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flare?
Good morning everyone I need some advice on steroid dose please. I have severe asthma as well as pmr . Last December as I was recovering from an asthma flare up I got covid. I have not yet recovered, it feels like one step forward two steps back. So far this year I’ve had two lots of antibiotics
Good morning everyone I need some advice on steroid dose please. I have severe asthma as well as pmr . Last December as I was recovering from an asthma flare up I got covid. I have not yet recovered, it feels like one step forward two steps back. So far this year I’ve had two lots of antibiotics
Yellow-dog
in
PMRGCAuk
2 months ago
Update on Ven & Obin protocol
I’m all the way through the ramp up on Venetaclax - just started 400 mg and have 2-3 more Obin infusions. Here is what I’ve found: 1. Insist on anti nausea meds with Obin for premeds. Once I did that the single episode of throwing up with the first infusion was resolved. Also, I requested a vein
I’m all the way through the ramp up on Venetaclax - just started 400 mg and have 2-3 more Obin infusions. Here is what I’ve found: 1. Insist on anti nausea meds with Obin for premeds. Once I did that the single episode of throwing up with the first infusion was resolved. Also, I requested a vein
SunnyCA
in
CLL Support
2 months ago
High blood pressure
Hi Everyone, This is my first time posting. I went to the Doctors on Friday as a precaution , with sore throat and generally feeling unwell- I was diagnosed with RA at Christmas so I've been on a steep learning curve since. Everydays a school day! Whilst there my blood pressure was checked and it
Hi Everyone, This is my first time posting. I went to the Doctors on Friday as a precaution , with sore throat and generally feeling unwell- I was diagnosed with RA at Christmas so I've been on a steep learning curve since. Everydays a school day! Whilst there my blood pressure was checked and it
MelB71
in
NRAS
2 months ago
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chemo pain advice
Hi everyone- my husband had is first infusion of Taxotere last Thursday and it’s been really rough on him. He had steroids and as soon as those wore off the pain started. He’s on triplet therapy. Stage 4 with Mets. First he had hiccups for 36-48 straight and now getting on and off. Joint and what
Hi everyone- my husband had is first infusion of Taxotere last Thursday and it’s been really rough on him. He had steroids and as soon as those wore off the pain started. He’s on triplet therapy. Stage 4 with Mets. First he had hiccups for 36-48 straight and now getting on and off. Joint and what
Sunnysailor
in
Advanced Prostate Cancer
2 months ago
My experience at "Older Persons" clinic....
Was seen very quickly for bp and weight...bp always very high at any surgery......it was 180/80......it:s 150/70 at home...Anyway was then called in to see the doctor.......she talked about my bp and dizziness/balance....and everything according to her is because of steroids!......she more or less said
Was seen very quickly for bp and weight...bp always very high at any surgery......it was 180/80......it:s 150/70 at home...Anyway was then called in to see the doctor.......she talked about my bp and dizziness/balance....and everything according to her is because of steroids!......she more or less said
Longtimer
in
PMRGCAuk
2 months ago
Bronchiecstasis and asthma
been suffering, flare up with antibiotics and steroids since beginning of December. In desperation I rang GP this morning to get form for a sputum test at hospital. Was told I have to speak with a doctor and couldn’t have that appointment until Thursday! Have now left a message with Consultant’s secretary
been suffering, flare up with antibiotics and steroids since beginning of December. In desperation I rang GP this morning to get form for a sputum test at hospital. Was told I have to speak with a doctor and couldn’t have that appointment until Thursday! Have now left a message with Consultant’s secretary
kenta
in
Lung Conditions Community Forum
2 months ago
Masks
Hi, Just a general enquiry as to whether people on this forum with PMR and on steroids are still wearing masks? I am at present, but seem to be the only one in shops, occasional very short bus journeys etc who is! I'm currently on 6.5mgs. Just wondering how immune suppressed I actually am after 2 yrs
Hi, Just a general enquiry as to whether people on this forum with PMR and on steroids are still wearing masks? I am at present, but seem to be the only one in shops, occasional very short bus journeys etc who is! I'm currently on 6.5mgs. Just wondering how immune suppressed I actually am after 2 yrs
Pusph
in
PMRGCAuk
2 months ago
normal blood results
Hi, this is my first post so hope you all bear with me! To go back to the beginning, in late 2021 I was eventually given a diagnosis of “it’s probably polymyalgia.” This was after my gp getting in touch with a rheumatologist to get some advice as my blood results all came back normal. My symptoms were
Hi, this is my first post so hope you all bear with me! To go back to the beginning, in late 2021 I was eventually given a diagnosis of “it’s probably polymyalgia.” This was after my gp getting in touch with a rheumatologist to get some advice as my blood results all came back normal. My symptoms were
Kitforcats
in
PMRGCAuk
2 months ago
Fatigue.. bloods good. Is remission over and SLL back?
SLL 2016 - bloods good, bulky lymph nodesBR x6 rounds 2019 Remission 2024: bloods all good - bad fatigue is back Is remission over, or is it something else? Had a thought: if I took steroids, that would typically 'flush' the CLL cells out of hiding in my lymph nodes.. then a blood test would better
SLL 2016 - bloods good, bulky lymph nodesBR x6 rounds 2019 Remission 2024: bloods all good - bad fatigue is back Is remission over, or is it something else? Had a thought: if I took steroids, that would typically 'flush' the CLL cells out of hiding in my lymph nodes.. then a blood test would better
Shedman
in
CLL Support
2 months ago
Feeling dreadful but doc says results are fine!
