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Views on my test results
New to this forum, so glad to have found it, I was beginning to despair with my GP who explains nothing to me. Shocked to learn how badly thyroid conditions are treated in UK. Began losing my eyebrows 2 years ago and my diverticulitis began flaring up after years of being stable. Various ultrasound
New to this forum, so glad to have found it, I was beginning to despair with my GP who explains nothing to me. Shocked to learn how badly thyroid conditions are treated in UK. Began losing my eyebrows 2 years ago and my diverticulitis began flaring up after years of being stable. Various ultrasound
Norash
in
Thyroid UK
8 months ago
Covid and steroid increase
I’m sure this has been answered before so apologies. I have Covid and on 2.75mg of steroids. Should I increase for few days or should I see how it goes? Thanks
I’m sure this has been answered before so apologies. I have Covid and on 2.75mg of steroids. Should I increase for few days or should I see how it goes? Thanks
Rosina1871
in
PMRGCAuk
8 months ago
Prednisone to Hydrocortisone
My last visit to my rheumatologist she recommended I see an endocrinologist because my most recent Dexa scan (2022) hadn’t improved from my last one (2020). My Dexa scans say osteopenia but my rheumatologist looks at the reports and there’s some other formula that brings me into osteoporosis. So she
My last visit to my rheumatologist she recommended I see an endocrinologist because my most recent Dexa scan (2022) hadn’t improved from my last one (2020). My Dexa scans say osteopenia but my rheumatologist looks at the reports and there’s some other formula that brings me into osteoporosis. So she
1951grumpa
in
PMRGCAuk
8 months ago
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Travel
Morning all, hope you can help me , I'm travelling to Kenya in November I've just seen on the government website that if your taking steroids ie prednisolone you maynot be able to have the yellow fever vaccination. Is this correct has anyone travelled to Kenya with this issue. I'm taking 6mg a day .
Morning all, hope you can help me , I'm travelling to Kenya in November I've just seen on the government website that if your taking steroids ie prednisolone you maynot be able to have the yellow fever vaccination. Is this correct has anyone travelled to Kenya with this issue. I'm taking 6mg a day .
Kazm04
in
PMRGCAuk
8 months ago
Ibrutinib failure
Hi folks,I’m lying here in hospital UK where I’ve been for the last 8 days,just looking for a few pointers.A couple of months ago my glands were out of control,the size of half a pear,as opposed to the little hazelnuts I’m used to seeing occasionally.They completely filled my neck,jawline..small ones
Hi folks,I’m lying here in hospital UK where I’ve been for the last 8 days,just looking for a few pointers.A couple of months ago my glands were out of control,the size of half a pear,as opposed to the little hazelnuts I’m used to seeing occasionally.They completely filled my neck,jawline..small ones
Nickos66
in
CLL Support
8 months ago
VERTEBROPLASTY OP WENT FINE - SO FAR, SO GOOD
I did not have the luxury of asking anesthesiologist about Pred dose as there wasn't one present. I was awake for the entire procedure and op nurse administered an opioid and a medication when I requested it. Very relaxed but not "high". Also an antibiotic was included and I now have the same one at
I did not have the luxury of asking anesthesiologist about Pred dose as there wasn't one present. I was awake for the entire procedure and op nurse administered an opioid and a medication when I requested it. Very relaxed but not "high". Also an antibiotic was included and I now have the same one at
Missus835
in
PMRGCAuk
8 months ago
returning Sweets
I had sweets 20 years ago on my face. It took nearly a year of steroids for it to go. I thought that was it. Over the last 6 months i had raised red/purple rashes on my legs didn't think anything about it until some said it can recur and when i looked at the rash there was no doubt it is sweets. I'm
I had sweets 20 years ago on my face. It took nearly a year of steroids for it to go. I thought that was it. Over the last 6 months i had raised red/purple rashes on my legs didn't think anything about it until some said it can recur and when i looked at the rash there was no doubt it is sweets. I'm
AMS2010
in
Sweet's Syndrome UK
8 months ago
nasal wash
Had bronchiectasis eventually diagnosed after c.t. Scan 15 months ago. Have asthma allergies and long COVID etc etc I’m often on antibiotics and steroids since diagnosis and pollution seems to really exacerbate my condition . That explains why I’ve always been better by the sea. I ve gone the longest
Had bronchiectasis eventually diagnosed after c.t. Scan 15 months ago. Have asthma allergies and long COVID etc etc I’m often on antibiotics and steroids since diagnosis and pollution seems to really exacerbate my condition . That explains why I’ve always been better by the sea. I ve gone the longest
honeysuckle78
in
Bronchiectasis Support
8 months ago
Rituximab adverse reaction to pre-meds
Hi I have Vasculitis GPA I have my fourth dose of rituximab coming up in a few weeks. I seem to have a reaction to the pre-meds they give prior to the rituximab infusion. One of the pre-med drugs I believe to be a steroid of some description. The history so far... Dose 1 - I was in hospital and
Hi I have Vasculitis GPA I have my fourth dose of rituximab coming up in a few weeks. I seem to have a reaction to the pre-meds they give prior to the rituximab infusion. One of the pre-med drugs I believe to be a steroid of some description. The history so far... Dose 1 - I was in hospital and
Gurberly
in
Vasculitis UK
8 months ago
Acute on Chronic Steroids
brother has had cirrhosis for last 3 years. Still drinking. Admitted to hospital Friday jaundice. Confusion HE I believe! Now on steroids. Has anyone any experience of this. Know that they are only given to certain people! Do you think this is now certain decline? Consultant said too early to tell
brother has had cirrhosis for last 3 years. Still drinking. Admitted to hospital Friday jaundice. Confusion HE I believe! Now on steroids. Has anyone any experience of this. Know that they are only given to certain people! Do you think this is now certain decline? Consultant said too early to tell
DQ33
in
British Liver Trust
8 months ago
Steroids and Covid Vaccination
Covid vaccination is now due, am not sure whether to book or not. is it ok to have this whilst on steroids ?
