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passionflower
I’m now 70 and have had rheumatoid arthritis since I was a teenager this is in my family I went into remission at 15 married in my 20 ‘s had two children it came back when I hit the menopause and I’ve been on lots of medication and dmard the last being benipali injections that was very good until I contracted
I’m now 70 and have had rheumatoid arthritis since I was a teenager this is in my family I went into remission at 15 married in my 20 ‘s had two children it came back when I hit the menopause and I’ve been on lots of medication and dmard the last being benipali injections that was very good until I contracted
Passionflower
in
NRAS
6 months ago
Asthma & heart rate
I’m not having much luck with my asthma lately. Having just had the second course of steroids in 2 months, it would seem that this exacerbation had also affected my heart, leading to an irregular heartbeat. I seem to recall a similar thing happening to me about 5 years ago, when I had a chest infection
I’m not having much luck with my asthma lately. Having just had the second course of steroids in 2 months, it would seem that this exacerbation had also affected my heart, leading to an irregular heartbeat. I seem to recall a similar thing happening to me about 5 years ago, when I had a chest infection
Gymbearo
in
Asthma Community Forum
6 months ago
COVID Vaccination
thing I made a bad decision yesterday. After cancelling twice yesterday I had my 5th vaccine. Today is day 11 of steroids and I’m feeling I’ve gone backwards. Gp had said it was ok to have the jab but I’m not so sure.
thing I made a bad decision yesterday. After cancelling twice yesterday I had my 5th vaccine. Today is day 11 of steroids and I’m feeling I’ve gone backwards. Gp had said it was ok to have the jab but I’m not so sure.
lynda1955
in
PMRGCAuk
6 months ago
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Is eosinophilic asthma mostly severe?
Hi, I am just looking for info really I was wondering about eosinophilic asthma, how common is it and is it always severe or are most cases mild? I have had chronic rhinitis with nasal polyps for a decade now and because my mum has asthma I was told that I’l likely get it (I am assuming the eosinophilic
Hi, I am just looking for info really I was wondering about eosinophilic asthma, how common is it and is it always severe or are most cases mild? I have had chronic rhinitis with nasal polyps for a decade now and because my mum has asthma I was told that I’l likely get it (I am assuming the eosinophilic
Unfocusedarrow
in
Asthma Community Forum
6 months ago
Maybe not PMR update 5 years on
Good morning after 5 years next month on steroids with a PMR diagnosis I am headed down a different treatment path. I spoke to a musculoskeletal specialist in UK who questioned if I had ever had PMR due to my original diagnosis blood test showing a CRP result of 6 and an ESR of 1, whilst acknowledging
Good morning after 5 years next month on steroids with a PMR diagnosis I am headed down a different treatment path. I spoke to a musculoskeletal specialist in UK who questioned if I had ever had PMR due to my original diagnosis blood test showing a CRP result of 6 and an ESR of 1, whilst acknowledging
Pawscat11
in
PMRGCAuk
1 month ago
Is it the Shingles vaccination or Prednisone reduction?
I was on the third week of lowering pred dose from 5mg to 4.5 using the five week go slow method. I was feeling good. The day after the Shingles injection I began to feel ill with severe stomach pains digestive upset, headache, lightheaded, Insomnia but extreme tiredness. Could it be simply the fact
I was on the third week of lowering pred dose from 5mg to 4.5 using the five week go slow method. I was feeling good. The day after the Shingles injection I began to feel ill with severe stomach pains digestive upset, headache, lightheaded, Insomnia but extreme tiredness. Could it be simply the fact
Sumojo
in
PMRGCAuk
6 months ago
Update on inflammation/injections
2 months ago I put information on the site about my upcoming injections at the top of my neck just below my skull, which was said to be Facet Joint injections, and maybe the cause of where the inflammation might be coming from, and therefore may not be Polymyalgia after all, which I have had for six
2 months ago I put information on the site about my upcoming injections at the top of my neck just below my skull, which was said to be Facet Joint injections, and maybe the cause of where the inflammation might be coming from, and therefore may not be Polymyalgia after all, which I have had for six
Purplegloss
in
PMRGCAuk
6 months ago
Taking so many drugs ...