Hi there, I was diagnosed with underactive thyroid back in July 2020. I was prescribed 25mg levothyroxine which was increased to 50mg after 6 months. Shortly after starting levothyroxine I started getting stiffness in my neck and shoulders along with pain in my hips and groin - the only way I can
Hi there, I was diagnosed with underactive thyroid back in July 2020. I was prescribed 25mg levothyroxine which was increased to 50mg after 6 months. Shortly after starting levothyroxine I started getting stiffness in my neck and shoulders along with pain in my hips and groin - the only way I can
FlamingoPenguin
in
Thyroid UK
2 months ago
Is an Alkaline Phosphate level of 71 (UK) good?
Is an Alkaline Phosphate level of 71 (UK) good? Was put on steroids to deal with newly diagnosed PMR and they fell by 20 units in 2 weeks!
Is an Alkaline Phosphate level of 71 (UK) good? Was put on steroids to deal with newly diagnosed PMR and they fell by 20 units in 2 weeks!
Gioielli5
in
PBC Foundation
2 months ago
Diet and asthma
[i]
**Moderator comment** When replying to this post, please be mindful of the community guidelines and don't post about unproven diets which claim to help or cure asthma. Any replies of this kind will be immediately removed in line with community guidelines, which can be found here: https://healthunlocked.com
[i]
**Moderator comment** When replying to this post, please be mindful of the community guidelines and don't post about unproven diets which claim to help or cure asthma. Any replies of this kind will be immediately removed in line with community guidelines, which can be found here: https://healthunlocked.com
Asthmaquiter
in
Asthma Community Forum
2 months ago
Help with rehab at home after acute phase of autoimmune encephalitis for my 16 year old
I am mum to a 16 year old daughter who has recently been diagnosed with autoimmune encephalitis. After several weeks in and out of A&E and several other departments, where they thought it was psychological, we were referred to the neurologists by the psychiatrist who after several tests diagnosed AE
I am mum to a 16 year old daughter who has recently been diagnosed with autoimmune encephalitis. After several weeks in and out of A&E and several other departments, where they thought it was psychological, we were referred to the neurologists by the psychiatrist who after several tests diagnosed AE
Cat29red
in
Encephalitis Society
2 months ago
Steroids for COPD flare up
My COP D rarely has a flare up but recently I started producing increased amounts of very sticky mucus. On Monday I got an appointment with the respiratory nurse who prescribed anti biotics and steroids which I have not had for years. I took the first dose with no problems. Today about an hour after
My COP D rarely has a flare up but recently I started producing increased amounts of very sticky mucus. On Monday I got an appointment with the respiratory nurse who prescribed anti biotics and steroids which I have not had for years. I took the first dose with no problems. Today about an hour after
deejames
in
Lung Conditions Community Forum
2 months ago
Rheumatology appointment update
Hi All, Hope you're all well/well as expected. Just thought I would update on my situation as I saw Dr Cheung again today for a follow up. Those who have been following will know I have had a few issues after having been diagnosed with PMR in December '23 I had to up my dose of prednisolone to 15mg
Hi All, Hope you're all well/well as expected. Just thought I would update on my situation as I saw Dr Cheung again today for a follow up. Those who have been following will know I have had a few issues after having been diagnosed with PMR in December '23 I had to up my dose of prednisolone to 15mg
Paulx222
in
PMRGCAuk
2 months ago
Polymyalgia or fibromyalgia?
I had a bad chest infection and adthma flare that took two sets of steroids and antibiotics and high dose steroid inhaler to resolve. Within a week of coming off the medication l became aware very quickly of my thighs, lower back and shoulders and neck being stiff and sore. I was struggling to walk
I had a bad chest infection and adthma flare that took two sets of steroids and antibiotics and high dose steroid inhaler to resolve. Within a week of coming off the medication l became aware very quickly of my thighs, lower back and shoulders and neck being stiff and sore. I was struggling to walk
bde987
in
PMRGCAuk
2 months ago
Periorbital necrotizing sweet syndrome
Periorbital necrotizing sweet syndrome: A report of two cases mimicking necrotizing soft tissue infections, Mar 2024. https://pubmed.ncbi.nlm.nih.gov/38487334/ 2 patients with necrotizing Sweet's syndrome - a 74-year-old female with myelodysplastic syndrome, and a 40-year-old female with acute myeloid
Periorbital necrotizing sweet syndrome: A report of two cases mimicking necrotizing soft tissue infections, Mar 2024. https://pubmed.ncbi.nlm.nih.gov/38487334/ 2 patients with necrotizing Sweet's syndrome - a 74-year-old female with myelodysplastic syndrome, and a 40-year-old female with acute myeloid
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
2 months ago
SLE flare up
Hello everyone I’m after some advice please. At the moment I’m having an SLE flare up that is affecting my lower legs , I have got open wounds on both ankles they are looking like ulcers, I’m also struggling to walk and keep getting infections and have very bad pins and needles I'm currently on Steroids
Hello everyone I’m after some advice please. At the moment I’m having an SLE flare up that is affecting my lower legs , I have got open wounds on both ankles they are looking like ulcers, I’m also struggling to walk and keep getting infections and have very bad pins and needles I'm currently on Steroids
COCO66lola
in
LUPUS UK
2 months ago
blood tests
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
Tonkie
in
LUPUS UK
2 months ago
First NHS Endo Apt - a battle story
I finally have an NHS endo apt (which they cancelled but I begged to get reinstated) and wanted to be armed with questions - can you help? ... Short story is I've been battling joint/limb pain/numbness for 5 years and been through many departments and had MRI/PET SCANs - all clear. MS/Rheumatism/Lupus
I finally have an NHS endo apt (which they cancelled but I begged to get reinstated) and wanted to be armed with questions - can you help? ... Short story is I've been battling joint/limb pain/numbness for 5 years and been through many departments and had MRI/PET SCANs - all clear. MS/Rheumatism/Lupus
CherryPie2
in
Thyroid UK
2 months ago
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