Covid vaccination is now due, am not sure whether to book or not. is it ok to have this whilst on steroids ?
gillsky8
in
PMRGCAuk
8 months ago
15 yrs of PMR , now it’s fibromyalgia
After many years of up and down with PMR and steroids at 20 mg down to 3 mg , and up and down on them due to flair ups . Last year when I have felt the dreaded continued fatigue and soreness into both my hips I had tests on my adrenal glands , all neg. so when I saw my rheumatologist after over a year
After many years of up and down with PMR and steroids at 20 mg down to 3 mg , and up and down on them due to flair ups . Last year when I have felt the dreaded continued fatigue and soreness into both my hips I had tests on my adrenal glands , all neg. so when I saw my rheumatologist after over a year
Avadip12
in
PMRGCAuk
8 months ago
Constant green phlegm since March 2023
Hello. I was diagnosed with asthma in 2019 after a nasty chest infection where the GP said my chest was very wheezy and suggested that she thought I had asthma. It was confirmed over the next 2 months by spirometry and peak flow with the asthma nurse. I was given Fostair 200/6 and used it until February
Hello. I was diagnosed with asthma in 2019 after a nasty chest infection where the GP said my chest was very wheezy and suggested that she thought I had asthma. It was confirmed over the next 2 months by spirometry and peak flow with the asthma nurse. I was given Fostair 200/6 and used it until February
Rhirhi234
in
Asthma Community Forum
8 months ago
sacroilitis-advice please
Hello Currently on HCQ 400mg Mepacrine 50mg Clopidogrel 75 Asprin 75 Ikervis eye drops having the most awful sacroilitis, steroids helped but off them now Anyone else suffered this and what treatment were you offered thank You
Hello Currently on HCQ 400mg Mepacrine 50mg Clopidogrel 75 Asprin 75 Ikervis eye drops having the most awful sacroilitis, steroids helped but off them now Anyone else suffered this and what treatment were you offered thank You
bathouse
in
LUPUS UK
8 months ago
no wheeze
I feel like the nurse isn’t listening! My daughters asthma has gradually been getting worse since Friday and taking Ventolin daily. Oxygen been around 95. Usual peek around 360 today was 220. She’s complaining of being tight but the nurse said there’s no wheeze and oxygens at 96 when at doctors so there
I feel like the nurse isn’t listening! My daughters asthma has gradually been getting worse since Friday and taking Ventolin daily. Oxygen been around 95. Usual peek around 360 today was 220. She’s complaining of being tight but the nurse said there’s no wheeze and oxygens at 96 when at doctors so there
GGchar
in
Asthma Community Forum
8 months ago
Steroids _ I hate them!
I have been on prednisolone for 12 years because of Lupus, I am on 5mg daily. Two years ago I started Sarilumab SC injection once a fortnight which appears to be working . I really want to come off prednisolone, to try and get some weight off. My Consultant was going through my drugs
I have been on prednisolone for 12 years because of Lupus, I am on 5mg daily. Two years ago I started Sarilumab SC injection once a fortnight which appears to be working . I really want to come off prednisolone, to try and get some weight off. My Consultant was going through my drugs
rubybelle12
in
LUPUS UK
8 months ago
flare and steroids
hi I’m only on hydroxycholoquine and currently having a flare- a lot of muscle and neck pain and GI pain- Will taking a course of steroids help? thanks 🙏
hi I’m only on hydroxycholoquine and currently having a flare- a lot of muscle and neck pain and GI pain- Will taking a course of steroids help? thanks 🙏
TillyO
in
LUPUS UK
8 months ago
Advice Please
Good Morning All I am currently down to 2 mg steroids . Pain free hooray!! My question is as my Dr says no need for test for Adrenal function at this time can I assume that mine are working ok.
Good Morning All I am currently down to 2 mg steroids . Pain free hooray!! My question is as my Dr says no need for test for Adrenal function at this time can I assume that mine are working ok.
Nanny71
in
PMRGCAuk
8 months ago
Reducing steroids after illness
I should know this and I have written it down somewhere. When I first had the acute urinary infection I doubled up from 5mgs of Prednisolone to 10 and my CRP was 270, it was 70 last week and I was told to continue doubling until I had finished the antibiotics which I did today. As it is only 12 days
I should know this and I have written it down somewhere. When I first had the acute urinary infection I doubled up from 5mgs of Prednisolone to 10 and my CRP was 270, it was 70 last week and I was told to continue doubling until I had finished the antibiotics which I did today. As it is only 12 days
EdithWales
in
PMRGCAuk
8 months ago
Reducing steroids
Have been diagnosed with PMR early 2023.I started on 15mg and have been told by GP to reduce to 5mg. Have taken 15mg for just over two months, reduced to 12.5 for two weeks then to 10 for two weeks, I'm getting some really bad headaches is this too guick or is this normal
Have been diagnosed with PMR early 2023.I started on 15mg and have been told by GP to reduce to 5mg. Have taken 15mg for just over two months, reduced to 12.5 for two weeks then to 10 for two weeks, I'm getting some really bad headaches is this too guick or is this normal
Spudleyboy
in
PMRGCAuk
8 months ago
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