Hi all - I posted on here recently as I had an asthma flare up whilst in India. Well, couldn't make it home without seeing a doctor 😕 He said it was pollution induced and gave me a short course of methylprednisolone, omeprazole, anti histamines, cough medicine and antibiotics!!! He also said he couldn't
Hi all - I posted on here recently as I had an asthma flare up whilst in India. Well, couldn't make it home without seeing a doctor 😕 He said it was pollution induced and gave me a short course of methylprednisolone, omeprazole, anti histamines, cough medicine and antibiotics!!! He also said he couldn't
Padders
in
Asthma Community Forum
6 months ago
Recurring chest infections and phlegmy cough
Hi, I have had asthma since I was a teenager and excema all my life. I am 57 years old. For most of my life, I have managed my asthma well. I was very sporty in my youth playing squash, badminton and tennis. I could go for very long walks with my dogs up until about 18mths ago. So I have always regarded
Hi, I have had asthma since I was a teenager and excema all my life. I am 57 years old. For most of my life, I have managed my asthma well. I was very sporty in my youth playing squash, badminton and tennis. I could go for very long walks with my dogs up until about 18mths ago. So I have always regarded
Teach66
in
Asthma Community Forum
6 months ago
Diagnosis About Turn?
Evening all, I joined this group 3 weeks ago - quite relieved to have been diagnosed - finally! The 'symptoms' literature that the GP had given me was absolutely spot on, as was everything I read in Kate Gilberts book - even my husband was gob smacked that everything seemed to fit. But, as of yesterday
Evening all, I joined this group 3 weeks ago - quite relieved to have been diagnosed - finally! The 'symptoms' literature that the GP had given me was absolutely spot on, as was everything I read in Kate Gilberts book - even my husband was gob smacked that everything seemed to fit. But, as of yesterday
Hopeful66
in
PMRGCAuk
6 months ago
Out of hospital Pt2
I've escaped again. At least this time I feel lots better. I'm on more steroids. Slowly reducing and Anakinra... daily biologic. It's an actual syringe job so it's as well I'm a vet and used to giving injections. It's worse injecting yourself but I'll get on with it. Fingers crossed I'll be a new woman
I've escaped again. At least this time I feel lots better. I'm on more steroids. Slowly reducing and Anakinra... daily biologic. It's an actual syringe job so it's as well I'm a vet and used to giving injections. It's worse injecting yourself but I'll get on with it. Fingers crossed I'll be a new woman
wilbertjellyfish
in
NRAS
6 months ago
Johnk
I have been suffering with PMR for over 4 years. Started steroids 15mg to 4 mg monthly twice, then 8mg to 4mg. After which I have been on 5mg for a further 2 months and advised to stay on this dosage.I'm also now taking 20mg Methotrexate once a week. Still experiencing stiffness and pain.
I have been suffering with PMR for over 4 years. Started steroids 15mg to 4 mg monthly twice, then 8mg to 4mg. After which I have been on 5mg for a further 2 months and advised to stay on this dosage.I'm also now taking 20mg Methotrexate once a week. Still experiencing stiffness and pain.
