropractor or Osteopath
I am currently 10 weeks post op from a TKR and my mobility is good but I am experiencing lower back pain which is different to my usual back pain. I am trying to walk mindfully but am thinking I might need some help but I don't know the difference between a chiropractor and an osteopath. Who could help
I am currently 10 weeks post op from a TKR and my mobility is good but I am experiencing lower back pain which is different to my usual back pain. I am trying to walk mindfully but am thinking I might need some help but I don't know the difference between a chiropractor and an osteopath. Who could help
1vern0n
in
Pain Concern
1 year ago
ovary removed, womb with mirena coil still there . Now in full menopause has anyone else been thru this ? Wot was your journey?
they suspected ovarian cancer so was operated on 2 weeks ago where there the plan was full hysterectomy but they where unable to do this due to severe endo n womb adhered to bowel so badly id have ended up with s stoma n as ovarian tumour there was no rational to take such extreme measures. So ovaries
they suspected ovarian cancer so was operated on 2 weeks ago where there the plan was full hysterectomy but they where unable to do this due to severe endo n womb adhered to bowel so badly id have ended up with s stoma n as ovarian tumour there was no rational to take such extreme measures. So ovaries
madtabby
in
Endometriosis UK
13 hours ago
Finally got a diagnosis of Endometriosis today
I've been on such a journey with my pelvic pain. I'm 50 and I had a hysterectomy 4 months ago for fibroids. A laparoscopy ruled out Endo last year. I was pain free for the first time in months. I started hrt and my original pains 6 weeks ago came back with a vengeance just like they did last year when
I've been on such a journey with my pelvic pain. I'm 50 and I had a hysterectomy 4 months ago for fibroids. A laparoscopy ruled out Endo last year. I was pain free for the first time in months. I started hrt and my original pains 6 weeks ago came back with a vengeance just like they did last year when
Mindfullness4791
in
Endometriosis UK
3 days ago
diagnosed yesterday with Cystoce
For a while I have been suffering with bladder issues, always feeling I needed to go but can never fulfill emptying bladder so constantly in and out of bathroom. After an internal examination Consultant confirmed cervix looked healthy and that I had a prolapsed bladder which was also pushing down on
For a while I have been suffering with bladder issues, always feeling I needed to go but can never fulfill emptying bladder so constantly in and out of bathroom. After an internal examination Consultant confirmed cervix looked healthy and that I had a prolapsed bladder which was also pushing down on
JayceeJC
in
Pelvic Pain Support Network
4 days ago
Difficulty walking. Would pred boost help.
Hello. I haven’t posted lately. I have been diligently tapering .5 mg every 5 to 6 weeks, previously on 9 years of pred with flare and set backs along the way including Avascular necrosis, osteoarthritis DDD to name a few. I am waiting for pain clinic spine injections and a referral to my back Dr. because
Hello. I haven’t posted lately. I have been diligently tapering .5 mg every 5 to 6 weeks, previously on 9 years of pred with flare and set backs along the way including Avascular necrosis, osteoarthritis DDD to name a few. I am waiting for pain clinic spine injections and a referral to my back Dr. because
Nightingales
in
PMRGCAuk
6 days ago
53, Bleeding on HRT and history of Endo
I am 53, post menopausal and been on combined continuous HRT (patches and pills, 75mg patches, 100mg pills) for nearly two years with no problem, my menopause symptoms were HORRENDOUS and the HRT solved them almost overnight…. then a month ago I started heavy bleeding and it hasn’t stopped since, every
I am 53, post menopausal and been on combined continuous HRT (patches and pills, 75mg patches, 100mg pills) for nearly two years with no problem, my menopause symptoms were HORRENDOUS and the HRT solved them almost overnight…. then a month ago I started heavy bleeding and it hasn’t stopped since, every
Brambledoggy
in
Endometriosis UK
7 days ago
Help I can’t take this anymore
currently being treated for ‘suspected endometriosis’ not confirmed and currently still on the waiting list for my lap currently been waiting for 18 months and still being told I’ve been push higher up the list. I have been admitted to hospital 4 times since December 2023 with just being forced to
currently being treated for ‘suspected endometriosis’ not confirmed and currently still on the waiting list for my lap currently been waiting for 18 months and still being told I’ve been push higher up the list. I have been admitted to hospital 4 times since December 2023 with just being forced to
Dayna18
in
Endometriosis UK
8 days ago
primary ovarian insufficiency
Hello, Can anyone help me? I am 37 and still having my period. I am worried that the hrt will mess up my cycle as it is 28 days and my cycle is 25, so it will be out of balance with the patches befer long. is that bad? I dont know. I just want the best chance, and information I have just
Hello, Can anyone help me? I am 37 and still having my period. I am worried that the hrt will mess up my cycle as it is 28 days and my cycle is 25, so it will be out of balance with the patches befer long. is that bad? I dont know. I just want the best chance, and information I have just
JasmineLuianna
in
Fertility Network UK
8 days ago
Update
Good morning everyone. Still warm and breathing, was locked out of my account and only just got back in. When I was first diagnosed with GCA I was on HRT I was told by the Rheumatologist that I should stay on it to protect my bones from the Prednisolone. My DEXA showed normal density probably due
Good morning everyone. Still warm and breathing, was locked out of my account and only just got back in. When I was first diagnosed with GCA I was on HRT I was told by the Rheumatologist that I should stay on it to protect my bones from the Prednisolone. My DEXA showed normal density probably due
EdithWales
in
PMRGCAuk
8 days ago
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