Porridgelove
in
PMRGCAuk
6 months ago
steroids and ivf
6 transfers all BFN Next FET I was wondering if worth testing for uterine NK, Emma, Alice and ERA is coming to £3500, with a 2 month wait. My consultant is happy to prescribe steroids, clexane and aspirin without the text which is so much cheaper. Wondered if anyone else has done this and got a
6 transfers all BFN Next FET I was wondering if worth testing for uterine NK, Emma, Alice and ERA is coming to £3500, with a 2 month wait. My consultant is happy to prescribe steroids, clexane and aspirin without the text which is so much cheaper. Wondered if anyone else has done this and got a
Pkm4321
in
Fertility Network UK
6 months ago
Can’t reduce below 5mg
hello I’ve just joined this group in the hope that I can get some advice or at least some understanding of my situation! I was diagnosed with PMR nearly 2 years ago when I was 58. I’ve been on Prednisolone ever since, starting on 20mg which resulted in the usual miraculous sense of relief, and have managed
hello I’ve just joined this group in the hope that I can get some advice or at least some understanding of my situation! I was diagnosed with PMR nearly 2 years ago when I was 58. I’ve been on Prednisolone ever since, starting on 20mg which resulted in the usual miraculous sense of relief, and have managed
Apple6
in
PMRGCAuk
6 months ago
Shaking and 'nervy'
I've experienced shaking quite a lot since taking steroids for about eighteen months but now I seem to be in a constant nervous state, not "me" at all. I wake up by 5.00 every morning with my heart thumping and feeling shaky. I've tried the usual Rescue Remedy etc. ( but that just makes me cough) I've
I've experienced shaking quite a lot since taking steroids for about eighteen months but now I seem to be in a constant nervous state, not "me" at all. I wake up by 5.00 every morning with my heart thumping and feeling shaky. I've tried the usual Rescue Remedy etc. ( but that just makes me cough) I've
Countrykitten
in
PMRGCAuk
6 months ago
Rheumatology
Having read several times on here, it would seem that most people have had regular blood tests and rheumatology appointment. I have been on high dose steroids for PMR, for around 2 years. I am gradually cutting this right down to 3mg. I have never seen a rheumatologist, my doctor doesn't think it is
Having read several times on here, it would seem that most people have had regular blood tests and rheumatology appointment. I have been on high dose steroids for PMR, for around 2 years. I am gradually cutting this right down to 3mg. I have never seen a rheumatologist, my doctor doesn't think it is
Linbin1
in
PMRGCAuk
6 months ago
Prednisolone Update & Questions
Morning all! Thought I'd update on my Prednisolone journey...... Well, currently about to start day 3 of the treatment. Been asked to take 30mg for a week.....things have definitely improved for me. Pre the steroids on Monday morning, I think I had my worst day ever.....pure agony, arms like twigs,
Morning all! Thought I'd update on my Prednisolone journey...... Well, currently about to start day 3 of the treatment. Been asked to take 30mg for a week.....things have definitely improved for me. Pre the steroids on Monday morning, I think I had my worst day ever.....pure agony, arms like twigs,
Paulx222
in
PMRGCAuk
6 months ago
Negative again
I wish so much I could have posted a positive outcome. It’s 5:30am and I’m lying here , quite numb. No tears at all, just emptiness. I had a feeling it was negative but was still hopeful. Thinking surely this must be our time?! I find the hardest part now is telling my husband, breaking his heart too
I wish so much I could have posted a positive outcome. It’s 5:30am and I’m lying here , quite numb. No tears at all, just emptiness. I had a feeling it was negative but was still hopeful. Thinking surely this must be our time?! I find the hardest part now is telling my husband, breaking his heart too
Rol81
in
Fertility Network UK
6 months ago
is this a flare
I was diagnosed with GCA in Dec 2022, put on 30mg prednisolone, ultra sound delayed by 10 days and had negative result, within a few days of the prednisolone the headaches neck pain and scalp pain all gone, I gradually tapered to 12 and half mg last September, have had many side effects, weight gain,
I was diagnosed with GCA in Dec 2022, put on 30mg prednisolone, ultra sound delayed by 10 days and had negative result, within a few days of the prednisolone the headaches neck pain and scalp pain all gone, I gradually tapered to 12 and half mg last September, have had many side effects, weight gain,
Mumdadlove
in
PMRGCAuk
1 month ago
Appointment Update
Hello. Following my recent post about my dry eyes, I had my follow-up appointment on Monday nearly 4 months post right trabeculectomy & it did not go well. Had a visual field test and eye scan. No change to my right eye but my left eye continues to lose peripheral vision. The pressure was elevated even
Hello. Following my recent post about my dry eyes, I had my follow-up appointment on Monday nearly 4 months post right trabeculectomy & it did not go well. Had a visual field test and eye scan. No change to my right eye but my left eye continues to lose peripheral vision. The pressure was elevated even
Mitziecat
in
Glaucoma UK
2 months ago
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